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<DIV><FONT size=4>Hey Shadow,</FONT></DIV>
<DIV><FONT size=4>I'm sorry to hear of your paralysis to your left side.
I'm glad it's not worst than that. I know that is a tragedy enough.
I wish it could recover for you. Are the nerves dead? </FONT></DIV>
<DIV><FONT size=4></FONT> </DIV>
<DIV><FONT size=4>I lost my son when he was 20 years of age . He was a
passenger in a car and the driver was speeding and ran off the road. He
was thrown from the car and they said he died instantly. The police report
said he probably broke his neck.</FONT></DIV>
<DIV><FONT size=4></FONT> </DIV>
<DIV><FONT size=4>Maybe sometime in the near future things like stem cell will
be used to heal us all.</FONT></DIV>
<DIV><FONT size=4>Blessings,</FONT></DIV>
<DIV><FONT size=4>Cheri</FONT></DIV>
<DIV> </DIV>
<DIV>
<DIV>In a message dated 3/20/2014 4:57:01 P.M. Pacific Daylight Time,
soulalibi@gmail.com writes:</DIV>
<BLOCKQUOTE
style="PADDING-LEFT: 5px; MARGIN-LEFT: 5px; BORDER-LEFT: blue 2px solid"><FONT
style="BACKGROUND-COLOR: transparent" color=#000000 size=2 face=Arial>Hi
Cheri,<BR>Yes I am fortunate to be alive and well today. No brain trauma or
damage. Just damage to my nerves in my left side of the face where I'm still
paralyzed today (left facial paralysis). The doctor said I was lucky to have a
head strong like a rock. Some people could have died from that type of injury
that I experienced. Anyway, thanks for the nice comment. <BR><BR>--S.W. <BR>
<DIV class=moz-cite-prefix>On 3/20/2014 3:27 PM, <A
title=mailto:Cherifields@aol.com class=moz-txt-link-abbreviated
href="mailto:Cherifields@aol.com">Cherifields@aol.com</A> wrote:<BR></DIV>
<BLOCKQUOTE cite=mid:2f582.19779f13.405cc556@aol.com type="cite">
<META name=GENERATOR content="MSHTML 11.00.9600.16521"><FONT color=#000000
size=2 face=Arial>
<DIV><FONT size=4>Hey Shadow Wolf,</FONT></DIV>
<DIV><FONT size=4>I was saddened to hear of your accident. It is
almost like a miracle that you can hear again out of that ear. I hope
that you didn't suffer any long term brain disorders as a result of this
accident. </FONT></DIV>
<DIV><FONT size=4>It sounds like you are doing much better since the CI
surgery. </FONT></DIV>
<DIV><FONT size=4>Blessings,</FONT></DIV>
<DIV><FONT size=4>Cheri</FONT></DIV>
<DIV> </DIV>
<DIV>
<DIV>In a message dated 3/20/2014 7:37:42 A.M. Pacific Daylight Time, <A
title=mailto:soulalibi@gmail.com class=moz-txt-link-abbreviated
href="mailto:soulalibi@gmail.com">soulalibi@gmail.com</A> writes:</DIV>
<BLOCKQUOTE
style="PADDING-LEFT: 5px; MARGIN-LEFT: 5px; BORDER-LEFT: blue 2px solid"><FONT
style="BACKGROUND-COLOR: transparent" color=#000000 size=2 face=Arial>Hi
Darlene,<BR>Nice to meet you. I was at HKNC for 11 months. I took full
advantage of <BR>the training they offered there. I took up whatever
classes they offered <BR>besides just learning Braille, Technology,
ASL-TSL-Haptic Signs and <BR>Independent Living. I even took Sr. Bernie's
presentation class last <BR>fall prior to her retirement last Dec. after
34 or 35 years she worked <BR>there. It was a great learning
experience.<BR><BR>I first started wearing hearing aids in both ears at 6
years old. I lost <BR>my hearing as a toddler. I was told I had RP during
my early teens once <BR>I was diagnosed. But I was still driving up until
I was 24. Then later <BR>on, around in 2010. I was told I had Usher's
type-2. I was confused <BR>about that, because Usher's also affects
balance. Whereas I do not have <BR>balance issues. In fact, I think
most people with Usher's type-2 do not <BR>have balance issues.<BR>On New
Year's eve 2000, I was involved in a really bad car accident. <BR>Although
I was not a driver but a passenger. I suffered head trauma <BR>where I
also suffered an ear fracture in left side. I lost my hearing in <BR>that
ear 2 days later. For 9 and half years I was hearing with only 1 <BR>ear,
a hearing aid. My left ear was my better ear then. If you are a <BR>right
hand person, writing with a right hand, it was like losing your <BR>right
hand and trying to write with your left hand. Same with my hearing
