[Nfb-krafters-korner] Puerto Rico

[River Woman]

Heather, that is really really interesting. Isn't that strange that this 
disorder would appear so often to PR people?
Do they have any idea why that happens there?

Yes, it is a fun place to be. I really enjoy the folks there very much and I 
always look forward to our yearly time there. We love the art galleries, and 
the architecture, and the way of life in general. There is so much there 
that is so good, so different than in the US.

Lynda
----- Original Message ----- 
From: "Heather Kirkwood" <hkdawn at yahoo.com>
To: "List for blind crafters and artists" <nfb-krafters-korner at nfbnet.org>
Sent: Saturday, February 18, 2012 5:28 PM
Subject: Re: [Nfb-krafters-korner] Puerto Rico


Lynda, I was doing outreach for the Hermansky-Pudlak Syndrome Network. I 
posted a bit ago about what HPS is - it's the kind of albinism I have and it 
comes with a bunch of other medical problems. While it is very rare in the 
general world (estimated to be about 1 in 500,000 to 1 in 1,000,000 births), 
it is one of the most common genetic disorders among people of Puerto Rican 
ancestory occuring 1 in 1,800 births. So, at least half of our membership 
lives in Puerto Rico. Sadly, the texts used by medical schools there come 
from the mainland U.S. so even in Puerto Rico, it's hard for people to get a 
diagnosis because even there, there is little awareness of the syndrome. We 
go anywhere that will have us. We speak at medical schools, clinics, 
hospitals, civic organizations, agencies serving the blind etc. trying to 
enlist help to build awareness. We do media events and hold an annual 
conference in PR. Although I love going, I've always tried to not be the
 one to go because my Spanish is horrible. Fluent Spanish speakers are much 
more helpful. In recent years, however, for organizational reasons, there 
has been a good enough reason to spend the money to join the trip though. I 
have a ball, so I'm not complaining - grin! Needless to say, I have a lot of 
friends on the island!


Heather Kirkwood
Director of Outreach, Vice President
Hermansky-Pudlak Syndrome Network
One South Road
Oyster Bay, NY 11771
1 (800) 789-9HPS
www.hpsnetwork.org

Personal blog: www.heatherkirkwood.blogspot.com

Search the Web at www.goodsearch.com and choose the HPS Network as your 
charity!

HPS New York Conference - March 16-18, 2012

--- On Sat, 2/18/12, Ramona Walhof <ramona.walhof at gmail.com> wrote:


From: Ramona Walhof <ramona.walhof at gmail.com>
Subject: [Nfb-krafters-korner] Porto RicoRe: Question about knitting needles 
and flying
To: "List for blind crafters and artists" <nfb-krafters-korner at nfbnet.org>
Date: Saturday, February 18, 2012, 4:17 PM


I've never been there. Have a great time!

Ramona
----- Original Message ----- From: "River Woman" 
<riverwoman at zoominternet.net>
To: "List for blind crafters and artists" <nfb-krafters-korner at nfbnet.org>
Sent: Saturday, February 18, 2012 7:55 AM
Subject: Re: [Nfb-krafters-korner] Question about knitting needles and 
flying


