[nfb-db] nfb-db Digest, Vol 43, Issue 11
Scott Davert
scottdavert at gmail.com
Fri Aug 24 13:39:14 UTC 2012
Hello Cathy.
Some of us, like myself, are quite disenfranchised. In otherwards,
someone like me would be coming not to represent any organization, but
as myself. As you put before, organizations don't work to get things
done, people do. When do you plan to go to DC?
Scott
On 8/23/12, Janice Toothman <janice.toothman at verizon.net> wrote:
> Cathy,
> I know Randy Pope well from the MWADB. What is a White Paper? I
> appreciate all your ideas and enthusiasm. I will be meeting with Burnell
> this Monday to discuss this with her.
> Janice
> On 8/22/2012 9:27 PM, Catherine Miller wrote:
>> Janice: I like you more and more every time we talk. The list you speak
>> of (talking points if I follow you) is most definitely the thing to
>> develop and to be familiar with, inside and out, before we bring up the
>> conversation with chapter and affiliate leaders. The AADB web site used
>> to have a pretty comprehensive anallysis, bit I haven't visited it lately.
>> Be sure to read the White Paper on SSPs if you haven't already. You
>> couldn't be more on the mark. Even though there is plenty of information
>> out there, we should brainstorm to be sure we're satisfied with the DB
>> Division's version of what we're working with.
>>
>> There are some great DB folks in the metro DC area. My absolute favorite
>> is Randy Pope who resigned last year from his post as president of the
>> AADB. He has a multi-cultural perspective of deaf-blindness, and he would
>> make one of our strongest allies. If Burnell wants to revisit her attempt
>> at creating a DB group in metro DC, then my prospective visit would be a
>> perfect time, althought possibly with a new frame. That's a whole other
>> story that we'll get around to in the next few months.
>>
>> Also, I'm thinking of my trip to DC not as a solo trip, but as a sort of
>> summit for deaf-blind people everywhere who can find their way there. The
>> difficulty with holding meetings of deaf-blind people is the communication
>> factor. In a perfect world, every single one of us would have our own
>> personal SSP along with all the technology we need to communicate
>> effectively. But SSPs are very expensive. That's why AADB does not have
>> a convention recently.No one can afford it, and no one i offering to
>> sponsor it at this time. We can't getFederal bucks for SSPs because we
>> don't have SSPs to meet. Therefor, I am at this time suggesting that
>> those who attend either pay their own way, including their SSP, or come as
>> the designated representative of some stakeholder organization. For
>> example if my friend who is a member of NAD wanted to attend but had no
>> funds, he or she could request that NAD be their sponsor. That way no one
>> group would be responsible for footing the whole bill.
>>
>>
>>
>> There are some other stakeholders too, such as RID, as well as some I
>> haven't thought of yet. I suggest that it would be imperative, as we
>> become more organized, to follow the example of the NFB. Our leaders must
>> be deaf-blind. Our president and vice presidents must e deaf-blind, and
>> at least 51 percent of our members should be deaf-blind.
>>
>> I am not particularly concerned about the exact definition of
>> deaf-blindness. As far as I am concerned, if one is legally blind with
>> sub-normal hearing, one qualifies. Some on the list may disagree, and I
>> always welcome others' opinions.
>>
>> Enough for today. Great hearing from y'all.
>>
>> Cathy Miller
>>
>> Sent from my iPad
>>
>> On Aug 22, 2012, at 12:00 PM, nfb-db-request at nfbnet.org wrote:
>>
>>> Send nfb-db mailing list submissions to
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>>>
>>> Today's Topics:
>>>
>>> 1. Re: nfb-db Digest, Vol 43, Issue 9 (Catherine Miller)
>>>
>>>
>>> ----------------------------------------------------------------------
>>>
>>> Message: 1
>>> Date: Tue, 21 Aug 2012 18:14:37 -0500
>>> From: Catherine Miller <guillcat at gmail.com>
>>> To: "nfb-db at nfbnet.org" <nfb-db at nfbnet.org>
>>> Subject: Re: [nfb-db] nfb-db Digest, Vol 43, Issue 9
>>> Message-ID: <FBB7B561-4CCA-4CE4-B745-851A610A0889 at gmail.com>
>>> Content-Type: text/plain; charset=us-ascii
>>>
>>> Janice:
>>>
>>> I am sure there is plenty of data to show the efficacy of SSPs. I trust
>>> in your ability to locate what is needed. If I can be of assistance,
>>> please call on me.
