[NFB-DB] FW: sharing an inaccessibility challenge

Sat Mar 2 18:46:48 UTC 2024

Dear Rocky,

This is Jessie Kramer and I believe you and I are supposed to review some
books for the magazine "Forward". Could you please give me a call. I can't
find your number. My number is 702-308-3364 and I'm on mountain time.

On Thu, Feb 29, 2024 at 1:06 PM skogsbergf--- via NFB-DB <nfb-db at nfbnet.org>
wrote:

>               I do know what you all are talking about. I have hat hearing
> aid all my life until 15 years abo. I had hearing aid in my glass in the 60
> . then win with hearing aids first in the ear then had go to stronger
> hearing aids to do that I hade to go to over ear aids. All the times have
> batteries. I had much trouble aid woring with batteries trouble. Then the
> fount about e coc processers. 15 years ago very worried about next step. I
> got then.and I am glad I did I never was disfantied. That the best move. As
> of now I have upgraded three times. And one the progresser was power by
> both recharable and batteries. I can do every thing with prosessor by my
> phone appt. I also ha ve phone connection and mike which can be plug in a
> head phone jack to cassett player or computer. I have been very happy and
> reconmen then. I see that some hearing people do not really do right for
> the person. I beleave thy wan to sell in the ear aids more then over ear
> whick are mor powerful. I thin thy geet mor money and less time to program
> then. Remeanber the hearing aids are adshearing is a pa system thay munty
> the sound whin the inplants lice coc are prosessers. Both are not perfice.
> But thy do help as you kno whin there noise lik people talking or wind or
> musick which love it they very hard to her. I also knot the every one are
> difference .i do bleive that the ass. Act need to be done I hope that you
> get better and on the feet my prawer and love are with wou. My tupeing is
> not god forgive me have a great day to you and all love frank
>
>
>
> Sent from Mail <https://go.microsoft.com/fwlink/?LinkId=550986> for
> Windows
>
>
>
> *From: *Lisa Ferris via NFB-DB <nfb-db at nfbnet.org>
> *Sent: *Thursday, February 29, 2024 8:42 AM
> *To: *NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
> *Cc: *Lisa Ferris <lisaferris at icloud.com>
> *Subject: *Re: [NFB-DB] FW: sharing an inaccessibility challenge
>
>
>
> This is exactly why I refuse to use rechargeable hearing aids. I still
> carry around batteries, but then I am never out of power for more than a
> couple of minutes every two weeks. I do think for Deafblind, rechargeable
> hearing aids are not often the best recommendation. No one is taking my
> batteries away from me!
>
>
>
> But nevertheless, everyone should have choices and all medical equipment
> should be made accessible. I know the struggle of dealing with hearing aids
> in the hospital setting (just spent 3 weeks in the hospital in January for
> kidney transplant) and how out of control it can be to not have full access
> to your hearing aids. I’m sorry you had that issue and I totally support
> you on advocating for hearing aid manufacturers to shape up on this, as
> well as supporting the accessible medical equipment act.
>
>
>
> Lisa Ferris
>
> Miles Access Skills Training, LLC
>
> Blindmast.com
>
>
>
> On Feb 29, 2024, at 9:14 AM, Rocky Hart via NFB-DB <nfb-db at nfbnet.org>
> wrote:
>
> 
>
> Doula:
>
> First, I am glad to know that you are doing well and out of the hospital!
> I am sure it was a less than enjoyable experience.
>
>
>
> What you are describing is exactly why, when I went through my hearing aid
> evaluation at HKNC, I specifically requested that I be fitted with
> non-rechargeable hearing aids. I have neither vision nor light perception,
> so there is no way I could see the light. It is somewhat inconvenient to
> carry hearing batteries on me constantly, but I would much rather do this
> have troubleshoot the issue, given how important it is for me to rely on my
> hearing as much as possible, even though it has become more or less a tool
> at this point in my DeafBlindness journey.
>
> I am curious what app and what brand of hearing aids you are using? I use
> Phonak hearing aids, and the app is very accessible—accept, of course, when
> you don’t have access to a phone, as it was in your situation.
