[Nfb-krafters-korner] O T, question to other caregivers

Susan Roe dogwoodfarm at verizon.net
Fri May 13 01:41:24 UTC 2011 

That is exactly how you both should handle situations that come up between 
the two of you.  I am a firm believer that laughter is the best medicine!

Susan
dogwoodfarm at verizon.net
----- Original Message ----- 
From: "Henrietta Brewer" <gary.brewer at comcast.net>
To: "List for blind crafters and artists" <nfb-krafters-korner at nfbnet.org>
Sent: Thursday, May 12, 2011 2:29 PM
Subject: Re: [Nfb-krafters-korner] O T, question to other caregivers


> Hi Susan,
> Well, another day and another full list of medical visitors.  But with the 
> help of our son we have ordered some awesome equiptment. If anyone is 
> interested, there is a site
>
> www.stander.com
>
> They have lots of things. I haven't totally checked it out but looks like 
> i could enjoy some of the things my son read to me.
>
> There is always a chance to learn from events like this.  My Husband and I 
> are learning to deal with each others panic modes without paniccing 
> ourselves.  When he seems upset, especially when he is on equiptment that 
> doesn't allow him to speak, I get panicced that I am doing something 
> wrong. I have learned to whistle to myself in these times and then he 
> laughs.  Sure does help. lol
>
> Henrietta
> On May 11, 2011, at 11:28 PM, Susan Roe wrote:
>
>> Hi Henrietta,
>>
>> I say talk away my dear, because then I know someone has been listening. 
>> LOL!
>>
>> I know all about those short notice visits.  I didn't mind them at my 
>> sister's house because we both had tourn the house apart for a week 
>> before my aunt came to stay in order to accomidate the hospital bed and 
>> her oxygen generator.  The visits to their house were quite another 
>> thing.  It was simply unfit, no way around it.  That is why I put my foot 
>> down and told them she was not going back there.  I couldn't make my 
>> uncle leave before hand, though after my aunt passed and he was already 
>> in the hospital for gout and an infection in his hand, his doctor and I 
>> were calling the shots and he was then transfered to a rehab facility to 
>> strengthen his legs enough to use a walker.  Now when he leaves there, he 
>> will go and live with my sister next door.  Because of his dementia, he 
>> can't be left alone.  I also have control of his truck keys and he won't 
>> be sneeking down to the feed store to buy cat or horse feed when no one 
>> is looking.  He turns 87 in August and I sware he's gonna live
> longer than any of us or drive us crazy in the process!
>>
>> Susan
>> dogwoodfarm at verizon.net
>> ----- Original Message ----- From: "Henrietta Brewer" 
>> <gary.brewer at comcast.net>
>> To: "List for blind crafters and artists" 
>> <nfb-krafters-korner at nfbnet.org>
>> Sent: Wednesday, May 11, 2011 3:48 PM
>> Subject: Re: [Nfb-krafters-korner] O T, question to other caregivers
>>
>>
>>> Hi Susan.
>>>
>>> You know, I am a caregiver at heart. I love my house and often I am in a 
>>> cleaning mode.  So this is where I want to be.
>>>
>>> It is a good thing I am in clean mode, People are in and out of here all 
>>> day. They don't only check on him but need to see my toilet and our bed. 
>>> Sure glad i had cleaned up the bathroom this morning and made the bed 
>>> and put the load of laundry away. They came with about fifteen minutes 
>>> notice today. lol
>>>
>>> But, again, I thank all of you for the thoughts and prayers. We are so 
>>> grateful for the good friends here at Krafter's Korner.  Dan feels like 
>>> he knows all  of you by name. Yes, if that is gossip, I am guilty. I am 
>>> always telling him about the things my Krafter friends are doing.
>>>
>>> Well, I think little miss homemaker is late with dinner.
>>> Henrietta
>>> On May 10, 2011, at 10:44 PM, Susan Roe wrote:
>>>
>>>> I am glad your husband is where the both of you want him to be.  My 
>>>> aunt was in a rehab/care facility before her insurance said her time 
>>>> had run out. There was no way we could aford $3,000 to $4,000 a month 
>>>> for such care, so we opted to bring her home to my sister's house next 
>>>> door for hospis.  She only lived 4 days and passed away early Palm 
>>>> Sunday morning.
>>>>
