[nfb-db] Adjusting, and a few questions

[DELCINA M BROWN]

April, 
I share your frustration. I do not believe it is a case of denial.  Just a matter of trying to find a way to communicate and be independent. I do not know what state you are in. However, most medical facility provide my ...(whatever it is called/ profile) online where they could post information that is not confidential. Yes, keep being persistent and ask them to send the information to your email. 

Keep  shareing your concerns with the deaf/blind community. Maybe one day there is a connection one on one and not the whole group. This might be the one that understand talking on the phone is not the bes answer. 

take care
Delcenia
  ----- Original Message ----- 
  From: April Brown 
  To: nfb-db at nfbnet.org 
  Sent: Tuesday, October 29, 2013 3:23 PM
  Subject: [nfb-db] Adjusting, and a few questions


  Hello,

      Until a year ago, I mostly ignored my low hearing.  I've worn a hearing aid for years.  A year ago, my vision suddenly failed drastically.  Obviously, it was never good to begin with either, and I never did learn to read lips. I still don't have an official diagnosis or prognosis.

       Both of these issues have caused me issues in the past.  Even as my vision fails, and my eye hurts constantly, I still comprehend better by seeing and reading.  I intend to learn Braille in January.  (Novemeber is a busy month for writers, and December is busy with in laws).

        Many, many years ago, in college, I attempted to take a sign language course.  I didn't learn a thing.  All I ever saw was motion, and nothing that made sense.  At the time, I blamed it on the stress of my life.  Now, I'm not so sure it was just stress.  Still, I wish I had learned!

  In the meantime, and in the future, how do I convince doctors, and other professionals, that an email is better than trying to comprehend a phone conversation?

  To go along with another thread or two, a few times I asked for help on a blind list I had the "I can call you and talk you though it" response.  Which is great, except, I don't really comprehend well on the phone, even from people I know.  Especially if there is any background sound.  I do appreciate the sentiment.  

  I'm still very new in this situation, and yes, I'm partially still in denial, I'm sure.

  Thanks,

  April Brown

      



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