>>>
>>> I am considering a meeting of a small group of deaf-blind leaders from
>>> not only NFB but also the NAD. I would like to see deaf-blind people
>>> from various cultural backgrounds come together for the purpose of
>>> creating the momentum that will lead to the introduction on of
>>> legislation. What time of year is good for you and Burnell? I can
>>> probably get to the DC area before the next Convention in Orlando in
>>> order to discuss the issue over a two or three day period.
>>>
>>> Sent from my iPad
>>>
>>> On Aug 21, 2012, at 12:00 PM, nfb-db-request at nfbnet.org wrote:
>>>
>>>> Send nfb-db mailing list submissions to
>>>> nfb-db at nfbnet.org
>>>>
>>>> To subscribe or unsubscribe via the World Wide Web, visit
>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>>> or, via email, send a message with subject or body 'help' to
>>>> nfb-db-request at nfbnet.org
>>>>
>>>> You can reach the person managing the list at
>>>> nfb-db-owner at nfbnet.org
>>>>
>>>> When replying, please edit your Subject line so it is more specific
>>>> than "Re: Contents of nfb-db digest..."
>>>>
>>>>
>>>> Today's Topics:
>>>>
>>>> 1. First Steps (Catherine Miller)
>>>> 2. Re: First Steps (Janice Toothman)
>>>>
>>>>
>>>> ----------------------------------------------------------------------
>>>>
>>>> Message: 1
>>>> Date: Tue, 21 Aug 2012 00:46:32 -0500
>>>> From: Catherine Miller <guillcat at gmail.com>
>>>> To: nfb-db at nfbnet.org
>>>> Subject: [nfb-db] First Steps
>>>> Message-ID: <A200ADBF-EB46-4884-BD76-083A92B32463 at gmail.com>
>>>> Content-Type: text/plain; charset=us-ascii
>>>>
>>>> Friends:
>>>>
>>>> First, thanks to all of you who replied to my request for your
>>>> geographical location. That's a great start.
>>>>
>>>> Scott, the point you made is a very good one. In order to write a grant
>>>> proposal, there needs to be what is known as an RFP (Request for
>>>> Proposal). When grant money is available, the entity that has the money
>>>> sends out RFPs so that you can write a proposal to try and win the grant
>>>> money. In this case, there are no RFPs, because there is no grant money
>>>> available on the national level.
>>>>
>>>> Some states have State SSP programs, and one of our objectives should be
>>>> to strengthen and broaden the SSP program in our state if there is one,
>>>> or to try and get one if there isn't. Some states have begun with a
>>>> "pilot program," meaning that they have obtained limited funding to
>>>> prove whether or not a SSP program can be successful. We all know that
>>>> SSPs work, but when a large amount of money is involved, there needs to
>>>> be data showing that SSP projects have been successful.
>>>>
>>>> I believe that enough evidence is available from different states with
>>>> pilot SSP projects to provide the evidence we need. If not, it won't be
>>>> long. Meanwhile, we don't want to just sit around and wait. Now is the
>>>> time to begin organizing ourselves so that when the time is right, we
>>>> can approach Congress in Washington, DC, and request that they consider
>>>> a bill appropriating funds for SSPs. There are many reasons why
>>>> Congress would want to honor our request, but that's another story. Our
>>>> focus is how to get to the point where we have enough momentum to make
>>>> the request.
>>>>
>>>> The thing to do first is to educate each State Affiliate of the NFB
>>>> about the deaf-blind and SSPs. We don't need all 50 states (although we
>>>> certainly can try to get all of them). Talk with your Chapter
>>>> President. Some may have no clue; others may be open. Establish a
>>>> relationship with your Affiliate President if you don't already have
>>>> one. Tell them what you've learned about SSPs and see what they think.
>>>> If they already know about SSPs, then take it upon yourself to provide a
>>>> little more knowledge.
