[nfb-talk] {Disarmed} FW: Apersonal reportfrom ChairmanGordon Gund

Gloria Whipple ladygloria at webband.com
Sat Apr 23 03:26:30 UTC 2011


Hi Constance,

I fully agree with you. I have had people tell me that I was crazy if I
didn't want my sight.

How do you miss something you don't have?

As far as I am concerned, it is respectful to be blind.


Gloria Whipple
Corresponding Secretary
Inland Empire chapter
nfb of WA


-----Original Message-----
From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org] On
Behalf Of Constance Canode
Sent: Friday, April 22, 2011 19:51
To: NFB Talk Mailing List
Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom ChairmanGordon
Gund

If someone came up to me today and said they could give me full 
sight, I would tell them unequivocally to get lost.  I am a 
well-adjusted person and I have lived my life in a happy and secure 
manner, I work, own a home and am happily married.  I have done 
everything I want to do as a blind person, travel, shop, etc.  The 
part of the brain that knows how to see has never worked on those of 
us who have never seen anything and it would be a tremendous 
aadjustment, the same as a sighted person losing their vision all at 
once.  Besides, they are not restoring what you have never 
had...sight. What a shock it would be to see a car coming towards you 
or your own face.  I have always joked that my face would probably be 
a disappointment, another reason that makeup has always been a priority for
me.
At 03:45 PM 4/22/2011, you wrote:
>I'm  uncertain as to what you mean.  I said I'd rather not be blind. 
>Are you saying you prefer to be blind?
>
>----- Original Message ----- From: "Gloria Whipple"
<ladygloria at webband.com>
>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>Sent: Friday, April 22, 2011 3:25 PM
>Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom 
>ChairmanGordon Gund
>
>
>>To each his own!
>>
>>
>>Gloria Whipple
>>Corresponding Secretary
>>Inland Empire chapter
>>nfb of WA
>>
>>
>>-----Original Message-----
>>From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org] On
>>Behalf Of John Heim
>>Sent: Friday, April 22, 2011 12:54
>>To: NFB Talk Mailing List
>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal reportfrom
ChairmanGordon
>>Gund
>>
>>Yes, Gloria, call me crazy but I'd prefer not to be blind.  Thanks for
>>caring though.
>>
>>
>>
>>----- Original Message ----- From: "Gloria Whipple"
<ladygloria at webband.com>
>>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>Sent: Friday, April 22, 2011 11:11 AM
>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal reportfrom
ChairmanGordon
>>Gund
>>
>>
>>>Bull. Are you in that category? I feel for you if you are.
>>>
>>>Sure it would be nice if sight could be given to those who want it, but
it
>>>isn't the end of the world!
>>>
>>>
>>>Gloria Whipple
>>>Corresponding Secretary
>>>Inland Empire chapter
>>>nfb of WA
>>>
>>>
>>>-----Original Message-----
>>>From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org] On
>>>Behalf Of John Heim
>>>Sent: Friday, April 22, 2011 07:02
>>>To: NFB Talk Mailing List
>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from
>>>ChairmanGordon
>>>Gund
>>>
>>>A lot of people don't like being blind. In fact, I would say that most
>>>people who are blind would prefer not to be blind.
>>>
>>>----- Original Message ----- From: "Gloria Whipple"
<ladygloria at webband.com>
>>>To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>>Sent: Thursday, April 21, 2011 4:19 PM
>>>Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from
>>>ChairmanGordon
>>>
>>>Gund
>>>
>>>
>>>>What in the heck is wrong with being blind!
>>>>
>>>>
>>>>Gloria Whipple
>>>>Corresponding Secretary
>>>>Inland Empire chapter
>>>>nfb of WA
>>>>
>>>>
>>>>-----Original Message-----
>>>>From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org]
On
>>>>Behalf Of S Baker
>>>>Sent: Thursday, April 21, 2011 14:14
>>>>To: AMoLList
>>>>Subject: [nfb-talk] {Disarmed} FW: A personal report from Chairman
Gordon
>>>>Gund
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>SRBaker
