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</o:shapelayout></xml><![endif]--></head><body lang=EN-US link=blue vlink=purple style='word-wrap:break-word'><div class=WordSection1><p class=MsoNormal>Nathalie Martin writes:</p><div><p class=MsoNormal><o:p> </o:p></p></div><div><p class=MsoNormal>Here is the information promised at the San Juan Chapter meeting last night. <o:p></o:p></p><p class=MsoNormal>It includes an invitation to a support group that\u2019s happening tomorrow morning. <o:p></o:p></p></div><div><p class=MsoNormal><o:p> </o:p></p></div><div><p class=MsoNormal>Thank you very much!<o:p></o:p></p></div><p class=MsoNormal><o:p> </o:p></p><div><div><p class=MsoNormal>Nathalie Martin<br>National Federation Of The Blind of NM<br>801\u2013574\u20131268<o:p></o:p></p></div></div><div><p class=MsoNormal style='margin-bottom:12.0pt'><br>Begin forwarded message:<o:p></o:p></p></div><blockquote style='margin-top:5.0pt;margin-bottom:5.0pt'><div><p class=MsoNormal style='margin-bottom:12.0pt'><b>From:</b> Eva Potts <<a href="mailto:evapotts@hotmail.com">evapotts@hotmail.com</a>><br><b>Date:</b> August 22, 2025 at 10:11:27<span style='font-family:"Arial",sans-serif'>\u202f</span>AM MDT<br><b>Subject:</b> <b>Charles Bonnet Syndrome Information</b><o:p></o:p></p></div></blockquote><blockquote style='margin-top:5.0pt;margin-bottom:5.0pt'><div><p class=MsoNormal><span style='font-family:"Tahoma",sans-serif'>\ufeff</span> <o:p></o:p></p><div><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>Dear Natalie and NFB, San Juan Chapter Group Members,<o:p></o:p></span></p></div><div><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p></div><div><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>Thank you for the honor of presenting to the San Juan Chapter Of the NFB. I hope you all found the information relevant and will continue to ask questions.<o:p></o:p></span></p></div><div><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p></div><div><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>As promised, I've attached the information I mentioned on our call. Attached are the Letter to Doctors, our Brochure, and the MCL Information Packet. Please share this information with your family, friends, and health care providers. <o:p></o:p></span></p></div><div><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p></div><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>Getting the information out there about CBS... that's how we begin to normalize what is affecting the quality of life for many people. <o:p></o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>Here are some additional resources:<o:p></o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>On our website: <a href="https://marycarmelslight.com/">https://marycarmelslight.com/</a>, you can fill out the contact page to stay in touch and receive updates about our virtual support group. <o:p></o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>The Charles Bonnet Podcast: </span><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:#1155CC'><a href="https://cbsyndromepodcast.com/" target="_blank"><span style='color:#1155CC'>https://cbsyndromepodcast.com/</span></a></span><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p></o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>Shaimond Foye has recorded close to 50 podcasts dedicated to CBS. He is a caregiver for someone who lives with CBS.<o:p></o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>Esme's Umbrella: </span><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:#1155CC'><a href="https://www.charlesbonnetsyndrome.uk/" target="_blank"><span style='color:#1155CC'>https://www.charlesbonnetsyndrome.uk/</span></a></span><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p></o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>Judith Potts (no relation) heads this charitable organization in the UK where the majority of research is being conducted on CBS. Without them, I would have been completely lost. <o:p></o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>Our virtual support groups are held every Saturday from 12:00 pm to 2:00 pm EST. It's a great place to meet people who understand what you are going through. I wish it had been going on while my Mom was living. <span style='background:yellow'>Call Dr. Cusick at 502.439.0398 if you would like to know more about CBS and receive a deeper clinical perspective.</span><span style='background:white'> Our virtual support group invite is:</span><o:p></o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p><blockquote style='margin-top:5.0pt;margin-bottom:5.0pt'><p class=MsoNormal style='background:white'><span style='font-size:11.5pt;font-family:"Segoe UI",sans-serif;color:#242424'>Charles Bonnet Support Group Meeting August 23<sup>rd</sup> Noon Eastern<o:p></o:p></span></p><p class=elementtoproof style='margin:0in;background:white'><u><span style='font-size:11.5pt;font-family:Roboto;color:#96607D'><a href="https://us02web.zoom.us/j/8441224564?omn=87006361711" target="_blank" title="Protected by Outlook: https://us02web.zoom.us/j/8441224564?omn=87006361711. Click or tap to follow the link."