[Nfb-editors] Maine's monthly newsletter - The National federation of the Blind of Maine News Matters for March, 2013

[Robert Leslie Newman]

The National federation of the Blind of Maine News Matters for March, 2013

GOAL BALL & SO MUCH MORE!

Vol. 3 Issue 3

Patricia C. Estes, Editor

Leon Proctor, Jr., President

www.nfb-me.org

 

"Challenging & changing what it means to be blind in Maine!"

 

In this issue:

*NFB 2013 Scholarship Applications deadline: March 31 www.nfb.org

*Goal Ball, Saturday March 23 from nine to noon in Auburn, no cost

*At Large NFB of Maine Lighthouse Chapter Meeting, March 21, by phone

*Meet & Greet: Lee Ann Nelson & Ozzie, Guide Dog, Saturday, April 6,
Lewiston-Auburn

*Annual In Person Lighthouse Chapter Meeting, April 27, Pat's Pizza, Augusta

*Free the President! Fundraiser at www.nfb-me.org

*Mr. Proctor goes to Louisiana today! Follow Leon & Suzanne's six month
journey while he is at Louisiana Center for the Blind by reading their blog
at  www.nfb-me.org

*Reserve hotel rooms now for NFB Convention 2013, July 1-6 at www.nfb.org 

*See March issue of the "Braille Monitor" for stupid blind thief in Rumford
article and" delishe" recipes from some of our Maine members!  www.nfb.org

 

FROM THE EDITOR: Guarding against Identity Theft is up to You!

Even though I am a Mainiac, born and bred, people I meet don't believe me.
My mother made sure that we never dropped an "r", especially on our last
name, Clark. She didn't want us four children to be treated differently if
we sounded like a Yankee. my dad, Arthur Clark, was a hopeless case of
Yankee drawl. Even though I grew up with his dialect ("uncorrected" by my
mother), I still cannot speak "Mainer" with any credibility. My mother
didn't speak English until she went to school at six. Her parents were both
French-Canadian extending back for generations. French was her first
language and was spoken at all family functions that we went to as I grew
up. However, my mother didn't "sound" Franco-American at all and she never
dropped an "r." Why did she go to such lengths for so many years?

My mother felt that she had experienced tremendous ridicule and prejudice
for being French and she told me that it was like being a "second class
citizen." She didn't want her children to go through the same heart ache
that she had growing up. We stayed very close to our Memere and Pepere
Bourque, of course, but never joined in the family chatter or in singing the
songs. Consequently, I have a great disconnect with a full half of my
heritage. That part of my identity was almost completely erased ...for my
own good. it's a great loss I can never get back, totally, and for which my
mother apologized for profusely in later years.

Why am I telling you all this? Think about it.

When I was twelve, my eye doctor explained to me that I was "legally blind"
and what that term would mean in my life: no driving, large print, etc. Then
the case worker from the State started using "partially sighted" and tried
to get me to focus on what I could see and to use that vision. Many
migraines later, at eighteen I went to a summer program for college bound
students in Maine's DBVI. We spent the summer at Syracuse University (unlike
any other college or university in Maine!) and we separated into two groups:
the Partials and the totals. I then became a "high partial." But, darn it,
the kids who were in the totally Blind group seemed to get to do more, go
more places and the totals just had more fun! It seemed that they generally
had skills that I didn't that enabled them to travel independently with a
white cane, to form reading groups with Braille notes and I stayed with the
Partials and stuck to a one block area around our dorm, pretty much. I was
never offered a Braille lesson or a cane travel lesson because I "had too
much sight." sure! And a much smaller world!

A few years later, I was introduced to the National Federation of the Blind.
Now everyone just referred to me as plain old "blind." This was confusing to
me until I learned that the NFB philosophy was that "one is blind to the
extent one needs alternative techniques to perform the same task as a
sighted person." Well then, I was indeed "blind" and that really simplified
things for me. No more of this definition confusion for me! Blind was and is
blind! Simple.

While this definition of blindness works well for me, it may not for every
legally blind person. And I feel that is a personal choice for the visually
impaired person to decide and for others, blind and sighted alike, to
respect. A sighted person can no more insist that I be called this or that
when it comes to my blindness than I can tell someone of another race or
from another culture what they will be called! That is their right,
prerogative and choice. Do you see where I am going?

As blind people in Maine, we are told what to call ourselves,"visually
impaired" no matter what degree of sight we may have...or not. This is not a
legal category and has caused confusion for blind people as they try to
figure out if they might be eligible for certain programs. And it is a lie
and a huge infringement on our identity! The deaf wouldn't stand for others
to freely pick and choose their identity for them!

As you may be a new member or checking out the NFB for yourself or another,
you will notice this big difference: Federationists are OK with being blind.
Period. Yes, we "happen to be blind" , by the same token we "happen" to have
lots in common with a number of people who speak the same language, deal
with the same problems and who might have some resources to share.

 I am very clear that referring to myself as "blind" works for me and keeps
me honest! It keeps me from relying on damaged eyes that give me flawed
information! Being blind is  not having a problem with the life skills of
blindness to get a job done. It saves me eyestrain and migraines. Choosing
blindness gives me permission to live in that world and to explore solutions
and to speak with those who just happen to speak the same language! The
bonus is that these skills are critical for me to have in order to function
successfully in the regular world of the sighted, as well. And I encourage
you to ask us about this and to question if it is right for you.
Professional or not, a sighted person just cannot relate.

