[nfb-talk] FW: {Disarmed} FW: A personal reportfrom ChairmanGordon Gund

James Aldrich jajkaldrich at gmail.com
Sat Apr 23 01:37:36 UTC 2011


Thank you Gloria!  You are right on!  Having blindness painted as the end 
isn't cool!

Jim


----- Original Message ----- 
From: "Gloria Whipple" <ladygloria at webband.com>
To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
Sent: Friday, April 22, 2011 10:33 AM
Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal reportfrom 
ChairmanGordon Gund


> James,
>
> Thanks for explaining what I wanted to say about this subject.
>
> I am glad someone is on my side!
>
>
> Gloria Whipple
> Corresponding Secretary
> Inland Empire chapter
> nfb of WA
>
>
> -----Original Message-----
> From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org] On
> Behalf Of James Aldrich
> Sent: Friday, April 22, 2011 09:20
> To: Jeanette Fortin; NFB Talk Mailing List
> Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report from
> ChairmanGordon Gund
>
> Hello all!
>
> I greatly dislike how this organization the foundation fighting blindness
> reinforces how terrible it is to be blind!  Yes!  It is no picnic at first
> when one loses vision I'm certain but we in the NFB are here to show there
> is life after vision loss or there is life when one is blind!  We have a
> more positive message!  Yes!  I'm all for preserving one's vision but if
> this isn't possible, I for one wish to see someone continue to live a full
> and enriching life as much as possible!  There are many who can't cope but
> there are more who do and they live quite well!  At least, they have a 
> life!
>
> It is far better to be blind today than it was a hundred years ago but 
> even
> at that time, I'm certain some lived meaningful lives even then!
>
> Jim
>
>
> ----- Original Message ----- 
> From: "Jeanette Fortin" <jeanette at fortin-home.com>
> To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
> Sent: Thursday, April 21, 2011 4:03 PM
> Subject: Re: [nfb-talk] FW: {Disarmed} FW: A personal report from
> ChairmanGordon Gund
>
>
>> well let me say this, why not fight blindness? if there is a way some
>> people can regain their vision or if doctors can help folks to save the
>> vision they have, go for it.
>> i got a call today from my cousin who works with hazzardess materials in
>> his job.  he was hit in the face with some costic liquid last week and
>> lost his vision for a couple of days.  Because he was rushed to a special
>> hospital and given specific treatment for his eyes which were damaged by
>> the costic liquid, the doctors are hopeful he will regain all or most of
>> his vision.
>> from some folks way of thinking it appears they think it would be just
>> fine for him to have lost  his vision and subsequently his job.  it gave
>> him a true appreciation of those of us who have dealt with vision loss 
>> for
>
>> years and has made him grateful for whatever  vision he has.
>> i think maybe the name of the organization, fighting blindness may offend
>> some folks, but if you understand how someone who had vision and loses it
>> feels maybe you would understand why the foundation is trying to find 
>> ways
>
>> to help folks either regain or not lose their vision, jeanette
>> ----- Original Message ----- 
>> From: "S Baker" <srbaker12 at hotmail.com>
>> To: "ANFBchat" <nfb-talk at nfbnet.org>
>> Sent: Thursday, April 21, 2011 3:31 PM
>> Subject: [nfb-talk] FW: {Disarmed} FW: A personal report from Chairman
>> Gordon Gund
>>
>>
>>>
>>>
>>>
>>>
>>> SRBaker
>>>
>>>
>>>
>>>
>>>
>>>
>>> From: srbaker12 at hotmail.com
>>> To: nfb-talk at nfbnet.org
>>> Subject: RE: [nfb-talk] {Disarmed} FW: A personal report from Chairman
>>> Gordon Gund
>>> Date: Thu, 21 Apr 2011 21:29:26 +0000
>>>
>>>
>>>
>>>
>>> This email solicits donations. It also has links to current research to
>>> correct blindness.There is nothing wrong with being blind, if that is
>>> what you want. If there is technology that can reverse,cure me, I am all
>>> for it. There is an old saying "There are none so blind as those who 
>>> will
>
>>> not see". Our eyes may not work but our brains do.
>>> Steve
>>>
>>>
>>>
>>> SRBaker
>>>
>>>
>>>
>>>> From: ladygloria at webband.com
>>>> To: nfb-talk at nfbnet.org
>>>> Date: Thu, 21 Apr 2011 14:19:37 -0700
>>>> Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from Chairman
>>>> Gordon Gund
>>>>
>>>> What in the heck is wrong with being blind!
>>>>
>>>>
>>>> Gloria Whipple
>>>> Corresponding Secretary
>>>> Inland Empire chapter
>>>> nfb of WA
>>>>
>>>>
>>>> -----Original Message-----
>>>> From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org]
