<html><body><div style="color:#000; background-color:#fff; font-family:HelveticaNeue, Helvetica Neue, Helvetica, Arial, Lucida Grande, sans-serif;font-size:12pt"><div><span>Marsha:</span></div><div style="color: rgb(0, 0, 0); font-size: 16px; font-family: HelveticaNeue, 'Helvetica Neue', Helvetica, Arial, 'Lucida Grande', sans-serif; background-color: transparent; font-style: normal;"><span> She is coordinator for another organization - not for the state of Florida, nor is she involved in the NFB Deaf-Blind division. She chooses not to be involved in the Deaf-Blind division. The Florida Deaf-Blind Association (FDBA) and it's project, Florida Support Service Providers (FSSP) are a different organization that I believe is affiliated with the Florida Association of the Deaf (FAD). The differences between the FDBA and the NFB Deaf-Blind are similar to the differences between the ACB and the NFB. The two are very different in their
philosophy. FSSP is not connected with any state program. Darlene is a member of the Governor's coordinating council for the Deaf and Hard of hearing, but they, nor the state financially supports the project - nor is connected to any agency. -</span><span style="background-color: transparent;"> Tracie</span></div><div style="color: rgb(0, 0, 0); font-size: 16px; font-family: HelveticaNeue, 'Helvetica Neue', Helvetica, Arial, 'Lucida Grande', sans-serif; background-color: transparent; font-style: normal;"><span> </span></div><div></div><div> </div><div></div><div style="color: rgb(0, 128, 255); font-size: 18px; font-family: arial, helvetica, clean, sans-serif; background-color: transparent; font-style: normal;"><br><font style="font-size:16pt;" face="Times New Roman" size="4"><div><br></div><div><br><br><font size="4"><br><br></font><br><br></div></font></div><div><span></span></div><div></div><div
class="yahoo_quoted" style="display: block;"> <br> <br> <div style="font-family: HelveticaNeue, 'Helvetica Neue', Helvetica, Arial, 'Lucida Grande', sans-serif; font-size: 12pt;"> <div style="font-family: HelveticaNeue, 'Helvetica Neue', Helvetica, Arial, 'Lucida Grande', sans-serif; font-size: 12pt;"> <div dir="ltr"> <font size="2" face="Arial"> On Sunday, March 23, 2014 4:30 PM, "nfb-db-request@nfbnet.org" <nfb-db-request@nfbnet.org> wrote:<br> </font> </div> <div class="y_msg_container">Send nfb-db mailing list submissions to<br> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br><br>To subscribe or unsubscribe via the World Wide Web, visit<br> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>or, via email, send a message with subject or body 'help' to<br> <a
ymailto="mailto:nfb-db-request@nfbnet.org" href="mailto:nfb-db-request@nfbnet.org">nfb-db-request@nfbnet.org</a><br><br>You can reach the person managing the list at<br> <a ymailto="mailto:nfb-db-owner@nfbnet.org" href="mailto:nfb-db-owner@nfbnet.org">nfb-db-owner@nfbnet.org</a><br><br>When replying, please edit your Subject line so it is more specific<br>than "Re: Contents of nfb-db digest..."<br><br><br>Today's Topics:<br><br> 1. Re: Florida Support Service Program Training Workshop -<br> Orlando (Marsha Drenth)<br> 2. Re: DB are becoming exposed in media.... Watch (Marsha Drenth)<br> 3. Re: Florida Support Service Program Training Workshop -<br> Orlando (Darlene Laibl-Crowe)<br> 4. Re: Florida Support Service Program Training Workshop -<br> Orlando (Shadow Wolf)<br> 5. Re: Florida Support Service Program Training Workshop
-<br> Orlando (Darlene Laibl-Crowe)<br> 6. Re: Florida Support Service Program Training Workshop -<br> Orlando (Marsha Drenth)<br> 7. Re: Florida Support Service Program Training Workshop -<br> Orlando (Marsha Drenth)<br> 8. Re: Florida Support Service Program Training Workshop -<br> Orlando (Marsha Drenth)<br> 9. Re: Florida Support Service Program Training Workshop -<br> Orlando (Shadow Wolf)<br> 10. Re: Florida Support Service Program Training Workshop -<br> Orlando (Shadow Wolf)<br> 11. Re: Florida Support Service Program Training Workshop -<br> Orlando (Shadow Wolf)<br> 12. Re: Florida Support Service Program Training Workshop -<br> Orlando (Darlene)<br> 13. Re: Florida Support Service Program Training Workshop -<br>
Orlando (Darlene)<br> 14. Re: Florida Support Service Program Training Workshop -<br> Orlando (Darlene Laibl-Crowe)<br> 15. Re: Florida Support Service Program Training Workshop -<br> Orlando (Darlene Laibl-Crowe)<br> 16. Re: Florida Support Service Program Training Workshop -<br> Orlando (Shadow Wolf)<br> 17. Re: Usher 3 (Delcenia Brown)<br> 18. Re: Usher 3 (Darlene)<br> 19. Re: Florida Support Service Program Training Workshop -<br> Orlando (Marsha Drenth)<br> 20. Re: Usher 3 (Delcenia Brown)<br> 21. Re: [Bulk] Re: Usher 3 (Delcenia Brown)<br><br><br>----------------------------------------------------------------------<br><br>Message: 1<br>Date: Sun, 23 Mar 2014 09:59:38 -0400<br>From: Marsha Drenth <<a ymailto="mailto:marsha.drenth@gmail.com"
href="mailto:marsha.drenth@gmail.com">marsha.drenth@gmail.com</a>><br>To: NFB Deaf-Blind Division Mailing List <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service Program Training<br> Workshop - Orlando<br>Message-ID: <<a ymailto="mailto:D0A9106D-AEC8-41F6-A737-125C4A3FE41F@gmail.com" href="mailto:D0A9106D-AEC8-41F6-A737-125C4A3FE41F@gmail.com">D0A9106D-AEC8-41F6-A737-125C4A3FE41F@gmail.com</a>><br>Content-Type: text/plain; charset=us-ascii<br><br>Darlene,<br>Thanks for posting this. I see in your email signature that your FL SSP coordinator. Which leads me to my question. Are you connected to other SSP coordinators around the country, like in other states? There might be a need to connect all of the coordinators, to have some unity in trainings, materials, programs and so on. <br>Very curiously,
<br><br>Marsha drenth <br>Sent with my IPhone <br><br>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>> wrote:<br>> <br>> Florida Residents: <br>> <br>> This announcement is for sighted individuals who are interested in becoming<br>> Support Service Provider (SSP), who will sight-guide, assist in<br>> communication needs (sign or voice), relay visual information and provide<br>> information for Deaf-Blind Floridians. <br>> <br>> Attached is a copy of our next FSSP Training Workshop. <br>> <br>> Please go to our website for further information. <br>> <br>> SPREAD THE WORD!<br>> <br>> Darlene Laibl-Crowe<br>> <br>> FSSP Coordinator<br>> Florida Deaf-Blind Association
<br>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>> (386) 546-5706<br>> www.fldeafblind.org<br>> <br>> RELAYING SELF-SUFFICIENCY<br>> <br>> 'Character cannot be developed in ease and quiet. Only through experience of<br>> trial and suffering can the soul be strengthened, vision cleared, ambition<br>> inspired, and success achieved' <br>> ~ Helen<br>> Keller<br>> <br>> <br>> <br>> <br>> <br>> <br>> <2014FSSP Flyer ORL.pdf><br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org"
href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br><br>------------------------------<br><br>Message: 2<br>Date: Sun, 23 Mar 2014 10:16:07 -0400<br>From: Marsha Drenth <<a ymailto="mailto:marsha.drenth@gmail.com" href="mailto:marsha.drenth@gmail.com">marsha.drenth@gmail.com</a>><br>To: NFB Deaf-Blind Division Mailing List <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] DB are becoming exposed in media.... Watch<br>Message-ID: <<a ymailto="mailto:C9F76645-7223-4255-9908-FD959381AD66@gmail.com" href="mailto:C9F76645-7223-4255-9908-FD959381AD66@gmail.com">C9F76645-7223-4255-9908-FD959381AD66@gmail.com</a>><br>Content-Type: text/plain; charset=us-ascii<br><br>Can somone please resend the link to
the ICC on NBc, as the link below either is not working, and or does not take you to the article or video. <br>thanks,<br><br>Marsha drenth <br>Sent with my IPhone <br><br>> On Mar 20, 2014, at 8:52 AM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>> wrote:<br>> <br>> Interesting! The informationa bout the National Deaf Blind Equipment<br>> Disbursement Program (icanconnect) was on NBC!<br>> <br>> Click on link below to see more!<br>> <br>> <a href="http://www.nbcnewyork.com/video/#!/on-air/as-seen-on/The-Good-Fight--ICanCon" target="_blank">http://www.nbcnewyork.com/video/#!/on-air/as-seen-on/The-Good-Fight--ICanCon</a><br>> nect/250519051<br>> <br>> <br>> (smile)<br>> Darlene<br>> <br>> <br>> _______________________________________________<br>> nfb-db mailing list<br>> <a
ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br><br>------------------------------<br><br>Message: 3<br>Date: Sun, 23 Mar 2014 10:26:54 -0400<br>From: "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>To: "'NFB Deaf-Blind Division Mailing List'" <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service Program Training<br> Workshop - Orlando<br>Message-ID: <004b01cf46a3$f1c29af0$d547d0d0$@net><br>Content-Type: text/plain; charset="us-ascii"<br><br>Actually, we have consulted with several other states before we began
to<br>form our program. Also, we've had much feedback from HKNC. Currently there<br>are over 30 states that have SSP programs. We have tailored our program<br>from the Seattle program. <br><br>Each program have been very willing to share and assist us as we have moved<br>forward. There is much to do and it is flourishing. We currently have 35<br>SSPs in our database and 55 Deaf Blind Floridians in our Registry. We also<br>implemented the No Deaf Blind Floridian Left Behind Registry campaign in<br>hopes of gaining more numbers to approach funders, legislators and to<br>collaborate with other agencies. We have several agencies who are very<br>supportive of what we are doing. <br><br>One of those are the Lighthouses throughout Florida. The workshop next<br>month will be at the Lighthouse of Central Florida in Orlando. <br><br>It takes teamwork and collaboration for success. Like Helen
Keller said<br>'Alone we can do little but together we can do much'; FDBA is very willing<br>to work with other agencies, states. <br><br>Thanks for inquiring, Marsha, and I hope your journey at HKNC continues to<br>be a success!!<br><br>(smile)<br>Darlene<br><br>-----Original Message-----<br>From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Marsha Drenth<br>Sent: Sunday, March 23, 2014 10:00 AM<br>To: NFB Deaf-Blind Division Mailing List<br>Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -<br>Orlando<br><br>Darlene,<br>Thanks for posting this. I see in your email signature that your FL SSP<br>coordinator. Which leads me to my question. Are you connected to other SSP<br>coordinators around the country, like in other states? There might be a need<br>to connect all of the coordinators, to have some unity in
trainings,<br>materials, programs and so on. <br>Very curiously, <br><br>Marsha drenth<br>Sent with my IPhone <br><br>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>wrote:<br>> <br>> Florida Residents: <br>> <br>> This announcement is for sighted individuals who are interested in <br>> becoming Support Service Provider (SSP), who will sight-guide, assist <br>> in communication needs (sign or voice), relay visual information and <br>> provide information for Deaf-Blind Floridians.<br>> <br>> Attached is a copy of our next FSSP Training Workshop. <br>> <br>> Please go to our website for further information. <br>> <br>> SPREAD THE WORD!<br>> <br>> Darlene Laibl-Crowe<br>> <br>> FSSP Coordinator<br>> Florida Deaf-Blind Association
<br>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>> (386) 546-5706<br>> www.fldeafblind.org<br>> <br>> RELAYING SELF-SUFFICIENCY<br>> <br>> 'Character cannot be developed in ease and quiet. Only through <br>> experience of trial and suffering can the soul be strengthened, vision <br>> cleared, ambition inspired, and success achieved'<br>> ~ Helen <br>> Keller<br>> <br>> <br>> <br>> <br>> <br>> <br>> <2014FSSP Flyer ORL.pdf><br>> _______________________________________________<br>> nfb-db mailing list<br>> <a
ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br>_______________________________________________<br>nfb-db mailing list<br><a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br><a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br><br><br>------------------------------<br><br>Message: 4<br>Date: Sun, 23 Mar 2014 08:18:24 -0700<br>From: Shadow Wolf <<a ymailto="mailto:soulalibi@gmail.com" href="mailto:soulalibi@gmail.com">soulalibi@gmail.com</a>><br>To: NFB Deaf-Blind Division Mailing List <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support
Service Program Training<br> Workshop - Orlando<br>Message-ID: <<a ymailto="mailto:532EFB40.2070102@gmail.com" href="mailto:532EFB40.2070102@gmail.com">532EFB40.2070102@gmail.com</a>><br>Content-Type: text/plain; charset=ISO-8859-1; format=flowed<br><br>Marsha,<br>Every state and city has their own SSP coordinator. The person <br>responsible for establishing and setting up SSP services in your area <br>differs from state to state. If you live in PA. I'm pretty sure they <br>have their own SSP coordinator in your area. I believe you live in <br>Philedalphia. Scott Stoffel, is an SSP coordinator in another area. I'm <br>not sure if he also the coordinator of your city. But you can ask him, <br>if you still have his email address.<br><br>HKNC just barely started it's own SSP program. They created an SSP <br>class, now taught by Maricar. I took her class myself. Marsha you might <br>want to take her class and learn more about the SSP
program.<br><br>--Shadow W.<br>On 3/23/2014 6:59 AM, Marsha Drenth wrote:<br>> Darlene,<br>> Thanks for posting this. I see in your email signature that your FL SSP coordinator. Which leads me to my question. Are you connected to other SSP coordinators around the country, like in other states? There might be a need to connect all of the coordinators, to have some unity in trainings, materials, programs and so on.<br>> Very curiously,<br>><br>> Marsha drenth<br>> Sent with my IPhone<br>><br>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>> wrote:<br>>><br>>> Florida Residents:<br>>><br>>> This announcement is for sighted individuals who are interested in becoming<br>>> Support Service Provider (SSP), who will sight-guide, assist in<br>>> communication needs (sign or voice), relay
visual information and provide<br>>> information for Deaf-Blind Floridians.<br>>><br>>> Attached is a copy of our next FSSP Training Workshop.<br>>><br>>> Please go to our website for further information.<br>>><br>>> SPREAD THE WORD!<br>>><br>>> Darlene Laibl-Crowe<br>>><br>>> FSSP Coordinator<br>>> Florida Deaf-Blind Association<br>>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>>> (386) 546-5706<br>>> www.fldeafblind.org<br>>><br>>> RELAYING SELF-SUFFICIENCY<br>>><br>>> 'Character cannot be developed in ease and quiet. Only through experience of<br>>> trial and suffering can the soul be strengthened, vision cleared, ambition<br>>> inspired, and success achieved'<br>>>
~ Helen<br>>> Keller<br>>><br>>><br>>><br>>><br>>><br>>><br>>> <2014FSSP Flyer ORL.pdf><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org"
target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br>-- <br>*~Shadow Wolf~*<br><br><br><br><br>------------------------------<br><br>Message: 5<br>Date: Sun, 23 Mar 2014 11:55:53 -0400<br>From: "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>To: "'NFB Deaf-Blind Division Mailing List'" <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service Program Training<br> Workshop - Orlando<br>Message-ID: <000b01cf46b0$61ba9540$252fbfc0$@net><br>Content-Type: text/plain; charset="us-ascii"<br><br>Thank you, SW! Yes, Maricar would be a great person to talk to at HKNC<br>about the SSP programs. When I was at HKNC in 2011, I had the opportunity<br>to go to a American Association for the Deaf Blind
