[Nfb-krafters-korner] O T, question to other caregivers

Thu May 12 20:29:18 UTC 2011

Hi Susan,
Well, another day and another full list of medical visitors.  But with the help of our son we have ordered some awesome equiptment. If anyone is interested, there is a site 

www.stander.com

They have lots of things. I haven't totally checked it out but looks like i could enjoy some of the things my son read to me.  

There is always a chance to learn from events like this.  My Husband and I are learning to deal with each others panic modes without paniccing ourselves.  When he seems upset, especially when he is on equiptment that doesn't allow him to speak, I get panicced that I am doing something wrong. I have learned to whistle to myself in these times and then he laughs.  Sure does help. lol

Henrietta
On May 11, 2011, at 11:28 PM, Susan Roe wrote:

> Hi Henrietta,
> 
> I say talk away my dear, because then I know someone has been listening. LOL!
> 
> I know all about those short notice visits.  I didn't mind them at my sister's house because we both had tourn the house apart for a week before my aunt came to stay in order to accomidate the hospital bed and her oxygen generator.  The visits to their house were quite another thing.  It was simply unfit, no way around it.  That is why I put my foot down and told them she was not going back there.  I couldn't make my uncle leave before hand, though after my aunt passed and he was already in the hospital for gout and an infection in his hand, his doctor and I were calling the shots and he was then transfered to a rehab facility to strengthen his legs enough to use a walker.  Now when he leaves there, he will go and live with my sister next door.  Because of his dementia, he can't be left alone.  I also have control of his truck keys and he won't be sneeking down to the feed store to buy cat or horse feed when no one is looking.  He turns 87 in August and I sware he's gonna live longer than any of us or drive us crazy in the process!
> 
> Susan
> dogwoodfarm at verizon.net
> ----- Original Message ----- From: "Henrietta Brewer" <gary.brewer at comcast.net>
> To: "List for blind crafters and artists" <nfb-krafters-korner at nfbnet.org>
> Sent: Wednesday, May 11, 2011 3:48 PM
> Subject: Re: [Nfb-krafters-korner] O T, question to other caregivers
> 
> 
>> Hi Susan.
>> 
>> You know, I am a caregiver at heart. I love my house and often I am in a cleaning mode.  So this is where I want to be.
>> 
>> It is a good thing I am in clean mode, People are in and out of here all day. They don't only check on him but need to see my toilet and our bed. Sure glad i had cleaned up the bathroom this morning and made the bed and put the load of laundry away. They came with about fifteen minutes notice today. lol
>> 
>> But, again, I thank all of you for the thoughts and prayers. We are so grateful for the good friends here at Krafter's Korner.  Dan feels like he knows all  of you by name. Yes, if that is gossip, I am guilty. I am always telling him about the things my Krafter friends are doing.
>> 
>> Well, I think little miss homemaker is late with dinner.
>> Henrietta
>> On May 10, 2011, at 10:44 PM, Susan Roe wrote:
>> 
>>> I am glad your husband is where the both of you want him to be.  My aunt was in a rehab/care facility before her insurance said her time had run out. There was no way we could aford $3,000 to $4,000 a month for such care, so we opted to bring her home to my sister's house next door for hospis.  She only lived 4 days and passed away early Palm Sunday morning.
>>> 
>>> I think both you and your husband will be more satisfied together.  Pain management is hard enough to deal with and it is easier on everyone where you are most comfortable.
>>> 
>>> You and your husband will be in my thoughts and prayers.
>>> Love,
>>> Susan
>>> dogwoodfarm at verizon.net
>>> ----- Original Message ----- From: "Henrietta Brewer" <gary.brewer at comcast.net>
>>> To: "List for blind crafters and artists" <nfb-krafters-korner at nfbnet.org>
>>> Sent: Tuesday, May 10, 2011 6:49 PM
>>> Subject: Re: [Nfb-krafters-korner] O T, question to other caregivers
>>> 
>>> 
>>>> Hi Annette and all
>>>> 
>>>> I appreciate all of the messages about the pic line. I am glad to let you know that Dan's lung doctor suggested some meds by mouth that seem to be working well.
>>>> 
>>>> The hospital did recommend that Dan go to an extended care home. We did not agree and after a few times that I had to be called because no one knew how to manage his breathing equiptment, I told them not to mention it again. If I am managing his care from here, he will be here and they can come to care for him.
>>>> 
>>>> He is home and true to their word, they are in and out of here like I had swinging doors. But he is coming along. His compression Fracture is the main reason he is having trouble. The pain keeps him from breathing well. With his limited ability to breathe we don't need this fracture. but we have it so we are working on ways to help him.
>>>> 
>>>> This group is amazing. There is always someone with experiences and suggestions for any problem.  Thank you all for being here for each other.
>>>> 
>>>> On May 5, 2011, at 9:12 PM, Annette Carr wrote:
>>>> 
>>>>> A few years ago my husband came home with a PIC line for administrating
>>>>> antibiotics.  We could not find a way for me to manage it.  It required that
>>>>> you visually inspect the line to ensure that all of the bubbles were out
>>>>> before connecting to his port.  Our insurance allowed for 2 visits the first
>>>>> day at home to teach me to manage the PIC line.  The second nurse noticed
>>>>> that he had an infection at the Port site and sent us back to the hospital.
>>>>> Neither my husband nor the first nurse knew that he had the infection. When
>>>>> he told her about the pain he was experiencing, she told him it was from the
>>>>> procedure of putting in the port.  So not only was I unable to manage the
>>>>> PIC Line, but I would have never been able to detect the infection. After
>>>>> his second release from the hospital, he was admitted to a nursing home for
>>>>> three weeks to finish the course of IV antibiotics.  This was only my
>>>>> experience, so I am not saying that someone who is blind cannot manage a PIC
>>>>> Line.
>>>>> 
>>>>> Annette
>>>>> 
>>>>> 
>>>>> -----Original Message-----
>>>>> From: nfb-krafters-korner-bounces at nfbnet.org
>>>>> [mailto:nfb-krafters-korner-bounces at nfbnet.org] On Behalf Of Carol Osmar
>>>>> Sent: Thursday, May 05, 2011 9:05 AM
>>>>> To: List for blind crafters and artists
>>>>> Subject: [Nfb-krafters-korner] O T, question to other caregivers
>>>>> 
>>>>> Hello all,
>>>>> My sister Henrietta, asked me to inquire if any other blind caregiver has
>>>>> used a PIC line and done an infusion.
>>>>> 
>>>>> Her husband Dan is in the hospital  and may be sent home with a PIC line.
>>>>> Since she is responsible for all his care she is concerned about
>>>>> being able to    safely care for it.
>>>>> 
>>>>> If any of you have had experience with this please let her know.
>>>>> Also please keep Dan in your prayers.
>>>>> 
>>>>> Carol
>>>>> 
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>>>>> 
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>>>> 
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>> 
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> 
> 
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