[nfb-db] nfb-db Digest, Vol 62, Issue 24
Tracie Inman
tracieinman at yahoo.com
Mon Mar 24 12:07:43 UTC 2014
As a matter of fact - I had some one who frequents that mailing list (which by the way belongs to the Deaf-Blind division) email me and let me know you did speak of your service on the FCCDHH on that list - or to some one on the list. You have led them to believe you were in charge of the Support Service program in Florida. This last message in regards to your SSP training at the light house of Central Florida in which you seek attendees to the training is leading people to ask whether you are in charge of Florida's Support Service Program. You never clarified that FSSP is the project of another organization, nor did you clarify that the program was not yet active. By active, I mean that the program is not yet funded, nor is there any such thing in Florida as a state-supported or agency -supported SSP program. I would know - I have been in touch with the state department of Vocational Rehabilitation.
If you choose not to be involved in the Deaf-Blind division why are you posting on our mailing list? Why are you posting stuff that doesn't even involve the NFB on an NFB mailing list?
I have no idea what you are referring to in your responses in regards to negative behaviors. All of us here in the division are working hard to ensure growth and ensure a stronger division future. Yes, Joe and Arlene are wonderful. I consider them family. I don't believe there is any negativity. - Tracie
On Monday, March 24, 2014 8:00 AM, "nfb-db-request at nfbnet.org" <nfb-db-request at nfbnet.org> wrote:
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Today's Topics:
1. Read carefully before you speak (Darlene Laibl-Crowe)
2. Re: Delcenia -- Usher2 (Trish Hubschman)
----------------------------------------------------------------------
Message: 1
Date: Sun, 23 Mar 2014 21:35:20 -0400
From: "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
To: "'Tracie Inman'" <tracieinman at yahoo.com>, "'NFB Deaf-Blind
Division Mailing List'" <nfb-db at nfbnet.org>
Subject: [nfb-db] Read carefully before you speak
Message-ID: <009201cf4701$52cefcf0$f86cf6d0$@net>
Content-Type: text/plain; charset="us-ascii"
Tracie,
Before you speak, you should read carefully all of the correspondence.
There was no mention in any of those emails about the Florida Coordinating
Council for the Deaf and Hard fo Hearing...only the Florida Deaf Blind
Association. FDBA is very willing to collaborate with ALL organizations.
Furthermore, I made no claims to be part of the NFBF DB Division.
You and I both know why I chose to remove myself from that group. I have
not once said anything negative towards NFBF DB Divsiion. I admire Joe and
Arlene Naulty for all that they do.
I feel sorry for Joe, I truly do. He is a good man and he is putting up
with a lot. I do hope he is successful as it is a very important thing that
the NFB DB Division is doing but when there are negative behaviors then that
is another story in itself. It can be destructive.
As Helen Keller said 'Alone we can do little, but together we can do much'!
It takes teamwork and collaboration in order for something to come forth.
Negativity and unprofessional behavior is NOT the right way to become
successful!
-----Original Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Tracie Inman
Sent: Sunday, March 23, 2014 8:58 PM
To: nfb-db at nfbnet.org
Subject: Re: [nfb-db] nfb-db Digest, Vol 62, Issue 22
Marsha:
She is coordinator for another organization - not for the state of Florida,
nor is she involved in the NFB Deaf-Blind division. She chooses not to be
involved in the Deaf-Blind division. The Florida Deaf-Blind Association
(FDBA) and it's project, Florida Support Service Providers (FSSP) are a
different organization that I believe is affiliated with the Florida
Association of the Deaf (FAD). The differences between the FDBA and the NFB
Deaf-Blind are similar to the differences between the ACB and the NFB. The
two are very different in their philosophy. FSSP is not connected with any
state program. Darlene is a member of the Governor's coordinating council
for the Deaf and Hard of hearing, but they, nor the state financially
supports the project - nor is connected to any agency. - Tracie
On Sunday, March 23, 2014 4:30 PM, "nfb-db-request at nfbnet.org"
<nfb-db-request at nfbnet.org> wrote:
Send nfb-db mailing list submissions to
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To subscribe or unsubscribe via the World Wide Web, visit
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or, via email, send a message with subject or body 'help' to
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You can reach the person managing the list at
nfb-db-owner at nfbnet.org
When replying, please edit your Subject line so it is more specific
than "Re: Contents of nfb-db digest..."
Today's Topics:
1. Re: Florida Support Service Program Training Workshop -
Orlando (Marsha Drenth)
2. Re: DB are becoming exposed in media.... Watch (Marsha Drenth)
3. Re: Florida Support Service Program Training Workshop -
Orlando (Darlene Laibl-Crowe)
4. Re: Florida Support Service Program Training Workshop -
Orlando (Shadow Wolf)
5. Re: Florida Support Service Program Training Workshop -
Orlando (Darlene Laibl-Crowe)
6. Re: Florida Support Service Program Training Workshop -
Orlando (Marsha Drenth)
7. Re: Florida Support Service Program Training Workshop -
Orlando (Marsha Drenth)
8. Re: Florida Support Service Program Training Workshop -
Orlando (Marsha Drenth)
9. Re: Florida Support Service Program Training Workshop -
Orlando (Shadow Wolf)
10. Re: Florida Support Service Program Training Workshop -
Orlando (Shadow Wolf)
11. Re: Florida Support Service Program Training Workshop -
Orlando (Shadow Wolf)
12. Re: Florida Support Service Program Training Workshop -
Orlando (Darlene)
13. Re: Florida Support Service Program Training Workshop -
Orlando (Darlene)
14. Re: Florida Support Service Program Training Workshop -
Orlando (Darlene Laibl-Crowe)
15. Re: Florida Support Service Program Training Workshop -
Orlando (Darlene Laibl-Crowe)
16. Re: Florida Support Service Program Training Workshop -
Orlando (Shadow Wolf)
17. Re: Usher 3 (Delcenia Brown)
18. Re: Usher 3 (Darlene)
19. Re: Florida Support Service Program Training Workshop -
Orlando (Marsha Drenth)
20. Re: Usher 3 (Delcenia Brown)
21. Re: [Bulk] Re: Usher 3 (Delcenia Brown)
----------------------------------------------------------------------
Message: 1
Date: Sun, 23 Mar 2014 09:59:38 -0400
From: Marsha Drenth <marsha.drenth at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <D0A9106D-AEC8-41F6-A737-125C4A3FE41F at gmail.com>
Content-Type: text/plain; charset=us-ascii
Darlene,
Thanks for posting this. I see in your email signature that your FL SSP
coordinator. Which leads me to my question. Are you connected to other SSP
coordinators around the country, like in other states? There might be a need
to connect all of the coordinators, to have some unity in trainings,
materials, programs and so on.
Very curiously,
Marsha drenth
Sent with my IPhone
> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
wrote:
>
> Florida Residents:
>
> This announcement is for sighted individuals who are interested in
becoming
> Support Service Provider (SSP), who will sight-guide, assist in
> communication needs (sign or voice), relay visual information and provide
> information for Deaf-Blind Floridians.
>
> Attached is a copy of our next FSSP Training Workshop.
>
> Please go to our website for further information.
>
> SPREAD THE WORD!
>
> Darlene Laibl-Crowe
>
> FSSP Coordinator
> Florida Deaf-Blind Association
> dlcrowe at fssp.fldeafblind.org
> (386) 546-5706
> www.fldeafblind.org
>
> RELAYING SELF-SUFFICIENCY
>
> 'Character cannot be developed in ease and quiet. Only through experience
of
> trial and suffering can the soul be strengthened, vision cleared, ambition
> inspired, and success achieved'
> ~ Helen
> Keller
>
>
>
>
>
>
> <2014FSSP Flyer ORL.pdf>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 2
Date: Sun, 23 Mar 2014 10:16:07 -0400
From: Marsha Drenth <marsha.drenth at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] DB are becoming exposed in media.... Watch
Message-ID: <C9F76645-7223-4255-9908-FD959381AD66 at gmail.com>
Content-Type: text/plain; charset=us-ascii
Can somone please resend the link to the ICC on NBc, as the link below
either is not working, and or does not take you to the article or video.
thanks,
Marsha drenth
Sent with my IPhone
> On Mar 20, 2014, at 8:52 AM, "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
wrote:
>
> Interesting! The informationa bout the National Deaf Blind Equipment
> Disbursement Program (icanconnect) was on NBC!
>
> Click on link below to see more!
>
>
http://www.nbcnewyork.com/video/#!/on-air/as-seen-on/The-Good-Fight--ICanCon
> nect/250519051
>
>
> (smile)
> Darlene
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 3
Date: Sun, 23 Mar 2014 10:26:54 -0400
From: "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
To: "'NFB Deaf-Blind Division Mailing List'" <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <004b01cf46a3$f1c29af0$d547d0d0$@net>
Content-Type: text/plain; charset="us-ascii"
Actually, we have consulted with several other states before we began to
form our program. Also, we've had much feedback from HKNC. Currently there
are over 30 states that have SSP programs. We have tailored our program
from the Seattle program.
Each program have been very willing to share and assist us as we have moved
forward. There is much to do and it is flourishing. We currently have 35
SSPs in our database and 55 Deaf Blind Floridians in our Registry. We also
implemented the No Deaf Blind Floridian Left Behind Registry campaign in
hopes of gaining more numbers to approach funders, legislators and to
collaborate with other agencies. We have several agencies who are very
supportive of what we are doing.
One of those are the Lighthouses throughout Florida. The workshop next
month will be at the Lighthouse of Central Florida in Orlando.
It takes teamwork and collaboration for success. Like Helen Keller said
'Alone we can do little but together we can do much'; FDBA is very willing
to work with other agencies, states.
Thanks for inquiring, Marsha, and I hope your journey at HKNC continues to
be a success!!
(smile)
Darlene
-----Original Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Marsha Drenth
Sent: Sunday, March 23, 2014 10:00 AM
To: NFB Deaf-Blind Division Mailing List
Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -
Orlando
Darlene,
Thanks for posting this. I see in your email signature that your FL SSP
coordinator. Which leads me to my question. Are you connected to other SSP
coordinators around the country, like in other states? There might be a need
to connect all of the coordinators, to have some unity in trainings,
materials, programs and so on.
Very curiously,
Marsha drenth
Sent with my IPhone
> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
wrote:
>
> Florida Residents:
>
> This announcement is for sighted individuals who are interested in
> becoming Support Service Provider (SSP), who will sight-guide, assist
> in communication needs (sign or voice), relay visual information and
> provide information for Deaf-Blind Floridians.
>
> Attached is a copy of our next FSSP Training Workshop.
>
> Please go to our website for further information.
>
> SPREAD THE WORD!
>
> Darlene Laibl-Crowe
>
> FSSP Coordinator
> Florida Deaf-Blind Association
> dlcrowe at fssp.fldeafblind.org
> (386) 546-5706
> www.fldeafblind.org
>
> RELAYING SELF-SUFFICIENCY
>
> 'Character cannot be developed in ease and quiet. Only through
> experience of trial and suffering can the soul be strengthened, vision
> cleared, ambition inspired, and success achieved'
> ~ Helen
> Keller
>
>
>
>
>
>
> <2014FSSP Flyer ORL.pdf>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 4
Date: Sun, 23 Mar 2014 08:18:24 -0700
From: Shadow Wolf <soulalibi at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <532EFB40.2070102 at gmail.com>
Content-Type: text/plain; charset=ISO-8859-1; format=flowed
Marsha,
Every state and city has their own SSP coordinator. The person
responsible for establishing and setting up SSP services in your area
differs from state to state. If you live in PA. I'm pretty sure they
have their own SSP coordinator in your area. I believe you live in
Philedalphia. Scott Stoffel, is an SSP coordinator in another area. I'm
not sure if he also the coordinator of your city. But you can ask him,
if you still have his email address.
HKNC just barely started it's own SSP program. They created an SSP
class, now taught by Maricar. I took her class myself. Marsha you might
want to take her class and learn more about the SSP program.
--Shadow W.
On 3/23/2014 6:59 AM, Marsha Drenth wrote:
> Darlene,
> Thanks for posting this. I see in your email signature that your FL SSP
coordinator. Which leads me to my question. Are you connected to other SSP
coordinators around the country, like in other states? There might be a need
to connect all of the coordinators, to have some unity in trainings,
materials, programs and so on.
> Very curiously,
>
> Marsha drenth
> Sent with my IPhone
>
>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
wrote:
>>
>> Florida Residents:
>>
>> This announcement is for sighted individuals who are interested in
becoming
>> Support Service Provider (SSP), who will sight-guide, assist in
>> communication needs (sign or voice), relay visual information and provide
>> information for Deaf-Blind Floridians.
>>
>> Attached is a copy of our next FSSP Training Workshop.
>>
>> Please go to our website for further information.
>>
>> SPREAD THE WORD!
