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<h2><b>Research Participation Request: Designed with
You</b></h2> <br><br>
The below research participant solicitation is being provided for
informational purposes only. The National Federation of the Blind has no
involvement in this research, but we believe that it may contribute to
our research mission.<br><br>
<br><br>
<h2><b>Research Title: Designed with You</b></h2>Being conducted by:
Johns Hopkins School of Nursing<br><br>
<h2><b>Purpose of the Study</b></h2>This research study is looking to
meet with unpaid family caregivers/care partners who have physical or
sensory disabilities of their own. From this research we hope to learn
more about this lived experience, identify unmet needs and partner with
these individuals to develop a tailored intervention.<br><br>
<h2><b>Role of the Participants and Anticipated Length of the Study
</b></h2>Each participant is asked to join a 30 minutes to 2 hour
in-person interview at the location, date and time of the participants
choosing. Most interviews are in the home as it is easier for people to
share about their daily activities of caring for their family member.
There is a second phase of the study that is IRB approved that would
include participation in a workshop with other participants, former
caregivers with disabilities and community health partners to identify
unmet needs and discuss possible interventions.<br><br>
<h2><b>Proposed Participant Compensation</b></h2>Yes, $50 VISA gift card
for the interview<br><br>
$40 VISA gift card for participation in the workshop<br><br>
<h2><b> <br><br>
<br>
Link or Instructions for Participants to Enter the Study </b></h2>Please
reach out to: <br><br>
Email:
<a href="mailto:designedwithyoustudy@gmail.com">
designedwithyoustudy@gmail.com</a> <br><br>
Phone: 443-842-6547<br><br>
<h2><b>Contact the following individual with any questions
</b></h2>Ashley Booth<br><br>
4105500510<br><br>
<a href="mailto:abooth8@jhmi.edu">abooth8@jhmi.edu</a> <br><br>
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