(AADB) symposium in<br>Kentucky. HKNC furnished a SSP to travel with me. There were others in the<br>group who also had their own SSP. <br><br>I loved the freedom of having my own SSP while at the symposium and learned<br>much about what it meant to be a SSP...one thing that is important is that<br>the SSP does not make decisions for the Deaf-Blind person, it is up to the<br>DB person to tell the SSP what they want to do after the SSP feeds them the<br>visual information that they need to know. <br><br>Some states have very small programs and others are in specific areas of the<br>state and not statewide. Here in Florida we are aiming for statewide<br>services. I don't' remember if Pennsylvania has a SSP program. I admit I<br>do know know about Pennsylvania's SSP services but Maricar and HKNC would be<br>a great resource to find out if they do. HKNC is very involved in each<br>state that has SSP
programs. They make it their priority to stay on top of<br>what is provided in the states. <br><br>Like I said there are only 30 states that have SSP services and some are<br>only in a small metropolitan area and not statewide. For example, in the<br>State of Washington they have an excellent SSP program within the Seattle<br>area but it is not offered statewide. <br><br>Darlene<br>.<br><br>-----Original Message-----<br>From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Shadow Wolf<br>Sent: Sunday, March 23, 2014 11:18 AM<br>To: NFB Deaf-Blind Division Mailing List<br>Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -<br>Orlando<br><br>Marsha,<br>Every state and city has their own SSP coordinator. The person responsible<br>for establishing and setting up SSP services in your area differs from state<br>to
state. If you live in PA. I'm pretty sure they have their own SSP<br>coordinator in your area. I believe you live in Philedalphia. Scott Stoffel,<br>is an SSP coordinator in another area. I'm not sure if he also the<br>coordinator of your city. But you can ask him, if you still have his email<br>address.<br><br>HKNC just barely started it's own SSP program. They created an SSP class,<br>now taught by Maricar. I took her class myself. Marsha you might want to<br>take her class and learn more about the SSP program.<br><br>--Shadow W.<br>On 3/23/2014 6:59 AM, Marsha Drenth wrote:<br>> Darlene,<br>> Thanks for posting this. I see in your email signature that your FL SSP<br>coordinator. Which leads me to my question. Are you connected to other SSP<br>coordinators around the country, like in other states? There might be a need<br>to connect all of the coordinators, to have some unity in trainings,<br>materials, programs and so on.<br>> Very
curiously,<br>><br>> Marsha drenth<br>> Sent with my IPhone<br>><br>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>wrote:<br>>><br>>> Florida Residents:<br>>><br>>> This announcement is for sighted individuals who are interested in <br>>> becoming Support Service Provider (SSP), who will sight-guide, assist <br>>> in communication needs (sign or voice), relay visual information and <br>>> provide information for Deaf-Blind Floridians.<br>>><br>>> Attached is a copy of our next FSSP Training Workshop.<br>>><br>>> Please go to our website for further information.<br>>><br>>> SPREAD THE WORD!<br>>><br>>> Darlene Laibl-Crowe<br>>><br>>> FSSP Coordinator<br>>> Florida Deaf-Blind Association<br>>> <a
ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>>> (386) 546-5706<br>>> www.fldeafblind.org<br>>><br>>> RELAYING SELF-SUFFICIENCY<br>>><br>>> 'Character cannot be developed in ease and quiet. Only through <br>>> experience of trial and suffering can the soul be strengthened, <br>>> vision cleared, ambition inspired, and success achieved'<br>>> ~ <br>>> Helen Keller<br>>><br>>><br>>><br>>><br>>><br>>><br>>> <2014FSSP Flyer ORL.pdf><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a
ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br>--<br>*~Shadow Wolf~*<br><br><br>_______________________________________________<br>nfb-db mailing list<br><a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br><a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org"
target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br><br><br>------------------------------<br><br>Message: 6<br>Date: Sun, 23 Mar 2014 13:39:15 -0400<br>From: Marsha Drenth <<a ymailto="mailto:marsha.drenth@gmail.com" href="mailto:marsha.drenth@gmail.com">marsha.drenth@gmail.com</a>><br>To: NFB Deaf-Blind Division Mailing List <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service Program Training<br> Workshop - Orlando<br>Message-ID: <<a ymailto="mailto:26F476DA-DE91-4C65-8218-0C3D1CB6D1B0@gmail.com" href="mailto:26F476DA-DE91-4C65-8218-0C3D1CB6D1B0@gmail.com">26F476DA-DE91-4C65-8218-0C3D1CB6D1B0@gmail.com</a>><br>Content-Type: text/plain; charset=us-ascii<br><br>Darlene, <br>Thank you for your responds. You answered the question I was asking. But what I guess I
am asking also is, do states have any way to actively interact with other states to share knowledge, information, treaining methods, and the like? Like for example is there a main website? Or a SSP state coordinator email list? For example, if I were a state coordinator for one of the 30 states that does not have a SSP program but wanted to get ahold of other states that do have an SSP program, where do people find this information? Like with interpretors, there is a registery, is there the same for SSP? Perhaps I should be asking this question on the AADB list. <br>Thanks, <br><br><br>Marsha drenth <br>Sent with my IPhone <br><br>> On Mar 23, 2014, at 10:26 AM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>> wrote:<br>> <br>> Actually, we have consulted with several other states before we began to<br>> form our program. Also, we've had much feedback
from HKNC. Currently there<br>> are over 30 states that have SSP programs. We have tailored our program<br>> from the Seattle program. <br>> <br>> Each program have been very willing to share and assist us as we have moved<br>> forward. There is much to do and it is flourishing. We currently have 35<br>> SSPs in our database and 55 Deaf Blind Floridians in our Registry. We also<br>> implemented the No Deaf Blind Floridian Left Behind Registry campaign in<br>> hopes of gaining more numbers to approach funders, legislators and to<br>> collaborate with other agencies. We have several agencies who are very<br>> supportive of what we are doing. <br>> <br>> One of those are the Lighthouses throughout Florida. The workshop next<br>> month will be at the Lighthouse of Central Florida in Orlando. <br>> <br>> It takes teamwork and collaboration for
success. Like Helen Keller said<br>> 'Alone we can do little but together we can do much'; FDBA is very willing<br>> to work with other agencies, states. <br>> <br>> Thanks for inquiring, Marsha, and I hope your journey at HKNC continues to<br>> be a success!!<br>> <br>> (smile)<br>> Darlene<br>> <br>> -----Original Message-----<br>> From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Marsha Drenth<br>> Sent: Sunday, March 23, 2014 10:00 AM<br>> To: NFB Deaf-Blind Division Mailing List<br>> Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -<br>> Orlando<br>> <br>> Darlene,<br>> Thanks for posting this. I see in your email signature that your FL SSP<br>> coordinator. Which leads me to my question. Are you connected to other SSP<br>> coordinators around the
country, like in other states? There might be a need<br>> to connect all of the coordinators, to have some unity in trainings,<br>> materials, programs and so on. <br>> Very curiously, <br>> <br>> Marsha drenth<br>> Sent with my IPhone <br>> <br>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>>> wrote:<br>>> <br>>> Florida Residents: <br>>> <br>>> This announcement is for sighted individuals who are interested in <br>>> becoming Support Service Provider (SSP), who will sight-guide, assist <br>>> in communication needs (sign or voice), relay visual information and <br>>> provide information for Deaf-Blind Floridians.<br>>> <br>>> Attached is a copy of our next FSSP Training Workshop. <br>>> <br>>> Please go to our website for further
information. <br>>> <br>>> SPREAD THE WORD!<br>>> <br>>> Darlene Laibl-Crowe<br>>> <br>>> FSSP Coordinator<br>>> Florida Deaf-Blind Association <br>>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>>> (386) 546-5706<br>>> www.fldeafblind.org<br>>> <br>>> RELAYING SELF-SUFFICIENCY<br>>> <br>>> 'Character cannot be developed in ease and quiet. Only through <br>>> experience of trial and suffering can the soul be strengthened, vision <br>>> cleared, ambition inspired, and success achieved'<br>>>
~ Helen <br>>> Keller<br>>> <br>>> <br>>> <br>>> <br>>> <br>>> <br>>> <2014FSSP Flyer ORL.pdf><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> <br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> <br>> <br>> _______________________________________________<br>> nfb-db
mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br><br>------------------------------<br><br>Message: 7<br>Date: Sun, 23 Mar 2014 13:45:08 -0400<br>From: Marsha Drenth <<a ymailto="mailto:marsha.drenth@gmail.com" href="mailto:marsha.drenth@gmail.com">marsha.drenth@gmail.com</a>><br>To: NFB Deaf-Blind Division Mailing List <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service Program Training<br> Workshop - Orlando<br>Message-ID: <<a ymailto="mailto:3CEBD823-1886-441B-870D-3A4191DF6965@gmail.com"
href="mailto:3CEBD823-1886-441B-870D-3A4191DF6965@gmail.com">3CEBD823-1886-441B-870D-3A4191DF6965@gmail.com</a>><br>Content-Type: text/plain; charset=us-ascii<br><br>SW,<br>I know this. I am well aware of what an SSP is, what an SSP does. I do have Scott's email, and work closely with him. I am on a committee within my state of PA to creat a SSP program. Taking Maricar class is not something I feel as though I need to do. <br><br>I was specifically asking if like the interpretors have a registery, is there the same for SSP? a website or email list for SSP coordinators to gather, to share, to work together to form these programs? I don't personally want to contact these SSP coordinators, but how do people share information. See my response back to Darlene on further clarification of my question. <br><br><br><br>Marsha drenth <br>Sent with my IPhone <br><br>> On Mar 23, 2014, at 11:18 AM, Shadow Wolf <<a
ymailto="mailto:soulalibi@gmail.com" href="mailto:soulalibi@gmail.com">soulalibi@gmail.com</a>> wrote:<br>> <br>> Marsha,<br>> Every state and city has their own SSP coordinator. The person responsible for establishing and setting up SSP services in your area differs from state to state. If you live in PA. I'm pretty sure they have their own SSP coordinator in your area. I believe you live in Philedalphia. Scott Stoffel, is an SSP coordinator in another area. I'm not sure if he also the coordinator of your city. But you can ask him, if you still have his email address.<br>> <br>> HKNC just barely started it's own SSP program. They created an SSP class, now taught by Maricar. I took her class myself. Marsha you might want to take her class and learn more about the SSP program.<br>> <br>> --Shadow W.<br>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:<br>>> Darlene,<br>>> Thanks for posting this. I see in your email
signature that your FL SSP coordinator. Which leads me to my question. Are you connected to other SSP coordinators around the country, like in other states? There might be a need to connect all of the coordinators, to have some unity in trainings, materials, programs and so on.<br>>> Very curiously,<br>>> <br>>> Marsha drenth<br>>> Sent with my IPhone<br>>> <br>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>> wrote:<br>>>> <br>>>> Florida Residents:<br>>>> <br>>>> This announcement is for sighted individuals who are interested in becoming<br>>>> Support Service Provider (SSP), who will sight-guide, assist in<br>>>> communication needs (sign or voice), relay visual information and provide<br>>>> information for Deaf-Blind
Floridians.<br>>>> <br>>>> Attached is a copy of our next FSSP Training Workshop.<br>>>> <br>>>> Please go to our website for further information.<br>>>> <br>>>> SPREAD THE WORD!<br>>>> <br>>>> Darlene Laibl-Crowe<br>>>> <br>>>> FSSP Coordinator<br>>>> Florida Deaf-Blind Association<br>>>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>>>> (386) 546-5706<br>>>> www.fldeafblind.org<br>>>> <br>>>> RELAYING SELF-SUFFICIENCY<br>>>> <br>>>> 'Character cannot be developed in ease and quiet. Only through experience of<br>>>> trial and suffering can the soul be strengthened, vision cleared, ambition<br>>>> inspired, and success achieved'<br>>>>
~ Helen<br>>>> Keller<br>>>> <br>>>> <br>>>> <br>>>> <br>>>> <br>>>> <br>>>> <2014FSSP Flyer ORL.pdf><br>>>> _______________________________________________<br>>>> nfb-db mailing list<br>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a
href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> <br>> -- <br>> *~Shadow Wolf~*<br>> <br>> <br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br><br>------------------------------<br><br>Message: 8<br>Date: Sun, 23 Mar 2014 13:55:14 -0400<br>From: Marsha Drenth <<a ymailto="mailto:marsha.drenth@gmail.com" href="mailto:marsha.drenth@gmail.com">marsha.drenth@gmail.com</a>><br>To: NFB Deaf-Blind Division Mailing List <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service
Program Training<br> Workshop - Orlando<br>Message-ID: <<a ymailto="mailto:DB5218DB-CC4C-4A4A-BE9C-7B0143CE87D8@gmail.com" href="mailto:DB5218DB-CC4C-4A4A-BE9C-7B0143CE87D8@gmail.com">DB5218DB-CC4C-4A4A-BE9C-7B0143CE87D8@gmail.com</a>><br>Content-Type: text/plain; charset=us-ascii<br><br>Darlene,<br>I wish that AADB was financially and physically up to holding another conference. I have recently gotten involved in the AADB rebuilding. Its slow and not going very fast. This is not meant to be offensive to anyone who is a die hard AADB supporter, but they are not doing anything. Its sad. But this also means that perhaps this means that organizations like the NFB should step in for persons who are deafblind. <br><br>Yes Southeastern PA has a brand new SSP program. I am heavily involved in this. I know the coordinator personally as he lives just a few minutes from my home in PA. I am also on a
committee to help the state rehab agencies form a state wide SSP program. Right now the SE PA SSP program only covers 8 counties, the state wide program will serves the whole state. PA has a medium size deafblind program, we are finding them every day. <br><br>I was also going to ask what is the FL DB left behind registery? <br><br><br>Marsha drenth <br>Sent with my IPhone <br><br>> On Mar 23, 2014, at 11:55 AM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>> wrote:<br>> <br>> Thank you, SW! Yes, Maricar would be a great person to talk to at HKNC<br>> about the SSP programs. When I was at HKNC in 2011, I had the opportunity<br>> to go to a American Association for the Deaf Blind (AADB) symposium in<br>> Kentucky. HKNC furnished a SSP to travel with me. There were others in the<br>> group who also had their own SSP.