>
> I hope all continues to go well for you.
>
> Thank you.
>
> Sincerely,
>
> Rocky Hart
>
>
>
>
>
> *From:* NFB-DB <nfb-db-bounces at nfbnet.org> *On Behalf Of *Ineko Gary via
> NFB-DB
> *Sent:* Thursday, February 29, 2024 6:38 AM
> *To:* NFB Deaf-Blind Division Mailing List <nfb-db at nfbnet.org>
> *Cc:* Ineko Gary <rubiigary at gmail.com>
> *Subject:* Re: [NFB-DB] FW: sharing an inaccessibility challenge
>
>
>
> GM hi Doula
>
>
>
> I am so truly sorry that you ran into this awful awful problem. I hope
> they can fix this in the future for everyone. Even mostly for the people
> who are deaf, blind, those who are deaf, and wear hearing aids.
>
>
>
> I am totally deaf. So my hearing aids only allows me to hear sound. No
> speech or voice. But I understand on how you feel. Because you’re hearing
> aids you really truly need for communication.
>
>
>
> Again, I hope they’re able to fix this problem. And I’m so glad you have a
> wonderful, sweet husband that helps you out when you need it.
>
>
>
>
>
> Sending all my prayers and love, and I hope you continue to get better and
> stronger.
>
>
>
> Sending all my love always to you and your beautiful family.
>
> Ineko
>
> Sent from my iPhone
>
>
>
> On Feb 29, 2024, at 7:02 AM, Kat Bottner via NFB-DB <nfb-db at nfbnet.org>
> wrote:
>
> 
>
> Hi Doula,
>
> I ran into this exact problem back in 2023 while vacationing with family
> in New Orleans. To say it was definitely a struggle. The whole entire week
> is definitely an understatement. I do agree that passing the web and
> application accessibility act is a must for not just people who rely on
> hearing aids, but for the blind, and everyone else as well. getting this
> past, will help everyone with a disability and probably our sided
> counterparts as well
>
> Thanks,
>
> Kat.
>
>
>
> On Feb 29, 2024, at 6:51 AM, Doula Jarboe via NFB-DB <nfb-db at nfbnet.org>
> wrote:
>
> 
>
> Hey All,
>
>
>
>      I initially sent this to my own affiliate’s listserv.  However,
> wanted to share it here as well.  Thanks.
>
> Warmly,
>
> Doula
>
>
>
> *From:* doula.jarboe at gmail.com <doula.jarboe at gmail.com>
> *Sent:* Wednesday, February 28, 2024 7:11 PM
> *To:* 'NFB of Colorado Discussion List' <colorado-talk at nfbnet.org>
> *Subject:* sharing an inaccessibility challenge
>
>
>
> Hi Everyone,
>
>
>
>      As I mentioned, I’ve been in the hospital for about the last week and
> a half.  I wanted to share an experience I had because of an inaccessible
> application.  If people think I should write this up more formally for the
> Blog or the Monitor or some other publication, I can do so.  But right now,
> I’m just wanting to share this experience with people who will understand
> because of our family and organization.
>
>
>
>      So, most know I identify as DeafBlind.  I wear hearing aids with
> rechargeable batteries.  The charger has lovely little lights that light up
> when the hearing aids are charging properly.  So helpful for me right?  I
> also have an application on my phone that works with my hearing aids.  Sort
> of.  Some things work just great, some things have the button, some things
> you get into the section and there’s no information there.
>
>
>
>      Friday evening I moved from ICU to the regular hospital floor.  One
> of my hearing aids was dying so I stuck it in the charger.  Maybe an hour
> to an hour and a half later I pulled it back out to use it and was still
> receiving the low battery signal.  So obviously not getting charged.  Now
> I’m starting to worry because the other hearing aid is starting to die as
> well.  Wes, my husband showed up to visit, and he’s both sighted and
> technology is his specialty.  He finally figured out it was the charging
> cable that needed replacing.  However, by the time he figured that out both
> hearing aids were completely dead.  I spent a good while that night without
> the use of my hearing aids because I didn’t have full access to the
> application that could have told me pretty immediately that the hearing aid
> wasn’t charging.
>
>
>
>      That was my bad experience, if we can get the  web and application
> accessibility act passed, something like this I might be able to avoid.
> Thank you for listening.
>
> Warmly,
>
> Doula
>
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