>>
>> Darlene Laibl-Crowe
>>
>> FSSP Coordinator
>> Florida Deaf-Blind Association
>> dlcrowe at fssp.fldeafblind.org
>> (386) 546-5706
>> www.fldeafblind.org
>>
>> RELAYING SELF-SUFFICIENCY
>>
>> 'Character cannot be developed in ease and quiet. Only through experience
of
>> trial and suffering can the soul be strengthened, vision cleared,
ambition
>> inspired, and success achieved'
>> ~ Helen
>> Keller
>>
>>
>>
>>
>>
>>
>> <2014FSSP Flyer ORL.pdf>
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
--
*~Shadow Wolf~*
------------------------------
Message: 5
Date: Sun, 23 Mar 2014 11:55:53 -0400
From: "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
To: "'NFB Deaf-Blind Division Mailing List'" <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <000b01cf46b0$61ba9540$252fbfc0$@net>
Content-Type: text/plain; charset="us-ascii"
Thank you, SW! Yes, Maricar would be a great person to talk to at HKNC
about the SSP programs. When I was at HKNC in 2011, I had the opportunity
to go to a American Association for the Deaf Blind (AADB) symposium in
Kentucky. HKNC furnished a SSP to travel with me. There were others in the
group who also had their own SSP.
I loved the freedom of having my own SSP while at the symposium and learned
much about what it meant to be a SSP...one thing that is important is that
the SSP does not make decisions for the Deaf-Blind person, it is up to the
DB person to tell the SSP what they want to do after the SSP feeds them the
visual information that they need to know.
Some states have very small programs and others are in specific areas of the
state and not statewide. Here in Florida we are aiming for statewide
services. I don't' remember if Pennsylvania has a SSP program. I admit I
do know know about Pennsylvania's SSP services but Maricar and HKNC would be
a great resource to find out if they do. HKNC is very involved in each
state that has SSP programs. They make it their priority to stay on top of
what is provided in the states.
Like I said there are only 30 states that have SSP services and some are
only in a small metropolitan area and not statewide. For example, in the
State of Washington they have an excellent SSP program within the Seattle
area but it is not offered statewide.
Darlene
.
-----Original Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow Wolf
Sent: Sunday, March 23, 2014 11:18 AM
To: NFB Deaf-Blind Division Mailing List
Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -
Orlando
Marsha,
Every state and city has their own SSP coordinator. The person responsible
for establishing and setting up SSP services in your area differs from state
to state. If you live in PA. I'm pretty sure they have their own SSP
coordinator in your area. I believe you live in Philedalphia. Scott Stoffel,
is an SSP coordinator in another area. I'm not sure if he also the
coordinator of your city. But you can ask him, if you still have his email
address.
HKNC just barely started it's own SSP program. They created an SSP class,
now taught by Maricar. I took her class myself. Marsha you might want to
take her class and learn more about the SSP program.
--Shadow W.
On 3/23/2014 6:59 AM, Marsha Drenth wrote:
> Darlene,
> Thanks for posting this. I see in your email signature that your FL SSP
coordinator. Which leads me to my question. Are you connected to other SSP
coordinators around the country, like in other states? There might be a need
to connect all of the coordinators, to have some unity in trainings,
materials, programs and so on.
> Very curiously,
>
> Marsha drenth
> Sent with my IPhone
>
>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
wrote:
>>
>> Florida Residents:
>>
>> This announcement is for sighted individuals who are interested in
>> becoming Support Service Provider (SSP), who will sight-guide, assist
>> in communication needs (sign or voice), relay visual information and
>> provide information for Deaf-Blind Floridians.
>>
>> Attached is a copy of our next FSSP Training Workshop.
>>
>> Please go to our website for further information.
>>
>> SPREAD THE WORD!
>>
>> Darlene Laibl-Crowe
>>
>> FSSP Coordinator
>> Florida Deaf-Blind Association
>> dlcrowe at fssp.fldeafblind.org
>> (386) 546-5706
>> www.fldeafblind.org
>>
>> RELAYING SELF-SUFFICIENCY
>>
>> 'Character cannot be developed in ease and quiet. Only through
>> experience of trial and suffering can the soul be strengthened,
>> vision cleared, ambition inspired, and success achieved'
>> ~
>> Helen Keller
>>
>>
>>
>>
>>
>>
>> <2014FSSP Flyer ORL.pdf>
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
--
*~Shadow Wolf~*
_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 6
Date: Sun, 23 Mar 2014 13:39:15 -0400
From: Marsha Drenth <marsha.drenth at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <26F476DA-DE91-4C65-8218-0C3D1CB6D1B0 at gmail.com>
Content-Type: text/plain; charset=us-ascii
Darlene,
Thank you for your responds. You answered the question I was asking. But
what I guess I am asking also is, do states have any way to actively
interact with other states to share knowledge, information, treaining
methods, and the like? Like for example is there a main website? Or a SSP
state coordinator email list? For example, if I were a state coordinator for
one of the 30 states that does not have a SSP program but wanted to get
ahold of other states that do have an SSP program, where do people find this
information? Like with interpretors, there is a registery, is there the same
for SSP? Perhaps I should be asking this question on the AADB list.
Thanks,
Marsha drenth
Sent with my IPhone
> On Mar 23, 2014, at 10:26 AM, "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
wrote:
>
> Actually, we have consulted with several other states before we began to
> form our program. Also, we've had much feedback from HKNC. Currently
there
> are over 30 states that have SSP programs. We have tailored our program
> from the Seattle program.
>
> Each program have been very willing to share and assist us as we have
moved
> forward. There is much to do and it is flourishing. We currently have 35
> SSPs in our database and 55 Deaf Blind Floridians in our Registry. We
also
> implemented the No Deaf Blind Floridian Left Behind Registry campaign in
> hopes of gaining more numbers to approach funders, legislators and to
> collaborate with other agencies. We have several agencies who are very
> supportive of what we are doing.
>
> One of those are the Lighthouses throughout Florida. The workshop next
> month will be at the Lighthouse of Central Florida in Orlando.
>
> It takes teamwork and collaboration for success. Like Helen Keller said
> 'Alone we can do little but together we can do much'; FDBA is very willing
> to work with other agencies, states.
>
> Thanks for inquiring, Marsha, and I hope your journey at HKNC continues to
> be a success!!
>
> (smile)
> Darlene
>
> -----Original Message-----
> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Marsha Drenth
> Sent: Sunday, March 23, 2014 10:00 AM
> To: NFB Deaf-Blind Division Mailing List
> Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -
> Orlando
>
> Darlene,
> Thanks for posting this. I see in your email signature that your FL SSP
> coordinator. Which leads me to my question. Are you connected to other SSP
> coordinators around the country, like in other states? There might be a
need
> to connect all of the coordinators, to have some unity in trainings,
> materials, programs and so on.
> Very curiously,
>
> Marsha drenth
> Sent with my IPhone
>
>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
>> wrote:
>>
>> Florida Residents:
>>
>> This announcement is for sighted individuals who are interested in
>> becoming Support Service Provider (SSP), who will sight-guide, assist
>> in communication needs (sign or voice), relay visual information and
>> provide information for Deaf-Blind Floridians.
>>
>> Attached is a copy of our next FSSP Training Workshop.
>>
>> Please go to our website for further information.
>>
>> SPREAD THE WORD!
>>
>> Darlene Laibl-Crowe
>>
>> FSSP Coordinator
>> Florida Deaf-Blind Association
>> dlcrowe at fssp.fldeafblind.org
>> (386) 546-5706
>> www.fldeafblind.org
>>
>> RELAYING SELF-SUFFICIENCY
>>
>> 'Character cannot be developed in ease and quiet. Only through
>> experience of trial and suffering can the soul be strengthened, vision
>> cleared, ambition inspired, and success achieved'
>> ~ Helen
>> Keller
>>
>>
>>
>>
>>
>>
>> <2014FSSP Flyer ORL.pdf>
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 7
Date: Sun, 23 Mar 2014 13:45:08 -0400
From: Marsha Drenth <marsha.drenth at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <3CEBD823-1886-441B-870D-3A4191DF6965 at gmail.com>
Content-Type: text/plain; charset=us-ascii
SW,
I know this. I am well aware of what an SSP is, what an SSP does. I do have
Scott's email, and work closely with him. I am on a committee within my
state of PA to creat a SSP program. Taking Maricar class is not something I
feel as though I need to do.
I was specifically asking if like the interpretors have a registery, is
there the same for SSP? a website or email list for SSP coordinators to
gather, to share, to work together to form these programs? I don't
personally want to contact these SSP coordinators, but how do people share
information. See my response back to Darlene on further clarification of my
question.
Marsha drenth
Sent with my IPhone
> On Mar 23, 2014, at 11:18 AM, Shadow Wolf <soulalibi at gmail.com> wrote:
>
> Marsha,
> Every state and city has their own SSP coordinator. The person responsible
for establishing and setting up SSP services in your area differs from state
to state. If you live in PA. I'm pretty sure they have their own SSP
coordinator in your area. I believe you live in Philedalphia. Scott Stoffel,
is an SSP coordinator in another area. I'm not sure if he also the
coordinator of your city. But you can ask him, if you still have his email
address.
>
> HKNC just barely started it's own SSP program. They created an SSP class,
now taught by Maricar. I took her class myself. Marsha you might want to
take her class and learn more about the SSP program.
>
> --Shadow W.
>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:
>> Darlene,
>> Thanks for posting this. I see in your email signature that your FL SSP
coordinator. Which leads me to my question. Are you connected to other SSP
coordinators around the country, like in other states? There might be a need
to connect all of the coordinators, to have some unity in trainings,
materials, programs and so on.
>> Very curiously,
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
wrote:
>>>
>>> Florida Residents:
>>>
>>> This announcement is for sighted individuals who are interested in
becoming
>>> Support Service Provider (SSP), who will sight-guide, assist in
>>> communication needs (sign or voice), relay visual information and
provide
>>> information for Deaf-Blind Floridians.
>>>
>>> Attached is a copy of our next FSSP Training Workshop.
>>>
>>> Please go to our website for further information.
>>>
>>> SPREAD THE WORD!
>>>
>>> Darlene Laibl-Crowe
>>>
>>> FSSP Coordinator
>>> Florida Deaf-Blind Association
>>> dlcrowe at fssp.fldeafblind.org
>>> (386) 546-5706
>>> www.fldeafblind.org
>>>
>>> RELAYING SELF-SUFFICIENCY
>>>
>>> 'Character cannot be developed in ease and quiet. Only through
experience of
>>> trial and suffering can the soul be strengthened, vision cleared,
ambition
>>> inspired, and success achieved'
>>> ~ Helen
>>> Keller
>>>
>>>
>>>
>>>
>>>
>>>
>>> <2014FSSP Flyer ORL.pdf>
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
> --
> *~Shadow Wolf~*
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 8
Date: Sun, 23 Mar 2014 13:55:14 -0400
From: Marsha Drenth <marsha.drenth at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <DB5218DB-CC4C-4A4A-BE9C-7B0143CE87D8 at gmail.com>
Content-Type: text/plain; charset=us-ascii
Darlene,
I wish that AADB was financially and physically up to holding another
conference. I have recently gotten involved in the AADB rebuilding. Its slow
and not going very fast. This is not meant to be offensive to anyone who is
a die hard AADB supporter, but they are not doing anything. Its sad. But
this also means that perhaps this means that organizations like the NFB
should step in for persons who are deafblind.
Yes Southeastern PA has a brand new SSP program. I am heavily involved in
this. I know the coordinator personally as he lives just a few minutes from
my home in PA. I am also on a committee to help the state rehab agencies
form a state wide SSP program. Right now the SE PA SSP program only covers 8
counties, the state wide program will serves the whole state. PA has a
medium size deafblind program, we are finding them every day.
I was also going to ask what is the FL DB left behind registery?
Marsha drenth
Sent with my IPhone
> On Mar 23, 2014, at 11:55 AM, "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
wrote:
>
> Thank you, SW! Yes, Maricar would be a great person to talk to at HKNC
> about the SSP programs. When I was at HKNC in 2011, I had the opportunity
> to go to a American Association for the Deaf Blind (AADB) symposium in
> Kentucky. HKNC furnished a SSP to travel with me. There were others in
the
> group who also had their own SSP.
>
> I loved the freedom of having my own SSP while at the symposium and
learned
> much about what it meant to be a SSP...one thing that is important is that
> the SSP does not make decisions for the Deaf-Blind person, it is up to the
> DB person to tell the SSP what they want to do after the SSP feeds them
the
> visual information that they need to know.
>
> Some states have very small programs and others are in specific areas of
the
> state and not statewide. Here in Florida we are aiming for statewide
> services. I don't' remember if Pennsylvania has a SSP program. I admit I
> do know know about Pennsylvania's SSP services but Maricar and HKNC would
be
> a great resource to find out if they do. HKNC is very involved in each
> state that has SSP programs. They make it their priority to stay on top
of
> what is provided in the states.
>
> Like I said there are only 30 states that have SSP services and some are
> only in a small metropolitan area and not statewide. For example, in the
> State of Washington they have an excellent SSP program within the Seattle
> area but it is not offered statewide.
>
> Darlene
> .
>
> -----Original Message-----
> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow Wolf
> Sent: Sunday, March 23, 2014 11:18 AM
> To: NFB Deaf-Blind Division Mailing List
> Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -
> Orlando
>
> Marsha,
> Every state and city has their own SSP coordinator. The person responsible
> for establishing and setting up SSP services in your area differs from
state
> to state. If you live in PA. I'm pretty sure they have their own SSP
> coordinator in your area. I believe you live in Philedalphia. Scott
Stoffel,
> is an SSP coordinator in another area. I'm not sure if he also the
> coordinator of your city. But you can ask him, if you still have his email
> address.
