[nfb-db] NFB-DB Hi Angelina
Cherifields at aol.com
Cherifields at aol.com
Wed Apr 22 01:35:26 UTC 2015
Anjie, thank you for keeping everyone apprised of your situation. When I
was supposed to go to the doctors office that does the tests for vertigo
and balance issues, I canceled my appointment. At that time they told me it
was a $400. co pay. I didn't feel the tests would benefit me because I
already had balance problems
My husband went just last year and they said he had vertigo and wanted him
to go for treatment at a Brooks rehab, but he didn't feel it was
necessary. He told me they put him through tests that measured how much fluid is in
the ear and made him walk on different surfaces that had measuring devices
inside of them. This is if you have dizzyness, migrains and issues
relating to your balance. I myself have to use a cane that can steady me and
keep me from falling. I usually don't go out any more without my husband.
When I get to the store I always use the shopping cart to hold onto. I
should go for the treatment, but other people who went told me the treatment is
only temporary and you have to keep going back. They told me at the time
that if I came for the test that medication might be ale to help, but a
physical therapist who helped me with balance treatment said it wouldn't help
me. I was told by a Nuerologist that balance depended on hearing. I don't
know that he is right either. Because a lot of people have hearing loss
don't have balance issues.
All I can say is go for the testing and see what they tell you Be sure to
wear tennis shoes. I hope that you get the right kind of help. Keep us
informed. Praying for a positive outcome Anjie. xxxx Cheri
In a message dated 4/21/2015 8:57:22 P.M. Eastern Daylight Time,
nfb-db at nfbnet.org writes:
Thank you everyone for your replies and words of advice. I met with my VR
counselor today and will be seeing an Otologist hopefully in the near
future. I have been writing differences I have noticed in my hearing since I am a
bit nervous about this upcoming appointment.
Last week I worked with a Mobility Instructor who encouraged me with being
okay to ask for assistance crossing streets that I am not confident about
due to not hearing certain types of cars. This sort of goes against what I
learned in training, but I want to do what it takes to stay alive and be
safe.
I will be sure to let you know what I find out at this Otology
appointment. What typically happens that this type of appointment?
Thanks lots. :)
-Anjelina
Sent from my iPad
On Apr 21, 2015, at 4:38 PM, Marsha Drenth via nfb-db <_nfb-db at nfbnet.org_
(mailto:nfb-db at nfbnet.org) > wrote:
Cathy,
Your so correct, the NFB needs to accept that there are alternatives. And
that those alternatives are not a bad thing, nor will they defeat the
independence that you have, or that the NFB promotes. So blind persons use their
hearing to cross streets, great, but deafblind persons can not do the
same. So we use alternative methods, either by getting help, using a street
crossing sign, taking a different route, or getting a ride to a location. None
of these things are bad, none of these things means a deafblind person is
less independent. We use SSP's, for communication and guiding, again
different from what blind persons do, but still the same in doing what we need to
do.
I know I am preaching to the choir here... I'll get off my soap box for
now. LOL
Marsha drenth
email: _marsha.drenth at gmail.com_ (mailto:marsha.drenth at gmail.com)
Sent with my IPhone
Please note that this email communication has been sent using my iPhone.
As such, I may have used dictation and had made attempts to mitigate errors.
Please do not be hesitant to ask for clarification as necessary.
On Apr 21, 2015, at 11:03 AM, Cathy Miller via nfb-db <_nfb-db at nfbnet.org_
(mailto:nfb-db at nfbnet.org) > wrote:
Angelina: Welcome! I am very glad to have you here among us. I am Cathy
Miller, from Louisiana. Coping with hearing loss has been a traumatic
experience for me, but more than that, it is a journey. Congratulations on
the courage to reach out to others like yourself. I'm so glad you found us!
I was diagnosed with Retinitis Pigmentosa at age 18. I got my first pair
of hearing aids in my mid-20s, but all they did was make the muffled speech
louder, so they were not the answer for me. Several years later I
received a pair of digital hearing aids which helped a lot more, except when there
was background noise. It was a few years later that I walked in front of
a car while crossing the street. I was not hit, but the driver was
extremely angry with me and yelled and called me some horrible names. I knew it
was time to do something different and stopped crossing the street alone.
This story has a happy ending, as I received cochlear implants, which make
life bearable and often wonderful. Although I still cannot understand speech
in noisy environments, I design my lifestyle so that hearing in a noisy
environment is no longer a necessity. It was difficult to realize that I
needed accommodations, and that no one was going to give them to me. I had to
learn what I needed and demand to have them. If someone has something to
tell me, they do it under circumstances that are accommodating. After all,
I drilled two holes in my head in order to hear you; the least you can do
is speak up.
So, back to crossing the street. One of the things that folks in the
deaf-blind division of the NFB are promoting is the use of Support Service
Providers (SSPs). These are persons trained to help us to perform our daily
routines without putting ourselves in harm's way. With training from O&M
specialists such as those found at NFB training centers, many deaf-blind
folks still cross the street independently; but if that is not what you believe
is right for you, then you may have an alternative. orientation and
Mobility specialists are great, and they push us beyond our comfort zones,
helping us to retain our hard won independence. But ultimately the decision is
yours, and although I encourage you to learn to cross the street if you
feeel safe, if it's not for you, you are the only one who can say no. Just
know that we deserve alternatives. Go to the Helen Keller National Center
(HKNC) website and find the regional representative who serves your state.
Talk with that person about whether the training offered at HKNC is right
for you. Scott Davert is one of the national representatives, and we are
extremely fortunate to have him among us. Remember that the NFB deaf-blind
division exists for folks like you who want to share their experiences and
develop best practices among peers who live in the trenches. As you walk
this journey, please consider sharing your successes and your challenges with
us. I hope that others will return the favor. You will find lifetime
friends among us. We will meet in orlando in July and hope that you can join
us there. Please tell us more about yourself.
Cathy Miller
Sent from my iPad
On Apr 18, 2015, at 7:00 AM, _nfb-db-request at nfbnet.org_
(mailto:nfb-db-request at nfbnet.org) wrote:
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Today's Topics:
1. Newby to the list (Anjelina)
----------------------------------------------------------------------
Message: 1
Date: Fri, 17 Apr 2015 17:58:52 -0400
From: Anjelina <_anjelinac at att.net_ (mailto:anjelinac at att.net) >
To: "_nfb-db at nfbnet.org_ (mailto:nfb-db at nfbnet.org) " <_nfb-db at nfbnet.org_
(mailto:nfb-db at nfbnet.org) >
Subject: [nfb-db] Newby to the list
Message-ID: <_D251A95F-67E1-4416-8F4D-32655EA8E2E0 at att.net_
(mailto:D251A95F-67E1-4416-8F4D-32655EA8E2E0 at att.net) >
Content-Type: text/plain; charset=us-ascii
Good day list,
My name is Anjelina and I am new to the list. I am interested in learning
more about deaf-blindness. Over the years I have noticed some hearing loss
in my right ear which I have been able to compensate for. A few weeks ago I
had a near run-in with a car while crossing a busy street which really
startled me since I didn't hear the car. If you all don't mind, can you tell
me a bit about your hearing loss and how you have coped with it?
Thanks
-Anjelina
Sent from my iPad
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