<br>> <br>> I loved the freedom of having my own SSP while at the symposium and learned<br>> much about what it meant to be a SSP...one thing that is important is that<br>> the SSP does not make decisions for the Deaf-Blind person, it is up to the<br>> DB person to tell the SSP what they want to do after the SSP feeds them the<br>> visual information that they need to know. <br>> <br>> Some states have very small programs and others are in specific areas of the<br>> state and not statewide. Here in Florida we are aiming for statewide<br>> services. I don't' remember if Pennsylvania has a SSP program. I admit I<br>> do know know about Pennsylvania's SSP services but Maricar and HKNC would be<br>> a great resource to find out if they do. HKNC is very involved in each<br>> state that has SSP programs. They make it their priority to stay on top of<br>> what is provided in the
states. <br>> <br>> Like I said there are only 30 states that have SSP services and some are<br>> only in a small metropolitan area and not statewide. For example, in the<br>> State of Washington they have an excellent SSP program within the Seattle<br>> area but it is not offered statewide. <br>> <br>> Darlene<br>> .<br>> <br>> -----Original Message-----<br>> From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Shadow Wolf<br>> Sent: Sunday, March 23, 2014 11:18 AM<br>> To: NFB Deaf-Blind Division Mailing List<br>> Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -<br>> Orlando<br>> <br>> Marsha,<br>> Every state and city has their own SSP coordinator. The person responsible<br>> for establishing and setting up SSP services in your area differs from
state<br>> to state. If you live in PA. I'm pretty sure they have their own SSP<br>> coordinator in your area. I believe you live in Philedalphia. Scott Stoffel,<br>> is an SSP coordinator in another area. I'm not sure if he also the<br>> coordinator of your city. But you can ask him, if you still have his email<br>> address.<br>> <br>> HKNC just barely started it's own SSP program. They created an SSP class,<br>> now taught by Maricar. I took her class myself. Marsha you might want to<br>> take her class and learn more about the SSP program.<br>> <br>> --Shadow W.<br>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:<br>>> Darlene,<br>>> Thanks for posting this. I see in your email signature that your FL SSP<br>> coordinator. Which leads me to my question. Are you connected to other SSP<br>> coordinators around the country, like in other states? There might be a need<br>> to connect all of the
coordinators, to have some unity in trainings,<br>> materials, programs and so on.<br>>> Very curiously,<br>>> <br>>> Marsha drenth<br>>> Sent with my IPhone<br>>> <br>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>> wrote:<br>>>> <br>>>> Florida Residents:<br>>>> <br>>>> This announcement is for sighted individuals who are interested in <br>>>> becoming Support Service Provider (SSP), who will sight-guide, assist <br>>>> in communication needs (sign or voice), relay visual information and <br>>>> provide information for Deaf-Blind Floridians.<br>>>> <br>>>> Attached is a copy of our next FSSP Training Workshop.<br>>>> <br>>>> Please go to our website for further information.<br>>>>
<br>>>> SPREAD THE WORD!<br>>>> <br>>>> Darlene Laibl-Crowe<br>>>> <br>>>> FSSP Coordinator<br>>>> Florida Deaf-Blind Association<br>>>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>>>> (386) 546-5706<br>>>> www.fldeafblind.org<br>>>> <br>>>> RELAYING SELF-SUFFICIENCY<br>>>> <br>>>> 'Character cannot be developed in ease and quiet. Only through <br>>>> experience of trial and suffering can the soul be strengthened, <br>>>> vision cleared, ambition inspired, and success achieved'<br>>>> ~ <br>>>> Helen
Keller<br>>>> <br>>>> <br>>>> <br>>>> <br>>>> <br>>>> <br>>>> <2014FSSP Flyer ORL.pdf><br>>>> _______________________________________________<br>>>> nfb-db mailing list<br>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> <br>> --<br>> *~Shadow Wolf~*<br>> <br>> <br>>
_______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> <br>> <br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br><br>------------------------------<br><br>Message: 9<br>Date: Sun, 23 Mar 2014 11:29:16 -0700<br>From: Shadow Wolf <<a ymailto="mailto:soulalibi@gmail.com" href="mailto:soulalibi@gmail.com">soulalibi@gmail.com</a>><br>To: NFB Deaf-Blind Division Mailing List <<a
ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service Program Training<br> Workshop - Orlando<br>Message-ID: <<a ymailto="mailto:532F27FC.8000200@gmail.com" href="mailto:532F27FC.8000200@gmail.com">532F27FC.8000200@gmail.com</a>><br>Content-Type: text/plain; charset=ISO-8859-1; format=flowed<br><br>Hi Darlene,<br>Right on.<br>Yes I agree with you on the notion that not every state has an SSP <br>program. My assumption is because some states, such as Seattle, WA, <br>California (in most large cities) and Florida has a significant DB <br>population. If a state like Iowa, that does not have a valid active DB <br>population, it is very difficult to establish an SSP program in that <br>state. Here in Arizona, we have SSP services for both the greater <br>Phoenix metro area and Tucson. Both cities has a significant DB <br>population, while in
Flagstaff does not. The funds to keep our SSP <br>service going in Phoenix comes from private donors, such as the Catholic <br>church (for one). And we are only limited to a small # of hours per month.<br><br>Darlene, for the most part. The DB community nationwide is advocating to <br>Congress to pass legislation to help fund SSP programs nationwide. We <br>are all in this cause together. I think sooner rather than later, this <br>will happen in the near future.<br><br>--S.W.<br>On 3/23/2014 8:55 AM, Darlene Laibl-Crowe wrote:<br>> Thank you, SW! Yes, Maricar would be a great person to talk to at HKNC<br>> about the SSP programs. When I was at HKNC in 2011, I had the opportunity<br>> to go to a American Association for the Deaf Blind (AADB) symposium in<br>> Kentucky. HKNC furnished a SSP to travel with me. There were others in the<br>> group who also had their own SSP.<br>><br>> I loved the freedom of having
my own SSP while at the symposium and learned<br>> much about what it meant to be a SSP...one thing that is important is that<br>> the SSP does not make decisions for the Deaf-Blind person, it is up to the<br>> DB person to tell the SSP what they want to do after the SSP feeds them the<br>> visual information that they need to know.<br>><br>> Some states have very small programs and others are in specific areas of the<br>> state and not statewide. Here in Florida we are aiming for statewide<br>> services. I don't' remember if Pennsylvania has a SSP program. I admit I<br>> do know know about Pennsylvania's SSP services but Maricar and HKNC would be<br>> a great resource to find out if they do. HKNC is very involved in each<br>> state that has SSP programs. They make it their priority to stay on top of<br>> what is provided in the states.<br>><br>> Like I said there are only 30
states that have SSP services and some are<br>> only in a small metropolitan area and not statewide. For example, in the<br>> State of Washington they have an excellent SSP program within the Seattle<br>> area but it is not offered statewide.<br>><br>> Darlene<br>> .<br>><br>> -----Original Message-----<br>> From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Shadow Wolf<br>> Sent: Sunday, March 23, 2014 11:18 AM<br>> To: NFB Deaf-Blind Division Mailing List<br>> Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -<br>> Orlando<br>><br>> Marsha,<br>> Every state and city has their own SSP coordinator. The person responsible<br>> for establishing and setting up SSP services in your area differs from state<br>> to state. If you live in PA. I'm pretty sure they have their own
SSP<br>> coordinator in your area. I believe you live in Philedalphia. Scott Stoffel,<br>> is an SSP coordinator in another area. I'm not sure if he also the<br>> coordinator of your city. But you can ask him, if you still have his email<br>> address.<br>><br>> HKNC just barely started it's own SSP program. They created an SSP class,<br>> now taught by Maricar. I took her class myself. Marsha you might want to<br>> take her class and learn more about the SSP program.<br>><br>> --Shadow W.<br>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:<br>>> Darlene,<br>>> Thanks for posting this. I see in your email signature that your FL SSP<br>> coordinator. Which leads me to my question. Are you connected to other SSP<br>> coordinators around the country, like in other states? There might be a need<br>> to connect all of the coordinators, to have some unity in trainings,<br>> materials, programs and so
on.<br>>> Very curiously,<br>>><br>>> Marsha drenth<br>>> Sent with my IPhone<br>>><br>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>> wrote:<br>>>> Florida Residents:<br>>>><br>>>> This announcement is for sighted individuals who are interested in<br>>>> becoming Support Service Provider (SSP), who will sight-guide, assist<br>>>> in communication needs (sign or voice), relay visual information and<br>>>> provide information for Deaf-Blind Floridians.<br>>>><br>>>> Attached is a copy of our next FSSP Training Workshop.<br>>>><br>>>> Please go to our website for further information.<br>>>><br>>>> SPREAD THE WORD!<br>>>><br>>>> Darlene
Laibl-Crowe<br>>>><br>>>> FSSP Coordinator<br>>>> Florida Deaf-Blind Association<br>>>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>>>> (386) 546-5706<br>>>> www.fldeafblind.org<br>>>><br>>>> RELAYING SELF-SUFFICIENCY<br>>>><br>>>> 'Character cannot be developed in ease and quiet. Only through<br>>>> experience of trial and suffering can the soul be strengthened,<br>>>> vision cleared, ambition inspired, and success achieved'<br>>>> ~<br>>>> Helen
Keller<br>>>><br>>>><br>>>><br>>>><br>>>><br>>>><br>>>> <2014FSSP Flyer ORL.pdf><br>>>> _______________________________________________<br>>>> nfb-db mailing list<br>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> --<br>> *~Shadow Wolf~*<br>><br>><br>>
_______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>><br>><br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br>-- <br>*~Shadow Wolf~*<br><br><br><br><br>------------------------------<br><br>Message: 10<br>Date: Sun, 23 Mar 2014 11:36:09 -0700<br>From: Shadow Wolf <<a ymailto="mailto:soulalibi@gmail.com" href="mailto:soulalibi@gmail.com">soulalibi@gmail.com</a>><br>To: NFB Deaf-Blind Division
Mailing List <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service Program Training<br> Workshop - Orlando<br>Message-ID: <<a ymailto="mailto:532F2999.1070209@gmail.com" href="mailto:532F2999.1070209@gmail.com">532F2999.1070209@gmail.com</a>><br>Content-Type: text/plain; charset=ISO-8859-1; format=flowed<br><br>Darlene,<br>In regards to the AADB. As you know, I am not officially a member of <br>that organization yet. But I've heard while I was still a student at <br>HKNC last year. That the AADB has selected a new president (Randy <br>"Hippie" Pope?) and a new board of directors. Effective since last <br>summer. I believe Randy once stated that they will take AADB in a new <br>direction. And possibly unite the NFB with the AADB. Because in past <br>years with the former president and former board members. They were <br>wholly inactive
and "do-nothings" that left AADB in dire straits. I'm <br>guessing its taking Randy some time to take care of business and <br>figuring out what they plan to do this year. Anything new with them?<br><br>--S.W.<br>On 3/23/2014 10:55 AM, Marsha Drenth wrote:<br>> Darlene,<br>> I wish that AADB was financially and physically up to holding another conference. I have recently gotten involved in the AADB rebuilding. Its slow and not going very fast. This is not meant to be offensive to anyone who is a die hard AADB supporter, but they are not doing anything. Its sad. But this also means that perhaps this means that organizations like the NFB should step in for persons who are deafblind.<br>><br>> Yes Southeastern PA has a brand new SSP program. I am heavily involved in this. I know the coordinator personally as he lives just a few minutes from my home in PA. I am also on a committee to help the state rehab agencies form a state wide SSP program.