>
> HKNC just barely started it's own SSP program. They created an SSP class,
> now taught by Maricar. I took her class myself. Marsha you might want to
> take her class and learn more about the SSP program.
>
> --Shadow W.
>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:
>> Darlene,
>> Thanks for posting this. I see in your email signature that your FL SSP
> coordinator. Which leads me to my question. Are you connected to other SSP
> coordinators around the country, like in other states? There might be a
need
> to connect all of the coordinators, to have some unity in trainings,
> materials, programs and so on.
>> Very curiously,
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
> wrote:
>>>
>>> Florida Residents:
>>>
>>> This announcement is for sighted individuals who are interested in
>>> becoming Support Service Provider (SSP), who will sight-guide, assist
>>> in communication needs (sign or voice), relay visual information and
>>> provide information for Deaf-Blind Floridians.
>>>
>>> Attached is a copy of our next FSSP Training Workshop.
>>>
>>> Please go to our website for further information.
>>>
>>> SPREAD THE WORD!
>>>
>>> Darlene Laibl-Crowe
>>>
>>> FSSP Coordinator
>>> Florida Deaf-Blind Association
>>> dlcrowe at fssp.fldeafblind.org
>>> (386) 546-5706
>>> www.fldeafblind.org
>>>
>>> RELAYING SELF-SUFFICIENCY
>>>
>>> 'Character cannot be developed in ease and quiet. Only through
>>> experience of trial and suffering can the soul be strengthened,
>>> vision cleared, ambition inspired, and success achieved'
>>> ~
>>> Helen Keller
>>>
>>>
>>>
>>>
>>>
>>>
>>> <2014FSSP Flyer ORL.pdf>
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
> --
> *~Shadow Wolf~*
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 9
Date: Sun, 23 Mar 2014 11:29:16 -0700
From: Shadow Wolf <soulalibi at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <532F27FC.8000200 at gmail.com>
Content-Type: text/plain; charset=ISO-8859-1; format=flowed
Hi Darlene,
Right on.
Yes I agree with you on the notion that not every state has an SSP
program. My assumption is because some states, such as Seattle, WA,
California (in most large cities) and Florida has a significant DB
population. If a state like Iowa, that does not have a valid active DB
population, it is very difficult to establish an SSP program in that
state. Here in Arizona, we have SSP services for both the greater
Phoenix metro area and Tucson. Both cities has a significant DB
population, while in Flagstaff does not. The funds to keep our SSP
service going in Phoenix comes from private donors, such as the Catholic
church (for one). And we are only limited to a small # of hours per month.
Darlene, for the most part. The DB community nationwide is advocating to
Congress to pass legislation to help fund SSP programs nationwide. We
are all in this cause together. I think sooner rather than later, this
will happen in the near future.
--S.W.
On 3/23/2014 8:55 AM, Darlene Laibl-Crowe wrote:
> Thank you, SW! Yes, Maricar would be a great person to talk to at HKNC
> about the SSP programs. When I was at HKNC in 2011, I had the opportunity
> to go to a American Association for the Deaf Blind (AADB) symposium in
> Kentucky. HKNC furnished a SSP to travel with me. There were others in
the
> group who also had their own SSP.
>
> I loved the freedom of having my own SSP while at the symposium and
learned
> much about what it meant to be a SSP...one thing that is important is that
> the SSP does not make decisions for the Deaf-Blind person, it is up to the
> DB person to tell the SSP what they want to do after the SSP feeds them
the
> visual information that they need to know.
>
> Some states have very small programs and others are in specific areas of
the
> state and not statewide. Here in Florida we are aiming for statewide
> services. I don't' remember if Pennsylvania has a SSP program. I admit I
> do know know about Pennsylvania's SSP services but Maricar and HKNC would
be
> a great resource to find out if they do. HKNC is very involved in each
> state that has SSP programs. They make it their priority to stay on top
of
> what is provided in the states.
>
> Like I said there are only 30 states that have SSP services and some are
> only in a small metropolitan area and not statewide. For example, in the
> State of Washington they have an excellent SSP program within the Seattle
> area but it is not offered statewide.
>
> Darlene
> .
>
> -----Original Message-----
> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow Wolf
> Sent: Sunday, March 23, 2014 11:18 AM
> To: NFB Deaf-Blind Division Mailing List
> Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -
> Orlando
>
> Marsha,
> Every state and city has their own SSP coordinator. The person responsible
> for establishing and setting up SSP services in your area differs from
state
> to state. If you live in PA. I'm pretty sure they have their own SSP
> coordinator in your area. I believe you live in Philedalphia. Scott
Stoffel,
> is an SSP coordinator in another area. I'm not sure if he also the
> coordinator of your city. But you can ask him, if you still have his email
> address.
>
> HKNC just barely started it's own SSP program. They created an SSP class,
> now taught by Maricar. I took her class myself. Marsha you might want to
> take her class and learn more about the SSP program.
>
> --Shadow W.
> On 3/23/2014 6:59 AM, Marsha Drenth wrote:
>> Darlene,
>> Thanks for posting this. I see in your email signature that your FL SSP
> coordinator. Which leads me to my question. Are you connected to other SSP
> coordinators around the country, like in other states? There might be a
need
> to connect all of the coordinators, to have some unity in trainings,
> materials, programs and so on.
>> Very curiously,
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
> wrote:
>>> Florida Residents:
>>>
>>> This announcement is for sighted individuals who are interested in
>>> becoming Support Service Provider (SSP), who will sight-guide, assist
>>> in communication needs (sign or voice), relay visual information and
>>> provide information for Deaf-Blind Floridians.
>>>
>>> Attached is a copy of our next FSSP Training Workshop.
>>>
>>> Please go to our website for further information.
>>>
>>> SPREAD THE WORD!
>>>
>>> Darlene Laibl-Crowe
>>>
>>> FSSP Coordinator
>>> Florida Deaf-Blind Association
>>> dlcrowe at fssp.fldeafblind.org
>>> (386) 546-5706
>>> www.fldeafblind.org
>>>
>>> RELAYING SELF-SUFFICIENCY
>>>
>>> 'Character cannot be developed in ease and quiet. Only through
>>> experience of trial and suffering can the soul be strengthened,
>>> vision cleared, ambition inspired, and success achieved'
>>> ~
>>> Helen Keller
>>>
>>>
>>>
>>>
>>>
>>>
>>> <2014FSSP Flyer ORL.pdf>
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
> --
> *~Shadow Wolf~*
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
--
*~Shadow Wolf~*
------------------------------
Message: 10
Date: Sun, 23 Mar 2014 11:36:09 -0700
From: Shadow Wolf <soulalibi at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <532F2999.1070209 at gmail.com>
Content-Type: text/plain; charset=ISO-8859-1; format=flowed
Darlene,
In regards to the AADB. As you know, I am not officially a member of
that organization yet. But I've heard while I was still a student at
HKNC last year. That the AADB has selected a new president (Randy
"Hippie" Pope?) and a new board of directors. Effective since last
summer. I believe Randy once stated that they will take AADB in a new
direction. And possibly unite the NFB with the AADB. Because in past
years with the former president and former board members. They were
wholly inactive and "do-nothings" that left AADB in dire straits. I'm
guessing its taking Randy some time to take care of business and
figuring out what they plan to do this year. Anything new with them?
--S.W.
On 3/23/2014 10:55 AM, Marsha Drenth wrote:
> Darlene,
> I wish that AADB was financially and physically up to holding another
conference. I have recently gotten involved in the AADB rebuilding. Its slow
and not going very fast. This is not meant to be offensive to anyone who is
a die hard AADB supporter, but they are not doing anything. Its sad. But
this also means that perhaps this means that organizations like the NFB
should step in for persons who are deafblind.
>
> Yes Southeastern PA has a brand new SSP program. I am heavily involved in
this. I know the coordinator personally as he lives just a few minutes from
my home in PA. I am also on a committee to help the state rehab agencies
form a state wide SSP program. Right now the SE PA SSP program only covers 8
counties, the state wide program will serves the whole state. PA has a
medium size deafblind program, we are finding them every day.
>
> I was also going to ask what is the FL DB left behind registery?
>
>
> Marsha drenth
> Sent with my IPhone
>
>> On Mar 23, 2014, at 11:55 AM, "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
wrote:
>>
>> Thank you, SW! Yes, Maricar would be a great person to talk to at HKNC
>> about the SSP programs. When I was at HKNC in 2011, I had the
opportunity
>> to go to a American Association for the Deaf Blind (AADB) symposium in
>> Kentucky. HKNC furnished a SSP to travel with me. There were others in
the
>> group who also had their own SSP.
>>
>> I loved the freedom of having my own SSP while at the symposium and
learned
>> much about what it meant to be a SSP...one thing that is important is
that
>> the SSP does not make decisions for the Deaf-Blind person, it is up to
the
>> DB person to tell the SSP what they want to do after the SSP feeds them
the
>> visual information that they need to know.
>>
>> Some states have very small programs and others are in specific areas of
the
>> state and not statewide. Here in Florida we are aiming for statewide
>> services. I don't' remember if Pennsylvania has a SSP program. I admit
I
>> do know know about Pennsylvania's SSP services but Maricar and HKNC would
be
>> a great resource to find out if they do. HKNC is very involved in each
>> state that has SSP programs. They make it their priority to stay on top
of
>> what is provided in the states.
>>
>> Like I said there are only 30 states that have SSP services and some are
>> only in a small metropolitan area and not statewide. For example, in the
>> State of Washington they have an excellent SSP program within the Seattle
>> area but it is not offered statewide.
>>
>> Darlene
>> .
>>
>> -----Original Message-----
>> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow Wolf
>> Sent: Sunday, March 23, 2014 11:18 AM
>> To: NFB Deaf-Blind Division Mailing List
>> Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -
>> Orlando
>>
>> Marsha,
>> Every state and city has their own SSP coordinator. The person
responsible
>> for establishing and setting up SSP services in your area differs from
state
>> to state. If you live in PA. I'm pretty sure they have their own SSP
>> coordinator in your area. I believe you live in Philedalphia. Scott
Stoffel,
>> is an SSP coordinator in another area. I'm not sure if he also the
>> coordinator of your city. But you can ask him, if you still have his
email
>> address.
>>
>> HKNC just barely started it's own SSP program. They created an SSP class,
>> now taught by Maricar. I took her class myself. Marsha you might want to
>> take her class and learn more about the SSP program.
>>
>> --Shadow W.
>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:
>>> Darlene,
>>> Thanks for posting this. I see in your email signature that your FL SSP
>> coordinator. Which leads me to my question. Are you connected to other
SSP
>> coordinators around the country, like in other states? There might be a
need
>> to connect all of the coordinators, to have some unity in trainings,
>> materials, programs and so on.
>>> Very curiously,
>>>
>>> Marsha drenth
>>> Sent with my IPhone
>>>
>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe"
<dlaiblcrowe at att.net>
>> wrote:
>>>> Florida Residents:
>>>>
>>>> This announcement is for sighted individuals who are interested in
>>>> becoming Support Service Provider (SSP), who will sight-guide, assist
>>>> in communication needs (sign or voice), relay visual information and
>>>> provide information for Deaf-Blind Floridians.
>>>>
>>>> Attached is a copy of our next FSSP Training Workshop.
>>>>
>>>> Please go to our website for further information.
>>>>
>>>> SPREAD THE WORD!
>>>>
>>>> Darlene Laibl-Crowe
>>>>
>>>> FSSP Coordinator
>>>> Florida Deaf-Blind Association
>>>> dlcrowe at fssp.fldeafblind.org
>>>> (386) 546-5706
>>>> www.fldeafblind.org
>>>>
>>>> RELAYING SELF-SUFFICIENCY
>>>>
>>>> 'Character cannot be developed in ease and quiet. Only through
>>>> experience of trial and suffering can the soul be strengthened,
>>>> vision cleared, ambition inspired, and success achieved'
>>>> ~
>>>> Helen Keller
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> <2014FSSP Flyer ORL.pdf>
>>>> _______________________________________________
>>>> nfb-db mailing list
>>>> nfb-db at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> --
>> *~Shadow Wolf~*
>>
>>
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>
>>
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
--
*~Shadow Wolf~*
------------------------------
Message: 11
Date: Sun, 23 Mar 2014 11:44:08 -0700
From: Shadow Wolf <soulalibi at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <532F2B78.6000308 at gmail.com>
Content-Type: text/plain; charset=ISO-8859-1; format=flowed
Marsha,
I'm puzzled by your response. You sound quite defensive. I don't need to
re-read your questions. I merely added in my input for info purposes
only. But you were quick to admonish me for it. As Darlene stated in
response to me. Maricar would be the best person at HKNC to discuss any
SSP related questions. If you're planning on becoming a social worker.
You should at least be professional about it. Just my IMHO. And nothing
personal.
--S.W.
On 3/23/2014 10:45 AM, Marsha Drenth wrote:
> SW,
> I know this. I am well aware of what an SSP is, what an SSP does. I do
have Scott's email, and work closely with him. I am on a committee within my
state of PA to creat a SSP program. Taking Maricar class is not something I
feel as though I need to do.