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>Date: Thu, 21 Apr 2011 16:00:24 -0500
>>>>From: GGund at FightBlindness.org
>>>>To: srbaker at charter.net
>>>>Subject: A personal report from Chairman Gordon Gund
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>Like you, Steven, I follow the work of the Foundation Fighting Blindness
>>>>closely. As a donor, I want to know that my donations make a difference.
>>>>
>>>>And believe me, they do.  When I reflect on the last year and listen to
>>>>this
>>>>video, I am reminded that we have more clinical trials for sight-saving
>>>>treatments underway than ever before.  Clearly, hope and optimism are
>>>>running high.  Incredible strides have been made in the last few years,
>>>>and
>>>>these remarkable advances would not have been made without your support
>>>>of
>>>>the Foundation. They include:
>>>>
>>>>Vision Restored.  We are continuing to build on remarkable gains in gene
>>>>therapy.  As you may recall, in a Foundation-funded trial, 9-year-old
>>>>Corey
>>>>Haas and 19 others received a gene therapy treatment and can now see.
>>>>And
>>>>as the trial has expanded, participants have shown sustained improvement
>>>>in
>>>>vision.  Building on this success, similar gene therapy treatments are
>>>>moving into clinical trials for choroideremia, Stargardt disease and
>>>>Usher
>>>>syndrome.
>>>>
>>>>Innovative Technology.  The high-tech industry has a treatment I'm
>>>>incredibly excited about-- the world's first commercially available
>>>>artificial or "bionic" eye. Early funding from the Foundation was key to
>>>>getting this engineered retina off the ground.  Building on the studies
>>>>we
>>>>funded, the light-sensing, implantable "chip" has been tested in a
>>>>clinical
>>>>trial in Europe with great results. In the study, people who were
>>>>profoundly
>>>>blind experienced improved vision that could help them to be more
>>>>independent.  In fact, many can now see shapes and recognize large
>>>>letters.
>>>>
>>>>Groundbreaking Therapies.  A research team funded by the Foundation
>>>>Fighting
>>>>Blindness developed an innovative technique for correcting the
>>>>disease-causing gene by using stem cells derived from a person's skin.
>>>>While
>>>>more work is needed to ensure safety, this advancement suggests that
>>>>doctors
>>>>may someday be able to treat a patient's retinal disease using their own
>>>>skin cells.
>>>>These few accomplishments barely begin to tell the story of all the
>>>>progress
>>>>that's being made.  And this is why words can never express my personal
>>>>gratitude for your passionate and committed support.
>>>>
>>>>I hope you will take a few minutes to watch the video and see the
results
>>>>of
>>>>your support and the hope it has generated. But most importantly, I hope
>>>>you
>>>>will see that research is progressing at a terrific rate.  It's been a
>>>>long
>>>>time coming, but we crossed a critical threshold when our researchers
>>>>actually restored sight. It launched us into a new era when more and
more
>>>>people will have their sight saved or restored every year.  A lot of
work
>>>>remains.  But we'll get there by continuing to work together.
>>>>
>>>>The Foundation Fighting Blindness values the support you give us by
>>>>donating, talking to your friends, and advocating for increased research
>>>>funding.  As we continue our relentless pursuit to eradicate blindness,
>>>>we
>>>>hope you will continue your steadfast support of our mission. Thanks for
>>>>envisioning a bright future for the millions affected by retinal
>>>>degenerative diseases.
>>>>
>>>>
>>>>
>>>>
>>>>Sincerely,
>>>>
>>>>Gordon Gund
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>
>>>>Check us out on:
>>>>
>>>>Tell a Friend  |  Subscribe  |  Change email address  |  Unsubscribe
>>>>Foundation Fighting Blindness
>>>>www.FightBlindness.org
>>>>7168 Columbia Gateway Drive, Suite 100
>>>>Columbia, MD 21046
>>>>1-800-683-5555
>>>>
>>>>nonprofit software
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>>>t
>>>
>>>
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