Right now the SE PA SSP program only covers 8 counties, the state wide program will serves the whole state. PA has a medium size deafblind program, we are finding them every day.<br>><br>> I was also going to ask what is the FL DB left behind registery?<br>><br>><br>> Marsha drenth<br>> Sent with my IPhone<br>><br>>> On Mar 23, 2014, at 11:55 AM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>> wrote:<br>>><br>>> Thank you, SW! Yes, Maricar would be a great person to talk to at HKNC<br>>> about the SSP programs. When I was at HKNC in 2011, I had the opportunity<br>>> to go to a American Association for the Deaf Blind (AADB) symposium in<br>>> Kentucky. HKNC furnished a SSP to travel with me. There were others in the<br>>> group who also had their own SSP.<br>>><br>>> I loved the
freedom of having my own SSP while at the symposium and learned<br>>> much about what it meant to be a SSP...one thing that is important is that<br>>> the SSP does not make decisions for the Deaf-Blind person, it is up to the<br>>> DB person to tell the SSP what they want to do after the SSP feeds them the<br>>> visual information that they need to know.<br>>><br>>> Some states have very small programs and others are in specific areas of the<br>>> state and not statewide. Here in Florida we are aiming for statewide<br>>> services. I don't' remember if Pennsylvania has a SSP program. I admit I<br>>> do know know about Pennsylvania's SSP services but Maricar and HKNC would be<br>>> a great resource to find out if they do. HKNC is very involved in each<br>>> state that has SSP programs. They make it their priority to stay on top of<br>>> what is provided
in the states.<br>>><br>>> Like I said there are only 30 states that have SSP services and some are<br>>> only in a small metropolitan area and not statewide. For example, in the<br>>> State of Washington they have an excellent SSP program within the Seattle<br>>> area but it is not offered statewide.<br>>><br>>> Darlene<br>>> .<br>>><br>>> -----Original Message-----<br>>> From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Shadow Wolf<br>>> Sent: Sunday, March 23, 2014 11:18 AM<br>>> To: NFB Deaf-Blind Division Mailing List<br>>> Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -<br>>> Orlando<br>>><br>>> Marsha,<br>>> Every state and city has their own SSP coordinator. The person responsible<br>>> for establishing
and setting up SSP services in your area differs from state<br>>> to state. If you live in PA. I'm pretty sure they have their own SSP<br>>> coordinator in your area. I believe you live in Philedalphia. Scott Stoffel,<br>>> is an SSP coordinator in another area. I'm not sure if he also the<br>>> coordinator of your city. But you can ask him, if you still have his email<br>>> address.<br>>><br>>> HKNC just barely started it's own SSP program. They created an SSP class,<br>>> now taught by Maricar. I took her class myself. Marsha you might want to<br>>> take her class and learn more about the SSP program.<br>>><br>>> --Shadow W.<br>>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:<br>>>> Darlene,<br>>>> Thanks for posting this. I see in your email signature that your FL SSP<br>>> coordinator. Which leads me to my question. Are you connected to other
SSP<br>>> coordinators around the country, like in other states? There might be a need<br>>> to connect all of the coordinators, to have some unity in trainings,<br>>> materials, programs and so on.<br>>>> Very curiously,<br>>>><br>>>> Marsha drenth<br>>>> Sent with my IPhone<br>>>><br>>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>>> wrote:<br>>>>> Florida Residents:<br>>>>><br>>>>> This announcement is for sighted individuals who are interested in<br>>>>> becoming Support Service Provider (SSP), who will sight-guide, assist<br>>>>> in communication needs (sign or voice), relay visual information and<br>>>>> provide information for Deaf-Blind
Floridians.<br>>>>><br>>>>> Attached is a copy of our next FSSP Training Workshop.<br>>>>><br>>>>> Please go to our website for further information.<br>>>>><br>>>>> SPREAD THE WORD!<br>>>>><br>>>>> Darlene Laibl-Crowe<br>>>>><br>>>>> FSSP Coordinator<br>>>>> Florida Deaf-Blind Association<br>>>>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>>>>> (386) 546-5706<br>>>>> www.fldeafblind.org<br>>>>><br>>>>> RELAYING SELF-SUFFICIENCY<br>>>>><br>>>>> 'Character cannot be developed in ease and quiet. Only through<br>>>>> experience of trial and suffering can the soul be strengthened,<br>>>>> vision cleared, ambition inspired, and success
achieved'<br>>>>> ~<br>>>>> Helen Keller<br>>>>><br>>>>><br>>>>><br>>>>><br>>>>><br>>>>><br>>>>> <2014FSSP Flyer ORL.pdf><br>>>>> _______________________________________________<br>>>>> nfb-db mailing list<br>>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>> _______________________________________________<br>>>> nfb-db mailing list<br>>>> <a
ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>> --<br>>> *~Shadow Wolf~*<br>>><br>>><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>><br>>><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org"
target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br>-- <br>*~Shadow Wolf~*<br><br><br><br><br>------------------------------<br><br>Message: 11<br>Date: Sun, 23 Mar 2014 11:44:08 -0700<br>From: Shadow Wolf <<a ymailto="mailto:soulalibi@gmail.com" href="mailto:soulalibi@gmail.com">soulalibi@gmail.com</a>><br>To: NFB Deaf-Blind Division Mailing List <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service Program Training<br> Workshop - Orlando<br>Message-ID: <<a
ymailto="mailto:532F2B78.6000308@gmail.com" href="mailto:532F2B78.6000308@gmail.com">532F2B78.6000308@gmail.com</a>><br>Content-Type: text/plain; charset=ISO-8859-1; format=flowed<br><br>Marsha,<br>I'm puzzled by your response. You sound quite defensive. I don't need to <br>re-read your questions. I merely added in my input for info purposes <br>only. But you were quick to admonish me for it. As Darlene stated in <br>response to me. Maricar would be the best person at HKNC to discuss any <br>SSP related questions. If you're planning on becoming a social worker. <br>You should at least be professional about it. Just my IMHO. And nothing <br>personal.<br><br>--S.W.<br>On 3/23/2014 10:45 AM, Marsha Drenth wrote:<br>> SW,<br>> I know this. I am well aware of what an SSP is, what an SSP does. I do have Scott's email, and work closely with him. I am on a committee within my state of PA to creat a SSP program. Taking Maricar class is not
something I feel as though I need to do.<br>><br>> I was specifically asking if like the interpretors have a registery, is there the same for SSP? a website or email list for SSP coordinators to gather, to share, to work together to form these programs? I don't personally want to contact these SSP coordinators, but how do people share information. See my response back to Darlene on further clarification of my question.<br>><br>><br>><br>> Marsha drenth<br>> Sent with my IPhone<br>><br>>> On Mar 23, 2014, at 11:18 AM, Shadow Wolf <<a ymailto="mailto:soulalibi@gmail.com" href="mailto:soulalibi@gmail.com">soulalibi@gmail.com</a>> wrote:<br>>><br>>> Marsha,<br>>> Every state and city has their own SSP coordinator. The person responsible for establishing and setting up SSP services in your area differs from state to state. If you live in PA. I'm pretty sure they have their own SSP coordinator in your
area. I believe you live in Philedalphia. Scott Stoffel, is an SSP coordinator in another area. I'm not sure if he also the coordinator of your city. But you can ask him, if you still have his email address.<br>>><br>>> HKNC just barely started it's own SSP program. They created an SSP class, now taught by Maricar. I took her class myself. Marsha you might want to take her class and learn more about the SSP program.<br>>><br>>> --Shadow W.<br>>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:<br>>>> Darlene,<br>>>> Thanks for posting this. I see in your email signature that your FL SSP coordinator. Which leads me to my question. Are you connected to other SSP coordinators around the country, like in other states? There might be a need to connect all of the coordinators, to have some unity in trainings, materials, programs and so on.<br>>>> Very curiously,<br>>>><br>>>> Marsha
drenth<br>>>> Sent with my IPhone<br>>>><br>>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>> wrote:<br>>>>><br>>>>> Florida Residents:<br>>>>><br>>>>> This announcement is for sighted individuals who are interested in becoming<br>>>>> Support Service Provider (SSP), who will sight-guide, assist in<br>>>>> communication needs (sign or voice), relay visual information and provide<br>>>>> information for Deaf-Blind Floridians.<br>>>>><br>>>>> Attached is a copy of our next FSSP Training Workshop.<br>>>>><br>>>>> Please go to our website for further information.<br>>>>><br>>>>> SPREAD THE WORD!<br>>>>><br>>>>> Darlene
Laibl-Crowe<br>>>>><br>>>>> FSSP Coordinator<br>>>>> Florida Deaf-Blind Association<br>>>>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>>>>> (386) 546-5706<br>>>>> www.fldeafblind.org<br>>>>><br>>>>> RELAYING SELF-SUFFICIENCY<br>>>>><br>>>>> 'Character cannot be developed in ease and quiet. Only through experience of<br>>>>> trial and suffering can the soul be strengthened, vision cleared, ambition<br>>>>> inspired, and success achieved'<br>>>>> ~ Helen<br>>>>>
Keller<br>>>>><br>>>>><br>>>>><br>>>>><br>>>>><br>>>>><br>>>>> <2014FSSP Flyer ORL.pdf><br>>>>> _______________________________________________<br>>>>> nfb-db mailing list<br>>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>> _______________________________________________<br>>>> nfb-db mailing list<br>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>> -- <br>>> *~Shadow
Wolf~*<br>>><br>>><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br>-- <br>*~Shadow Wolf~*<br><br><br><br><br>------------------------------<br><br>Message: 12<br>Date: Sun, 23 Mar 2014 15:27:16 -0400<br>From: Darlene <<a ymailto="mailto:dlaiblcrowe@att.net"
href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>To: NFB Deaf-Blind Division Mailing List <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service Program Training<br> Workshop - Orlando<br>Message-ID: <<a ymailto="mailto:D3C999AA-8E6D-4F96-9DBB-6B6FF90B70DC@att.net" href="mailto:D3C999AA-8E6D-4F96-9DBB-6B6FF90B70DC@att.net">D3C999AA-8E6D-4F96-9DBB-6B6FF90B70DC@att.net</a>><br>Content-Type: text/plain; charset=us-ascii<br><br>Hi Marsha<br>I don't know if Randy has<br>Achieved his goals<br>There was much to be done I know he is a good person for that position at AADb<br>I am sure if you contact him he would be happy to share with you<br>I am not that involved with AADb at this time<br><br>Sent from my iPhone<br><br>> On Mar 23, 2014, at 2:36 PM, Shadow Wolf <<a
ymailto="mailto:soulalibi@gmail.com" href="mailto:soulalibi@gmail.com">soulalibi@gmail.com</a>> wrote:<br>> <br>> Darlene,<br>> In regards to the AADB. As you know, I am not officially a member of that organization yet. But I've heard while I was still a student at HKNC last year. That the AADB has selected a new president (Randy "Hippie" Pope?) and a new board of directors. Effective since last summer. I believe Randy once stated that they will take AADB in a new direction. And possibly unite the NFB with the AADB. Because in past years with the former president and former board members. They were wholly inactive and "do-nothings" that left AADB in dire straits. I'm guessing its taking Randy some time to take care of business and figuring out what they plan to do this year. Anything new with them?<br>> <br>> --S.W.<br>>> On 3/23/2014 10:55 AM, Marsha Drenth wrote:<br>>> Darlene,<br>>> I wish that AADB was financially
and physically up to holding another conference. I have recently gotten involved in the AADB rebuilding. Its slow and not going very fast. This is not meant to be offensive to anyone who is a die hard AADB supporter, but they are not doing anything. Its sad. But this also means that perhaps this means that organizations like the NFB should step in for persons who are deafblind.<br>>> <br>>> Yes Southeastern PA has a brand new SSP program. I am heavily involved in this. I know the coordinator personally as he lives just a few minutes from my home in PA. I am also on a committee to help the state rehab agencies form a state wide SSP program. Right now the SE PA SSP program only covers 8 counties, the state wide program will serves the whole state. PA has a medium size deafblind program, we are finding them every day.<br>>> <br>>> I was also going to ask what is the FL DB left behind registery?<br>>> <br>>> <br>>>
Marsha drenth<br>>> Sent with my IPhone<br>>> <br>>>> On Mar 23, 2014, at 11:55 AM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>> wrote:<br>>>> <br>>>> Thank you, SW! Yes, Maricar would be a great person to talk to at HKNC<br>>>> about the SSP programs. When I was at HKNC in 2011, I had the opportunity<br>>>> to go to a American Association for the Deaf Blind (AADB) symposium in<br>>>> Kentucky. HKNC furnished a SSP to travel with me. There were others in the<br>>>> group who also had their own SSP.<br>>>> <br>>>> I loved the freedom of having my own SSP while at the symposium and learned<br>>>> much about what it meant to be a SSP...one thing that is important is that<br>>>> the SSP does not make decisions for the Deaf-Blind person, it is
up to the<br>>>> DB person to tell the SSP what they want to do after the SSP feeds them the<br>>>> visual information that they need to know.<br>>>> <br>>>> Some states have very small programs and others are in specific areas of the<br>>>> state and not statewide. Here in Florida we are aiming for statewide<br>>>> services. I don't' remember if Pennsylvania has a SSP program. I admit I<br>>>> do know know about Pennsylvania's SSP services but Maricar and HKNC would be<br>>>> a great resource to find out if they do. HKNC is very involved in each<br>>>> state that has SSP programs. They make it their priority to stay on top of<br>>>> what is provided in the states.<br>>>> <br>>>> Like I said there are only 30 states that have SSP services and some are<br>>>> only in a small metropolitan area and not
statewide. For example, in the<br>>>> State of Washington they have an excellent SSP program within the Seattle<br>>>> area but it is not offered statewide.<br>>>> <br>>>> Darlene<br>>>> .<br>>>> <br>>>> -----Original Message-----<br>>>> From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Shadow Wolf<br>>>> Sent: Sunday, March 23, 2014 11:18 AM<br>>>> To: NFB Deaf-Blind Division Mailing List<br>>>> Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -<br>>>> Orlando<br>>>> <br>>>> Marsha,<br>>>> Every state and city has their own SSP coordinator. The person responsible<br>>>> for establishing and setting up SSP services in your area differs from state<br>>>> to state. If you live
in PA. I'm pretty sure they have their own SSP<br>>>> coordinator in your area. I believe you live in Philedalphia. Scott Stoffel,<br>>>> is an SSP coordinator in another area. I'm not sure if he also the<br>>>> coordinator of your city. But you can ask him, if you still have his email<br>>>> address.<br>>>> <br>>>> HKNC just barely started it's own SSP program. They created an SSP class,<br>>>> now taught by Maricar. I took her class myself. Marsha you might want to<br>>>> take her class and learn more about the SSP program.<br>>>> <br>>>> --Shadow W.<br>>>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:<br>>>>> Darlene,<br>>>>> Thanks for posting this. I see in your email signature that your FL SSP<br>>>> coordinator. Which leads me to my question. Are you connected to other SSP<br>>>> coordinators around the
country, like in other states? There might be a need<br>>>> to connect all of the coordinators, to have some unity in trainings,<br>>>> materials, programs and so on.<br>>>>> Very curiously,<br>>>>> <br>>>>> Marsha drenth<br>>>>> Sent with my IPhone<br>>>>> <br>>>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>>>> wrote:<br>>>>>> Florida Residents:<br>>>>>> <br>>>>>> This announcement is for sighted individuals who are interested in<br>>>>>> becoming Support Service Provider (SSP), who will sight-guide, assist<br>>>>>> in communication needs (sign or voice), relay visual information and<br>>>>>> provide information for Deaf-Blind
Floridians.<br>>>>>> <br>>>>>> Attached is a copy of our next FSSP Training Workshop.<br>>>>>> <br>>>>>> Please go to our website for further information.<br>>>>>> <br>>>>>> SPREAD THE WORD!<br>>>>>> <br>>>>>> Darlene Laibl-Crowe<br>>>>>> <br>>>>>> FSSP Coordinator<br>>>>>> Florida Deaf-Blind Association<br>>>>>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>>>>>> (386) 546-5706<br>>>>>> www.fldeafblind.org<br>>>>>> <br>>>>>> RELAYING SELF-SUFFICIENCY<br>>>>>> <br>>>>>> 'Character cannot be developed in ease and quiet. Only through<br>>>>>> experience of trial and suffering can the soul be
