[NFB-DB] Canceling membership thread

Ineko Gary rubiigary at gmail.com
Fri Jun 9 18:08:41 UTC 2023


Hi Robert

Thank you for sharing your story. Yes I am a lifetime. Member of the National Federation Of The Blind going on 26 years and now I am proud to say I am happy to be a member of the NFB Deaf Blind. Yes without hearing aids I cannot hear my family or nothing totally deaf. With hearing aids I may catch a few words, but not enough to go without a tactile sign language interpreter to all my doctors. And I wear to hearing aids one for each ear. And they are Bluetooth. Vocational rehab provided them for me back in the end of 2017. And they are going to help me to see why my left hearing aid keeps coming apart. Either that comes apart behind the ears while I’m wearing them or it’ll come apart from the tube while I’m wearing them.  I’m very gentle with my hearing aids. It’s just I don’t know the lift hearing aid is just keeps coming apart, but I don’t have any problems with the right hearing aid coming apart. But I cannot wear one without the other, so I just choose not to wear them . Because I trust my guide dog. And if the noise is overwhelming to me like outside, I could just take them off and everything is quiet again. My sister is like I wish we can take our ears off and everything. Be quiet again I start laughing. I said yeah y’all can’t turn off the noise . I said, but I can I just take out my hearing aid and I say I am so lucky. 


But you know, even though I don’t have usher syndrome. I still can relate to all the Deaf Blind members here. Because we are Deaf Blind in different ways. I know a lot of us don’t have usher syndrome, but we are still deaf blind. And we all can relate

My light perception only in my right eye does not help me to navigate outside or help me to navigate in the mall or stores. That’s why I love having a guide dog. I know some blind people they have light perception and they say they’re like perception can help him help them to navigate out of a store or a mall. But my light perception does not. It is not useful.

I also have non-24 with my body does not know they from night. I was wanting to do anybody here have that same problem? And how do you handle it without medication?

Lots of love always 
Ineko &🦮 Frisco ❤️w



Sent from my iPhone

> On Jun 9, 2023, at 1:57 PM, Robert Stigile via NFB-DB <nfb-db at nfbnet.org> wrote:
> 
> Robert



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