>>>> On
>>>> Behalf Of S Baker
>>>> Sent: Thursday, April 21, 2011 14:14
>>>> To: AMoLList
>>>> Subject: [nfb-talk] {Disarmed} FW: A personal report from Chairman
>>>> Gordon
>>>> Gund
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> SRBaker
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> Date: Thu, 21 Apr 2011 16:00:24 -0500
>>>> From: GGund at FightBlindness.org
>>>> To: srbaker at charter.net
>>>> Subject: A personal report from Chairman Gordon Gund
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> Like you, Steven, I follow the work of the Foundation Fighting 
>>>> Blindness
>>>> closely. As a donor, I want to know that my donations make a 
>>>> difference.
>>>>
>>>> And believe me, they do. When I reflect on the last year and listen to
>>>> this
>>>> video, I am reminded that we have more clinical trials for sight-saving
>>>> treatments underway than ever before. Clearly, hope and optimism are
>>>> running high. Incredible strides have been made in the last few years,
>>>> and
>>>> these remarkable advances would not have been made without your support
>>>> of
>>>> the Foundation. They include:
>>>>
>>>> Vision Restored. We are continuing to build on remarkable gains in gene
>>>> therapy. As you may recall, in a Foundation-funded trial, 9-year-old
>>>> Corey
>>>> Haas and 19 others received a gene therapy treatment and can now see.
>>>> And
>>>> as the trial has expanded, participants have shown sustained 
>>>> improvement
>
>>>> in
>>>> vision. Building on this success, similar gene therapy treatments are
>>>> moving into clinical trials for choroideremia, Stargardt disease and
>>>> Usher
>>>> syndrome.
>>>>
>>>> Innovative Technology. The high-tech industry has a treatment I'm
>>>> incredibly excited about-- the world's first commercially available
>>>> artificial or "bionic" eye. Early funding from the Foundation was key 
>>>> to
>>>> getting this engineered retina off the ground. Building on the studies
>>>> we
>>>> funded, the light-sensing, implantable "chip" has been tested in a
>>>> clinical
>>>> trial in Europe with great results. In the study, people who were
>>>> profoundly
>>>> blind experienced improved vision that could help them to be more
>>>> independent. In fact, many can now see shapes and recognize large
>>>> letters.
>>>>
>>>> Groundbreaking Therapies. A research team funded by the Foundation
>>>> Fighting
>>>> Blindness developed an innovative technique for correcting the
>>>> disease-causing gene by using stem cells derived from a person's skin.
>>>> While
>>>> more work is needed to ensure safety, this advancement suggests that
>>>> doctors
>>>> may someday be able to treat a patient's retinal disease using their 
>>>> own
>>>> skin cells.
>>>> These few accomplishments barely begin to tell the story of all the
>>>> progress
>>>> that's being made. And this is why words can never express my personal
>>>> gratitude for your passionate and committed support.
>>>>
>>>> I hope you will take a few minutes to watch the video and see the
>>>> results of
>>>> your support and the hope it has generated. But most importantly, I 
>>>> hope
>
>>>> you
>>>> will see that research is progressing at a terrific rate. It's been a
>>>> long
>>>> time coming, but we crossed a critical threshold when our researchers
>>>> actually restored sight. It launched us into a new era when more and
>>>> more
>>>> people will have their sight saved or restored every year. A lot of 
>>>> work
>>>> remains. But we'll get there by continuing to work together.
>>>>
>>>> The Foundation Fighting Blindness values the support you give us by
>>>> donating, talking to your friends, and advocating for increased 
>>>> research
>>>> funding. As we continue our relentless pursuit to eradicate blindness,
>>>> we
>>>> hope you will continue your steadfast support of our mission. Thanks 
>>>> for
>>>> envisioning a bright future for the millions affected by retinal
>>>> degenerative diseases.
>>>>
>>>>
>>>>
>>>>
>>>> Sincerely,
>>>>
>>>> Gordon Gund
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>> Check us out on:
>>>>
>>>> Tell a Friend | Subscribe | Change email address | Unsubscribe
>>>> Foundation Fighting Blindness
>>>> www.FightBlindness.org
>>>> 7168 Columbia Gateway Drive, Suite 100
>>>> Columbia, MD 21046
>>>> 1-800-683-5555
>>>>
>>>> nonprofit software
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>>>>
>>>>
>>>> _______________________________________________
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>>>
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>>
>>
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