strengthened,<br>>>>>> vision cleared, ambition inspired, and success achieved'<br>>>>>> ~<br>>>>>> Helen Keller<br>>>>>> <br>>>>>> <br>>>>>> <br>>>>>> <br>>>>>> <br>>>>>> <br>>>>>> <2014FSSP Flyer ORL.pdf><br>>>>>> _______________________________________________<br>>>>>> nfb-db mailing list<br>>>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org"
target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>>> _______________________________________________<br>>>>> nfb-db mailing list<br>>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>> --<br>>>> *~Shadow Wolf~*<br>>>> <br>>>> <br>>>> _______________________________________________<br>>>> nfb-db mailing list<br>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>> <br>>>> <br>>>>
_______________________________________________<br>>>> nfb-db mailing list<br>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> <br>> -- <br>> *~Shadow Wolf~*<br>> <br>> <br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a
href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br><br>------------------------------<br><br>Message: 13<br>Date: Sun, 23 Mar 2014 15:30:36 -0400<br>From: Darlene <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>To: NFB Deaf-Blind Division Mailing List <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service Program Training<br> Workshop - Orlando<br>Message-ID: <<a ymailto="mailto:D9A83A6B-E437-445C-889C-875B400582EC@att.net" href="mailto:D9A83A6B-E437-445C-889C-875B400582EC@att.net">D9A83A6B-E437-445C-889C-875B400582EC@att.net</a>><br>Content-Type: text/plain; charset=us-ascii<br><br>That is good news!<br>Thank you for sharing<br><br>Sent from my
iPhone<br><br>> On Mar 23, 2014, at 2:29 PM, Shadow Wolf <<a ymailto="mailto:soulalibi@gmail.com" href="mailto:soulalibi@gmail.com">soulalibi@gmail.com</a>> wrote:<br>> <br>> Hi Darlene,<br>> Right on.<br>> Yes I agree with you on the notion that not every state has an SSP program. My assumption is because some states, such as Seattle, WA, California (in most large cities) and Florida has a significant DB population. If a state like Iowa, that does not have a valid active DB population, it is very difficult to establish an SSP program in that state. Here in Arizona, we have SSP services for both the greater Phoenix metro area and Tucson. Both cities has a significant DB population, while in Flagstaff does not. The funds to keep our SSP service going in Phoenix comes from private donors, such as the Catholic church (for one). And we are only limited to a small # of hours per month.<br>> <br>> Darlene, for the most part. The DB
community nationwide is advocating to Congress to pass legislation to help fund SSP programs nationwide. We are all in this cause together. I think sooner rather than later, this will happen in the near future.<br>> <br>> --S.W.<br>>> On 3/23/2014 8:55 AM, Darlene Laibl-Crowe wrote:<br>>> Thank you, SW! Yes, Maricar would be a great person to talk to at HKNC<br>>> about the SSP programs. When I was at HKNC in 2011, I had the opportunity<br>>> to go to a American Association for the Deaf Blind (AADB) symposium in<br>>> Kentucky. HKNC furnished a SSP to travel with me. There were others in the<br>>> group who also had their own SSP.<br>>> <br>>> I loved the freedom of having my own SSP while at the symposium and learned<br>>> much about what it meant to be a SSP...one thing that is important is that<br>>> the SSP does not make decisions for the Deaf-Blind person, it
is up to the<br>>> DB person to tell the SSP what they want to do after the SSP feeds them the<br>>> visual information that they need to know.<br>>> <br>>> Some states have very small programs and others are in specific areas of the<br>>> state and not statewide. Here in Florida we are aiming for statewide<br>>> services. I don't' remember if Pennsylvania has a SSP program. I admit I<br>>> do know know about Pennsylvania's SSP services but Maricar and HKNC would be<br>>> a great resource to find out if they do. HKNC is very involved in each<br>>> state that has SSP programs. They make it their priority to stay on top of<br>>> what is provided in the states.<br>>> <br>>> Like I said there are only 30 states that have SSP services and some are<br>>> only in a small metropolitan area and not statewide. For example, in the<br>>> State of
Washington they have an excellent SSP program within the Seattle<br>>> area but it is not offered statewide.<br>>> <br>>> Darlene<br>>> .<br>>> <br>>> -----Original Message-----<br>>> From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Shadow Wolf<br>>> Sent: Sunday, March 23, 2014 11:18 AM<br>>> To: NFB Deaf-Blind Division Mailing List<br>>> Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -<br>>> Orlando<br>>> <br>>> Marsha,<br>>> Every state and city has their own SSP coordinator. The person responsible<br>>> for establishing and setting up SSP services in your area differs from state<br>>> to state. If you live in PA. I'm pretty sure they have their own SSP<br>>> coordinator in your area. I believe you live in Philedalphia. Scott
Stoffel,<br>>> is an SSP coordinator in another area. I'm not sure if he also the<br>>> coordinator of your city. But you can ask him, if you still have his email<br>>> address.<br>>> <br>>> HKNC just barely started it's own SSP program. They created an SSP class,<br>>> now taught by Maricar. I took her class myself. Marsha you might want to<br>>> take her class and learn more about the SSP program.<br>>> <br>>> --Shadow W.<br>>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:<br>>>> Darlene,<br>>>> Thanks for posting this. I see in your email signature that your FL SSP<br>>> coordinator. Which leads me to my question. Are you connected to other SSP<br>>> coordinators around the country, like in other states? There might be a need<br>>> to connect all of the coordinators, to have some unity in trainings,<br>>> materials, programs and so
on.<br>>>> Very curiously,<br>>>> <br>>>> Marsha drenth<br>>>> Sent with my IPhone<br>>>> <br>>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>>> wrote:<br>>>>> Florida Residents:<br>>>>> <br>>>>> This announcement is for sighted individuals who are interested in<br>>>>> becoming Support Service Provider (SSP), who will sight-guide, assist<br>>>>> in communication needs (sign or voice), relay visual information and<br>>>>> provide information for Deaf-Blind Floridians.<br>>>>> <br>>>>> Attached is a copy of our next FSSP Training Workshop.<br>>>>> <br>>>>> Please go to our website for further information.<br>>>>> <br>>>>> SPREAD THE
WORD!<br>>>>> <br>>>>> Darlene Laibl-Crowe<br>>>>> <br>>>>> FSSP Coordinator<br>>>>> Florida Deaf-Blind Association<br>>>>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>>>>> (386) 546-5706<br>>>>> www.fldeafblind.org<br>>>>> <br>>>>> RELAYING SELF-SUFFICIENCY<br>>>>> <br>>>>> 'Character cannot be developed in ease and quiet. Only through<br>>>>> experience of trial and suffering can the soul be strengthened,<br>>>>> vision cleared, ambition inspired, and success achieved'<br>>>>>
~<br>>>>> Helen Keller<br>>>>> <br>>>>> <br>>>>> <br>>>>> <br>>>>> <br>>>>> <br>>>>> <2014FSSP Flyer ORL.pdf><br>>>>> _______________________________________________<br>>>>> nfb-db mailing list<br>>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>> _______________________________________________<br>>>> nfb-db mailing list<br>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>
--<br>>> *~Shadow Wolf~*<br>>> <br>>> <br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>> <br>>> <br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> <br>> -- <br>> *~Shadow Wolf~*<br>> <br>> <br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org"
href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br><br>------------------------------<br><br>Message: 14<br>Date: Sun, 23 Mar 2014 15:39:38 -0400<br>From: "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>To: "'NFB Deaf-Blind Division Mailing List'" <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service Program Training<br> Workshop - Orlando<br>Message-ID: <000001cf46cf$a1e46c30$e5ad4490$@net><br>Content-Type: text/plain; charset="us-ascii"<br><br>I understand but you have to realize that what happened to AADB happened a<br>couple of years ago so it
is going to take some time. I wish things would<br>turnover quickly but it takes a team effort to get things done;<br>unfortunately, in every organization there are some who simply do not<br>contribute their full potential and the goals get lost in the meantime. <br><br>Support and encouragement of one another is going to make a huge difference.<br>One thing that I've noticed in my journey as a Deaf-Blind individual<br>(recorgnized in 2010) is that there are many talented individuals out there<br>and it takes a team effort to be success along with determination! It can<br>be done.<br><br>Patence and perseverance. <br><br>Just continue to be supportive and do your part, it will come.<br><br>I am proud of you and others who take the time to be proactive!! <br>(smile)<br>Darlene<br><br>-----Original Message-----<br>From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org"
href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Marsha Drenth<br>Sent: Sunday, March 23, 2014 1:55 PM<br>To: NFB Deaf-Blind Division Mailing List<br>Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -<br>Orlando<br><br>Darlene,<br>I wish that AADB was financially and physically up to holding another<br>conference. I have recently gotten involved in the AADB rebuilding. Its slow<br>and not going very fast. This is not meant to be offensive to anyone who is<br>a die hard AADB supporter, but they are not doing anything. Its sad. But<br>this also means that perhaps this means that organizations like the NFB<br>should step in for persons who are deafblind. <br><br>Yes Southeastern PA has a brand new SSP program. I am heavily involved in<br>this. I know the coordinator personally as he lives just a few minutes from<br>my home in PA. I am also on a committee to help the state rehab agencies<br>form a
state wide SSP program. Right now the SE PA SSP program only covers 8<br>counties, the state wide program will serves the whole state. PA has a<br>medium size deafblind program, we are finding them every day. <br><br>I was also going to ask what is the FL DB left behind registery? <br><br><br>Marsha drenth<br>Sent with my IPhone <br><br>> On Mar 23, 2014, at 11:55 AM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>wrote:<br>> <br>> Thank you, SW! Yes, Maricar would be a great person to talk to at <br>> HKNC about the SSP programs. When I was at HKNC in 2011, I had the <br>> opportunity to go to a American Association for the Deaf Blind (AADB) <br>> symposium in Kentucky. HKNC furnished a SSP to travel with me. There <br>> were others in the group who also had their own SSP.<br>> <br>> I loved the freedom of having my own
SSP while at the symposium and <br>> learned much about what it meant to be a SSP...one thing that is <br>> important is that the SSP does not make decisions for the Deaf-Blind <br>> person, it is up to the DB person to tell the SSP what they want to do <br>> after the SSP feeds them the visual information that they need to know.<br>> <br>> Some states have very small programs and others are in specific areas <br>> of the state and not statewide. Here in Florida we are aiming for<br>statewide<br>> services. I don't' remember if Pennsylvania has a SSP program. I admit<br>I<br>> do know know about Pennsylvania's SSP services but Maricar and HKNC <br>> would be a great resource to find out if they do. HKNC is very <br>> involved in each state that has SSP programs. They make it their <br>> priority to stay on top of what is provided in the states.<br>> <br>> Like I said there are only
30 states that have SSP services and some <br>> are only in a small metropolitan area and not statewide. For example, <br>> in the State of Washington they have an excellent SSP program within <br>> the Seattle area but it is not offered statewide.<br>> <br>> Darlene<br>> .<br>> <br>> -----Original Message-----<br>> From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Shadow <br>> Wolf<br>> Sent: Sunday, March 23, 2014 11:18 AM<br>> To: NFB Deaf-Blind Division Mailing List<br>> Subject: Re: [nfb-db] Florida Support Service Program Training <br>> Workshop - Orlando<br>> <br>> Marsha,<br>> Every state and city has their own SSP coordinator. The person <br>> responsible for establishing and setting up SSP services in your area <br>> differs from state to state. If you live in PA. I'm pretty sure
they <br>> have their own SSP coordinator in your area. I believe you live in <br>> Philedalphia. Scott Stoffel, is an SSP coordinator in another area. <br>> I'm not sure if he also the coordinator of your city. But you can ask <br>> him, if you still have his email address.<br>> <br>> HKNC just barely started it's own SSP program. They created an SSP <br>> class, now taught by Maricar. I took her class myself. Marsha you <br>> might want to take her class and learn more about the SSP program.<br>> <br>> --Shadow W.<br>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:<br>>> Darlene,<br>>> Thanks for posting this. I see in your email signature that your FL <br>>> SSP<br>> coordinator. Which leads me to my question. Are you connected to other <br>> SSP coordinators around the country, like in other states? There might <br>> be a need to connect all of the coordinators, to have some unity in
<br>> trainings, materials, programs and so on.<br>>> Very curiously,<br>>> <br>>> Marsha drenth<br>>> Sent with my IPhone<br>>> <br>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <br>>>> <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>> wrote:<br>>>> <br>>>> Florida Residents:<br>>>> <br>>>> This announcement is for sighted individuals who are interested in <br>>>> becoming Support Service Provider (SSP), who will sight-guide, <br>>>> assist in communication needs (sign or voice), relay visual <br>>>> information and provide information for Deaf-Blind Floridians.<br>>>> <br>>>> Attached is a copy of our next FSSP Training Workshop.<br>>>> <br>>>> Please go to our website for further information.<br>>>> <br>>>> SPREAD
THE WORD!<br>>>> <br>>>> Darlene Laibl-Crowe<br>>>> <br>>>> FSSP Coordinator<br>>>> Florida Deaf-Blind Association<br>>>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>>>> (386) 546-5706<br>>>> www.fldeafblind.org<br>>>> <br>>>> RELAYING SELF-SUFFICIENCY<br>>>> <br>>>> 'Character cannot be developed in ease and quiet. Only through <br>>>> experience of trial and suffering can the soul be strengthened, <br>>>> vision cleared, ambition inspired, and success achieved'<br>>>> ~ <br>>>> Helen Keller<br>>>>
<br>>>> <br>>>> <br>>>> <br>>>> <br>>>> <br>>>> <2014FSSP Flyer ORL.pdf><br>>>> _______________________________________________<br>>>> nfb-db mailing list<br>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> <br>> --<br>> *~Shadow Wolf~*<br>> <br>> <br>> _______________________________________________<br>>
nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> <br>> <br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br>_______________________________________________<br>nfb-db mailing list<br><a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br><a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org"
target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br><br><br>------------------------------<br><br>Message: 15<br>Date: Sun, 23 Mar 2014 15:40:34 -0400<br>From: "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>To: "'NFB Deaf-Blind Division Mailing List'" <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service Program Training<br> Workshop - Orlando<br>Message-ID: <000101cf46cf$c393ed60$4abbc820$@net><br>Content-Type: text/plain; charset="us-ascii"<br><br>I am sorry, I misread the sender of the previous email...it was meant for SW<br>not Marsha.<br><br>(smile)<br>Darlene<br><br>-----Original Message-----<br>From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org"
href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Darlene<br>Sent: Sunday, March 23, 2014 3:27 PM<br>To: NFB Deaf-Blind Division Mailing List<br>Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -<br>Orlando<br><br>Hi Marsha<br>I don't know if Randy has<br>Achieved his goals<br>There was much to be done I know he is a good person for that position at<br>AADb I am sure if you contact him he would be happy to share with you I am<br>not that involved with AADb at this time<br><br>Sent from my iPhone<br><br>> On Mar 23, 2014, at 2:36 PM, Shadow Wolf <<a ymailto="mailto:soulalibi@gmail.com" href="mailto:soulalibi@gmail.com">soulalibi@gmail.com</a>> wrote:<br>> <br>> Darlene,<br>> In regards to the AADB. As you know, I am not officially a member of that<br>organization yet. But I've heard while I was still a student at HKNC last<br>year. That the AADB has selected a new president (Randy
