[nfb-db] Usher 3

Shadow Wolf soulalibi at gmail.com
Fri Mar 21 13:08:01 UTC 2014


Hello April,

Everyone who has Usher's will eventually lose their vision at one time 
or another. And I think those with Usher's 1 and 3 also have balance 
problems. I believe that Usher's 1 starts at birth or at a young age. I 
admit, I don't know much about either Usher's 1 or 3. But those who 
suffer from Usher's 1 or 3 tend to have other psychical disabilities 
other than just the eyes and ears.

--S.W.

On 3/21/2014 4:05 AM, April Brown wrote:
> Good Morning,
>
>         Even though I can't get a proper diagnosis, I am leaning toward Usher 3.  I only have one eye with vision, and it has dramatically decreased in the last year, with all kinds of odd symptoms.   Of course, my vision issues are complicated by double colobomas.
>
>        My hearing is worse as well.  I do not hear low toned voices well.  And comprehension of spoken words is extremely slow.  In fact, for over a decade, I had used closed captioning on the tv to understand most shows, until my vision loss no longer allows me to.  So now, many science shows I would otherwise enjoy, I can not hear or see.
>
>       I have much much information on the prognosis of Usher 1 and 2.  Not much on Usher 3.
>
>         Will my vision reach a spot and stay there?  I only have about 1/4 of an eye left.  The tiny lower corner of my right eye next to my nose.
>
>         Does anyone have a link to a site with good information about Usher 3?
>
> Thanks,
>
>
> April Brown
>
> Writing dramatic adventure novels uncovering the myths we hide behind.
>
>
>
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-- 
*~Shadow Wolf~*





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