>
> I was specifically asking if like the interpretors have a registery, is
there the same for SSP? a website or email list for SSP coordinators to
gather, to share, to work together to form these programs? I don't
personally want to contact these SSP coordinators, but how do people share
information. See my response back to Darlene on further clarification of my
question.
>
>
>
> Marsha drenth
> Sent with my IPhone
>
>> On Mar 23, 2014, at 11:18 AM, Shadow Wolf <soulalibi at gmail.com> wrote:
>>
>> Marsha,
>> Every state and city has their own SSP coordinator. The person
responsible for establishing and setting up SSP services in your area
differs from state to state. If you live in PA. I'm pretty sure they have
their own SSP coordinator in your area. I believe you live in Philedalphia.
Scott Stoffel, is an SSP coordinator in another area. I'm not sure if he
also the coordinator of your city. But you can ask him, if you still have
his email address.
>>
>> HKNC just barely started it's own SSP program. They created an SSP class,
now taught by Maricar. I took her class myself. Marsha you might want to
take her class and learn more about the SSP program.
>>
>> --Shadow W.
>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:
>>> Darlene,
>>> Thanks for posting this. I see in your email signature that your FL SSP
coordinator. Which leads me to my question. Are you connected to other SSP
coordinators around the country, like in other states? There might be a need
to connect all of the coordinators, to have some unity in trainings,
materials, programs and so on.
>>> Very curiously,
>>>
>>> Marsha drenth
>>> Sent with my IPhone
>>>
>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe"
<dlaiblcrowe at att.net> wrote:
>>>>
>>>> Florida Residents:
>>>>
>>>> This announcement is for sighted individuals who are interested in
becoming
>>>> Support Service Provider (SSP), who will sight-guide, assist in
>>>> communication needs (sign or voice), relay visual information and
provide
>>>> information for Deaf-Blind Floridians.
>>>>
>>>> Attached is a copy of our next FSSP Training Workshop.
>>>>
>>>> Please go to our website for further information.
>>>>
>>>> SPREAD THE WORD!
>>>>
>>>> Darlene Laibl-Crowe
>>>>
>>>> FSSP Coordinator
>>>> Florida Deaf-Blind Association
>>>> dlcrowe at fssp.fldeafblind.org
>>>> (386) 546-5706
>>>> www.fldeafblind.org
>>>>
>>>> RELAYING SELF-SUFFICIENCY
>>>>
>>>> 'Character cannot be developed in ease and quiet. Only through
experience of
>>>> trial and suffering can the soul be strengthened, vision cleared,
ambition
>>>> inspired, and success achieved'
>>>> ~ Helen
>>>> Keller
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> <2014FSSP Flyer ORL.pdf>
>>>> _______________________________________________
>>>> nfb-db mailing list
>>>> nfb-db at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> --
>> *~Shadow Wolf~*
>>
>>
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
--
*~Shadow Wolf~*
------------------------------
Message: 12
Date: Sun, 23 Mar 2014 15:27:16 -0400
From: Darlene <dlaiblcrowe at att.net>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <D3C999AA-8E6D-4F96-9DBB-6B6FF90B70DC at att.net>
Content-Type: text/plain; charset=us-ascii
Hi Marsha
I don't know if Randy has
Achieved his goals
There was much to be done I know he is a good person for that position at
AADb
I am sure if you contact him he would be happy to share with you
I am not that involved with AADb at this time
Sent from my iPhone
> On Mar 23, 2014, at 2:36 PM, Shadow Wolf <soulalibi at gmail.com> wrote:
>
> Darlene,
> In regards to the AADB. As you know, I am not officially a member of that
organization yet. But I've heard while I was still a student at HKNC last
year. That the AADB has selected a new president (Randy "Hippie" Pope?) and
a new board of directors. Effective since last summer. I believe Randy once
stated that they will take AADB in a new direction. And possibly unite the
NFB with the AADB. Because in past years with the former president and
former board members. They were wholly inactive and "do-nothings" that left
AADB in dire straits. I'm guessing its taking Randy some time to take care
of business and figuring out what they plan to do this year. Anything new
with them?
>
> --S.W.
>> On 3/23/2014 10:55 AM, Marsha Drenth wrote:
>> Darlene,
>> I wish that AADB was financially and physically up to holding another
conference. I have recently gotten involved in the AADB rebuilding. Its slow
and not going very fast. This is not meant to be offensive to anyone who is
a die hard AADB supporter, but they are not doing anything. Its sad. But
this also means that perhaps this means that organizations like the NFB
should step in for persons who are deafblind.
>>
>> Yes Southeastern PA has a brand new SSP program. I am heavily involved in
this. I know the coordinator personally as he lives just a few minutes from
my home in PA. I am also on a committee to help the state rehab agencies
form a state wide SSP program. Right now the SE PA SSP program only covers 8
counties, the state wide program will serves the whole state. PA has a
medium size deafblind program, we are finding them every day.
>>
>> I was also going to ask what is the FL DB left behind registery?
>>
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>>> On Mar 23, 2014, at 11:55 AM, "Darlene Laibl-Crowe"
<dlaiblcrowe at att.net> wrote:
>>>
>>> Thank you, SW! Yes, Maricar would be a great person to talk to at HKNC
>>> about the SSP programs. When I was at HKNC in 2011, I had the
opportunity
>>> to go to a American Association for the Deaf Blind (AADB) symposium in
>>> Kentucky. HKNC furnished a SSP to travel with me. There were others in
the
>>> group who also had their own SSP.
>>>
>>> I loved the freedom of having my own SSP while at the symposium and
learned
>>> much about what it meant to be a SSP...one thing that is important is
that
>>> the SSP does not make decisions for the Deaf-Blind person, it is up to
the
>>> DB person to tell the SSP what they want to do after the SSP feeds them
the
>>> visual information that they need to know.
>>>
>>> Some states have very small programs and others are in specific areas of
the
>>> state and not statewide. Here in Florida we are aiming for statewide
>>> services. I don't' remember if Pennsylvania has a SSP program. I admit
I
>>> do know know about Pennsylvania's SSP services but Maricar and HKNC
would be
>>> a great resource to find out if they do. HKNC is very involved in each
>>> state that has SSP programs. They make it their priority to stay on top
of
>>> what is provided in the states.
>>>
>>> Like I said there are only 30 states that have SSP services and some are
>>> only in a small metropolitan area and not statewide. For example, in
the
>>> State of Washington they have an excellent SSP program within the
Seattle
>>> area but it is not offered statewide.
>>>
>>> Darlene
>>> .
>>>
>>> -----Original Message-----
>>> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow Wolf
>>> Sent: Sunday, March 23, 2014 11:18 AM
>>> To: NFB Deaf-Blind Division Mailing List
>>> Subject: Re: [nfb-db] Florida Support Service Program Training Workshop
-
>>> Orlando
>>>
>>> Marsha,
>>> Every state and city has their own SSP coordinator. The person
responsible
>>> for establishing and setting up SSP services in your area differs from
state
>>> to state. If you live in PA. I'm pretty sure they have their own SSP
>>> coordinator in your area. I believe you live in Philedalphia. Scott
Stoffel,
>>> is an SSP coordinator in another area. I'm not sure if he also the
>>> coordinator of your city. But you can ask him, if you still have his
email
>>> address.
>>>
>>> HKNC just barely started it's own SSP program. They created an SSP
class,
>>> now taught by Maricar. I took her class myself. Marsha you might want to
>>> take her class and learn more about the SSP program.
>>>
>>> --Shadow W.
>>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:
>>>> Darlene,
>>>> Thanks for posting this. I see in your email signature that your FL SSP
>>> coordinator. Which leads me to my question. Are you connected to other
SSP
>>> coordinators around the country, like in other states? There might be a
need
>>> to connect all of the coordinators, to have some unity in trainings,
>>> materials, programs and so on.
>>>> Very curiously,
>>>>
>>>> Marsha drenth
>>>> Sent with my IPhone
>>>>
>>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe"
<dlaiblcrowe at att.net>
>>> wrote:
>>>>> Florida Residents:
>>>>>
>>>>> This announcement is for sighted individuals who are interested in
>>>>> becoming Support Service Provider (SSP), who will sight-guide, assist
>>>>> in communication needs (sign or voice), relay visual information and
>>>>> provide information for Deaf-Blind Floridians.
>>>>>
>>>>> Attached is a copy of our next FSSP Training Workshop.
>>>>>
>>>>> Please go to our website for further information.
>>>>>
>>>>> SPREAD THE WORD!
>>>>>
>>>>> Darlene Laibl-Crowe
>>>>>
>>>>> FSSP Coordinator
>>>>> Florida Deaf-Blind Association
>>>>> dlcrowe at fssp.fldeafblind.org
>>>>> (386) 546-5706
>>>>> www.fldeafblind.org
>>>>>
>>>>> RELAYING SELF-SUFFICIENCY
>>>>>
>>>>> 'Character cannot be developed in ease and quiet. Only through
>>>>> experience of trial and suffering can the soul be strengthened,
>>>>> vision cleared, ambition inspired, and success achieved'
>>>>> ~
>>>>> Helen Keller
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> <2014FSSP Flyer ORL.pdf>
>>>>> _______________________________________________
>>>>> nfb-db mailing list
>>>>> nfb-db at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>>> _______________________________________________
>>>> nfb-db mailing list
>>>> nfb-db at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>> --
>>> *~Shadow Wolf~*
>>>
>>>
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>>
>>>
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
> --
> *~Shadow Wolf~*
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 13
Date: Sun, 23 Mar 2014 15:30:36 -0400
From: Darlene <dlaiblcrowe at att.net>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <D9A83A6B-E437-445C-889C-875B400582EC at att.net>
Content-Type: text/plain; charset=us-ascii
That is good news!
Thank you for sharing
Sent from my iPhone
> On Mar 23, 2014, at 2:29 PM, Shadow Wolf <soulalibi at gmail.com> wrote:
>
> Hi Darlene,
> Right on.
> Yes I agree with you on the notion that not every state has an SSP
program. My assumption is because some states, such as Seattle, WA,
California (in most large cities) and Florida has a significant DB
population. If a state like Iowa, that does not have a valid active DB
population, it is very difficult to establish an SSP program in that state.
Here in Arizona, we have SSP services for both the greater Phoenix metro
area and Tucson. Both cities has a significant DB population, while in
Flagstaff does not. The funds to keep our SSP service going in Phoenix comes
from private donors, such as the Catholic church (for one). And we are only
limited to a small # of hours per month.
>
> Darlene, for the most part. The DB community nationwide is advocating to
Congress to pass legislation to help fund SSP programs nationwide. We are
all in this cause together. I think sooner rather than later, this will
happen in the near future.
>
> --S.W.
>> On 3/23/2014 8:55 AM, Darlene Laibl-Crowe wrote:
>> Thank you, SW! Yes, Maricar would be a great person to talk to at HKNC
>> about the SSP programs. When I was at HKNC in 2011, I had the
opportunity
>> to go to a American Association for the Deaf Blind (AADB) symposium in
>> Kentucky. HKNC furnished a SSP to travel with me. There were others in
the
>> group who also had their own SSP.
>>
>> I loved the freedom of having my own SSP while at the symposium and
learned
>> much about what it meant to be a SSP...one thing that is important is
that
>> the SSP does not make decisions for the Deaf-Blind person, it is up to
the
>> DB person to tell the SSP what they want to do after the SSP feeds them
the
>> visual information that they need to know.
>>
>> Some states have very small programs and others are in specific areas of
the
>> state and not statewide. Here in Florida we are aiming for statewide
>> services. I don't' remember if Pennsylvania has a SSP program. I admit
I
>> do know know about Pennsylvania's SSP services but Maricar and HKNC would
be
>> a great resource to find out if they do. HKNC is very involved in each
>> state that has SSP programs. They make it their priority to stay on top
of
>> what is provided in the states.
>>
>> Like I said there are only 30 states that have SSP services and some are
>> only in a small metropolitan area and not statewide. For example, in the
>> State of Washington they have an excellent SSP program within the Seattle
>> area but it is not offered statewide.
>>
>> Darlene
>> .
>>
>> -----Original Message-----
>> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow Wolf
>> Sent: Sunday, March 23, 2014 11:18 AM
>> To: NFB Deaf-Blind Division Mailing List
>> Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -
>> Orlando
>>
>> Marsha,
>> Every state and city has their own SSP coordinator. The person
responsible
>> for establishing and setting up SSP services in your area differs from
state
>> to state. If you live in PA. I'm pretty sure they have their own SSP
>> coordinator in your area. I believe you live in Philedalphia. Scott
Stoffel,
>> is an SSP coordinator in another area. I'm not sure if he also the
>> coordinator of your city. But you can ask him, if you still have his
email
>> address.
>>
>> HKNC just barely started it's own SSP program. They created an SSP class,
>> now taught by Maricar. I took her class myself. Marsha you might want to
>> take her class and learn more about the SSP program.
>>
>> --Shadow W.
>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:
>>> Darlene,
>>> Thanks for posting this. I see in your email signature that your FL SSP
>> coordinator. Which leads me to my question. Are you connected to other
SSP
>> coordinators around the country, like in other states? There might be a
need
>> to connect all of the coordinators, to have some unity in trainings,
>> materials, programs and so on.
