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</o:shapelayout></xml><![endif]--></head><body lang=EN-US link=blue vlink=purple><div class=WordSection1><p class=MsoNormal><span style='font-size:11.0pt;font-family:"Calibri","sans-serif";color:#1F497D'><o:p> </o:p></span></p><p class=MsoNormal><span style='font-size:11.0pt;font-family:"Calibri","sans-serif";color:#1F497D'><o:p> </o:p></span></p><div><div style='border:none;border-top:solid #B5C4DF 1.0pt;padding:3.0pt 0in 0in 0in'><p class=MsoNormal><b><span style='font-size:10.0pt;font-family:"Tahoma","sans-serif"'>From:</span></b><span style='font-size:10.0pt;font-family:"Tahoma","sans-serif"'> NFBNet-Members-List [mailto:nfbnet-members-list-bounces@nfbnet.org] <b>On Behalf Of </b>Blake, Lou Ann via NFBNet-Members-List<br><b>Sent:</b> Wednesday, November 08, 2017 7:36 PM<br><b>To:</b> nfbnet-members-list@nfbnet.org<br><b>Subject:</b> [Nfbnet-members-list] Research announcement for members list<o:p></o:p></span></p></div></div><p class=MsoNormal><o:p> </o:p></p><p class=MsoNormal style='margin-bottom:12.0pt'> <br>The below research participant solicitation is being provided for informational purposes only. The National Federation of the Blind has no involvement in this research, but we believe that it may contribute to our research mission.<br> <br><b>Research Study: Attitudes of People who are Blind/Low Vision toward Gene Editing Technology<br></b> <br>1. A research study is being conducted to learn about the thoughts, feelings, and attitudes of people with specific types of visual impairment (retinitis pigmentosa and Leber congenital amaurosis) toward a new type of technology that is being developed, called gene editing. <br>2. The goal of the study is to help policymakers and the scientific community better understand the views of people who could be affected by development of this technology. <br>3. Participation will consist of a short questionnaire that includes some information about yourself, followed by a <b>45 to 60 minute phone interview</b> asking about your life experiences and, after hearing some basic information about gene editing, your thoughts and attitudes towards it.<br>4. You do <b>not</b> need to know anything about gene editing to participate. <br>5. There is a brief questionnaire to determine eligibility. If you are selected to participate in an interview and complete it you will receive compensation for your time. <br>6. To be eligible to participate you must be over 18, speak English, and have a diagnosis of either Leber congenital amaurosis or retinitis pigmentosa.<br> <br>The study is being conducted by Lily Hoffman-Andrews, a Masters student in genetic counseling at Stanford University. <br> <br>If you are interested in participating, please fill out this brief online survey: <a href="https://redcap.stanford.edu/surveys/?s=7YDEAJX48Y">https://redcap.stanford.edu/surveys/?s=7YDEAJX48Y</a><br> <br>If you have any questions or would like to learn more, you can contact Lily at <a href="mailto:lilybha@stanford.edu">lilybha@stanford.edu</a>. For participant's rights questions, contact 1-866-680-2906.<br> <br> <br>Lou Ann Blake, J.D.<br>Deputy Executive Director, Jernigan Institute<br>200 East Wells Street, Baltimore, MD 21230<br>(410) 659-9314, extension 2221| <a href="mailto:lblake@nfb.org">lblake@nfb.org</a> <br> <br> <br><a href="https://nfb.org/"><span style='text-decoration:none'><img border=0 width=212 height=75 id="_x0000_i1025" src="cid:7.1.0.9.2.20171108203521.00727ca0@visi.com.4" alt="National Federation of the Blind"></span></a><br> <br> <a href="http://www.facebook.com/nationalfederationoftheblind"><span style='text-decoration:none'><img border=0 width=24 height=24 id="_x0000_i1026" src="cid:7.1.0.9.2.20171108203521.00727ca0@visi.com.5" alt=Facebook></span></a> <a href="https://twitter.com/NFB_Voice"><span style='text-decoration:none'><img border=0 width=24 height=24 id="_x0000_i1027" src="cid:7.1.0.9.2.20171108203521.00727ca0@visi.com.6" alt=Twitter></span></a> <a href="https://www.youtube.com/NationsBlind"><span style='text-decoration:none'><img border=0 width=24 height=24 id="_x0000_i1028" src="cid:7.1.0.9.2.20171108203521.00727ca0@visi.com.7" alt=Youtube></span></a><br> <br>The National Federation of the Blind is a community of members and friends who believe in the hopes and dreams of the nation’s blind. Every day we work together to help blind people live the lives they want. <br> <br> <br><br><o:p></o:p></p></div></body></html>