[Nfb-idaho] Passing this along follow-up if interested. FW: [Nfbnet-members-list] Invitation to participate in research study on precision medicine

[Dana Ard]

From: NFBNet-Members-List [mailto:nfbnet-members-list-bounces at nfbnet.org] On
Behalf Of Blake, Lou Ann via NFBNet-Members-List
Sent: Monday, March 05, 2018 6:38 PM
To: nfbnet-members-list at nfbnet.org
Subject: [Nfbnet-members-list] Invitation to participate in research study
on precision medicine

 

Dear Fellow Federationists,
 
The below research participant solicitation is being provided for
informational purposes only. The National Federation of the Blind has no
involvement in this research, but we believe that it may contribute to our
research mission.
 
Invitation letter
 
Spanish: to read this invitation letter in Spanish, go to this link
<https://drive.google.com/file/d/1zUOEzo4Q5CCAuw9oZwHJR7tRczJslB2z/view?usp=
sharing> 
 
We are a team of researchers from Columbia University Medical Center in New
York. We are conducting an online survey. The topic of the survey is
precision medicine research. Precision medicine research looks at a person's
genetics (what they inherit from their families), their environment, and
lifestyle. This type of research can help in preventing and diagnosing
diseases and developing new treatments.
 
It is important that we learn what people with disabilities think about
precision medicine research. We are NOT asking you to volunteer for
precision medicine research. We are asking you to take our online Survey
because you may have one of the following: 
 
.       Blindness or low vision
.       Deafness or hard of hearing
.       Physical disability
.       Autism 
.       Intellectual or developmental disability
.       Learning disability
.       Mental health or psychosocial disability
 
The Survey asks what you think about precision medicine research, and for
some information about you. Your answers are valuable to us and will help
researchers design the proposed precision medicine study. You will receive a
$25 gift card if you complete the Survey.
 
The Survey is in English, Spanish and American Sign Language (ASL). It can
be completed with accessibility programs like screen readers. 
 
If you decide to take the Survey, please go to [Survey Monkey
<https://www.surveymonkey.com/r/TY5MJGL> 's link] and choose English,
Spanish or ASL. 
You can also ask another person to help you. 
It may take up to 25 minutes to finish the Survey. You can also stop at any
time. 
 
Your answers will not be linked to your name, and the researchers will not
know your identity. If you have questions about the survey, please contact:
 
Maya Sabatello, LLB, PhD, at ms4075 at columbia.edu; 646-774- 8616
Paul Appelbaum, MD, at psa21 at cumc.columbia.edu; 646-774-8630.
 
Thank you very much for considering our request.
 
Sincerely,
Maya Sabatello, LLB, PhD and Paul S. Appelbaum, MD, Columbia University
 
 
Lou Ann Blake, J.D.
Deputy Executive Director, Jernigan Institute
200 East Wells Street, Baltimore, MD 21230
(410) 659-9314, extension 2221| lblake at nfb.org 
 
 
 <https://nfb.org/> National Federation of the Blind
 
 
<http://www.facebook.com/nationalfederationoftheblind> Facebook
<https://twitter.com/NFB_Voice> Twitter
<https://www.youtube.com/NationsBlind> Youtube
 
The National Federation of the Blind is a community of members and friends
who believe in the hopes and dreams of the nation's blind. Every day we work
together to help blind people live the lives they want. 
 
 



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