>>>> I think both you and your husband will be more satisfied together. 
>>>> Pain management is hard enough to deal with and it is easier on 
>>>> everyone where you are most comfortable.
>>>>
>>>> You and your husband will be in my thoughts and prayers.
>>>> Love,
>>>> Susan
>>>> dogwoodfarm at verizon.net
>>>> ----- Original Message ----- From: "Henrietta Brewer" 
>>>> <gary.brewer at comcast.net>
>>>> To: "List for blind crafters and artists" 
>>>> <nfb-krafters-korner at nfbnet.org>
>>>> Sent: Tuesday, May 10, 2011 6:49 PM
>>>> Subject: Re: [Nfb-krafters-korner] O T, question to other caregivers
>>>>
>>>>
>>>>> Hi Annette and all
>>>>>
>>>>> I appreciate all of the messages about the pic line. I am glad to let 
>>>>> you know that Dan's lung doctor suggested some meds by mouth that seem 
>>>>> to be working well.
>>>>>
>>>>> The hospital did recommend that Dan go to an extended care home. We 
>>>>> did not agree and after a few times that I had to be called because no 
>>>>> one knew how to manage his breathing equiptment, I told them not to 
>>>>> mention it again. If I am managing his care from here, he will be here 
>>>>> and they can come to care for him.
>>>>>
>>>>> He is home and true to their word, they are in and out of here like I 
>>>>> had swinging doors. But he is coming along. His compression Fracture 
>>>>> is the main reason he is having trouble. The pain keeps him from 
>>>>> breathing well. With his limited ability to breathe we don't need this 
>>>>> fracture. but we have it so we are working on ways to help him.
>>>>>
>>>>> This group is amazing. There is always someone with experiences and 
>>>>> suggestions for any problem.  Thank you all for being here for each 
>>>>> other.
>>>>>
>>>>> On May 5, 2011, at 9:12 PM, Annette Carr wrote:
>>>>>
>>>>>> A few years ago my husband came home with a PIC line for 
>>>>>> administrating
>>>>>> antibiotics.  We could not find a way for me to manage it.  It 
>>>>>> required that
>>>>>> you visually inspect the line to ensure that all of the bubbles were 
>>>>>> out
>>>>>> before connecting to his port.  Our insurance allowed for 2 visits 
>>>>>> the first
>>>>>> day at home to teach me to manage the PIC line.  The second nurse 
>>>>>> noticed
>>>>>> that he had an infection at the Port site and sent us back to the 
>>>>>> hospital.
>>>>>> Neither my husband nor the first nurse knew that he had the 
>>>>>> infection. When
>>>>>> he told her about the pain he was experiencing, she told him it was 
>>>>>> from the
>>>>>> procedure of putting in the port.  So not only was I unable to manage 
>>>>>> the
>>>>>> PIC Line, but I would have never been able to detect the infection. 
>>>>>> After
>>>>>> his second release from the hospital, he was admitted to a nursing 
>>>>>> home for
>>>>>> three weeks to finish the course of IV antibiotics.  This was only my
>>>>>> experience, so I am not saying that someone who is blind cannot 
>>>>>> manage a PIC
>>>>>> Line.
>>>>>>
>>>>>> Annette
>>>>>>
>>>>>>
>>>>>> -----Original Message-----
>>>>>> From: nfb-krafters-korner-bounces at nfbnet.org
>>>>>> [mailto:nfb-krafters-korner-bounces at nfbnet.org] On Behalf Of Carol 
>>>>>> Osmar
>>>>>> Sent: Thursday, May 05, 2011 9:05 AM
>>>>>> To: List for blind crafters and artists
>>>>>> Subject: [Nfb-krafters-korner] O T, question to other caregivers
>>>>>>
>>>>>> Hello all,
>>>>>> My sister Henrietta, asked me to inquire if any other blind caregiver 
>>>>>> has
>>>>>> used a PIC line and done an infusion.
>>>>>>
>>>>>> Her husband Dan is in the hospital  and may be sent home with a PIC 
>>>>>> line.
>>>>>> Since she is responsible for all his care she is concerned about
>>>>>> being able to    safely care for it.
>>>>>>
>>>>>> If any of you have had experience with this please let her know.
>>>>>> Also please keep Dan in your prayers.
>>>>>>
>>>>>> Carol
>>>>>>
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>>>>>>
>>>>>>
>>>>>> _______________________________________________
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>>>>>
>>>>>
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>>>>
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>>
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>
>
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