>>>>
>>>> Eventually, when you feel comfortable doing so, you may suggest a
>>>> resolution at your State NFB Convention that shows your Affiliate's
>>>> support of an SSP project, for example. Does your state NFB have a
>>>> Deaf-Blind Division? Probably not; but is it a possibility in the
>>>> future?
>>>>
>>>> Obviously all these things take time. But we're not the only ones
>>>> working on this. The Deaf-Blind are also working within the NAD
>>>> (National Association of the Deaf). Some of us are familiar with the
>>>> AADB (American Association of the Deaf-Blind), and social networks on
>>>> the Internet. All of these deaf-blind people have in common the need
>>>> for SSPs. Those of us who have used SSPs recognize how liberating they
>>>> can be.
>>>>
>>>> The next steps are laid out for us in the history of the NFB. The first
>>>> convention in 1940 had just a few blind people. The thing they had in
>>>> common with the deaf-blind was their hunger for independence. The Civil
>>>> Rights movement of the 1960s was a fight for independence, and so was
>>>> the American Revolution.
>>>>
>>>> Remember, organizations don't work together; people do. At the
>>>> Affiliate level, NFB members must learn the plight of their brothers and
>>>> sisters who are deaf or hard of hearing. They must understand and
>>>> believe that we are not defective. They must know that we have needs
>>>> that are beyond the skills of blindness to fill.
>>>>
>>>> Every year, at the Washington Seminary in February, NFB members from all
>>>> 50 states, DC, and the US territories take three issues to Congress.
>>>> Within a period of less than a week every Congressman receives the same
>>>> message at the same time. How powerful is that? These messages are the
>>>> bills, written by the talented members of the NFB, many of whom are
>>>> lawyers, and eventually get passed into laws. Why can't one of those
>>>> initiatives be a request for Congress to fund a national SSP program?
>>>>
>>>> Let's talk about this, you guys.. If you see faults in my thinking,
>>>> please bring them to my attention. If there are certain parts you
>>>> particularly like, say so. Let's move to award a plan we can all agree
>>>> on, then invite others to join us.
>>>>
>>>> What have we got to lose?
>>>>
>>>> Cathy Miller
>>>>
>>>>
>>>> ------------------------------
>>>>
>>>> Message: 2
>>>> Date: Tue, 21 Aug 2012 06:26:04 -0400
>>>> From: Janice Toothman <janice.toothman at verizon.net>
>>>> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
>>>> Subject: Re: [nfb-db] First Steps
>>>> Message-ID: <5033623C.2090705 at verizon.net>
>>>> Content-Type: text/plain; charset=ISO-8859-1; format=flowed
>>>>
>>>> Good morning,
>>>> I know that Burnell has been trying to get a deafblind program started
>>>> in the Washington DC area but it has not had much success as of late.
>>>> Now she is interested in focusing on the National Division.
>>>>
>>>> I will be meeting with Burnell in the next week so I can share this
>>>> with
>>>> her. I think we urgently need to push forward with this but I think
>>>> that
>>>> it might be more productive if there was a list of points that we could
>>>> refer to in our discussion about the value of SSPs with our affiliate
>>>> or
>>>> chapter presidents. Think it would be important to tentatively set a
>>>> goals both on an individual (voluntary) and division level.
>>>> Janice
>>>> On 8/21/2012 1:46 AM, Catherine Miller wrote:
>>>>> Friends:
>>>>>
>>>>> First, thanks to all of you who replied to my request for your
>>>>> geographical location. That's a great start.
>>>>>
>>>>> Scott, the point you made is a very good one. In order to write a
>>>>> grant proposal, there needs to be what is known as an RFP (Request for
>>>>> Proposal). When grant money is available, the entity that has the
>>>>> money sends out RFPs so that you can write a proposal to try and win
>>>>> the grant money. In this case, there are no RFPs, because there is no
>>>>> grant money available on the national level.
>>>>>
>>>>> Some states have State SSP programs, and one of our objectives should
>>>>> be to strengthen and broaden the SSP program in our state if there is
>>>>> one, or to try and get one if there isn't. Some states have begun with
>>>>> a "pilot program," meaning that they have obtained limited funding to
>>>>> prove whether or not a SSP program can be successful. We all know that
>>>>> SSPs work, but when a large amount of money is involved, there needs to
>>>>> be data showing that SSP projects have been successful.
