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<DIV><FONT size=3>Hey Janice, we need to tell everybody on this list that if
your NFB affiliate does not have a deaf-blind committee or division, you should
join our national deaf-blind division and help us with "Operation
Outreach". The conference call is next Wednesday night at 8:00p EDT.
</FONT></DIV>
<DIV><FONT size=3></FONT> </DIV>
<DIV><FONT size=3>Janice is our secretary and will send you the number if you
let her know you are interested. </FONT></DIV>
<DIV><FONT size=3></FONT> </DIV>
<DIV><FONT size=3>The states that have deaf-blind contacts are the first to know
of what comes down the pike like the I Can Connect program. and other
things that pertain to the deaf-blind from the national NFB DB Division.
Join us in our fight for equality with the rest of the NFB.</FONT></DIV>
<DIV><FONT size=3></FONT> </DIV>
<DIV> </DIV>
<DIV>
<DIV>In a message dated 3/26/2014 10:54:40 A.M. Pacific Daylight Time,
soulalibi@gmail.com writes:</DIV>
<BLOCKQUOTE
style="PADDING-LEFT: 5px; MARGIN-LEFT: 5px; BORDER-LEFT: blue 2px solid"><FONT
style="BACKGROUND-COLOR: transparent" color=#000000 size=2 face=Arial>Hi
Janice,<BR>I'm not surprised. I've always been confused about Ushers 3. All I
knew <BR>is that folks with Ushers type 3, also have a combination of other
<BR>physical disabilities. As for me, I haven't been *officially*
diagnosed <BR>with having Usher's type-2, yet. Just the fact that the
"experts", like <BR>the one over at HKNC, told me I have Usher's type-2. The
only changes <BR>I've seen over the years are with my eyes. My vision had
decreased since <BR>I was 25. And I only started using a white cane after
HKNC. But my <BR>hearing remains intact. Even after receiving a CI. It had
only boost my <BR>hearing capacity in that regard.<BR><BR>--S.W.<BR>On
3/25/2014 5:09 PM, Janice Toothman wrote:<BR>> Hi S.W.<BR>> I have
Usher's 3 I did not receive this diagnosis until I was 42 years <BR>> old.
I lost my sight within two years and most of my hearing. I have <BR>>
balance problems neuropathy and other problems.<BR>> Janice<BR>><BR>>
On 3/21/2014 9:08 AM, Shadow Wolf wrote:<BR>>> Hello
April,<BR>>><BR>>> Everyone who has Usher's will eventually lose
their vision at one <BR>>> time or another. And I think those with
Usher's 1 and 3 also have <BR>>> balance problems. I believe that
Usher's 1 starts at birth or at a <BR>>> young age. I admit, I don't
know much about either Usher's 1 or 3. <BR>>> But those who suffer from
Usher's 1 or 3 tend to have other psychical <BR>>> disabilities other
than just the eyes and ears.<BR>>><BR>>>
--S.W.<BR>>><BR>>> On 3/21/2014 4:05 AM, April Brown
wrote:<BR>>>> Good Morning,<BR>>>><BR>>>>
Even though I can't get a proper diagnosis, I am
leaning <BR>>>> toward Usher 3. I only have one eye with
vision, and it has <BR>>>> dramatically decreased in the last year,
with all kinds of odd <BR>>>> symptoms. Of course, my
vision issues are complicated by double <BR>>>>
colobomas.<BR>>>><BR>>>> My
hearing is worse as well. I do not hear low toned voices
<BR>>>> well. And comprehension of spoken words is extremely
slow. In <BR>>>> fact, for over a decade, I had used closed
captioning on the tv to <BR>>>> understand most shows, until my
vision loss no longer allows me to. <BR>>>> So now, many
science shows I would otherwise enjoy, I can not hear <BR>>>> or
see.<BR>>>><BR>>>> I have much
much information on the prognosis of Usher 1 and <BR>>>> 2. Not
much on Usher 3.<BR>>>><BR>>>>
Will my vision reach a spot and stay there? I only have
<BR>>>> about 1/4 of an eye left. The tiny lower corner of my
right eye <BR>>>> next to my
nose.<BR>>>><BR>>>> Does
anyone have a link to a site with good information <BR>>>> about
Usher 3?<BR>>>><BR>>>>
Thanks,<BR>>>><BR>>>><BR>>>> April
Brown<BR>>>><BR>>>> Writing dramatic adventure novels
uncovering the myths we hide
behind.<BR>>>><BR>>>><BR>>>><BR>>>>
_______________________________________________<BR>>>> nfb-db mailing
list<BR>>>> nfb-db@nfbnet.org<BR>>>>
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org<BR>>><BR>><BR>><BR>>
_______________________________________________<BR>> nfb-db mailing
list<BR>> nfb-db@nfbnet.org<BR>>
http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org<BR><BR>-- <BR>*~Shadow
Wolf~*<BR><BR><BR>_______________________________________________<BR>nfb-db
mailing
list<BR>nfb-db@nfbnet.org<BR>http://nfbnet.org/mailman/listinfo/nfb-db_nfbnet.org<BR></FONT></BLOCKQUOTE></DIV></FONT></BODY></HTML>