>>> Very curiously,
>>>
>>> Marsha drenth
>>> Sent with my IPhone
>>>
>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe"
<dlaiblcrowe at att.net>
>> wrote:
>>>> Florida Residents:
>>>>
>>>> This announcement is for sighted individuals who are interested in
>>>> becoming Support Service Provider (SSP), who will sight-guide, assist
>>>> in communication needs (sign or voice), relay visual information and
>>>> provide information for Deaf-Blind Floridians.
>>>>
>>>> Attached is a copy of our next FSSP Training Workshop.
>>>>
>>>> Please go to our website for further information.
>>>>
>>>> SPREAD THE WORD!
>>>>
>>>> Darlene Laibl-Crowe
>>>>
>>>> FSSP Coordinator
>>>> Florida Deaf-Blind Association
>>>> dlcrowe at fssp.fldeafblind.org
>>>> (386) 546-5706
>>>> www.fldeafblind.org
>>>>
>>>> RELAYING SELF-SUFFICIENCY
>>>>
>>>> 'Character cannot be developed in ease and quiet. Only through
>>>> experience of trial and suffering can the soul be strengthened,
>>>> vision cleared, ambition inspired, and success achieved'
>>>> ~
>>>> Helen Keller
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> <2014FSSP Flyer ORL.pdf>
>>>> _______________________________________________
>>>> nfb-db mailing list
>>>> nfb-db at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> --
>> *~Shadow Wolf~*
>>
>>
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>
>>
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
> --
> *~Shadow Wolf~*
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 14
Date: Sun, 23 Mar 2014 15:39:38 -0400
From: "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
To: "'NFB Deaf-Blind Division Mailing List'" <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <000001cf46cf$a1e46c30$e5ad4490$@net>
Content-Type: text/plain; charset="us-ascii"
I understand but you have to realize that what happened to AADB happened a
couple of years ago so it is going to take some time. I wish things would
turnover quickly but it takes a team effort to get things done;
unfortunately, in every organization there are some who simply do not
contribute their full potential and the goals get lost in the meantime.
Support and encouragement of one another is going to make a huge difference.
One thing that I've noticed in my journey as a Deaf-Blind individual
(recorgnized in 2010) is that there are many talented individuals out there
and it takes a team effort to be success along with determination! It can
be done.
Patence and perseverance.
Just continue to be supportive and do your part, it will come.
I am proud of you and others who take the time to be proactive!!
(smile)
Darlene
-----Original Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Marsha Drenth
Sent: Sunday, March 23, 2014 1:55 PM
To: NFB Deaf-Blind Division Mailing List
Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -
Orlando
Darlene,
I wish that AADB was financially and physically up to holding another
conference. I have recently gotten involved in the AADB rebuilding. Its slow
and not going very fast. This is not meant to be offensive to anyone who is
a die hard AADB supporter, but they are not doing anything. Its sad. But
this also means that perhaps this means that organizations like the NFB
should step in for persons who are deafblind.
Yes Southeastern PA has a brand new SSP program. I am heavily involved in
this. I know the coordinator personally as he lives just a few minutes from
my home in PA. I am also on a committee to help the state rehab agencies
form a state wide SSP program. Right now the SE PA SSP program only covers 8
counties, the state wide program will serves the whole state. PA has a
medium size deafblind program, we are finding them every day.
I was also going to ask what is the FL DB left behind registery?
Marsha drenth
Sent with my IPhone
> On Mar 23, 2014, at 11:55 AM, "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
wrote:
>
> Thank you, SW! Yes, Maricar would be a great person to talk to at
> HKNC about the SSP programs. When I was at HKNC in 2011, I had the
> opportunity to go to a American Association for the Deaf Blind (AADB)
> symposium in Kentucky. HKNC furnished a SSP to travel with me. There
> were others in the group who also had their own SSP.
>
> I loved the freedom of having my own SSP while at the symposium and
> learned much about what it meant to be a SSP...one thing that is
> important is that the SSP does not make decisions for the Deaf-Blind
> person, it is up to the DB person to tell the SSP what they want to do
> after the SSP feeds them the visual information that they need to know.
>
> Some states have very small programs and others are in specific areas
> of the state and not statewide. Here in Florida we are aiming for
statewide
> services. I don't' remember if Pennsylvania has a SSP program. I admit
I
> do know know about Pennsylvania's SSP services but Maricar and HKNC
> would be a great resource to find out if they do. HKNC is very
> involved in each state that has SSP programs. They make it their
> priority to stay on top of what is provided in the states.
>
> Like I said there are only 30 states that have SSP services and some
> are only in a small metropolitan area and not statewide. For example,
> in the State of Washington they have an excellent SSP program within
> the Seattle area but it is not offered statewide.
>
> Darlene
> .
>
> -----Original Message-----
> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow
> Wolf
> Sent: Sunday, March 23, 2014 11:18 AM
> To: NFB Deaf-Blind Division Mailing List
> Subject: Re: [nfb-db] Florida Support Service Program Training
> Workshop - Orlando
>
> Marsha,
> Every state and city has their own SSP coordinator. The person
> responsible for establishing and setting up SSP services in your area
> differs from state to state. If you live in PA. I'm pretty sure they
> have their own SSP coordinator in your area. I believe you live in
> Philedalphia. Scott Stoffel, is an SSP coordinator in another area.
> I'm not sure if he also the coordinator of your city. But you can ask
> him, if you still have his email address.
>
> HKNC just barely started it's own SSP program. They created an SSP
> class, now taught by Maricar. I took her class myself. Marsha you
> might want to take her class and learn more about the SSP program.
>
> --Shadow W.
>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:
>> Darlene,
>> Thanks for posting this. I see in your email signature that your FL
>> SSP
> coordinator. Which leads me to my question. Are you connected to other
> SSP coordinators around the country, like in other states? There might
> be a need to connect all of the coordinators, to have some unity in
> trainings, materials, programs and so on.
>> Very curiously,
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe"
>>> <dlaiblcrowe at att.net>
> wrote:
>>>
>>> Florida Residents:
>>>
>>> This announcement is for sighted individuals who are interested in
>>> becoming Support Service Provider (SSP), who will sight-guide,
>>> assist in communication needs (sign or voice), relay visual
>>> information and provide information for Deaf-Blind Floridians.
>>>
>>> Attached is a copy of our next FSSP Training Workshop.
>>>
>>> Please go to our website for further information.
>>>
>>> SPREAD THE WORD!
>>>
>>> Darlene Laibl-Crowe
>>>
>>> FSSP Coordinator
>>> Florida Deaf-Blind Association
>>> dlcrowe at fssp.fldeafblind.org
>>> (386) 546-5706
>>> www.fldeafblind.org
>>>
>>> RELAYING SELF-SUFFICIENCY
>>>
>>> 'Character cannot be developed in ease and quiet. Only through
>>> experience of trial and suffering can the soul be strengthened,
>>> vision cleared, ambition inspired, and success achieved'
>>> ~
>>> Helen Keller
>>>
>>>
>>>
>>>
>>>
>>>
>>> <2014FSSP Flyer ORL.pdf>
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
> --
> *~Shadow Wolf~*
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 15
Date: Sun, 23 Mar 2014 15:40:34 -0400
From: "Darlene Laibl-Crowe" <dlaiblcrowe at att.net>
To: "'NFB Deaf-Blind Division Mailing List'" <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <000101cf46cf$c393ed60$4abbc820$@net>
Content-Type: text/plain; charset="us-ascii"
I am sorry, I misread the sender of the previous email...it was meant for SW
not Marsha.
(smile)
Darlene
-----Original Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Darlene
Sent: Sunday, March 23, 2014 3:27 PM
To: NFB Deaf-Blind Division Mailing List
Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -
Orlando
Hi Marsha
I don't know if Randy has
Achieved his goals
There was much to be done I know he is a good person for that position at
AADb I am sure if you contact him he would be happy to share with you I am
not that involved with AADb at this time
Sent from my iPhone
> On Mar 23, 2014, at 2:36 PM, Shadow Wolf <soulalibi at gmail.com> wrote:
>
> Darlene,
> In regards to the AADB. As you know, I am not officially a member of that
organization yet. But I've heard while I was still a student at HKNC last
year. That the AADB has selected a new president (Randy "Hippie" Pope?) and
a new board of directors. Effective since last summer. I believe Randy once
stated that they will take AADB in a new direction. And possibly unite the
NFB with the AADB. Because in past years with the former president and
former board members. They were wholly inactive and "do-nothings" that left
AADB in dire straits. I'm guessing its taking Randy some time to take care
of business and figuring out what they plan to do this year. Anything new
with them?
>
> --S.W.
>> On 3/23/2014 10:55 AM, Marsha Drenth wrote:
>> Darlene,
>> I wish that AADB was financially and physically up to holding another
conference. I have recently gotten involved in the AADB rebuilding. Its slow
and not going very fast. This is not meant to be offensive to anyone who is
a die hard AADB supporter, but they are not doing anything. Its sad. But
this also means that perhaps this means that organizations like the NFB
should step in for persons who are deafblind.
>>
>> Yes Southeastern PA has a brand new SSP program. I am heavily involved in
this. I know the coordinator personally as he lives just a few minutes from
my home in PA. I am also on a committee to help the state rehab agencies
form a state wide SSP program. Right now the SE PA SSP program only covers 8
counties, the state wide program will serves the whole state. PA has a
medium size deafblind program, we are finding them every day.
>>
>> I was also going to ask what is the FL DB left behind registery?
>>
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>>> On Mar 23, 2014, at 11:55 AM, "Darlene Laibl-Crowe"
<dlaiblcrowe at att.net> wrote:
>>>
>>> Thank you, SW! Yes, Maricar would be a great person to talk to at
>>> HKNC about the SSP programs. When I was at HKNC in 2011, I had the
>>> opportunity to go to a American Association for the Deaf Blind
>>> (AADB) symposium in Kentucky. HKNC furnished a SSP to travel with
>>> me. There were others in the group who also had their own SSP.
>>>
>>> I loved the freedom of having my own SSP while at the symposium and
>>> learned much about what it meant to be a SSP...one thing that is
>>> important is that the SSP does not make decisions for the Deaf-Blind
>>> person, it is up to the DB person to tell the SSP what they want to
>>> do after the SSP feeds them the visual information that they need to
know.
>>>
>>> Some states have very small programs and others are in specific
>>> areas of the state and not statewide. Here in Florida we are aiming for
statewide
>>> services. I don't' remember if Pennsylvania has a SSP program. I
admit I
>>> do know know about Pennsylvania's SSP services but Maricar and HKNC
>>> would be a great resource to find out if they do. HKNC is very
>>> involved in each state that has SSP programs. They make it their
>>> priority to stay on top of what is provided in the states.
>>>
>>> Like I said there are only 30 states that have SSP services and some
>>> are only in a small metropolitan area and not statewide. For
>>> example, in the State of Washington they have an excellent SSP
>>> program within the Seattle area but it is not offered statewide.
>>>
>>> Darlene
>>> .
>>>
>>> -----Original Message-----
>>> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow
>>> Wolf
>>> Sent: Sunday, March 23, 2014 11:18 AM
>>> To: NFB Deaf-Blind Division Mailing List
>>> Subject: Re: [nfb-db] Florida Support Service Program Training
>>> Workshop - Orlando
>>>
>>> Marsha,
>>> Every state and city has their own SSP coordinator. The person
>>> responsible for establishing and setting up SSP services in your
>>> area differs from state to state. If you live in PA. I'm pretty sure
>>> they have their own SSP coordinator in your area. I believe you live
>>> in Philedalphia. Scott Stoffel, is an SSP coordinator in another
>>> area. I'm not sure if he also the coordinator of your city. But you
>>> can ask him, if you still have his email address.
>>>
>>> HKNC just barely started it's own SSP program. They created an SSP
>>> class, now taught by Maricar. I took her class myself. Marsha you
>>> might want to take her class and learn more about the SSP program.
>>>
>>> --Shadow W.
>>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:
>>>> Darlene,
>>>> Thanks for posting this. I see in your email signature that your FL
>>>> SSP
>>> coordinator. Which leads me to my question. Are you connected to
>>> other SSP coordinators around the country, like in other states?
>>> There might be a need to connect all of the coordinators, to have
>>> some unity in trainings, materials, programs and so on.
>>>> Very curiously,
>>>>
>>>> Marsha drenth
>>>> Sent with my IPhone
>>>>
>>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe"
>>>>> <dlaiblcrowe at att.net>
>>> wrote:
>>>>> Florida Residents:
>>>>>
>>>>> This announcement is for sighted individuals who are interested in
>>>>> becoming Support Service Provider (SSP), who will sight-guide,
>>>>> assist in communication needs (sign or voice), relay visual
>>>>> information and provide information for Deaf-Blind Floridians.
>>>>>
>>>>> Attached is a copy of our next FSSP Training Workshop.
>>>>>
>>>>> Please go to our website for further information.
>>>>>
>>>>> SPREAD THE WORD!