"Hippie" Pope?) and<br>a new board of directors. Effective since last summer. I believe Randy once<br>stated that they will take AADB in a new direction. And possibly unite the<br>NFB with the AADB. Because in past years with the former president and<br>former board members. They were wholly inactive and "do-nothings" that left<br>AADB in dire straits. I'm guessing its taking Randy some time to take care<br>of business and figuring out what they plan to do this year. Anything new<br>with them?<br>> <br>> --S.W.<br>>> On 3/23/2014 10:55 AM, Marsha Drenth wrote:<br>>> Darlene,<br>>> I wish that AADB was financially and physically up to holding another<br>conference. I have recently gotten involved in the AADB rebuilding. Its slow<br>and not going very fast. This is not meant to be offensive to anyone who is<br>a die hard AADB supporter, but they are not doing anything. Its sad. But<br>this also means that perhaps this means that
organizations like the NFB<br>should step in for persons who are deafblind.<br>>> <br>>> Yes Southeastern PA has a brand new SSP program. I am heavily involved in<br>this. I know the coordinator personally as he lives just a few minutes from<br>my home in PA. I am also on a committee to help the state rehab agencies<br>form a state wide SSP program. Right now the SE PA SSP program only covers 8<br>counties, the state wide program will serves the whole state. PA has a<br>medium size deafblind program, we are finding them every day.<br>>> <br>>> I was also going to ask what is the FL DB left behind registery?<br>>> <br>>> <br>>> Marsha drenth<br>>> Sent with my IPhone<br>>> <br>>>> On Mar 23, 2014, at 11:55 AM, "Darlene Laibl-Crowe"<br><<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>> wrote:<br>>>> <br>>>> Thank you,
SW! Yes, Maricar would be a great person to talk to at <br>>>> HKNC about the SSP programs. When I was at HKNC in 2011, I had the <br>>>> opportunity to go to a American Association for the Deaf Blind <br>>>> (AADB) symposium in Kentucky. HKNC furnished a SSP to travel with <br>>>> me. There were others in the group who also had their own SSP.<br>>>> <br>>>> I loved the freedom of having my own SSP while at the symposium and <br>>>> learned much about what it meant to be a SSP...one thing that is <br>>>> important is that the SSP does not make decisions for the Deaf-Blind <br>>>> person, it is up to the DB person to tell the SSP what they want to <br>>>> do after the SSP feeds them the visual information that they need to<br>know.<br>>>> <br>>>> Some states have very small programs and others are in specific
<br>>>> areas of the state and not statewide. Here in Florida we are aiming for<br>statewide<br>>>> services. I don't' remember if Pennsylvania has a SSP program. I<br>admit I<br>>>> do know know about Pennsylvania's SSP services but Maricar and HKNC <br>>>> would be a great resource to find out if they do. HKNC is very <br>>>> involved in each state that has SSP programs. They make it their <br>>>> priority to stay on top of what is provided in the states.<br>>>> <br>>>> Like I said there are only 30 states that have SSP services and some <br>>>> are only in a small metropolitan area and not statewide. For <br>>>> example, in the State of Washington they have an excellent SSP <br>>>> program within the Seattle area but it is not offered statewide.<br>>>> <br>>>> Darlene<br>>>>
.<br>>>> <br>>>> -----Original Message-----<br>>>> From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Shadow <br>>>> Wolf<br>>>> Sent: Sunday, March 23, 2014 11:18 AM<br>>>> To: NFB Deaf-Blind Division Mailing List<br>>>> Subject: Re: [nfb-db] Florida Support Service Program Training <br>>>> Workshop - Orlando<br>>>> <br>>>> Marsha,<br>>>> Every state and city has their own SSP coordinator. The person <br>>>> responsible for establishing and setting up SSP services in your <br>>>> area differs from state to state. If you live in PA. I'm pretty sure <br>>>> they have their own SSP coordinator in your area. I believe you live <br>>>> in Philedalphia. Scott Stoffel, is an SSP coordinator in another <br>>>> area. I'm
not sure if he also the coordinator of your city. But you <br>>>> can ask him, if you still have his email address.<br>>>> <br>>>> HKNC just barely started it's own SSP program. They created an SSP <br>>>> class, now taught by Maricar. I took her class myself. Marsha you <br>>>> might want to take her class and learn more about the SSP program.<br>>>> <br>>>> --Shadow W.<br>>>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:<br>>>>> Darlene,<br>>>>> Thanks for posting this. I see in your email signature that your FL <br>>>>> SSP<br>>>> coordinator. Which leads me to my question. Are you connected to <br>>>> other SSP coordinators around the country, like in other states? <br>>>> There might be a need to connect all of the coordinators, to have <br>>>> some unity in trainings, materials, programs and so
on.<br>>>>> Very curiously,<br>>>>> <br>>>>> Marsha drenth<br>>>>> Sent with my IPhone<br>>>>> <br>>>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <br>>>>>> <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>>>> wrote:<br>>>>>> Florida Residents:<br>>>>>> <br>>>>>> This announcement is for sighted individuals who are interested in <br>>>>>> becoming Support Service Provider (SSP), who will sight-guide, <br>>>>>> assist in communication needs (sign or voice), relay visual <br>>>>>> information and provide information for Deaf-Blind Floridians.<br>>>>>> <br>>>>>> Attached is a copy of our next FSSP Training Workshop.<br>>>>>> <br>>>>>> Please go
to our website for further information.<br>>>>>> <br>>>>>> SPREAD THE WORD!<br>>>>>> <br>>>>>> Darlene Laibl-Crowe<br>>>>>> <br>>>>>> FSSP Coordinator<br>>>>>> Florida Deaf-Blind Association<br>>>>>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>>>>>> (386) 546-5706<br>>>>>> www.fldeafblind.org<br>>>>>> <br>>>>>> RELAYING SELF-SUFFICIENCY<br>>>>>> <br>>>>>> 'Character cannot be developed in ease and quiet. Only through <br>>>>>> experience of trial and suffering can the soul be strengthened, <br>>>>>> vision cleared, ambition inspired, and success achieved'<br>>>>>>
~ <br>>>>>> Helen Keller<br>>>>>> <br>>>>>> <br>>>>>> <br>>>>>> <br>>>>>> <br>>>>>> <br>>>>>> <2014FSSP Flyer ORL.pdf><br>>>>>> _______________________________________________<br>>>>>> nfb-db mailing list<br>>>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>>> _______________________________________________<br>>>>> nfb-db mailing list<br>>>>> <a
ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>> --<br>>>> *~Shadow Wolf~*<br>>>> <br>>>> <br>>>> _______________________________________________<br>>>> nfb-db mailing list<br>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>> <br>>>> <br>>>> _______________________________________________<br>>>> nfb-db mailing list<br>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>> <a
href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> <br>> --<br>> *~Shadow Wolf~*<br>> <br>> <br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br>_______________________________________________<br>nfb-db mailing list<br><a
ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br><a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br><br><br>------------------------------<br><br>Message: 16<br>Date: Sun, 23 Mar 2014 12:52:50 -0700<br>From: Shadow Wolf <<a ymailto="mailto:soulalibi@gmail.com" href="mailto:soulalibi@gmail.com">soulalibi@gmail.com</a>><br>To: NFB Deaf-Blind Division Mailing List <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service Program Training<br> Workshop - Orlando<br>Message-ID: <<a ymailto="mailto:532F3B92.6000303@gmail.com" href="mailto:532F3B92.6000303@gmail.com">532F3B92.6000303@gmail.com</a>><br>Content-Type: text/plain; charset=ISO-8859-1; format=flowed<br><br>LOL. Darlene,<br>Yes that was me. Not
Marsha! No problem. Thanks for the heads up. I <br>haven't met Randy, but I heard some positive things about him. Give him <br>time.<br><br>--S.W.<br>On 3/23/2014 12:40 PM, Darlene Laibl-Crowe wrote:<br>> I am sorry, I misread the sender of the previous email...it was meant for SW<br>> not Marsha.<br>><br>> (smile)<br>> Darlene<br>><br>> -----Original Message-----<br>> From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Darlene<br>> Sent: Sunday, March 23, 2014 3:27 PM<br>> To: NFB Deaf-Blind Division Mailing List<br>> Subject: Re: [nfb-db] Florida Support Service Program Training Workshop -<br>> Orlando<br>><br>> Hi Marsha<br>> I don't know if Randy has<br>> Achieved his goals<br>> There was much to be done I know he is a good person for that position at<br>> AADb I am sure if you contact him he would
be happy to share with you I am<br>> not that involved with AADb at this time<br>><br>> Sent from my iPhone<br>><br>>> On Mar 23, 2014, at 2:36 PM, Shadow Wolf <<a ymailto="mailto:soulalibi@gmail.com" href="mailto:soulalibi@gmail.com">soulalibi@gmail.com</a>> wrote:<br>>><br>>> Darlene,<br>>> In regards to the AADB. As you know, I am not officially a member of that<br>> organization yet. But I've heard while I was still a student at HKNC last<br>> year. That the AADB has selected a new president (Randy "Hippie" Pope?) and<br>> a new board of directors. Effective since last summer. I believe Randy once<br>> stated that they will take AADB in a new direction. And possibly unite the<br>> NFB with the AADB. Because in past years with the former president and<br>> former board members. They were wholly inactive and "do-nothings" that left<br>> AADB in dire straits. I'm guessing its taking Randy
some time to take care<br>> of business and figuring out what they plan to do this year. Anything new<br>> with them?<br>>> --S.W.<br>>>> On 3/23/2014 10:55 AM, Marsha Drenth wrote:<br>>>> Darlene,<br>>>> I wish that AADB was financially and physically up to holding another<br>> conference. I have recently gotten involved in the AADB rebuilding. Its slow<br>> and not going very fast. This is not meant to be offensive to anyone who is<br>> a die hard AADB supporter, but they are not doing anything. Its sad. But<br>> this also means that perhaps this means that organizations like the NFB<br>> should step in for persons who are deafblind.<br>>>> Yes Southeastern PA has a brand new SSP program. I am heavily involved in<br>> this. I know the coordinator personally as he lives just a few minutes from<br>> my home in PA. I am also on a committee to help the state rehab agencies<br>> form a
state wide SSP program. Right now the SE PA SSP program only covers 8<br>> counties, the state wide program will serves the whole state. PA has a<br>> medium size deafblind program, we are finding them every day.<br>>>> I was also going to ask what is the FL DB left behind registery?<br>>>><br>>>><br>>>> Marsha drenth<br>>>> Sent with my IPhone<br>>>><br>>>>> On Mar 23, 2014, at 11:55 AM, "Darlene Laibl-Crowe"<br>> <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>> wrote:<br>>>>> Thank you, SW! Yes, Maricar would be a great person to talk to at<br>>>>> HKNC about the SSP programs. When I was at HKNC in 2011, I had the<br>>>>> opportunity to go to a American Association for the Deaf Blind<br>>>>> (AADB) symposium in Kentucky. HKNC furnished a SSP to travel
with<br>>>>> me. There were others in the group who also had their own SSP.<br>>>>><br>>>>> I loved the freedom of having my own SSP while at the symposium and<br>>>>> learned much about what it meant to be a SSP...one thing that is<br>>>>> important is that the SSP does not make decisions for the Deaf-Blind<br>>>>> person, it is up to the DB person to tell the SSP what they want to<br>>>>> do after the SSP feeds them the visual information that they need to<br>> know.<br>>>>> Some states have very small programs and others are in specific<br>>>>> areas of the state and not statewide. Here in Florida we are aiming for<br>> statewide<br>>>>> services. I don't' remember if Pennsylvania has a SSP program. I<br>> admit I<br>>>>> do know know about Pennsylvania's SSP services but Maricar and
HKNC<br>>>>> would be a great resource to find out if they do. HKNC is very<br>>>>> involved in each state that has SSP programs. They make it their<br>>>>> priority to stay on top of what is provided in the states.<br>>>>><br>>>>> Like I said there are only 30 states that have SSP services and some<br>>>>> are only in a small metropolitan area and not statewide. For<br>>>>> example, in the State of Washington they have an excellent SSP<br>>>>> program within the Seattle area but it is not offered statewide.<br>>>>><br>>>>> Darlene<br>>>>> .<br>>>>><br>>>>> -----Original Message-----<br>>>>> From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Shadow<br>>>>>
Wolf<br>>>>> Sent: Sunday, March 23, 2014 11:18 AM<br>>>>> To: NFB Deaf-Blind Division Mailing List<br>>>>> Subject: Re: [nfb-db] Florida Support Service Program Training<br>>>>> Workshop - Orlando<br>>>>><br>>>>> Marsha,<br>>>>> Every state and city has their own SSP coordinator. The person<br>>>>> responsible for establishing and setting up SSP services in your<br>>>>> area differs from state to state. If you live in PA. I'm pretty sure<br>>>>> they have their own SSP coordinator in your area. I believe you live<br>>>>> in Philedalphia. Scott Stoffel, is an SSP coordinator in another<br>>>>> area. I'm not sure if he also the coordinator of your city. But you<br>>>>> can ask him, if you still have his email address.<br>>>>><br>>>>> HKNC just barely started it's own SSP
program. They created an SSP<br>>>>> class, now taught by Maricar. I took her class myself. Marsha you<br>>>>> might want to take her class and learn more about the SSP program.<br>>>>><br>>>>> --Shadow W.<br>>>>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:<br>>>>>> Darlene,<br>>>>>> Thanks for posting this. I see in your email signature that your FL<br>>>>>> SSP<br>>>>> coordinator. Which leads me to my question. Are you connected to<br>>>>> other SSP coordinators around the country, like in other states?<br>>>>> There might be a need to connect all of the coordinators, to have<br>>>>> some unity in trainings, materials, programs and so on.<br>>>>>> Very curiously,<br>>>>>><br>>>>>> Marsha drenth<br>>>>>> Sent with my
IPhone<br>>>>>><br>>>>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe"<br>>>>>>> <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>>>>> wrote:<br>>>>>>> Florida Residents:<br>>>>>>><br>>>>>>> This announcement is for sighted individuals who are interested in<br>>>>>>> becoming Support Service Provider (SSP), who will sight-guide,<br>>>>>>> assist in communication needs (sign or voice), relay visual<br>>>>>>> information and provide information for Deaf-Blind Floridians.<br>>>>>>><br>>>>>>> Attached is a copy of our next FSSP Training Workshop.<br>>>>>>><br>>>>>>> Please go to our website for further
information.<br>>>>>>><br>>>>>>> SPREAD THE WORD!<br>>>>>>><br>>>>>>> Darlene Laibl-Crowe<br>>>>>>><br>>>>>>> FSSP Coordinator<br>>>>>>> Florida Deaf-Blind Association<br>>>>>>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>>>>>>> (386) 546-5706<br>>>>>>> www.fldeafblind.org<br>>>>>>><br>>>>>>> RELAYING SELF-SUFFICIENCY<br>>>>>>><br>>>>>>> 'Character cannot be developed in ease and quiet. Only through<br>>>>>>> experience of trial and suffering can the soul be strengthened,<br>>>>>>> vision cleared, ambition inspired, and success achieved'<br>>>>>>>
~<br>>>>>>> Helen Keller<br>>>>>>><br>>>>>>><br>>>>>>><br>>>>>>><br>>>>>>><br>>>>>>><br>>>>>>> <2014FSSP Flyer ORL.pdf><br>>>>>>> _______________________________________________<br>>>>>>> nfb-db mailing list<br>>>>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>>>>
_______________________________________________<br>>>>>> nfb-db mailing list<br>>>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>>> --<br>>>>> *~Shadow Wolf~*<br>>>>><br>>>>><br>>>>> _______________________________________________<br>>>>> nfb-db mailing list<br>>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>>><br>>>>><br>>>>>
_______________________________________________<br>>>>> nfb-db mailing list<br>>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>> _______________________________________________<br>>>> nfb-db mailing list<br>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>> --<br>>> *~Shadow Wolf~*<br>>><br>>><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org"
href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>><br>><br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br>-- <br>*~Shadow
Wolf~*<br><br><br><br><br>------------------------------<br><br>Message: 17<br>Date: Sun, 23 Mar 2014 15:54:41 -0400<br>From: "Delcenia Brown" <<a ymailto="mailto:delcenia@prodigy.net" href="mailto:delcenia@prodigy.net">delcenia@prodigy.net</a>><br>To: "NFB Deaf-Blind Division Mailing List" <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Usher 3<br>Message-ID: <<a ymailto="mailto:8C14B630735946F59273E734F318A292@DelceniaPC" href="mailto:8C14B630735946F59273E734F318A292@DelceniaPC">8C14B630735946F59273E734F318A292@DelceniaPC</a>><br>Content-Type: text/plain; format=flowed; charset="iso-8859-1";<br> reply-type=original<br><br>Hey Darlene,<br><br>It is amazing the things we do with our children. Yes, I did the same things <br>with my younger son when he was younger. He is now 18 years old and <br>determine that he will play pro baseball. The beauty is
