[Nfb-krafters-korner] FW: My upcoming trip to NIH

Mon Mar 5 14:33:29 UTC 2012

Look who made it to my office, on thursday!  Heather got out of her meeting about 1:00 so I envited her to my office, since it was not busy.  We had a nice afternoon.  I told her how to get the shuddle to my office and met her in the lobby.  We went and got a snack and spent the rest of the afternoon at my desk, knitting, talking about crafts and I showed her how to do the knifty knitter.  One of her relatives, who was going to pick her up at the subway, turned out to work about 3 blocks from my office, so she came to my office building.  It sure was nice to meet someone from our group.  When she comes back in town for meetings or maybe treatment, she will have a friend to visit.

Terry

________________________________
From: Heather Kirkwood [mailto:hkdawn at yahoo.com]
Sent: Thursday, March 01, 2012 9:31 AM
To: Powers, Terry (NIH/OD/DEAS) [E]
Subject: RE: My upcoming trip to NIH

Terry,
Been trying to call your work number. It seems to not be working. Is there a typo? I noticed the last four numbers on your home and work are the same? I'm on campus, but probably won't be able to check e-mail again until my meeting is over. My cell is: 913 449 2682.

Heather Kirkwood
Director of Outreach, Vice President
Hermansky-Pudlak Syndrome Network
One South Road
Oyster Bay, NY 11771
1 (800) 789-9HPS
www.hpsnetwork.org<http://www.hpsnetwork.org/>

Personal blog: www.heatherkirkwood.blogspot.com<http://www.heatherkirkwood.blogspot.com/>

Search the Web at www.goodsearch.com<http://www.goodsearch.com/> and choose the HPS Network as your charity!

HPS New York Conference - March 16-18, 2012

--- On Mon, 2/27/12, Powers, Terry (NIH/OD/DEAS) [E] <Terry.Powers at nih.gov> wrote:

From: Powers, Terry (NIH/OD/DEAS) [E] <Terry.Powers at nih.gov>
Subject: RE: My upcoming trip to NIH
To: "'Heather Kirkwood'" <hkdawn at yahoo.com>
Date: Monday, February 27, 2012, 1:13 PM

Hi Heather;
It would be nice to meet with you.  Did you come to the meeting alone?  I can easily get to Bldg. 31, if we had some way to go somewhere, together.  When do you have to leave to go back home.  About the only thing, open, might be the blind stand, in that building.  It would be nice to have dinner and get to know each other.  What state are you from, again.  If some of your friends are there, maybe they might be able to give us a ride to someplace, close buy and I could plan someone to pick me up, later.
Lets talk about it.
My home number is
301-916-8549
work 301-496-8549

Terry

________________________________
From: Heather Kirkwood [mailto:hkdawn at yahoo.com]
Sent: Monday, February 27, 2012 11:01 AM
To: Powers, Terry (NIH/OD/DEAS) [E]
Subject: My upcoming trip to NIH

Hey Terry,
I hope all is well. Sorry it took me so long to get back to you. I'm in Washington and finally had a chance to read through the huge packet they sent me for this meeting. It turns out it's at building 31 on Thursday, March 1st. It's supposed to be over at 3:00 pm, but you know how these things can go. If it's running long, I can't really get up and leave - grin! I was wondering if you'd still like to try to meet, and if so, when you get off work and where might be a good place. I know there's a coffee place in the lobby of the Clinical Center - but I know very little about the rest of the campus. If it doesn't work out, no biggie. I'll be back to NIH sometime this summer as a patient.

Heather Kirkwood
Director of Outreach, Vice President
Hermansky-Pudlak Syndrome Network
One South Road
Oyster Bay, NY 11771
1 (800) 789-9HPS
www.hpsnetwork.org<http://www.hpsnetwork.org/>

Personal blog: www.heatherkirkwood.blogspot.com<http://www.heatherkirkwood.blogspot.com/>

Search the Web at www.goodsearch.com<http://www.goodsearch.com/> and choose the HPS Network as your charity!

HPS New York Conference - March 16-18, 2012