[Nfb-krafters-korner] OT: on children and SSDI services

[Rovig, Lorraine]

Dear Fellow Krafters, I located some information for you on this topic of caring for children with special needs after the parents are no longer their caretakers. You may contact the president of NOPBC if you require more resources on this topic. She is Mrs. Laura Weber at: weberfam07 at comcast.net. 
Lorraine

-----Original Message-----
Lorraine,

We will be holding a session on Will and Estate Planning for Families 
with Special Needs Children at the NFB national convention in Orlando on Wed., July 6 from 7 - 8:15 pm.  Will you pass that info along if you feel it would be helpful?

Thanks,
Carol
Carol Castellano
Bd Member, National Organization of Parents of Blind Children (NOPBC), an NFB division
At 05:15 PM 6/14/2011, you wrote:


>-----Original Message-----
>From: nfb-krafters-korner-bounces at nfbnet.org 
>[mailto:nfb-krafters-korner-bounces at nfbnet.org] On Behalf Of Becky Frankeberger
>Sent: Sunday, June 12, 2011 4:02 PM
>To: 'List for blind crafters and artists'
>Subject: Re: [Nfb-krafters-korner] ot children and services
>
>Henrietta, write me off list.
>
>b.butterfly at comcast.net
>
>I am such an adult you are looking for.
>Good for you and paws up for taking care of this tough task way before your
>son needs the help.
>
>Becky and guide dog Jake
>-----Original Message-----
>From: nfb-krafters-korner-bounces at nfbnet.org
>[mailto:nfb-krafters-korner-bounces at nfbnet.org] On Behalf Of Henrietta
>Brewer
>Sent: Sunday, June 12, 2011 11:40 AM
>To: List for blind crafters and artists
>Subject: [Nfb-krafters-korner] ot children and services
>
>
>I know that this is way off topic. However, I know several of you have
>disabled children or know people who do. As parents, we don't even think
>that our children should get "s s  d i " as small children. They are our
>responsibility and we care for them.So we don't apply for services that we
>don't think we need.
>
>Now that our son is 43 and we are planning for his life when we aren't able
>to care for him, we are being told that since he didn't get s s d i before
>he was eighteen he is not going to get the full amount services that he
>would be entitled to if he had gotten s s d i as a child.
>
>I would suggest you talk to your legal adviser and see if you should be
>doing something to insure your child's future.
>
>Hope this info helps someone prevent the issues I have to fight now.
>Henrietta
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