he will always <br>remember mom playing catch with him. Yes my husband did things with him but <br>we both would always apreciate the things we did.<br>smile<br>Delcenia<br>-----Original Message----- <br>From: Darlene Laibl-Crowe<br>Sent: Friday, March 21, 2014 11:33 AM<br>To: 'NFB Deaf-Blind Division Mailing List'<br>Subject: Re: [nfb-db] Usher 3<br><br>April, I would go to a specialist who is connected to a teaching<br>university...soemthing like the Eye Institute. They would be more<br>knowledgeable about Usher. I had heard about Usher in the late 90s and my<br>brother and I participated in the Boys Town Usher Research by donating<br>samples of our blood. My sister also contributed but she doesn't have<br>Usher; but we were hoping this would help the researchers do some ruling out<br>of certain genes. But I was never diagnosed by a professional to have<br>Usher. So when I returned home from HKNC, I went to an eye
specialist<br>through the Eye Instite and the University of Florida. They diagnosed em<br>with Usher Type 2. However, they could only 'assume'. Since I already had<br>my blood sample in research, they did not see a need to do a genetic<br>counseling. They were going to contact Dr. Kimberling and his team and find<br>out more about our blood samples. But we haven't heard a word and that has<br>been since November 2011.<br><br>>From what I understand they can only diagnosed by using our symptoms. Who<br>knows? But I could be wrong because I am going by information that I<br>received in late 2011. I do go to a retina specialist once a year for eye<br>care and a low vision specialist to be sure that I am on top of the latest<br>technology all paid for by the blind services here because I am a client<br>with vocation goals.<br><br>I only have vision and hearing issues. I am very healthy...as per my
recent<br>physical examination. (smile) I do get dizzy but they cannot pinpoint what<br>it is except that I have arthritis in my neck and my spinal cord is<br>narrowing and they also suspect that because it is hard for me to focus on<br>something, too.<br><br>I haven't been able to follow movement in a very long time even when I had<br>central vision. I can remember when my youngest son was playing baseball he<br>needed to practice tossing a ball and catching...since I was the only<br>parent, I had to be the one to do that. (smile) I set up a box beside my<br>feet so when I threw him the ball...didn't have a problem throwing it at<br>him, I could see him...but he couldn't throw it to me, he had to roll it in<br>the box by my foot so I could get it and throw it back to him. Well,<br>sometimes he would forget and throw it and I would throw up my arms to<br>protect my head and yell out! LOL Then he would
cracked up laughing so<br>hard and then I had no choice but to laugh with him. I think he did it<br>deliberately just so I would react! LOL<br><br>I miss my boys! They are both grown and doing well...live out of town...one<br>out of state in West Virginia! Too far! I was surprised when he did that.<br><br><br>Anyway...life goes on.<br><br>(smile)<br>Darlene<br><br>-----Original Message-----<br>From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of April Brown<br>Sent: Friday, March 21, 2014 11:16 AM<br>To: <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>Subject: Re: [nfb-db] Usher 3<br><br>Hi Darlene,<br><br> Thanks for those sites. There is so much to know!<br><br> I'm learning braille. Have been working on it since
November. I<br>tried ASL in college a few decades ago. Not luck there. I'd get sea sick<br>from the motion.<br><br>Hi Shadow Wolf and Darlene,<br><br> I do have multiple system issues. Left eye has always been blind, left<br>ear with little hearing, no left kidney, heart rhythm issues, balance and<br>bumping into things, spinal problems, and a few more.<br><br><br>Now, thanks to your comments and the Usher 2 posts, I wonder if I should see<br>a geneticist instead of trying to get an eye specialist to diagnosis me?<br>Maybe in a year or two.<br><br>Have a great day!<br><br>April Brown<br><br>Writing dramatic adventure novels uncovering the myths we hide behind.<br>><br><br><br><br>_______________________________________________<br>nfb-db mailing list<br><a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br><a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org"
target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br>_______________________________________________<br>nfb-db mailing list<br><a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br><a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org </a><br><br><br><br><br>------------------------------<br><br>Message: 18<br>Date: Sun, 23 Mar 2014 15:59:54 -0400<br>From: Darlene <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>><br>To: NFB Deaf-Blind Division Mailing List <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Usher 3<br>Message-ID: <<a ymailto="mailto:C480AC66-3AF1-4810-98E8-D23F48F39ED7@att.net"
href="mailto:C480AC66-3AF1-4810-98E8-D23F48F39ED7@att.net">C480AC66-3AF1-4810-98E8-D23F48F39ED7@att.net</a>><br>Content-Type: text/plain; charset=us-ascii<br><br>Yeah they make good memories!<br>My sons are now 33 and 23<br><br>Sent from my iPhone<br><br>> On Mar 23, 2014, at 3:54 PM, "Delcenia Brown" <<a ymailto="mailto:delcenia@prodigy.net" href="mailto:delcenia@prodigy.net">delcenia@prodigy.net</a>> wrote:<br>> <br>> Hey Darlene,<br>> <br>> It is amazing the things we do with our children. Yes, I did the same things with my younger son when he was younger. He is now 18 years old and determine that he will play pro baseball. The beauty is he will always remember mom playing catch with him. Yes my husband did things with him but we both would always apreciate the things we did.<br>> smile<br>> Delcenia<br>> -----Original Message----- From: Darlene Laibl-Crowe<br>> Sent: Friday, March 21, 2014
11:33 AM<br>> To: 'NFB Deaf-Blind Division Mailing List'<br>> Subject: Re: [nfb-db] Usher 3<br>> <br>> April, I would go to a specialist who is connected to a teaching<br>> university...soemthing like the Eye Institute. They would be more<br>> knowledgeable about Usher. I had heard about Usher in the late 90s and my<br>> brother and I participated in the Boys Town Usher Research by donating<br>> samples of our blood. My sister also contributed but she doesn't have<br>> Usher; but we were hoping this would help the researchers do some ruling out<br>> of certain genes. But I was never diagnosed by a professional to have<br>> Usher. So when I returned home from HKNC, I went to an eye specialist<br>> through the Eye Instite and the University of Florida. They diagnosed em<br>> with Usher Type 2. However, they could only 'assume'. Since I already had<br>> my blood
sample in research, they did not see a need to do a genetic<br>> counseling. They were going to contact Dr. Kimberling and his team and find<br>> out more about our blood samples. But we haven't heard a word and that has<br>> been since November 2011.<br>> <br>> From what I understand they can only diagnosed by using our symptoms. Who<br>> knows? But I could be wrong because I am going by information that I<br>> received in late 2011. I do go to a retina specialist once a year for eye<br>> care and a low vision specialist to be sure that I am on top of the latest<br>> technology all paid for by the blind services here because I am a client<br>> with vocation goals.<br>> <br>> I only have vision and hearing issues. I am very healthy...as per my recent<br>> physical examination. (smile) I do get dizzy but they cannot pinpoint what<br>> it is except that I have arthritis in
my neck and my spinal cord is<br>> narrowing and they also suspect that because it is hard for me to focus on<br>> something, too.<br>> <br>> I haven't been able to follow movement in a very long time even when I had<br>> central vision. I can remember when my youngest son was playing baseball he<br>> needed to practice tossing a ball and catching...since I was the only<br>> parent, I had to be the one to do that. (smile) I set up a box beside my<br>> feet so when I threw him the ball...didn't have a problem throwing it at<br>> him, I could see him...but he couldn't throw it to me, he had to roll it in<br>> the box by my foot so I could get it and throw it back to him. Well,<br>> sometimes he would forget and throw it and I would throw up my arms to<br>> protect my head and yell out! LOL Then he would cracked up laughing so<br>> hard and then I had no choice but to laugh with
him. I think he did it<br>> deliberately just so I would react! LOL<br>> <br>> I miss my boys! They are both grown and doing well...live out of town...one<br>> out of state in West Virginia! Too far! I was surprised when he did that.<br>> <br>> <br>> Anyway...life goes on.<br>> <br>> (smile)<br>> Darlene<br>> <br>> -----Original Message-----<br>> From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of April Brown<br>> Sent: Friday, March 21, 2014 11:16 AM<br>> To: <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> Subject: Re: [nfb-db] Usher 3<br>> <br>> Hi Darlene,<br>> <br>> Thanks for those sites. There is so much to know!<br>> <br>> I'm learning braille. Have been
working on it since November. I<br>> tried ASL in college a few decades ago. Not luck there. I'd get sea sick<br>> from the motion.<br>> <br>> Hi Shadow Wolf and Darlene,<br>> <br>> I do have multiple system issues. Left eye has always been blind, left<br>> ear with little hearing, no left kidney, heart rhythm issues, balance and<br>> bumping into things, spinal problems, and a few more.<br>> <br>> <br>> Now, thanks to your comments and the Usher 2 posts, I wonder if I should see<br>> a geneticist instead of trying to get an eye specialist to diagnosis me?<br>> Maybe in a year or two.<br>> <br>> Have a great day!<br>> <br>> April Brown<br>> <br>> Writing dramatic adventure novels uncovering the myths we hide behind.<br>> <br>> <br>> <br>> _______________________________________________<br>> nfb-db mailing list<br>> <a
ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> <br>> <br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org </a><br>> <br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org"
target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br><br>------------------------------<br><br>Message: 19<br>Date: Sun, 23 Mar 2014 16:05:00 -0400<br>From: Marsha Drenth <<a ymailto="mailto:marsha.drenth@gmail.com" href="mailto:marsha.drenth@gmail.com">marsha.drenth@gmail.com</a>><br>To: NFB Deaf-Blind Division Mailing List <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Florida Support Service Program Training<br> Workshop - Orlando<br>Message-ID: <<a ymailto="mailto:17BDA782-281A-4B54-82FD-59063597B34B@gmail.com" href="mailto:17BDA782-281A-4B54-82FD-59063597B34B@gmail.com">17BDA782-281A-4B54-82FD-59063597B34B@gmail.com</a>><br>Content-Type: text/plain; charset=us-ascii<br><br>Sterling,<br>Yes I was being defensive, because you know I know Scott, you also know that I am involved
in the SSP program there. I was on scott's list when we were discussing it many times. The information you were hoping to provide was not useful, information I already had. Further more, I am not appreciative of your tone in your message. I don't believe I have been unprofessional. You did not read the question correctly. I have been involved in this list for a long time. <br><br><br>Marsha drenth <br>Sent with my IPhone <br><br>> On Mar 23, 2014, at 2:44 PM, Shadow Wolf <<a ymailto="mailto:soulalibi@gmail.com" href="mailto:soulalibi@gmail.com">soulalibi@gmail.com</a>> wrote:<br>> <br>> Marsha,<br>> I'm puzzled by your response. You sound quite defensive. I don't need to re-read your questions. I merely added in my input for info purposes only. But you were quick to admonish me for it. As Darlene stated in response to me. Maricar would be the best person at HKNC to discuss any SSP related questions. If you're planning on
becoming a social worker. You should at least be professional about it. Just my IMHO. And nothing personal.<br>> <br>> --S.W.<br>>> On 3/23/2014 10:45 AM, Marsha Drenth wrote:<br>>> SW,<br>>> I know this. I am well aware of what an SSP is, what an SSP does. I do have Scott's email, and work closely with him. I am on a committee within my state of PA to creat a SSP program. Taking Maricar class is not something I feel as though I need to do.<br>>> <br>>> I was specifically asking if like the interpretors have a registery, is there the same for SSP? a website or email list for SSP coordinators to gather, to share, to work together to form these programs? I don't personally want to contact these SSP coordinators, but how do people share information. See my response back to Darlene on further clarification of my question.<br>>> <br>>> <br>>> <br>>> Marsha drenth<br>>> Sent with my
IPhone<br>>> <br>>>> On Mar 23, 2014, at 11:18 AM, Shadow Wolf <<a ymailto="mailto:soulalibi@gmail.com" href="mailto:soulalibi@gmail.com">soulalibi@gmail.com</a>> wrote:<br>>>> <br>>>> Marsha,<br>>>> Every state and city has their own SSP coordinator. The person responsible for establishing and setting up SSP services in your area differs from state to state. If you live in PA. I'm pretty sure they have their own SSP coordinator in your area. I believe you live in Philedalphia. Scott Stoffel, is an SSP coordinator in another area. I'm not sure if he also the coordinator of your city. But you can ask him, if you still have his email address.<br>>>> <br>>>> HKNC just barely started it's own SSP program. They created an SSP class, now taught by Maricar. I took her class myself. Marsha you might want to take her class and learn more about the SSP program.<br>>>> <br>>>>
--Shadow W.<br>>>>> On 3/23/2014 6:59 AM, Marsha Drenth wrote:<br>>>>> Darlene,<br>>>>> Thanks for posting this. I see in your email signature that your FL SSP coordinator. Which leads me to my question. Are you connected to other SSP coordinators around the country, like in other states? There might be a need to connect all of the coordinators, to have some unity in trainings, materials, programs and so on.<br>>>>> Very curiously,<br>>>>> <br>>>>> Marsha drenth<br>>>>> Sent with my IPhone<br>>>>> <br>>>>>> On Mar 22, 2014, at 7:07 PM, "Darlene Laibl-Crowe" <<a ymailto="mailto:dlaiblcrowe@att.net" href="mailto:dlaiblcrowe@att.net">dlaiblcrowe@att.net</a>> wrote:<br>>>>>> <br>>>>>> Florida Residents:<br>>>>>> <br>>>>>> This announcement is for sighted individuals who are
interested in becoming<br>>>>>> Support Service Provider (SSP), who will sight-guide, assist in<br>>>>>> communication needs (sign or voice), relay visual information and provide<br>>>>>> information for Deaf-Blind Floridians.<br>>>>>> <br>>>>>> Attached is a copy of our next FSSP Training Workshop.<br>>>>>> <br>>>>>> Please go to our website for further information.<br>>>>>> <br>>>>>> SPREAD THE WORD!<br>>>>>> <br>>>>>> Darlene Laibl-Crowe<br>>>>>> <br>>>>>> FSSP Coordinator<br>>>>>> Florida Deaf-Blind Association<br>>>>>> <a ymailto="mailto:dlcrowe@fssp.fldeafblind.org" href="mailto:dlcrowe@fssp.fldeafblind.org">dlcrowe@fssp.fldeafblind.org</a><br>>>>>> (386) 546-5706<br>>>>>>
www.fldeafblind.org<br>>>>>> <br>>>>>> RELAYING SELF-SUFFICIENCY<br>>>>>> <br>>>>>> 'Character cannot be developed in ease and quiet. Only through experience of<br>>>>>> trial and suffering can the soul be strengthened, vision cleared, ambition<br>>>>>> inspired, and success achieved'<br>>>>>> ~ Helen<br>>>>>> Keller<br>>>>>> <br>>>>>> <br>>>>>> <br>>>>>> <br>>>>>> <br>>>>>> <br>>>>>> <2014FSSP Flyer ORL.pdf><br>>>>>> _______________________________________________<br>>>>>>
nfb-db mailing list<br>>>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>>> _______________________________________________<br>>>>> nfb-db mailing list<br>>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>>> -- <br>>>> *~Shadow Wolf~*<br>>>> <br>>>> <br>>>> _______________________________________________<br>>>> nfb-db mailing list<br>>>> <a ymailto="mailto:nfb-db@nfbnet.org"
href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> <br>> -- <br>> *~Shadow Wolf~*<br>> <br>> <br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org"
target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br><br>------------------------------<br><br>Message: 20<br>Date: Sun, 23 Mar 2014 16:01:43 -0400<br>From: "Delcenia Brown" <<a ymailto="mailto:delcenia@prodigy.net" href="mailto:delcenia@prodigy.net">delcenia@prodigy.net</a>><br>To: "NFB Deaf-Blind Division Mailing List" <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] Usher 3<br>Message-ID: <<a ymailto="mailto:4D1BB4A17F374F9987B2DF111EC167FF@DelceniaPC" href="mailto:4D1BB4A17F374F9987B2DF111EC167FF@DelceniaPC">4D1BB4A17F374F9987B2DF111EC167FF@DelceniaPC</a>><br>Content-Type: text/plain; format=flowed; charset="iso-8859-1";<br> reply-type=original<br><br>Yes, education is the key. I was label as selective hearing and having an <br>attitude on top of just losing my mother. Dad just did not
