[nfb-db] NFB-DB Hi Angelina
Cherifields at aol.com
Cherifields at aol.com
Tue Apr 21 20:26:34 UTC 2015
Hi Cathy, I must tell you that you gave an outstanding introduction to
Anjie about yourself and the NFB-DB. Thank you for sharing your experience with
the Anjie and the list members.
We do have to structure our selves around situations that serve us better.
Also improvements in both technology and our ability to access it is
improving. At our workshops and seminars for those who cannot benefit from a
pa system we have purchased the fm systems and loops to help some
individuals. For others who have applied at the time of registration there will be
interpreters. If we work together on our goals we can accomplish a lot more
than if we work alone.
Thank you Cathy for all that you have done for the db national division.
Have a terrific Tuesday to all.
Cheri Fields
In a message dated 4/21/2015 11:04:11 A.M. Eastern Daylight Time,
nfb-db at nfbnet.org writes:
Angelina: Welcome! I am very glad to have you here among us. I am Cathy
Miller, from Louisiana. Coping with hearing loss has been a traumatic
experience for me, but more than that, it is a journey. Congratulations on
the courage to reach out to others like yourself. I'm so glad you found us!
I was diagnosed with Retinitis Pigmentosa at age 18. I got my first pair
of hearing aids in my mid-20s, but all they did was make the muffled speech
louder, so they were not the answer for me. Several years later I
received a pair of digital hearing aids which helped a lot more, except when there
was background noise. It was a few years later that I walked in front of
a car while crossing the street. I was not hit, but the driver was
extremely angry with me and yelled and called me some horrible names. I knew it
was time to do something different and stopped crossing the street alone.
This story has a happy ending, as I received cochlear implants, which make
life bearable and often wonderful. Although I still cannot understand
speech in noisy environments, I design my lifestyle so that hearing in a noisy
environment is no longer a necessity. It was difficult to realize that I
needed accommodations, and that no one was going to give them to me. I had
to learn what I n
eeded and demand to have them. If someone has something to tell me, they
do it under circumstances that are accommodating. After all, I drilled two
holes in my head in order to hear you; the least you can do is speak up.
So, back to crossing the street. One of the things that folks in the
deaf-blind division of the NFB are promoting is the use of Support Service
Providers (SSPs). These are persons trained to help us to perform our daily
routines without putting ourselves in harm's way. With training from O&M
specialists such as those found at NFB training centers, many deaf-blind
folks still cross the street independently; but if that is not what you believe
is right for you, then you may have an alternative. orientation and
Mobility specialists are great, and they push us beyond our comfort zones,
helping us to retain our hard won independence. But ultimately the decision is
yours, and although I encourage you to learn to cross the street if you
feeel safe, if it's not for you, you are the only one who can say no. Just
know that we deserve alternatives. Go to the Helen Keller National Center
(HKNC) website and find the regional representative who serves your state.
Talk with that pe
rson about whether the training offered at HKNC is right for you. Scott
Davert is one of the national representatives, and we are extremely
fortunate to have him among us. Remember that the NFB deaf-blind division exists
for folks like you who want to share their experiences and develop best
practices among peers who live in the trenches. As you walk this journey,
please consider sharing your successes and your challenges with us. I hope
that others will return the favor. You will find lifetime friends among us.
We will meet in orlando in July and hope that you can join us there.
Please tell us more about yourself.
Cathy Miller
Sent from my iPad
> On Apr 18, 2015, at 7:00 AM, nfb-db-request at nfbnet.org wrote:
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> 1. Newby to the list (Anjelina)
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> Message: 1
> Date: Fri, 17 Apr 2015 17:58:52 -0400
> From: Anjelina <anjelinac at att.net>
> To: "nfb-db at nfbnet.org" <nfb-db at nfbnet.org>
> Subject: [nfb-db] Newby to the list
> Message-ID: <D251A95F-67E1-4416-8F4D-32655EA8E2E0 at att.net>
> Content-Type: text/plain; charset=us-ascii
>
> Good day list,
> My name is Anjelina and I am new to the list. I am interested in
learning more about deaf-blindness. Over the years I have noticed some hearing
loss in my right ear which I have been able to compensate for. A few weeks ago
I had a near run-in with a car while crossing a busy street which really
startled me since I didn't hear the car. If you all don't mind, can you tell
me a bit about your hearing loss and how you have coped with it?
> Thanks
>
>
> -Anjelina
> Sent from my iPad
>
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