><span style='color:#96607D'>https://us02web.zoom.us/j/8441224564?omn=87006361711</span></a></span></u><o:p></o:p></p><p class=MsoNormal style='background:white'><span style='color:black'><o:p> </o:p></span></p><p class=MsoNormal style='background:white'><span style='font-size:11.5pt;font-family:"Segoe UI",sans-serif;color:#242424'>Gary M. Cusick, PhD is inviting you to a scheduled Zoom meeting. <o:p></o:p></span></p><p class=elementtoproof style='margin:0in;background:white'><span style='font-size:11.5pt;font-family:"Segoe UI",sans-serif;color:#242424'>Join Zoom Meeting </span><u><span style='font-size:11.5pt;font-family:"Segoe UI",sans-serif;color:#96607D'><a href="https://www.google.com/url?q=https://us02web.zoom.us/j/8441224564?omn%3D87006361711&sa=D&source=calendar&usd=2&usg=AOvVaw1qAhfgMR8NOvaSHzV6ubra" target="_blank" title="Protected by Outlook: https://www.google.com/url?q=https://us02web.zoom.us/j/8441224564?omn%3D87006361711&sa=D&source=calendar&usd=2&usg=AOvVaw1qAhfgMR8NOvaSHzV6ubra. Click or tap to follow the link."><span style='color:#96607D'>https://us02web.zoom.us/j/8441224564?omn=87006361711</span></a></span></u><span style='font-size:11.5pt;font-family:"Segoe UI",sans-serif;color:#242424'> Meeting ID: 844 122 4564 --- </span><o:p></o:p></p><p class=elementtoproof style='margin:0in;background:white'><span style='font-size:11.5pt;font-family:"Segoe UI",sans-serif;color:#242424'>One tap mobile +13092053325,,8441224564# US +13126266799,,8441224564# US (Chicago) Join instructions </span><u><span style='font-size:11.5pt;font-family:"Segoe UI",sans-serif;color:#96607D'><a href="https://www.google.com/url?q=https://us02web.zoom.us/meetings/87006361711/invitations?signature%3D6yRNWkn0m-s92p1orxIbnJycS5jPyLm5lvZXzquXjxQ&sa=D&source=calendar&usd=2&usg=AOvVaw2IMHVGQZJIJAhGu4NeNKNW" target="_blank" title="Protected by Outlook: https://www.google.com/url?q=https://us02web.zoom.us/meetings/87006361711/invitations?signature%3D6yRNWkn0m-s92p1orxIbnJycS5jPyLm5lvZXzquXjxQ&sa=D&source=calendar&usd=2&usg=AOvVaw2IMHVGQZJIJAhGu4NeNKNW. Click or tap to follow the lin"><span style='color:#96607D'>https://us02web.zoom.us/meetings/87006361711/invitations?signature=6yRNWkn0m-s92p1orxIbnJycS5jPyLm5lvZXzquXjxQ</span></a></span></u><o:p></o:p></p><p class=elementtoproof style='mso-margin-top-alt:12.0pt;margin-right:0in;margin-bottom:12.0pt;margin-left:0in;background:white'><o:p> </o:p></p></blockquote><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>Please reach out if you need someone to talk to.<span style='background:#FFFF80'> The helpline number is 704.389.0160</span>. Or call Dr. Cusick; he's incredible and knows just about everything regarding CBS and sight loss. <o:p></o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>I hope this information is helpful to you. Take a deep breath and remember to take care of yourself as well.<o:p></o:p></span></p><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p><div><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p></div><div><p class=MsoNormal><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p></div><div id=Signature><p class=MsoNormal style='background:white'><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>Kind Regards,<o:p></o:p></span></p><p class=MsoNormal style='background:white'><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>Eva M. Potts, President & Co-founder<o:p></o:p></span></p><p class=MsoNormal style='background:white'><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>Mary Carmel's Light...<i>empowering people living with Charles Bonnet Syndrome</i><o:p></o:p></span></p><p class=MsoNormal style='background:white'><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>marycarmelslight.com<o:p></o:p></span></p><p class=MsoNormal style='background:white'><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>704.681.3473<o:p></o:p></span></p><p class=MsoNormal style='background:white'><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><a href="mailto:evapotts@hotmail.com">evapotts@hotmail.com</a><o:p></o:p></span></p><p class=MsoNormal style='background:white'><i><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>"It always seems impossible until it's done." Nelson Mandela</span></i><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p></o:p></span></p><div><p class=MsoNormal><b><i><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'>Disclaimer: Please note that I am not qualified to give medical advice or treatment and any guidance given or inferred must be discussed with your own family doctor or consultant. Views expressed in this email are those of the individual sender and not those of the MCL Board of Directors. The content of this email should be regarded as confidential to the intended recipient. We make efforts to protect our IT systems, however no responsibility is accepted for any malicious files inadvertently transmitted with this email.</span></i></b><span style='font-size:14.0pt;font-family:"Times New Roman",serif;color:black'><o:p></o:p></span></p></div></div></div></blockquote></div></body></html>