[nfb-db] nfb-db Digest, Adjusting and A Few Questions

[Marsha Drenth]

April,
Doing all you can is good, keep on doing that. I understand what you mean by lossing your vision. Most of the time its out of our control, in which we lose first or last. 

Like others have said, keep on posting, these are all things as deafblind persons need to discuss and think about..

Marsha drenth  
Sent with my IPhone 

On Oct 31, 2013, at 12:18 PM, April Brown <aprilbrownwrite at gmail.com> wrote:

> I am sorry I haven't responded.  It isn't easy for me to figure out how to respond easily. 
>  
> heather albright - That is a great idea.  My regular doctor finally developed an online system a year ago.  The specialists don't appear to have one.  I think I need to request one.  Though I generally get blank stares when I request anything.
>  
> Marsha Drenth-  I've always ignored my hearing loss.  As long sight, that was what mattered.  Now, with my sight undependeable, it's not easy.  One thing that often isn't covered, is denial is as much about those around us, as ourselves.  As a society, we're so set on everyone being the same, and if you aren't, you almost don't exist.  It's as if people are scared to admit that someone can live differently than they do.  Some days, those around us deny our needs to meet theirs, and it's sad.  I would rather lose my hearing than my eye.  I think my vision will be gone first though.  With all my other disabilities, it's not easy.  I keep going as best I can.  Some days, it feels as if my eye is filling in for me, even though I'm not really seeing.  As if that makes any sense.
>  
> DELCINA M BROWN - I'm hoping to get the specialists to work through emails.  It would help.  I will keep posting, and reading every day.  I don't want to ask questions that have been answered hundreds of times.  I still have a little time, though how much, I can't guarantee.  I have set a date to start seriously learning Braille though, so I can eventually learn refreshable Braille.
> 
> Catherine Miller-  Thanks!  I think I need a stronger advocate than my husband.  He sits there and trusts every word they say.  He's been in the military too long.  He lets them brush it off, and disappear as if that's normal.  Twice now, a specialist has said what they had to say, and been gone from the room before I had even figured out the first sentence they said.  I hear blind people complain about people speaking slower and louder to them, and yet, that's often just what I need to be able to comprehend people, especially males with low voices.  He says I don't respond fast enough.  And yet, I can't respond till I fully hear it.  Listening to most people talk is like listening to a VHS tape played at double speed.  I can never catch up!  That's why I spend more time online.  I can think, process, and then reply.
> 
> I do not look forward to the day I have to learn how to use only keyboard commands to use a computer.  As often as weird things show up as I type now, that will be a disaster.  I will have to keep writing and publishing though.
>  
> Thanks,
>  
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> April Brown
>  
> Writing dramatic adventure novels uncovering the myths we hide behind.
>  
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> 
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