> well, I do have a large tote bag that I take along in my carry on bag - so 
> I can fill it up and bring lots of PR coffee home with me! Want to try 
> fitting into that tote?
>
> I used to buy a lot of my gemstones there in OSJ, but the store is no 
> longer there. I bought wonderful things I never could find anywhere else - 
> I was so sad last year when I arrived and my store was gone. There is one 
> other store that is my favorite there - I buy lots of incense, skirts, and 
> tops there at the store I like so much. I love the colors of PR and my 
> house is painted in those colors inside and outside. Lots of COLOR -
> Lynda
> ----- Original Message ----- From: "Ramona Walhof" 
> <ramona.walhof at gmail.com>
> To: "List for blind crafters and artists" <nfb-krafters-korner at nfbnet.org>
> Sent: Friday, February 17, 2012 10:33 PM
> Subject: Re: [Nfb-krafters-korner] Question about knitting needles and 
> flying
>
>
>> Lynda, do you have space in your bag for an extra person?
>>
>> Ramona
>> ----- Original Message ----- From: "River Woman" 
>> <riverwoman at zoominternet.net>
>> To: "List for blind crafters and artists" 
>> <nfb-krafters-korner at nfbnet.org>
>> Sent: Friday, February 17, 2012 2:38 PM
>> Subject: Re: [Nfb-krafters-korner] Question about knitting needles and 
>> flying
>>
>>
>>> What are you reaching out for in PR?
>>> I am there every year in March or April. No summers in PR for me! We 
>>> love PR. I used to teach a course at the college on Puerto Rican 
>>> culture - it is a very special place. Very very wonderful people, great 
>>> art galleries and museums, and architecture that is spectacular. and, 
>>> the food - delicious! I took students there every year, and now that I 
>>> am retired my husband and I go every year. this year we will take my 
>>> sister and her husband along. We love taking people there and showing 
>>> them the special places all over the island. Yes, I will be knitting on 
>>> the way there, knitting when I am sitting in the town squares, and 
>>> knitting on the way home! I always knit something really nice to wear 
>>> when I leave for the journey to PR.
>>>
>>> Lynda
>>> ----- Original Message ----- From: "Heather Kirkwood" <hkdawn at yahoo.com>
>>> To: "List for blind crafters and artists" 
>>> <nfb-krafters-korner at nfbnet.org>
>>> Sent: Friday, February 17, 2012 3:43 PM
>>> Subject: Re: [Nfb-krafters-korner] Question about knitting needles and 
>>> flying
>>>
>>>
>>> Have a good time in Puerto Rico! I've been lucky to be able to go on an 
>>> outreach trip there for the past two summers. Leave it to me to go to 
>>> Puerto Rico in August! But, I loved it!
>>>
>>>
>>> Heather Kirkwood
>>> Director of Outreach, Vice President
>>> Hermansky-Pudlak Syndrome Network
>>> One South Road
>>> Oyster Bay, NY 11771
>>> 1 (800) 789-9HPS
>>> www.hpsnetwork.org
>>>
>>> Personal blog: www.heatherkirkwood.blogspot.com
>>>
>>> Search the Web at www.goodsearch.com and choose the HPS Network as your 
>>> charity!
>>>
>>> HPS New York Conference - March 16-18, 2012
>>>
>>> --- On Fri, 2/17/12, River Woman <riverwoman at zoominternet.net> wrote:
>>>
>>>
>>> From: River Woman <riverwoman at zoominternet.net>
>>> Subject: Re: [Nfb-krafters-korner] Question about knitting needles and 
>>> flying
>>> To: "List for blind crafters and artists" 
>>> <nfb-krafters-korner at nfbnet.org>
>>> Date: Friday, February 17, 2012, 2:24 PM
>>>
>>>
>>> No idea. I just know I lost my needles if Frankfurt because theyw ere 
>>> straight ones. Sooooo, I never intend to lose them again. and, flying as 
>>> a blind person is not a very nice thing to do anyway if you are alone - 
>>> they can be so nasty to you that you think you are a criminal - and you 
>>> are treated as one, too. So I take no chances on anything that even 
>>> remotely might cause me a problem any more. I'll be leaving for puerto 
>>> rico shortly with my circular needles. No problems!
>>>
>>> Lynda
>>> ----- Original Message ----- From: "Heather Kirkwood" <hkdawn at yahoo.com>
>>> To: "List for blind crafters and artists" 
>>> <nfb-krafters-korner at nfbnet.org>
>>> Sent: Friday, February 17, 2012 2:34 PM
>>> Subject: Re: [Nfb-krafters-korner] Question about knitting needles and 
>>> flying
>>>
>>>
>>> Okay, dumb question - why are the circular ones okay but the other ones 
>>> aren't? I'm using circular ones anyway, but geesh, if you really wanted 
>>> to do something rotten, I'd think it could be accompished either way. 
>>> Hmmmm..grin!
>>>
>>>
>>> Heather Kirkwood
>>> Director of Outreach, Vice President
>>> Hermansky-Pudlak Syndrome Network
>>> One South Road
>>> Oyster Bay, NY 11771
>>> 1 (800) 789-9HPS
>>> www.hpsnetwork.org
>>>
>>> Personal blog: www.heatherkirkwood.blogspot.com
>>>
>>> Search the Web at www.goodsearch.com and choose the HPS Network as your 
>>> charity!
>>>
>>> HPS New York Conference - March 16-18, 2012
>>>
>>> --- On Fri, 2/17/12, River Woman <riverwoman at zoominternet.net> wrote:
>>>
>>>
>>> From: River Woman <riverwoman at zoominternet.net>
>>> Subject: Re: [Nfb-krafters-korner] Question about knitting needles and 
>>> flying
>>> To: "List for blind crafters and artists" 
>>> <nfb-krafters-korner at nfbnet.org>
>>> Date: Friday, February 17, 2012, 1:16 PM
>>>
>>>
>>> Take ONLY circular needles to be sure they don't get taken away from 
>>> you! And, I take a letter opener instead of scissor to be sure I don't 
>>> lose my scissor, too.
>>> I knit everywhere I travel - the only place I had any trouble with 
>>> knitting needles was in Frankfort, GR. but I do not take any chances - I 
>>> use circulars because I know there will be no problems. Lynda
>>> ----- Original Message ----- From: "Heather Kirkwood" <hkdawn at yahoo.com>
>>> To: "List for blind crafters and artists" 
>>> <nfb-krafters-korner at nfbnet.org>
>>> Sent: Friday, February 17, 2012 1:57 PM
>>> Subject: [Nfb-krafters-korner] Question about knitting needles and 
>>> flying
>>>
>>>
>>> I've taken up knitting just in the last month (as mentioned in the last 
>>> post.) I'm about to leave again for another month on the road. I'll be 
>>> spending a lot of time in airplanes and airports and want to take my 
>>> knitting with me. Will TSA give me any hassle about the needles?
>>>
>>>
>>> Heather Kirkwood
>>> Director of Outreach, Vice President
>>> Hermansky-Pudlak Syndrome Network
>>> One South Road
>>> Oyster Bay, NY 11771
>>> 1 (800) 789-9HPS
>>> www.hpsnetwork.org
>>>
>>> Personal blog: www.heatherkirkwood.blogspot.com
>>>
>>> Search the Web at www.goodsearch.com and choose the HPS Network as your 
>>> charity!
>>>
>>> HPS New York Conference - March 16-18, 2012
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>>
>>
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>
>
>
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