>>>>>
>>>>> I believe that enough evidence is available from different states with
>>>>> pilot SSP projects to provide the evidence we need. If not, it won't
>>>>> be long. Meanwhile, we don't want to just sit around and wait. Now is
>>>>> the time to begin organizing ourselves so that when the time is right,
>>>>> we can approach Congress in Washington, DC, and request that they
>>>>> consider a bill appropriating funds for SSPs. There are many reasons
>>>>> why Congress would want to honor our request, but that's another story.
>>>>> Our focus is how to get to the point where we have enough momentum to
>>>>> make the request.
>>>>>
>>>>> The thing to do first is to educate each State Affiliate of the NFB
>>>>> about the deaf-blind and SSPs. We don't need all 50 states (although
>>>>> we certainly can try to get all of them). Talk with your Chapter
>>>>> President. Some may have no clue; others may be open. Establish a
>>>>> relationship with your Affiliate President if you don't already have
>>>>> one. Tell them what you've learned about SSPs and see what they think.
>>>>> If they already know about SSPs, then take it upon yourself to provide
>>>>> a little more knowledge.
>>>>>
>>>>> Eventually, when you feel comfortable doing so, you may suggest a
>>>>> resolution at your State NFB Convention that shows your Affiliate's
>>>>> support of an SSP project, for example. Does your state NFB have a
>>>>> Deaf-Blind Division? Probably not; but is it a possibility in the
>>>>> future?
>>>>>
>>>>> Obviously all these things take time. But we're not the only ones
>>>>> working on this. The Deaf-Blind are also working within the NAD
>>>>> (National Association of the Deaf). Some of us are familiar with the
>>>>> AADB (American Association of the Deaf-Blind), and social networks on
>>>>> the Internet. All of these deaf-blind people have in common the need
>>>>> for SSPs. Those of us who have used SSPs recognize how liberating they
>>>>> can be.
>>>>>
>>>>> The next steps are laid out for us in the history of the NFB. The
>>>>> first convention in 1940 had just a few blind people. The thing they
>>>>> had in common with the deaf-blind was their hunger for independence.
>>>>> The Civil Rights movement of the 1960s was a fight for independence,
>>>>> and so was the American Revolution.
>>>>>
>>>>> Remember, organizations don't work together; people do. At the
>>>>> Affiliate level, NFB members must learn the plight of their brothers
>>>>> and sisters who are deaf or hard of hearing. They must understand
>>>>> and believe that we are not defective. They must know that we have
>>>>> needs that are beyond the skills of blindness to fill.
>>>>>
>>>>> Every year, at the Washington Seminary in February, NFB members from
>>>>> all 50 states, DC, and the US territories take three issues to
>>>>> Congress. Within a period of less than a week every Congressman
>>>>> receives the same message at the same time. How powerful is that?
>>>>> These messages are the bills, written by the talented members of the
>>>>> NFB, many of whom are lawyers, and eventually get passed into laws.
>>>>> Why can't one of those initiatives be a request for Congress to fund a
>>>>> national SSP program?
>>>>>
>>>>> Let's talk about this, you guys.. If you see faults in my thinking,
>>>>> please bring them to my attention. If there are certain parts you
>>>>> particularly like, say so. Let's move to award a plan we can all agree
>>>>> on, then invite others to join us.
>>>>>
>>>>> What have we got to lose?
>>>>>
>>>>> Cathy Miller
>>>>> _______________________________________________
>>>>> nfb-db mailing list
>>>>> nfb-db at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>>>>
>>>>
>>>>
>>>>
>>>> ------------------------------
>>>>
>>>> _______________________________________________
>>>> nfb-db mailing list
>>>> nfb-db at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>>>
>>>>
>>>> End of nfb-db Digest, Vol 43, Issue 9
>>>> *************************************
>>>
>>>
>>> ------------------------------
>>>
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>>
>>>
>>> End of nfb-db Digest, Vol 43, Issue 11
>>> **************************************
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