>>>>>
>>>>> Darlene Laibl-Crowe
>>>>>
>>>>> FSSP Coordinator
>>>>> Florida Deaf-Blind Association
>>>>> dlcrowe at fssp.fldeafblind.org
>>>>> (386) 546-5706
>>>>> www.fldeafblind.org
>>>>>
>>>>> RELAYING SELF-SUFFICIENCY
>>>>>
>>>>> 'Character cannot be developed in ease and quiet. Only through
>>>>> experience of trial and suffering can the soul be strengthened,
>>>>> vision cleared, ambition inspired, and success achieved'
>>>>> ~
>>>>> Helen Keller
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> <2014FSSP Flyer ORL.pdf>
>>>>> _______________________________________________
>>>>> nfb-db mailing list
>>>>> nfb-db at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>>> _______________________________________________
>>>> nfb-db mailing list
>>>> nfb-db at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>> --
>>> *~Shadow Wolf~*
>>>
>>>
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>>
>>>
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
> --
> *~Shadow Wolf~*
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 16
Date: Sun, 23 Mar 2014 12:52:50 -0700
From: Shadow Wolf <soulalibi at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <532F3B92.6000303 at gmail.com>
Content-Type: text/plain; charset=ISO-8859-1; format=flowed
LOL. Darlene,
Yes that was me. Not Marsha! No problem. Thanks for the heads up. I
haven't met Randy, but I heard some positive things about him. Give him
time.
--S.W.
On 3/23/2014 12:40 PM, Darlene Laibl-Crowe wrote:
> I am sorry, I misread the sender of the previous email...it was meant for
SW
> not Marsha.
>
> (smile)
> Darlene
>
> -----Original Message-----
> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Darlene
> Sent: Sunday, March 23, 2014 3:27 PM
> To: NFB Deaf-Blind Division Mailing List
> Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -
> Orlando
>
> Hi Marsha
> I don't know if Randy has
> Achieved his goals
> There was much to be done I know he is a good person for that position at
> AADb I am sure if you contact him he would be happy to share with you I am
> not that involved with AADb at this time
>
> Sent from my iPhone
>
>> On Mar 23, 2014, at 2:36 PM, Shadow Wolf <soulalibi at gmail.com> wrote:
>>
>> Darlene,
>> In regards to the AADB. As you know, I am not officially a member of that
> organization yet. But I've heard while I was still a student at HKNC last
> year. That the AADB has selected a new president (Randy "Hippie" Pope?)
and
> a new board of directors. Effective since last summer. I believe Randy
once
> stated that they will take AADB in a new direction. And possibly unite the
> NFB with the AADB. Because in past years with the former president and
> former board members. They were wholly inactive and "do-nothings" that
left
> AADB in dire straits. I'm guessing its taking Randy some time to take care
> of business and figuring out what they plan to do this year. Anything new
> with them?
>> --S.W.
>>> On 3/23/2014 10:55 AM, Marsha Drenth wrote:
>>> Darlene,
>>> I wish that AADB was financially and physically up to holding another
> conference. I have recently gotten involved in the AADB rebuilding. Its
slow
> and not going very fast. This is not meant to be offensive to anyone who
is
> a die hard AADB supporter, but they are not doing anything. Its sad. But
> this also means that perhaps this means that organizations like the NFB
> should step in for persons who are deafblind.
>>> Yes Southeastern PA has a brand new SSP program. I am heavily involved
in
> this. I know the coordinator personally as he lives just a few minutes
from
> my home in PA. I am also on a committee to help the state rehab agencies
> form a state wide SSP program. Right now the SE PA SSP program only covers
8
> counties, the state wide program will serves the whole state. PA has a
> medium size deafblind program, we are finding them every day.
>>> I was also going to ask what is the FL DB left behind registery?
>>>
>>>
>>> Marsha drenth
>>> Sent with my IPhone
>>>
>>>> On Mar 23, 2014, at 11:55 AM, "Darlene Laibl-Crowe"
> <dlaiblcrowe at att.net> wrote:
>>>> Thank you, SW! Yes, Maricar would be a great person to talk to at
>>>> HKNC about the SSP programs. When I was at HKNC in 2011, I had the
>>>> opportunity to go to a American Association for the Deaf Blind
>>>> (AADB) symposium in Kentucky. HKNC furnished a SSP to travel with
>>>> me. There were others in the group who also had their own SSP.
>>>>
>>>> I loved the freedom of having my own SSP while at the symposium and
>>>> learned much about what it meant to be a SSP...one thing that is
>>>> important is that the SSP does not make decisions for the Deaf-Blind
>>>> person, it is up to the DB person to tell the SSP what they want to
>>>> do after the SSP feeds them the visual information that they need to
> know.
>>>> Some states have very small programs and others are in specific
>>>> areas of the state and not statewide. Here in Florida we are aiming
for
> statewide
>>>> services. I don't' remember if Pennsylvania has a SSP program. I
> admit I
>>>> do know know about Pennsylvania's SSP services but Maricar and HKNC
>>>> would be a great resource to find out if they do. HKNC is very
>>>> involved in each state that has SSP programs. They make it their
>>>> priority to stay on top of what is provided in the states.
>>>>
>>>> Like I said there are only 30 states that have SSP services and some
>>>> are only in a small metropolitan area and not statewide. For
>>>> example, in the State of Washington they have an excellent SSP
>>>> program within the Seattle area but it is not offered statewide.
>>>>
>>>> Darlene
>>>> .
>>>>
>>>> -----Original Message-----
>>>> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow
>>>> Wolf
>>>> Sent: Sunday, March 23, 2014 11:18 AM
>>>> To: NFB Deaf-Blind Division Mailing List
>>>> Subject: Re: [nfb-db] Florida Support Service Program Training
>>>> Workshop - Orlando
>>>>
>>>> Marsha,
>>>> Every state and city has their own SSP coordinator. The person
>>>> responsible for establishing and setting up SSP services in your
>>>> area differs from state to state. If you live in PA. I'm pretty sure
>>>> they have their own SSP coordinator in your area. I believe you live
>>>> in Philedalphia. Scott Stoffel, is an SSP coordinator in another
>>>> area. I'm not sure if he also the coordinator of your city. But you
>>>> can ask him, if you still have his email address.
>>>>
>>>> HKNC just barely started it's own SSP program. They created an SSP
>>>> class, now taught by Maricar. I took her class myself. Marsha you
>>>> might want to take her class and learn more about the SSP program.
>>>>
>>>> --Shadow W.
>>>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:
>>>>> Darlene,
>>>>> Thanks for posting this. I see in your email signature that your FL
>>>>> SSP
>>>> coordinator. Which leads me to my question. Are you connected to
>>>> other SSP coordinators around the country, like in other states?
>>>> There might be a need to connect all of the coordinators, to have
>>>> some unity in trainings, materials, programs and so on.
>>>>> Very curiously,
>>>>>
>>>>> Marsha drenth
>>>>> Sent with my IPhone
>>>>>
>>>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe"
>>>>>> <dlaiblcrowe at att.net>
>>>> wrote:
>>>>>> Florida Residents:
>>>>>>
>>>>>> This announcement is for sighted individuals who are interested in
>>>>>> becoming Support Service Provider (SSP), who will sight-guide,
>>>>>> assist in communication needs (sign or voice), relay visual
>>>>>> information and provide information for Deaf-Blind Floridians.
>>>>>>
>>>>>> Attached is a copy of our next FSSP Training Workshop.
>>>>>>
>>>>>> Please go to our website for further information.
>>>>>>
>>>>>> SPREAD THE WORD!
>>>>>>
>>>>>> Darlene Laibl-Crowe
>>>>>>
>>>>>> FSSP Coordinator
>>>>>> Florida Deaf-Blind Association
>>>>>> dlcrowe at fssp.fldeafblind.org
>>>>>> (386) 546-5706
>>>>>> www.fldeafblind.org
>>>>>>
>>>>>> RELAYING SELF-SUFFICIENCY
>>>>>>
>>>>>> 'Character cannot be developed in ease and quiet. Only through
>>>>>> experience of trial and suffering can the soul be strengthened,
>>>>>> vision cleared, ambition inspired, and success achieved'
>>>>>> ~
>>>>>> Helen Keller
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>>
>>>>>> <2014FSSP Flyer ORL.pdf>
>>>>>> _______________________________________________
>>>>>> nfb-db mailing list
>>>>>> nfb-db at nfbnet.org
>>>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>>>> _______________________________________________
>>>>> nfb-db mailing list
>>>>> nfb-db at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>>> --
>>>> *~Shadow Wolf~*
>>>>
>>>>
>>>> _______________________________________________
>>>> nfb-db mailing list
>>>> nfb-db at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>>>
>>>>
>>>> _______________________________________________
>>>> nfb-db mailing list
>>>> nfb-db at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> --
>> *~Shadow Wolf~*
>>
>>
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
--
*~Shadow Wolf~*
------------------------------
Message: 17
Date: Sun, 23 Mar 2014 15:54:41 -0400
From: "Delcenia Brown" <delcenia at prodigy.net>
To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Usher 3
Message-ID: <8C14B630735946F59273E734F318A292 at DelceniaPC>
Content-Type: text/plain; format=flowed; charset="iso-8859-1";
reply-type=original
Hey Darlene,
It is amazing the things we do with our children. Yes, I did the same things
with my younger son when he was younger. He is now 18 years old and
determine that he will play pro baseball. The beauty is he will always
remember mom playing catch with him. Yes my husband did things with him but
we both would always apreciate the things we did.
smile
Delcenia
-----Original Message-----
From: Darlene Laibl-Crowe
Sent: Friday, March 21, 2014 11:33 AM
To: 'NFB Deaf-Blind Division Mailing List'
Subject: Re: [nfb-db] Usher 3
April, I would go to a specialist who is connected to a teaching
university...soemthing like the Eye Institute. They would be more
knowledgeable about Usher. I had heard about Usher in the late 90s and my
brother and I participated in the Boys Town Usher Research by donating
samples of our blood. My sister also contributed but she doesn't have
Usher; but we were hoping this would help the researchers do some ruling out
of certain genes. But I was never diagnosed by a professional to have
Usher. So when I returned home from HKNC, I went to an eye specialist
through the Eye Instite and the University of Florida. They diagnosed em
with Usher Type 2. However, they could only 'assume'. Since I already had
my blood sample in research, they did not see a need to do a genetic
counseling. They were going to contact Dr. Kimberling and his team and find
out more about our blood samples. But we haven't heard a word and that has
been since November 2011.
>From what I understand they can only diagnosed by using our symptoms. Who
knows? But I could be wrong because I am going by information that I
received in late 2011. I do go to a retina specialist once a year for eye
care and a low vision specialist to be sure that I am on top of the latest
technology all paid for by the blind services here because I am a client
with vocation goals.
I only have vision and hearing issues. I am very healthy...as per my recent
physical examination. (smile) I do get dizzy but they cannot pinpoint what
it is except that I have arthritis in my neck and my spinal cord is
narrowing and they also suspect that because it is hard for me to focus on
something, too.
I haven't been able to follow movement in a very long time even when I had
central vision. I can remember when my youngest son was playing baseball he
needed to practice tossing a ball and catching...since I was the only
parent, I had to be the one to do that. (smile) I set up a box beside my
feet so when I threw him the ball...didn't have a problem throwing it at
him, I could see him...but he couldn't throw it to me, he had to roll it in
the box by my foot so I could get it and throw it back to him. Well,
sometimes he would forget and throw it and I would throw up my arms to
protect my head and yell out! LOL Then he would cracked up laughing so
hard and then I had no choice but to laugh with him. I think he did it
deliberately just so I would react! LOL
I miss my boys! They are both grown and doing well...live out of town...one
out of state in West Virginia! Too far! I was surprised when he did that.
Anyway...life goes on.
(smile)
Darlene
-----Original Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of April Brown
Sent: Friday, March 21, 2014 11:16 AM
To: nfb-db at nfbnet.org
Subject: Re: [nfb-db] Usher 3
Hi Darlene,
Thanks for those sites. There is so much to know!
I'm learning braille. Have been working on it since November. I
tried ASL in college a few decades ago. Not luck there. I'd get sea sick
from the motion.
Hi Shadow Wolf and Darlene,
I do have multiple system issues. Left eye has always been blind, left
ear with little hearing, no left kidney, heart rhythm issues, balance and
bumping into things, spinal problems, and a few more.
Now, thanks to your comments and the Usher 2 posts, I wonder if I should see
a geneticist instead of trying to get an eye specialist to diagnosis me?
Maybe in a year or two.
Have a great day!
April Brown
Writing dramatic adventure novels uncovering the myths we hide behind.
>
_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 18
Date: Sun, 23 Mar 2014 15:59:54 -0400
From: Darlene <dlaiblcrowe at att.net>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Usher 3
Message-ID: <C480AC66-3AF1-4810-98E8-D23F48F39ED7 at att.net>
Content-Type: text/plain; charset=us-ascii
Yeah they make good memories!
My sons are now 33 and 23
Sent from my iPhone
> On Mar 23, 2014, at 3:54 PM, "Delcenia Brown" <delcenia at prodigy.net>
wrote:
>
> Hey Darlene,
>
> It is amazing the things we do with our children. Yes, I did the same
things with my younger son when he was younger. He is now 18 years old and
determine that he will play pro baseball. The beauty is he will always
remember mom playing catch with him. Yes my husband did things with him but
we both would always apreciate the things we did.
