[Nfb-or] [Christian.Lavedan at vandapharma.com: Research on Blindness and Sleep - Oregon Association of Blind Students]

Tue Jul 27 22:38:53 UTC 2010

Hi everyone,

I just got this email about (yet another) blindness sleep study.  If 
you're interested, read on!  I obviously don't qualify as I do 
perceive light (and usually want it turned off!)  *grin*

Joseph

----- Forwarded message from Christian Lavedan <Christian.Lavedan at vandapharma.com> -----

Date: Tue, 27 Jul 2010 17:05:25 -0400
From: Christian Lavedan <Christian.Lavedan at vandapharma.com>
To: carter.tjoseph at gmail.com
Subject: Research on Blindness and Sleep - Oregon Association of Blind Students
Message-ID: <ED3447062B51B745976D5DBF136EE4DE02AD6395 at VCLUSTER.vandapharma.com>

Dear T. Joseph Carter

I am contacting you because I believe that some members of the NFB
Oregon Association of Blind Students may be interested in learning about
our effort to better understand sleep problems in people who are totally
blind.

I am from Vanda Pharmaceuticals, a pharmaceutical company located in
Rockville, MD. Vanda is developing a new investigational medicine to
treat the complaint of the sleep/wake cycle experienced by some
individuals with no light perception. For this reason, we are interested
in learning more about people who have no light perception blindness and
the problems they face with sleep or wakefulness. Below is an
announcement about upcoming sleep studies that some totally blind
individuals may be interested in.

We gladly welcome the opportunity to talk to you about our plans and to
learn more about you and your organization. We also would appreciate if
you could pass this information along to other individuals in your
organization and your community who may be interested by this research.

Sincerely,

C. Lavedan

Announcing Upcoming Sleep Studies in Totally Blind Individuals

Are you blind with no light perception?

Do you have problems sleeping or trouble with daytime sleepiness?

Non-24-hour sleep wake disorder occurs in some individuals who are
totally blind and lack the light sensitivity necessary to reset the
"body clock".  This can lead to problems with sleep and/or daytime
excessive sleepiness.

You can help researchers understand non-24-hour sleep wake disorder by
taking a brief phone survey. In addition, you will have the opportunity
to be informed of upcoming clinical studies recruiting in your area.

Survey Participants Need to:

*        be over 18 years of age

*        be blind with no light perception

*        have sleep problems and/or daytime sleepiness

Collected information will be kept strictly confidential.

For each completed survey, a donation of $25 up to $50,000 will be made
to the National Federation of the Blind.

If you want to participate in the survey, please call toll-free
1-877-708-1931, Monday-Friday between 9:00 AM and 5:00 PM ET.

Christian Lavedan, Ph.D.

Head of Discovery

Vanda Pharmaceuticals

9605 Medical Center Drive Suite 300

Rockville, MD 20850, USA

Tel: 240.599.4500

Fax: 301.294.1900

www.vandapharma.com <http://www.vandapharma.com/>

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----- End forwarded message -----