know.<br>Delcenia<br><br><br>-----Original Message----- <br>From: Darlene Laibl-Crowe<br>Sent: Friday, March 21, 2014 11:50 AM<br>To: 'NFB Deaf-Blind Division Mailing List'<br>Subject: Re: [nfb-db] Usher 3<br><br>SW, I didn't say 'congential heart failure...I said 'congenital heart<br>conditions' I wasn't referring to any specific condition. I've heard that<br>some have been born with these genetics.<br><br>The only other person that I know that has Usher is my brother who has been<br>deceased since 2000. He and I were the only ones in our family to have<br>Usher. We went back five generations on both sides of my parents and no one<br>with hearing loss and/or vision loss.<br><br>I've read that in order for a child to have USH, both parents have to have<br>that defective recessive gene when the child is conceived. And if that is<br>the case, then 1 out of 4 of the children will get USH, 1 without and 2<br>could be
carriers. There were four of us, my brother and I both had Usher<br>and my sisters don't. I also have many,many cousins, nieces, nephews who do<br>not have any hearing or vision loss. My sons do not have it and nor do my<br>grandchildren. So who to say when someone down the line will be the next<br>USH in my family.<br><br>My parents were clueless when my brother and I could nto speak right and<br>assumed it was normal. Didn't realize it until my first grade teacher<br>pointed it out to them. They had no experience with hearing loss or vision<br>loss. So when I was diagnosed with vision problems at the age of 28, it was<br>a shock to my whole family. If I hadn't gone to the eye doctor because I<br>was having problems with seeing things while driving then I would have never<br>known.<br><br>Looking back over my childhood, I see many signs that should have alerted my<br>parents of the vision issues and
my brother, too. I was constantly<br>tripping over things or knocking over the glass at the dinner table. No,<br>they assumed I wasn't paying attention. When in reality, it was because I<br>didn't see those things. My mom even used to joke that my middle name was<br>'Grace' and make fun of my clumsiness. She didn't know and that is what<br>happens when people don't know. Education and awareness has brought<br>awareness to parents nowadays of what to look for in their children to alert<br>them of certain situations.<br><br>It happens!<br><br>(smile)<br>Darlene<br><br>-----Original Message-----<br>From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Shadow Wolf<br>Sent: Friday, March 21, 2014 11:11 AM<br>To: NFB Deaf-Blind Division Mailing List<br>Subject: Re: [nfb-db] Usher 3<br><br>Darlene,<br>I must disagree with your
assertion on "congenital heart problems".<br>There is no proven link between Usher's and congenital heart failure.<br>The latter might be related to Usher's who are wholly inactive, lazy, couch<br>potatoes and poor eating habits. It has nothing to do with Usher's. I'm<br>talking about physical disabilities such being paralyzed at the wait down,<br>feet issues, nerves in the spine or legs, no feelings in the legs and feet<br>and things of that sort. Some of it is genetic. In my case, I have no family<br>history with RP, Usher's or deafness. I am the only one in my family. I<br>figured the genetic mutation came from generations far back in the family<br>blood line.<br><br>--S.W.<br><br>On 3/21/2014 7:02 AM, Darlene Laibl-Crowe wrote:<br>> I have to disagree, SW...I believe all types of Usher have a tendency to<br>> have other disabilities. For example, all three are at a risk of having a<br>> congenital heart problem. I don't and I
know several who have type 1,2<br>and<br>> 3 who do not they only have the vision and hearing issues. I do know some<br>> who have type II who have the congenital heart conditions. So, it varies<br>in<br>> all three groups.<br>><br>> I had heard one time that there was a possibility of a Type 4 because some<br>> of the research came back as inconclusive. Dr. Kimberling and other<br>> researchers of the genes of those who have Usher Syndrome have come a long<br>> ways but still much more is needed to be known.<br>><br>> Again, those who have Usher have varied degrees of vision and hearing loss<br>> and it is important to be flexible and open to it all. (smile)<br>><br>> Have a great weekend!<br>> (smile)<br>> Darlene<br>><br>> -----Original Message-----<br>> From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org"
href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Shadow Wolf<br>> Sent: Friday, March 21, 2014 9:08 AM<br>> To: NFB Deaf-Blind Division Mailing List<br>> Subject: Re: [nfb-db] Usher 3<br>><br>> Hello April,<br>><br>> Everyone who has Usher's will eventually lose their vision at one time or<br>> another. And I think those with Usher's 1 and 3 also have balance<br>problems.<br>> I believe that Usher's 1 starts at birth or at a young age. I admit, I<br>don't<br>> know much about either Usher's 1 or 3. But those who suffer from Usher's 1<br>> or 3 tend to have other psychical disabilities other than just the eyes<br>and<br>> ears.<br>><br>> --S.W.<br>><br>> On 3/21/2014 4:05 AM, April Brown wrote:<br>>> Good Morning,<br>>><br>>> Even though I can't get a proper diagnosis, I am leaning toward<br>> Usher 3. I only
have one eye with vision, and it has dramatically<br>decreased<br>> in the last year, with all kinds of odd symptoms. Of course, my vision<br>> issues are complicated by double colobomas.<br>>> My hearing is worse as well. I do not hear low toned voices<br>well.<br>> And comprehension of spoken words is extremely slow. In fact, for over a<br>> decade, I had used closed captioning on the tv to understand most shows,<br>> until my vision loss no longer allows me to. So now, many science shows I<br>> would otherwise enjoy, I can not hear or see.<br>>> I have much much information on the prognosis of Usher 1 and 2.<br>Not<br>> much on Usher 3.<br>>> Will my vision reach a spot and stay there? I only have about<br>1/4<br>> of an eye left. The tiny lower corner of my right eye next to my
nose.<br>>> Does anyone have a link to a site with good information about<br>> Usher 3?<br>>> Thanks,<br>>><br>>><br>>> April Brown<br>>><br>>> Writing dramatic adventure novels uncovering the myths we hide behind.<br>>><br>>><br>>><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>> --<br>> *~Shadow Wolf~*<br>><br>><br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a
href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>><br>><br>> _______________________________________________<br>> nfb-db mailing list<br>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br>-- <br>*~Shadow Wolf~*<br><br><br>_______________________________________________<br>nfb-db mailing list<br><a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br><a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br><br>_______________________________________________<br>nfb-db mailing list<br><a ymailto="mailto:nfb-db@nfbnet.org"
href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br><a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org </a><br><br><br><br><br>------------------------------<br><br>Message: 21<br>Date: Sun, 23 Mar 2014 16:30:42 -0400<br>From: "Delcenia Brown" <<a ymailto="mailto:delcenia@prodigy.net" href="mailto:delcenia@prodigy.net">delcenia@prodigy.net</a>><br>To: "NFB Deaf-Blind Division Mailing List" <<a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a>><br>Subject: Re: [nfb-db] [Bulk] Re: Usher 3<br>Message-ID: <<a ymailto="mailto:A750BF011B0E4FEF91E79C854BA6FA37@DelceniaPC" href="mailto:A750BF011B0E4FEF91E79C854BA6FA37@DelceniaPC">A750BF011B0E4FEF91E79C854BA6FA37@DelceniaPC</a>><br>Content-Type: text/plain; format=flowed; charset="iso-8859-1";<br> reply-type=original<br><br>What does the "experts"
know? I was told the same thing. I am the youngest <br>of three children. I am the only one with usher (RP and hearing loss. Each <br>was detected later and. No one else in my family has any of these problems. <br>Of my (4) children only my second child is having difficulty. However it is <br>due to her own bad eating habits and diabetes. My (5) grandchildrens are <br>fine. I was told by an ENT that both of my parents had to be carryers.<br>Delcenia<br><br>-----Original Message----- <br>From: Darlene Laibl-Crowe<br>Sent: Friday, March 21, 2014 12:19 PM<br>To: 'NFB Deaf-Blind Division Mailing List'<br>Subject: Re: [nfb-db] [Bulk] Re: Usher 3<br><br>Yes, SW...I've heard that, too. Someone explained to me like this:<br>Your genes have Dominant and Recessive...some RP have dominant defective<br>gene which is carried down on line usually the maternal side but for Usher<br>it is recessive defective which means both parents have to have
that<br>defective recessive gene.<br><br>I, too, am not an expert and listen to others but the person who explained<br>this to me was eye specialist. I had asked him about this because my former<br>sister in law has RP, too...but she was diagnosed when she was 2. She has<br>dominant defective gene RP...there si a difference.<br><br>Okay, I gotta get off the puter...errands to run! Eveyrone have a great<br>weekend!<br>(smile)<br>Darlene<br>-----Original Message-----<br>From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Shadow Wolf<br>Sent: Friday, March 21, 2014 12:06 PM<br>To: NFB Deaf-Blind Division Mailing List<br>Subject: [Bulk] Re: [nfb-db] Usher 3<br><br>Darlene,<br>Although I'm no expert on Geneticism. The latest research on genetic<br>mutations point out that women are the sole carriers of these mutant genes.<br>The genes
are passed onto the offsping from the mother side. The geneticist<br>I spoke to often asked me about my mother, rather than my father. Because I<br>have RP, and if I had a child, chances of my child having RP is slim to<br>none. Because it's not passed through the male genetic code. The child will<br>developed RP if the mother has it. This is why mothers are generally tested<br>to determined if they have certain genetic mutations in their lineage (blood<br>line), that can predict the child's disability at birth.<br><br>--S.W.<br>On 3/21/2014 8:50 AM, Darlene Laibl-Crowe wrote:<br>> SW, I didn't say 'congential heart failure...I said 'congenital heart<br>> conditions' I wasn't referring to any specific condition. I've heard<br>> that some have been born with these genetics.<br>><br>> The only other person that I know that has Usher is my brother who has<br>> been deceased since 2000. He and I were the only ones in our
family<br>> to have Usher. We went back five generations on both sides of my<br>> parents and no one with hearing loss and/or vision loss.<br>><br>> I've read that in order for a child to have USH, both parents have to<br>> have that defective recessive gene when the child is conceived. And<br>> if that is the case, then 1 out of 4 of the children will get USH, 1<br>> without and 2 could be carriers. There were four of us, my brother<br>> and I both had Usher and my sisters don't. I also have many,many<br>> cousins, nieces, nephews who do not have any hearing or vision loss.<br>> My sons do not have it and nor do my grandchildren. So who to say<br>> when someone down the line will be the next USH in my family.<br>><br>> My parents were clueless when my brother and I could nto speak right<br>> and assumed it was normal. Didn't realize it until my first grade<br>> teacher
pointed it out to them. They had no experience with hearing<br>> loss or vision loss. So when I was diagnosed with vision problems at<br>> the age of 28, it was a shock to my whole family. If I hadn't gone to<br>> the eye doctor because I was having problems with seeing things while<br>> driving then I would have never known.<br>><br>> Looking back over my childhood, I see many signs that should have<br>> alerted my parents of the vision issues and my brother, too. I was<br>> constantly tripping over things or knocking over the glass at the<br>> dinner table. No, they assumed I wasn't paying attention. When in<br>> reality, it was because I didn't see those things. My mom even used<br>> to joke that my middle name was 'Grace' and make fun of my clumsiness.<br>> She didn't know and that is what happens when people don't know.<br>> Education and awareness has brought
awareness to parents nowadays of<br>> what to look for in their children to alert them of certain situations.<br>><br>> It happens!<br>><br>> (smile)<br>> Darlene<br>><br>> -----Original Message-----<br>> From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Shadow<br>> Wolf<br>> Sent: Friday, March 21, 2014 11:11 AM<br>> To: NFB Deaf-Blind Division Mailing List<br>> Subject: Re: [nfb-db] Usher 3<br>><br>> Darlene,<br>> I must disagree with your assertion on "congenital heart problems".<br>> There is no proven link between Usher's and congenital heart failure.<br>> The latter might be related to Usher's who are wholly inactive, lazy,<br>> couch potatoes and poor eating habits. It has nothing to do with<br>> Usher's. I'm talking about physical disabilities such being paralyzed<br>> at the wait
down, feet issues, nerves in the spine or legs, no<br>> feelings in the legs and feet and things of that sort. Some of it is<br>> genetic. In my case, I have no family history with RP, Usher's or<br>> deafness. I am the only one in my family. I figured the genetic<br>> mutation came from generations far back in the family blood line.<br>><br>> --S.W.<br>><br>> On 3/21/2014 7:02 AM, Darlene Laibl-Crowe wrote:<br>>> I have to disagree, SW...I believe all types of Usher have a tendency<br>>> to have other disabilities. For example, all three are at a risk of<br>>> having a congenital heart problem. I don't and I know several who<br>>> have type 1,2<br>> and<br>>> 3 who do not they only have the vision and hearing issues. I do know<br>>> some who have type II who have the congenital heart conditions. So,<br>>> it varies<br>> in<br>>> all three
groups.<br>>><br>>> I had heard one time that there was a possibility of a Type 4 because<br>>> some of the research came back as inconclusive. Dr. Kimberling and<br>>> other researchers of the genes of those who have Usher Syndrome have<br>>> come a long ways but still much more is needed to be known.<br>>><br>>> Again, those who have Usher have varied degrees of vision and hearing<br>>> loss and it is important to be flexible and open to it all. (smile)<br>>><br>>> Have a great weekend!<br>>> (smile)<br>>> Darlene<br>>><br>>> -----Original Message-----<br>>> From: nfb-db [mailto:<a ymailto="mailto:nfb-db-bounces@nfbnet.org" href="mailto:nfb-db-bounces@nfbnet.org">nfb-db-bounces@nfbnet.org</a>] On Behalf Of Shadow<br>>> Wolf<br>>> Sent: Friday, March 21, 2014 9:08 AM<br>>> To: NFB Deaf-Blind Division Mailing List<br>>> Subject: Re:
[nfb-db] Usher 3<br>>><br>>> Hello April,<br>>><br>>> Everyone who has Usher's will eventually lose their vision at one<br>>> time or another. And I think those with Usher's 1 and 3 also have<br>>> balance<br>> problems.<br>>> I believe that Usher's 1 starts at birth or at a young age. I admit,<br>>> I<br>> don't<br>>> know much about either Usher's 1 or 3. But those who suffer from<br>>> Usher's 1 or 3 tend to have other psychical disabilities other than<br>>> just the eyes<br>> and<br>>> ears.<br>>><br>>> --S.W.<br>>><br>>> On 3/21/2014 4:05 AM, April Brown wrote:<br>>>> Good Morning,<br>>>><br>>>> Even though I can't get a proper diagnosis, I am leaning<br>>>> toward<br>>> Usher 3. I only have one eye with vision, and it has dramatically<br>>
decreased<br>>> in the last year, with all kinds of odd symptoms. Of course, my vision<br>>> issues are complicated by double colobomas.<br>>>> My hearing is worse as well. I do not hear low toned<br>>>> voices<br>> well.<br>>> And comprehension of spoken words is extremely slow. In fact, for<br>>> over a decade, I had used closed captioning on the tv to understand<br>>> most shows, until my vision loss no longer allows me to. So now,<br>>> many science shows I would otherwise enjoy, I can not hear or see.<br>>>> I have much much information on the prognosis of Usher 1 and 2.<br>> Not<br>>> much on Usher 3.<br>>>> Will my vision reach a spot and stay there? I only have<br>>>> about<br>> 1/4<br>>> of an eye left. The tiny
lower corner of my right eye next to my nose.<br>>>> Does anyone have a link to a site with good information<br>>>> about<br>>> Usher 3?<br>>>> Thanks,<br>>>><br>>>><br>>>> April Brown<br>>>><br>>>> Writing dramatic adventure novels uncovering the myths we hide behind.<br>>>><br>>>><br>>>><br>>>> _______________________________________________<br>>>> nfb-db mailing list<br>>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>> --<br>>> *~Shadow Wolf~*<br>>><br>>><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a
ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br>>><br>>><br>>> _______________________________________________<br>>> nfb-db mailing list<br>>> <a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br>>> <a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org" target="_blank">http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org</a><br><br>--<br>*~Shadow Wolf~*<br><br><br>_______________________________________________<br>nfb-db mailing list<br><a ymailto="mailto:nfb-db@nfbnet.org" href="mailto:nfb-db@nfbnet.org">nfb-db@nfbnet.org</a><br><a href="http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org"
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