> smile
> Delcenia
> -----Original Message----- From: Darlene Laibl-Crowe
> Sent: Friday, March 21, 2014 11:33 AM
> To: 'NFB Deaf-Blind Division Mailing List'
> Subject: Re: [nfb-db] Usher 3
>
> April, I would go to a specialist who is connected to a teaching
> university...soemthing like the Eye Institute. They would be more
> knowledgeable about Usher. I had heard about Usher in the late 90s and my
> brother and I participated in the Boys Town Usher Research by donating
> samples of our blood. My sister also contributed but she doesn't have
> Usher; but we were hoping this would help the researchers do some ruling
out
> of certain genes. But I was never diagnosed by a professional to have
> Usher. So when I returned home from HKNC, I went to an eye specialist
> through the Eye Instite and the University of Florida. They diagnosed em
> with Usher Type 2. However, they could only 'assume'. Since I already
had
> my blood sample in research, they did not see a need to do a genetic
> counseling. They were going to contact Dr. Kimberling and his team and
find
> out more about our blood samples. But we haven't heard a word and that
has
> been since November 2011.
>
> From what I understand they can only diagnosed by using our symptoms. Who
> knows? But I could be wrong because I am going by information that I
> received in late 2011. I do go to a retina specialist once a year for eye
> care and a low vision specialist to be sure that I am on top of the latest
> technology all paid for by the blind services here because I am a client
> with vocation goals.
>
> I only have vision and hearing issues. I am very healthy...as per my
recent
> physical examination. (smile) I do get dizzy but they cannot pinpoint
what
> it is except that I have arthritis in my neck and my spinal cord is
> narrowing and they also suspect that because it is hard for me to focus on
> something, too.
>
> I haven't been able to follow movement in a very long time even when I had
> central vision. I can remember when my youngest son was playing baseball
he
> needed to practice tossing a ball and catching...since I was the only
> parent, I had to be the one to do that. (smile) I set up a box beside my
> feet so when I threw him the ball...didn't have a problem throwing it at
> him, I could see him...but he couldn't throw it to me, he had to roll it
in
> the box by my foot so I could get it and throw it back to him. Well,
> sometimes he would forget and throw it and I would throw up my arms to
> protect my head and yell out! LOL Then he would cracked up laughing so
> hard and then I had no choice but to laugh with him. I think he did it
> deliberately just so I would react! LOL
>
> I miss my boys! They are both grown and doing well...live out of
town...one
> out of state in West Virginia! Too far! I was surprised when he did
that.
>
>
> Anyway...life goes on.
>
> (smile)
> Darlene
>
> -----Original Message-----
> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of April Brown
> Sent: Friday, March 21, 2014 11:16 AM
> To: nfb-db at nfbnet.org
> Subject: Re: [nfb-db] Usher 3
>
> Hi Darlene,
>
> Thanks for those sites. There is so much to know!
>
> I'm learning braille. Have been working on it since November. I
> tried ASL in college a few decades ago. Not luck there. I'd get sea sick
> from the motion.
>
> Hi Shadow Wolf and Darlene,
>
> I do have multiple system issues. Left eye has always been blind, left
> ear with little hearing, no left kidney, heart rhythm issues, balance and
> bumping into things, spinal problems, and a few more.
>
>
> Now, thanks to your comments and the Usher 2 posts, I wonder if I should
see
> a geneticist instead of trying to get an eye specialist to diagnosis me?
> Maybe in a year or two.
>
> Have a great day!
>
> April Brown
>
> Writing dramatic adventure novels uncovering the myths we hide behind.
>
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 19
Date: Sun, 23 Mar 2014 16:05:00 -0400
From: Marsha Drenth <marsha.drenth at gmail.com>
To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Florida Support Service Program Training
Workshop - Orlando
Message-ID: <17BDA782-281A-4B54-82FD-59063597B34B at gmail.com>
Content-Type: text/plain; charset=us-ascii
Sterling,
Yes I was being defensive, because you know I know Scott, you also know that
I am involved in the SSP program there. I was on scott's list when we were
discussing it many times. The information you were hoping to provide was not
useful, information I already had. Further more, I am not appreciative of
your tone in your message. I don't believe I have been unprofessional. You
did not read the question correctly. I have been involved in this list for a
long time.
Marsha drenth
Sent with my IPhone
> On Mar 23, 2014, at 2:44 PM, Shadow Wolf <soulalibi at gmail.com> wrote:
>
> Marsha,
> I'm puzzled by your response. You sound quite defensive. I don't need to
re-read your questions. I merely added in my input for info purposes only.
But you were quick to admonish me for it. As Darlene stated in response to
me. Maricar would be the best person at HKNC to discuss any SSP related
questions. If you're planning on becoming a social worker. You should at
least be professional about it. Just my IMHO. And nothing personal.
>
> --S.W.
>> On 3/23/2014 10:45 AM, Marsha Drenth wrote:
>> SW,
>> I know this. I am well aware of what an SSP is, what an SSP does. I do
have Scott's email, and work closely with him. I am on a committee within my
state of PA to creat a SSP program. Taking Maricar class is not something I
feel as though I need to do.
>>
>> I was specifically asking if like the interpretors have a registery, is
there the same for SSP? a website or email list for SSP coordinators to
gather, to share, to work together to form these programs? I don't
personally want to contact these SSP coordinators, but how do people share
information. See my response back to Darlene on further clarification of my
question.
>>
>>
>>
>> Marsha drenth
>> Sent with my IPhone
>>
>>> On Mar 23, 2014, at 11:18 AM, Shadow Wolf <soulalibi at gmail.com> wrote:
>>>
>>> Marsha,
>>> Every state and city has their own SSP coordinator. The person
responsible for establishing and setting up SSP services in your area
differs from state to state. If you live in PA. I'm pretty sure they have
their own SSP coordinator in your area. I believe you live in Philedalphia.
Scott Stoffel, is an SSP coordinator in another area. I'm not sure if he
also the coordinator of your city. But you can ask him, if you still have
his email address.
>>>
>>> HKNC just barely started it's own SSP program. They created an SSP
class, now taught by Maricar. I took her class myself. Marsha you might want
to take her class and learn more about the SSP program.
>>>
>>> --Shadow W.
>>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:
>>>> Darlene,
>>>> Thanks for posting this. I see in your email signature that your FL SSP
coordinator. Which leads me to my question. Are you connected to other SSP
coordinators around the country, like in other states? There might be a need
to connect all of the coordinators, to have some unity in trainings,
materials, programs and so on.
>>>> Very curiously,
>>>>
>>>> Marsha drenth
>>>> Sent with my IPhone
>>>>
>>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe"
<dlaiblcrowe at att.net> wrote:
>>>>>
>>>>> Florida Residents:
>>>>>
>>>>> This announcement is for sighted individuals who are interested in
becoming
>>>>> Support Service Provider (SSP), who will sight-guide, assist in
>>>>> communication needs (sign or voice), relay visual information and
provide
>>>>> information for Deaf-Blind Floridians.
>>>>>
>>>>> Attached is a copy of our next FSSP Training Workshop.
>>>>>
>>>>> Please go to our website for further information.
>>>>>
>>>>> SPREAD THE WORD!
>>>>>
>>>>> Darlene Laibl-Crowe
>>>>>
>>>>> FSSP Coordinator
>>>>> Florida Deaf-Blind Association
>>>>> dlcrowe at fssp.fldeafblind.org
>>>>> (386) 546-5706
>>>>> www.fldeafblind.org
>>>>>
>>>>> RELAYING SELF-SUFFICIENCY
>>>>>
>>>>> 'Character cannot be developed in ease and quiet. Only through
experience of
>>>>> trial and suffering can the soul be strengthened, vision cleared,
ambition
>>>>> inspired, and success achieved'
>>>>> ~ Helen
>>>>> Keller
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>>
>>>>> <2014FSSP Flyer ORL.pdf>
>>>>> _______________________________________________
>>>>> nfb-db mailing list
>>>>> nfb-db at nfbnet.org
>>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>>> _______________________________________________
>>>> nfb-db mailing list
>>>> nfb-db at nfbnet.org
>>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>> --
>>> *~Shadow Wolf~*
>>>
>>>
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
> --
> *~Shadow Wolf~*
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 20
Date: Sun, 23 Mar 2014 16:01:43 -0400
From: "Delcenia Brown" <delcenia at prodigy.net>
To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Usher 3
Message-ID: <4D1BB4A17F374F9987B2DF111EC167FF at DelceniaPC>
Content-Type: text/plain; format=flowed; charset="iso-8859-1";
reply-type=original
Yes, education is the key. I was label as selective hearing and having an
attitude on top of just losing my mother. Dad just did not know.
Delcenia
-----Original Message-----
From: Darlene Laibl-Crowe
Sent: Friday, March 21, 2014 11:50 AM
To: 'NFB Deaf-Blind Division Mailing List'
Subject: Re: [nfb-db] Usher 3
SW, I didn't say 'congential heart failure...I said 'congenital heart
conditions' I wasn't referring to any specific condition. I've heard that
some have been born with these genetics.
The only other person that I know that has Usher is my brother who has been
deceased since 2000. He and I were the only ones in our family to have
Usher. We went back five generations on both sides of my parents and no one
with hearing loss and/or vision loss.
I've read that in order for a child to have USH, both parents have to have
that defective recessive gene when the child is conceived. And if that is
the case, then 1 out of 4 of the children will get USH, 1 without and 2
could be carriers. There were four of us, my brother and I both had Usher
and my sisters don't. I also have many,many cousins, nieces, nephews who do
not have any hearing or vision loss. My sons do not have it and nor do my
grandchildren. So who to say when someone down the line will be the next
USH in my family.
My parents were clueless when my brother and I could nto speak right and
assumed it was normal. Didn't realize it until my first grade teacher
pointed it out to them. They had no experience with hearing loss or vision
loss. So when I was diagnosed with vision problems at the age of 28, it was
a shock to my whole family. If I hadn't gone to the eye doctor because I
was having problems with seeing things while driving then I would have never
known.
Looking back over my childhood, I see many signs that should have alerted my
parents of the vision issues and my brother, too. I was constantly
tripping over things or knocking over the glass at the dinner table. No,
they assumed I wasn't paying attention. When in reality, it was because I
didn't see those things. My mom even used to joke that my middle name was
'Grace' and make fun of my clumsiness. She didn't know and that is what
happens when people don't know. Education and awareness has brought
awareness to parents nowadays of what to look for in their children to alert
them of certain situations.
It happens!
(smile)
Darlene
-----Original Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow Wolf
Sent: Friday, March 21, 2014 11:11 AM
To: NFB Deaf-Blind Division Mailing List
Subject: Re: [nfb-db] Usher 3
Darlene,
I must disagree with your assertion on "congenital heart problems".
There is no proven link between Usher's and congenital heart failure.
The latter might be related to Usher's who are wholly inactive, lazy, couch
potatoes and poor eating habits. It has nothing to do with Usher's. I'm
talking about physical disabilities such being paralyzed at the wait down,
feet issues, nerves in the spine or legs, no feelings in the legs and feet
and things of that sort. Some of it is genetic. In my case, I have no family
history with RP, Usher's or deafness. I am the only one in my family. I
figured the genetic mutation came from generations far back in the family
blood line.
--S.W.
On 3/21/2014 7:02 AM, Darlene Laibl-Crowe wrote:
> I have to disagree, SW...I believe all types of Usher have a tendency to
> have other disabilities. For example, all three are at a risk of having a
> congenital heart problem. I don't and I know several who have type 1,2
and
> 3 who do not they only have the vision and hearing issues. I do know some
> who have type II who have the congenital heart conditions. So, it varies
in
> all three groups.
>
> I had heard one time that there was a possibility of a Type 4 because some
> of the research came back as inconclusive. Dr. Kimberling and other
> researchers of the genes of those who have Usher Syndrome have come a long
> ways but still much more is needed to be known.
>
> Again, those who have Usher have varied degrees of vision and hearing loss
> and it is important to be flexible and open to it all. (smile)
>
> Have a great weekend!
> (smile)
> Darlene
>
> -----Original Message-----
> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow Wolf
> Sent: Friday, March 21, 2014 9:08 AM
> To: NFB Deaf-Blind Division Mailing List
> Subject: Re: [nfb-db] Usher 3
>
> Hello April,
>
> Everyone who has Usher's will eventually lose their vision at one time or
> another. And I think those with Usher's 1 and 3 also have balance
problems.
> I believe that Usher's 1 starts at birth or at a young age. I admit, I
don't
> know much about either Usher's 1 or 3. But those who suffer from Usher's 1
> or 3 tend to have other psychical disabilities other than just the eyes
and
> ears.
>
> --S.W.
>
> On 3/21/2014 4:05 AM, April Brown wrote:
>> Good Morning,
>>
>> Even though I can't get a proper diagnosis, I am leaning toward
> Usher 3. I only have one eye with vision, and it has dramatically
decreased
> in the last year, with all kinds of odd symptoms. Of course, my vision
> issues are complicated by double colobomas.
>> My hearing is worse as well. I do not hear low toned voices
well.
> And comprehension of spoken words is extremely slow. In fact, for over a
> decade, I had used closed captioning on the tv to understand most shows,
> until my vision loss no longer allows me to. So now, many science shows I
> would otherwise enjoy, I can not hear or see.