<BR>after that accident. I had communication issues and kept to myself
<BR>during most of that time. Until one day in fall 2009, I got lucky and
<BR>became a candidate in my state to receive a Cochlear Implant. After
all <BR>is said and done. After 3 months of my brain trying to adjust to
my CI <BR>and hearing in my left ear again. My left ear where my CI is,
became the <BR>better ear once again. I now understand people best with my
CI. It is <BR>loud and clear. The CI boosted my communication skills and
gave me a <BR>great deal of confidence. I am now happy that I received the
CI and I <BR>hold no regrets about it. It is medically amazing that the CI
can <BR>restore your hearing if someone suffered dramatic hearing loss
from an <BR>ear fracture. I admit I was skeptical at first when I first
sat down <BR>with CI specialists prior to my surgery. I didn't think it
was gonna <BR>work. But I was wrong. The CI did work for
me.<BR><BR>--S.W.<BR><BR>On 3/20/2014 4:49 AM, Darlene Laibl-Crowe
wrote:<BR>> Good morning, Shadow!<BR>><BR>> Welcome to the NFB DB
Division. I, too, have RP and am HOH. I wear<BR>>
bi-lateral hearing haids. But I did not grow up knowing that I had
RP. I<BR>> found out as an adult at the age of 28 and had to give
up driving. I was<BR>> able to see to read print and see people's
faces to read lips to accommodate<BR>> for what I could hear for about
22 years after I was diagnosed with RP.<BR>> That means when I turned
50 almost 6 years ago, I struggled with what to do<BR>> as I could not
longer see to do things that I kept doing as a sighted<BR>>
person.<BR>><BR>> Since I grew up wearing hearing aids, I never
considered myself a 'deaf'<BR>> person and can remember someone telling
me 'oh, you're deaf' when I told<BR>> them I wore hearing aids. I
quickly responded and told them 'oh, no, I can<BR>> hear
something'.<BR>><BR>> So six years ago when I began to struggle with
vision loss, I finally met<BR>> many who were dealing with similar
issues and I recognized that I was<BR>> Deaf-Blind. Once I was
able to define this, I soon went to Helen Keller<BR>> National Center
(January 2011 -- September 2011) where I learned much about<BR>> my
specific needs. HKNC is a great place to learn all you can
about<BR>> resources and gives a great sense of
confidence.<BR>><BR>> Since returning home, I have continued to
learn and made great progress.<BR>> How long were you at HKNC?
Also, if you are home, are you learning Braille<BR>> through
Hadley's?<BR>><BR>> That was how I completed my Braille...through
Hadley School for the Blind.<BR>> The Braille teacher at HKNC was very
good and so glad I got the beginnings<BR>> of it there and the teacher
at Hadley was also very good. I use Braille in<BR>> my everyday
life but I am not that fluent because I have not made myself sit<BR>>
and read as I should. Need to get myself back on track there.
I use<BR>> Braille in business meetings, identifying things in my home
and I also use<BR>> it often when playing cards. My family loves
to play canasta and I missed<BR>> playing it. Now I can play it
again! (smile) My sister (who is sighted)<BR>> and I always
play partners against our spouses and we win the majority of<BR>> the
time!<BR>><BR>> Take your time learning Braille. It can be
daunting as times but very<BR>> rewarding when it is
completed.<BR>><BR>> Anyway, This list is a good source for
information and sharing. I do have a<BR>> question...you state
that you have been Deaf-Blind all your life. When did<BR>> you
find out about your RP?<BR>><BR>> Have a Thrilling
Thursday!!<BR>><BR>> (smile)<BR>>
Darlene<BR>><BR>><BR>><BR>><BR>>
_______________________________________________<BR>> nfb-db mailing
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<BR>*~Shadow
Wolf~*<BR><BR><BR>_______________________________________________<BR>nfb-db
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</PRE></BLOCKQUOTE><BR><PRE class=moz-signature cols="72">--
*~Shadow Wolf~*</PRE><BR><BR>_______________________________________________<BR>nfb-db
mailing
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