When you have that clarity about who you are and when you are completely
comfortable with the word "blind" being in your life, protect that from
those who would take that confidence  from you! Be on guard for those, like
my mother, who would talk you out of your identity "for your own good"!

The skills of blindness are tools for success, not an admission of retreat.
I am very clear that being told to "use my usable vision" is like telling
someone with vertigo,"walk where the room isn't spinning...right there! and
you'll be fine!" I don't trust that, do you? It is a nonsensical
statement...if I have "usable vision", where is it and what am I doing here
and why didn't Dr. Beale, and not the VR worker, show me where my "usable
vision is? Sure, some spaces in my visual field might test better than
others...on a "good" day, but I am still going to get results that I can't
rely on to be accurate. And having written this, there still will be those
who would try to talk me out of my identity as I have described it! 

I am clear that I "happen to be " a blind, Franco-American! And have a few
other traits thrown in just for fun!

Now, where is that creton spread for my sandwich? 

 

UPCOMING EVENTS:

*Fun for All Goal Ball!Our BETA students have been telling us since last
August how much fun Goal Ball is to play. Of course we agreed that "throwing
yourself across a gym floor to make a block" would be a hoot, indeed. We
have finally scored a place to play and the experts to help us to set up and
learn the rules. Once we have done it with some help, Megan Frietas and her
mom, Kelly, will continue to coach us through more games. We do hope that
this is something that everyone will enjoy and you don't have to be an NFB
member or a BETA student to come and play!

Next Saturday, March 23 we will meet for Goal Ball from 9:00-12:00

at the Auburn Parks & Recreation Building on 48 Pettingill Park Road,
Auburn. You can call them at 333.3601 ext. 2108 for more detailed directions
or check them out at

www.auburnmaine.gov/pages/government/Parks-and-Recreation

We will arrive a bit early to setup and Mark Sinclair of NABA tells me that
everyone will have a chance to play. And since all Goal Ball players will be
wearing sleep shades, our sighted friends can play, also! For those not
playing, Pettingill Park is a nice place for walks and other activities.

See you in a week. Contact Lee Ann at 713.8683 or Patty at 344.8292  if you
have any questions.

 

*Lighthouse Chapter Meeting by Conference Call, Thursday, March 21 from
7:00-8:00

The toll free call in number is at our web site  www.nfb-me.org  or call
Roger at 353.5007  and ask him for it. These meetings are fun and
informative. Bring a "win" to share and help us to plan future events and to
continue current advocacy work. Do you have an idea for a large item to
raffle off...say an ipad or a substantial Gift Card to home Depot and who we
might contact? Please join us and check us out!

 

*Saturday, April 6 The BETA Students & Parents will hear about Lee Ann
Nelson's recent training with her new Guide Dog, Ozzie. We can discuss Guide
Dog school trainings,white  canes and/or dogs and watch Lee Ann and Ozzie as
they work. If the weather is nice, we will be at the Estes' home, 790 Pownal
Road in Auburn from about ten to noon. Otherwise we will meet at the
Androscoggin chamber of Commerce large conference room at 4   Lisbon Street,
Lewiston for the same time frame. call Lee Ann 713.8683 or Patty 344.8292
with questions. we will not be walking out on the road at the Estes' and
watch for Skip and help with directions for parking. We will be in the back
yard here and walk to Nana's long paved drive way down the path just next
door

 

*Saturday, April 27, at Pat's Pizza in Augusta we will have our 2nd Annual
(in person) At Large Lighthouse Chapter Meeting from promptly at 10:00 until
2:00. We will each be ordering from Pat's menu for lunch and will be
responsible for our own checks. It may be time for some to renew membership
dues...or to join! (which you can do now from our website, by the way). We
will have updates from LCB, Newsline and more as well as assistive
technology help on the i-phone, i-pad and other devices with Roger Cusson
and helpers. Hope to see you there! We will miss our mentor and good friend,
Ron Gardner, this year but we all seem to have a good time just the same!

 

 

The Affiliate of the National Federation of the Blind of Maine is growing
and on the move! We have applicants for the NFB National Scholarships, we
have a great Legislative Team, our BETA (Blindness, Education, Training and
Advocacy)

Student and Parents group is coming together (watch for a Career Day in May
and also for a BETA FB Page!), Newsline is being demonstrated to great
reviews and our members from Elliot to Grande Isle are on the look-out for
opportunities to teach and to spread our basic NFB belief in the capacity of
the blind to join our sighted peers on terms of equality and effectiveness.
The economic determinations from the Statehouse are being met with
creativity and collaboration. This same critical thinking and creative
problem solving extends to our fundraising, discussion of transportation
issues in Maine and to the lack of responsiveness to the neglect of help for
the blind of all ages to acquire the skills for independence, no matter
where they reside in our State. 

We work together and one on one to move forward and to continue to assist
where we can to share our confidence and our experience that vision is not a
requirement for great quality of life!

 

The NFB of Maine: "We know who we are and we will not go back!"-Dr. Kenneth
Jernigan

 

 

Patricia E.C. Estes
207 3448292

 

"One cannot consent to creep
 when one feels an impulse to soar."
          ~Helen Keller

 

 

Robert Leslie Newman

Personal Website-

Adjustment To Blindness And Visual impairment

http//www.thoughtprovoker.info

NFB Writers' Division, president

http://www.nfb-writers-division.net 

Chair of the NFB Communications Committee