>> I have much much information on the prognosis of Usher 1 and 2.
Not
> much on Usher 3.
>> Will my vision reach a spot and stay there? I only have about
1/4
> of an eye left. The tiny lower corner of my right eye next to my nose.
>> Does anyone have a link to a site with good information about
> Usher 3?
>> Thanks,
>>
>>
>> April Brown
>>
>> Writing dramatic adventure novels uncovering the myths we hide behind.
>>
>>
>>
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
> --
> *~Shadow Wolf~*
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
--
*~Shadow Wolf~*
_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
------------------------------
Message: 21
Date: Sun, 23 Mar 2014 16:30:42 -0400
From: "Delcenia Brown" <delcenia at prodigy.net>
To: "NFB Deaf-Blind Division Mailing List" <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] [Bulk] Re: Usher 3
Message-ID: <A750BF011B0E4FEF91E79C854BA6FA37 at DelceniaPC>
Content-Type: text/plain; format=flowed; charset="iso-8859-1";
reply-type=original
What does the "experts" know? I was told the same thing. I am the youngest
of three children. I am the only one with usher (RP and hearing loss. Each
was detected later and. No one else in my family has any of these problems.
Of my (4) children only my second child is having difficulty. However it is
due to her own bad eating habits and diabetes. My (5) grandchildrens are
fine. I was told by an ENT that both of my parents had to be carryers.
Delcenia
-----Original Message-----
From: Darlene Laibl-Crowe
Sent: Friday, March 21, 2014 12:19 PM
To: 'NFB Deaf-Blind Division Mailing List'
Subject: Re: [nfb-db] [Bulk] Re: Usher 3
Yes, SW...I've heard that, too. Someone explained to me like this:
Your genes have Dominant and Recessive...some RP have dominant defective
gene which is carried down on line usually the maternal side but for Usher
it is recessive defective which means both parents have to have that
defective recessive gene.
I, too, am not an expert and listen to others but the person who explained
this to me was eye specialist. I had asked him about this because my former
sister in law has RP, too...but she was diagnosed when she was 2. She has
dominant defective gene RP...there si a difference.
Okay, I gotta get off the puter...errands to run! Eveyrone have a great
weekend!
(smile)
Darlene
-----Original Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow Wolf
Sent: Friday, March 21, 2014 12:06 PM
To: NFB Deaf-Blind Division Mailing List
Subject: [Bulk] Re: [nfb-db] Usher 3
Darlene,
Although I'm no expert on Geneticism. The latest research on genetic
mutations point out that women are the sole carriers of these mutant genes.
The genes are passed onto the offsping from the mother side. The geneticist
I spoke to often asked me about my mother, rather than my father. Because I
have RP, and if I had a child, chances of my child having RP is slim to
none. Because it's not passed through the male genetic code. The child will
developed RP if the mother has it. This is why mothers are generally tested
to determined if they have certain genetic mutations in their lineage (blood
line), that can predict the child's disability at birth.
--S.W.
On 3/21/2014 8:50 AM, Darlene Laibl-Crowe wrote:
> SW, I didn't say 'congential heart failure...I said 'congenital heart
> conditions' I wasn't referring to any specific condition. I've heard
> that some have been born with these genetics.
>
> The only other person that I know that has Usher is my brother who has
> been deceased since 2000. He and I were the only ones in our family
> to have Usher. We went back five generations on both sides of my
> parents and no one with hearing loss and/or vision loss.
>
> I've read that in order for a child to have USH, both parents have to
> have that defective recessive gene when the child is conceived. And
> if that is the case, then 1 out of 4 of the children will get USH, 1
> without and 2 could be carriers. There were four of us, my brother
> and I both had Usher and my sisters don't. I also have many,many
> cousins, nieces, nephews who do not have any hearing or vision loss.
> My sons do not have it and nor do my grandchildren. So who to say
> when someone down the line will be the next USH in my family.
>
> My parents were clueless when my brother and I could nto speak right
> and assumed it was normal. Didn't realize it until my first grade
> teacher pointed it out to them. They had no experience with hearing
> loss or vision loss. So when I was diagnosed with vision problems at
> the age of 28, it was a shock to my whole family. If I hadn't gone to
> the eye doctor because I was having problems with seeing things while
> driving then I would have never known.
>
> Looking back over my childhood, I see many signs that should have
> alerted my parents of the vision issues and my brother, too. I was
> constantly tripping over things or knocking over the glass at the
> dinner table. No, they assumed I wasn't paying attention. When in
> reality, it was because I didn't see those things. My mom even used
> to joke that my middle name was 'Grace' and make fun of my clumsiness.
> She didn't know and that is what happens when people don't know.
> Education and awareness has brought awareness to parents nowadays of
> what to look for in their children to alert them of certain situations.
>
> It happens!
>
> (smile)
> Darlene
>
> -----Original Message-----
> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow
> Wolf
> Sent: Friday, March 21, 2014 11:11 AM
> To: NFB Deaf-Blind Division Mailing List
> Subject: Re: [nfb-db] Usher 3
>
> Darlene,
> I must disagree with your assertion on "congenital heart problems".
> There is no proven link between Usher's and congenital heart failure.
> The latter might be related to Usher's who are wholly inactive, lazy,
> couch potatoes and poor eating habits. It has nothing to do with
> Usher's. I'm talking about physical disabilities such being paralyzed
> at the wait down, feet issues, nerves in the spine or legs, no
> feelings in the legs and feet and things of that sort. Some of it is
> genetic. In my case, I have no family history with RP, Usher's or
> deafness. I am the only one in my family. I figured the genetic
> mutation came from generations far back in the family blood line.
>
> --S.W.
>
> On 3/21/2014 7:02 AM, Darlene Laibl-Crowe wrote:
>> I have to disagree, SW...I believe all types of Usher have a tendency
>> to have other disabilities. For example, all three are at a risk of
>> having a congenital heart problem. I don't and I know several who
>> have type 1,2
> and
>> 3 who do not they only have the vision and hearing issues. I do know
>> some who have type II who have the congenital heart conditions. So,
>> it varies
> in
>> all three groups.
>>
>> I had heard one time that there was a possibility of a Type 4 because
>> some of the research came back as inconclusive. Dr. Kimberling and
>> other researchers of the genes of those who have Usher Syndrome have
>> come a long ways but still much more is needed to be known.
>>
>> Again, those who have Usher have varied degrees of vision and hearing
>> loss and it is important to be flexible and open to it all. (smile)
>>
>> Have a great weekend!
>> (smile)
>> Darlene
>>
>> -----Original Message-----
>> From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Shadow
>> Wolf
>> Sent: Friday, March 21, 2014 9:08 AM
>> To: NFB Deaf-Blind Division Mailing List
>> Subject: Re: [nfb-db] Usher 3
>>
>> Hello April,
>>
>> Everyone who has Usher's will eventually lose their vision at one
>> time or another. And I think those with Usher's 1 and 3 also have
>> balance
> problems.
>> I believe that Usher's 1 starts at birth or at a young age. I admit,
>> I
> don't
>> know much about either Usher's 1 or 3. But those who suffer from
>> Usher's 1 or 3 tend to have other psychical disabilities other than
>> just the eyes
> and
>> ears.
>>
>> --S.W.
>>
>> On 3/21/2014 4:05 AM, April Brown wrote:
>>> Good Morning,
>>>
>>> Even though I can't get a proper diagnosis, I am leaning
>>> toward
>> Usher 3. I only have one eye with vision, and it has dramatically
> decreased
>> in the last year, with all kinds of odd symptoms. Of course, my vision
>> issues are complicated by double colobomas.
>>> My hearing is worse as well. I do not hear low toned
>>> voices
> well.
>> And comprehension of spoken words is extremely slow. In fact, for
>> over a decade, I had used closed captioning on the tv to understand
>> most shows, until my vision loss no longer allows me to. So now,
>> many science shows I would otherwise enjoy, I can not hear or see.
>>> I have much much information on the prognosis of Usher 1 and 2.
> Not
>> much on Usher 3.
>>> Will my vision reach a spot and stay there? I only have
>>> about
> 1/4
>> of an eye left. The tiny lower corner of my right eye next to my nose.
>>> Does anyone have a link to a site with good information
>>> about
>> Usher 3?
>>> Thanks,
>>>
>>>
>>> April Brown
>>>
>>> Writing dramatic adventure novels uncovering the myths we hide behind.
>>>
>>>
>>>
>>> _______________________________________________
>>> nfb-db mailing list
>>> nfb-db at nfbnet.org
>>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>> --
>> *~Shadow Wolf~*
>>
>>
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>>
>>
>> _______________________________________________
>> nfb-db mailing list
>> nfb-db at nfbnet.org
>> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
--
*~Shadow Wolf~*
_______________________________________________
nfb-db mailing list
nfb-db at nfbnet.org
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
_______________________________________________
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------------------------------
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------------------------------
End of nfb-db Digest, Vol 62, Issue 22
**************************************
------------------------------
Message: 2
Date: Mon, 24 Mar 2014 07:33:44 -0400
From: Trish Hubschman <palhub at optonline.net>
To: 'NFB Deaf-Blind Division Mailing List' <nfb-db at nfbnet.org>
Subject: Re: [nfb-db] Delcenia -- Usher2
Message-ID: <002101cf4754$ea5de240$bf19a6c0$@optonline.net>
Content-Type: text/plain; charset=us-ascii
Janice,
We were talking about that on the other list. I never thought of people
having allergies regarding guide dogs.
Are you allergic to Destiny? Where will she go if she's retired?
Trish
-----Original Message-----
From: nfb-db [mailto:nfb-db-bounces at nfbnet.org] On Behalf Of Janice Toothman
Sent: Sunday, March 23, 2014 8:29 PM
To: NFB Deaf-Blind Division Mailing List
Subject: Re: [nfb-db] Delcenia -- Usher2
Hi Delcenia,
Most guide dog schools have poodles or labradoodple (Labrador and poodle
crosses) for people with allergies or family members with allergies.
The Guide Dog Foundation for the Blind where I received Destiny sends out
hair/fur clippings or the possible matches to the student that they will use
to see if they have an allergic reaction to the hair/fur before meeting the
dog.
It depends on how allergic people are to dogs for one and whether they take
medication for it or not to control their allergies or is it so bad that
they have to go to the hospital.
Janice
On 3/20/2014 4:25 PM, Delcenia Brown wrote:
> Hi Darlene,
> Nice to meet you also. I am new to this list but not to NFB. I have
> been a member for at least 8 years. I have work with the (BSVI) state
> agency over 20 years but no one has ever told me about HK or that it
> was an option for me. I am not sure if it is today. I want to keep
> control and do things before it gets worst. Like I said I want to work
> and with what I want to do it has been challenging. Where did you get
> your guide dog? I started to applying at Seeing Eye last year but I
> chicken out. I would like one. However, most of my family has
> allergies and my grandchildren are terrified of dogs.
> Delcenia
> -----Original Message----- From: Darlene Laibl-Crowe
> Sent: Thursday, March 20, 2014 3:46 PM
> To: 'NFB Deaf-Blind Division Mailing List'
> Subject: [nfb-db] Delcenia -- Usher2
>
> Hello, Delcenia! Nice to meet you! I am from Florida and I also have
> Usher 2. I was able to go to HKNC because I advocated for myself to
> the state and justified as to why I needed their services. My
> reasoning was that there are NO services for Adult Deaf Blind
> individuals in the State and I had also been a client of DBS since
> 1986. By the way, DBS means Division of Blind Services. Anyway,
> after a few years I kind of got lost in the state's system and was not
> getting the services I needed. So when I began to lose more hearing
> and vision I struggled in a huge way. I didn't know anything about
> HKNC until I started doing research And found out about the Florida
> Deaf Blind Association. I soon met HKNC Southeast rep and many of the
> members of that organization and within a year I was hearing to NY.
>
> The training is very expensive but the state more than willingly paid
> for that service. I am so grateful that they have. Now, the state
> has grown because I do all I can advocate and educate them and others
> as needed. I don't know everything but what I don't know I do my best to
find out.
> One
> thing that I have learned is that it is important to know what
> resources are out there and how you can use it for your specific
> needs. HKNC taught that to me and it is something that needs to be
> taught to many.
>
> As for the balance issue, I, too, did not have problems with balance
> but I've noticed more lately that I am getting dizzy...I think it is
> because I can't quite focus on something to maintain a sense of
> balance. It isn't too bad...and hopefully it won't get worse.
>
> My guide dog is wonderful about being sure I am good on my feet. I've
> noticed when I get a little off balanced she will slow down and let me
> kind of lean on her a bit to get myself oriented again. She is
> amazing and I am so glad I have her.
>
> I, too, am fairly new to NFB...a little over a year now. NFB is a
> great learning experience as well!
>
> Hope you are able to go to HKNC, it is very a rewarding experience!!
>
>
> (smile)
> Darlene
>
> "God wants to breathe new life into your dreams. He wants to breathe
> new hope into your heart. Don't give up. Hold on and you'll begin to
> see Him do amazing things"
> ~ Joel Osteen
>
>
>
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
> _______________________________________________
> nfb-db mailing list
> nfb-db at nfbnet.org
> http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org
>
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