[NFB-DB] Identifying as deafblind

Sun Aug 15 22:03:49 UTC 2021

Thank you, everyone.  Hearing from others that can relate definitely helps me worry less.  Enjoy the rest of your weekend!

Take care,  
Tony

> On Aug 15, 2021, at 5:56 PM, Ineko Gary via NFB-DB <nfb-db at nfbnet.org> wrote:
> 
> Hi Tony
> 
> I hope your week gets better. And you have a lot of people here in the deaf blind community to help you whenever you need help. If you have any trouble with tinnitus and it’s making you not hear more than that. Just slowly brace into being deaf blind. Because there are yes different levels of death Linus.
> 
> And again you are so very welcome from everyone who helped you today or this evening.
> 
>  Sending you lots of love always.
> Ineko 
> 
> Sent from my iPhone
> 
>> On Aug 15, 2021, at 5:51 PM, gloriabrown819--- via NFB-DB <nfb-db at nfbnet.org> wrote:
>> 
>> 
>> Hello
>> It took me a long time to identify as DeafBlind too! o one wants t wear that label.
>> As a young person I could not say those words! but now I wear the label very proudly, I have a tbi and that is what makes me DeafBlind. and I was born with rare disorders. feel free to email any time.
>> 
>> 
>> -----Original Message-----
>> From: Ineko Gary via NFB-DB <nfb-db at nfbnet.org>
>> To: NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
>> Cc: Ineko Gary <rubiigary at gmail.com>
>> Sent: Sun, Aug 15, 2021 4:24 pm
>> Subject: Re: [NFB-DB] Identifying as deafblind
>> 
>> Hi Rod
>> 
>> I want to say thank you so very much for sharing your story. It touches a lot of people when I hear how some one pic came to identify himself or herself as a deaf blind person.
>> 
>> I am both deaf blind. I went blind at six months old. And as I was growing up a lot of people would ask my stepmom is she legally blind or totally blind. My mom would just say she’s blind. But I did not start to lose my hearing until I was the age 11 years old to the age of 14 years old. And I guess learn American Sign Language first. And tactile sign language that handover hand. Then later I learned braille. I only know a tiny bit  of contracted braille. But I know way more of un contracted braille. And I read braille with my left hand. And I do sign language with my left hand. So yes I am a left-handed person. And I’ve been a guide dog users for 25 years and I’ve been a long white cane user for 30 years.
>> 
>> Lots of love always
>> INEKO 
>> 
>> Sent from my iPhone
>> 
>> > On Aug 15, 2021, at 4:14 PM, Rod and Ele Macdonald via NFB-DB <nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>> wrote:
>> > 
>> > Tony,
>> > 
>> > I have been "legally blind" since I was three, but did not really identify as a "blind" person until much later. I went through that tinnitus phase and know exactly how you feel.
>> > 
>> > After spending 12 years at Perkins I sort of knew I was "blind" but more often said I "don't see very well". I changed to "legally blind" about the time I joined NFB in 1973, when I was 31. 
>> > 
>> > Similarly, I referred to my hearing situation as "I don't hear very well." Since no physical defect could be found to explain my hearing issue, I was sent to a psychiatrist for six years to find out why I couldn't or wouldn't hear.
>> > 
>> > In 1975 an audiologist told me for the first time that I was "deaf". I found that to be a big RELIEF - to know that there was a valid reason for my inability to hear - I hadn't been able to hear speech for years.
>> > 
>> > And that was when I found my identity as both a blind person and a deaf person - now a Deaf-Blind person. The emphasis became on the word PERSON. No matter if I  am blind, or bald, or deaf, or have a broken finger - yes, have had or do have all these things, but I am still a 100% human being, and no one can ever take that away from me.
>> > 
>> > I also self-identify as "Deaf-Blind" because I self-identify as being from the Blind community AND a part of the Deaf community (but not the Deaf culture - I do not use American Sign Language). I hyphenate the two words because my two very-dissimilar disabilities are combined, not merged. I might use the analogy that I have a right hand and a left hand, but that does not mean I am ambidextrous - I am right-handed, but I read braille with my left hand. Both hands are equally important to me, but I do have two separate hands.
>> > 
>> > So to answer your question: For me, the point at which I self-identified as a Deaf-Blind person came when I accepted myself, and presented myself to others, as a Deaf-Blind person, without denial, arrogance or pretense. For me that came in 1979, when I joined the AADB.
>> > 
>> > Rod
>> > 
>> > 
>> > ----- Original Message -----
>> > From: kg 6sxy \(kg6sxy\) via NFB-DB  <nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>>
>> > To:  nfb-db at nfbnet.org <mailto:nfb-db at nfbnet.org>
>> > CC: kg6sxy at gmail.com <mailto:kg6sxy at gmail.com>
>> > Date: Sunday, August 15, 2021 11:55 am
>> > Subject: [NFB-DB] Identifying as deafblind
>> > 
>> >> 
>> >> 
>> >> For those of you that were not born deafblind, how long did it take you to self identify as deafblind?  My tinnitus has been really driving me around the bend lately where I'm completely deaf more often than not but it still feels like I shouldn't be self identifying as deafblind because I still have functional hearing from time to time. It's probably not important either way, just a matter of not feeling like an imposter, I guess.  Just having a bad week all around.  I appreciate your feedback.
>> >> 
>> >> Take care,  
>> >> Tony
>> >> 
>> >> 
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>> >> 
>> > 
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