[nfb-db] Delcenia -- Usher2

[Darlene Laibl-Crowe]

I wouldn't worry about if she is tired of you or not...that is what she is
paid to do.

(smile)
Darlene

-----Original Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Delcenia Brown
Sent: Thursday, March 20, 2014 4:29 PM
To: NFB Deaf-Blind Division Mailing List
Subject: Re: [nfb-db] Delcenia -- Usher2

Maybe I will check into the home services. I tried to reach out last year to
a rep in my area and I did not follow up because at that time I was doing
that call center assessment that I told you all about and my counselor is
probably tired of me.
Delcenia


-----Original Message-----
From: Trish Hubschman
Sent: Thursday, March 20, 2014 3:59 PM
To: 'NFB Deaf-Blind Division Mailing List'
Subject: Re: [nfb-db] Delcenia -- Usher2

Thanks, Delcenie.  I have optic atrophy and auditory  neuropathy.  I don't
know anything about RP or Ushers.  I have a bgalance problem.  The fact that
people with RP and Usher don't have the balance issue tells me that its not
hearing related.  This past January, I received a top of the line hearing
aid at HKNC for my right ear.  I have a CI on the left side.  I think I'm
doing better now with hearing and functioning than I have in a long time. I
live on Long Island, but I've never been a full time student at HKNC.  When
I need training in something, I get at-home services, not because I'm house
bound, its cheaper for NYS.   I am, though, going to to be going up to HKNC
in a few weeks to finish a tech evaluation I started back in Januray.

Trish

-----Original Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Darlene
Laibl-Crowe
Sent: Thursday, March 20, 2014 3:46 PM
To: 'NFB Deaf-Blind Division Mailing List'
Subject: [nfb-db] Delcenia -- Usher2

Hello, Delcenia!  Nice to meet you!  I am from Florida and I also have Usher
2.  I was able to go to HKNC because I advocated for myself to the state and
justified as to why I needed their services.  My reasoning was that there
are NO services for Adult Deaf Blind individuals in the State and I had also
been a client of DBS since 1986.  By the way, DBS means Division of Blind
Services.  Anyway, after a few years I kind of got lost in the state's
system and was not getting the services I needed.  So when I began to lose
more hearing and vision I struggled in a huge way.  I didn't know anything
about HKNC until I started doing research And found out about the Florida
Deaf Blind Association.  I soon met HKNC Southeast rep and many of the
members of that organization and within a year I was hearing to NY.

The training is very expensive but the state more than willingly paid for
that service.  I am so grateful that they have.  Now, the state has grown
because I do all I can advocate and educate them and others as needed.  I
don't know everything but what I don't know I do my best to find out.  One
thing that I have learned is that it is important to know what resources are
out there and how you can use it for your specific needs.  HKNC taught that
to me and it is something that needs to be taught to many.

As for the balance issue, I, too, did not have problems with balance but
I've noticed more lately that I am getting dizzy...I think it is because I
can't quite focus on something to maintain a sense of balance.  It isn't too
bad...and hopefully it won't get worse.

My guide dog is wonderful about being sure I am good on my feet.  I've
noticed when I get a little off balanced she will slow down and let me kind
of lean on her a bit to get myself oriented again.  She is amazing and I am
so glad I have her.

I, too, am fairly new to NFB...a little over a year now.  NFB is a great
learning experience as well!

Hope you are able to go to HKNC, it is very a rewarding experience!!


(smile)
Darlene

"God wants to breathe new life into your dreams. He wants to breathe new
hope into your heart. Don't give up. Hold on and you'll begin to see Him do
amazing things"
   ~               Joel Osteen




_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org


_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org 


_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org