[nfb-talk] {Disarmed} FW:Apersonal reportfrom ChairmanGordon Gund

Ray Foret Jr rforetjr at att.net
Sun Apr 24 12:41:11 UTC 2011


Me too.  Hey, that goes for chips in the brain.  My brain is just fine the way God made it thank you very much.


Sincerely,
The Constantly Barefooted Ray!!!

Now a very proud and happy Mac user!!!
Skype name:
barefootedray

Facebook:
facebook.com/ray.foretjr.1

On Apr 24, 2011, at 7:29 AM, T. Joseph Carter wrote:

> I've known three people with significant vision loss who regained it.  They all had it, lost it, and got it back after a long period of time.  Three is hardly a large enough "N" for me to draw any conclusion, but the outcome is three for three so far:
> 
> Each of the three believed that limitations of their success were caused by limitations in their vision.  Regaining their vision would open the world of their dreams to them, they were certain.
> 
> They had the operation, each of them, and found that their flaws, once attributed to various stages of blindness, were actually theirs, not their eyes.
> 
> The result was bitterness and anger.  Of the three, only one has adjusted well and come to accept that his flaws are his own.  The other two wallow in bitterness and anger.
> 
> Do I ever convince myself that the things I cannot do are so because I cannot see?  I don't rightly know.  I think that I do not, but am I sure that I never do?  And even if that weren't the case, can I be sure that I would not find another way to make my life as a sighted person at least as hard as my life as a blind person?  What is my identity as a blind person worth to me?
> 
> No thanks, I'll pass on magic pills.
> 
> Joseph
> 
> 
> On Sat, Apr 23, 2011 at 09:50:32AM -0400, Brian Miller wrote:
>> For an examination of the experience of one of the very few individuals in
>> history to gain normal sight after a lifetime of blindness, read "Crashing
>> Through," the story of Mike May.  It's a great story, and his own
>> philosophical musings on the issue are worth considering.  He was a very
>> well adjusted blind guy by anyone's standards, and still decided to give
>> sight a try, with varying degrees of success.  Adjustment to sight is as
>> real and profound as adjusting to blindness.
>> 
>> As for me, as I had some sight when I was young, and now have none, I would
>> love to be able to see again -- but it's not because my life is miserable
>> now.  I think of it is simply another opportunity to enjoy an experience.
>> If someone asks me if I want to go to Paris, I'm not going to say, "No
>> thanks, I'm fine right here."  I'll say, sure, let's go!
>> 
>> Nevertheless, I'm not packing my bags for sight just yet... Besides, the
>> sight that is so often promised is usually of the pixelated kind, with very
>> limited definition, and at a tremendous cost.  I'm not willing to get wired
>> up like a cyborg for sight that is not better than the worse animae.
>> 
>> Brian Miller
>> -----Original Message-----
>> From: nfb-talk-bounces at nfbnet.org [mailto:nfb-talk-bounces at nfbnet.org] On
>> Behalf Of Bryan Schulz
>> Sent: Friday, April 22, 2011 11:20 PM
>> To: NFB Talk Mailing List
>> Subject: Re: [nfb-talk] {Disarmed} FW:Apersonal reportfrom ChairmanGordon
>> Gund
>> 
>> yea, and i have ocean front property in kansas to sell you.
>> 
>> Bryan Schulz
>> 
>> ----- Original Message -----
>> From: "Constance Canode" <satin-bear at sbcglobal.net>
>> To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
>> Sent: Friday, April 22, 2011 9:51 PM
>> Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom ChairmanGordon
>> Gund
>> 
>> 
>>> If someone came up to me today and said they could give me full sight,
>>> I would tell them unequivocally to get lost.  I am a well-adjusted
>>> person and I have lived my life in a happy and secure manner, I work,
>>> own a home and am happily married.  I have done everything I want to
>>> do as a blind person, travel, shop, etc.  The part of the brain that
>>> knows how to see has never worked on those of us who have never seen
>>> anything and it would be a tremendous aadjustment, the same as a
>>> sighted person losing their vision all at once.  Besides, they are not
>>> restoring what you have never had...sight. What a shock it would be to
>>> see a car coming towards you or your own face.  I have always joked
>>> that my face would probably be a disappointment, another reason that
>>> makeup has always been a priority for me.
>>> At 03:45 PM 4/22/2011, you wrote:
>>>> I'm  uncertain as to what you mean.  I said I'd rather not be blind.
>>>> Are you saying you prefer to be blind?
>>>> 
>>>> ----- Original Message ----- From: "Gloria Whipple"
>>>> <ladygloria at webband.com>
>>>> To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>>> Sent: Friday, April 22, 2011 3:25 PM
>>>> Subject: Re: [nfb-talk] {Disarmed} FW: Apersonal reportfrom
>>>> ChairmanGordon Gund
>>>> 
>>>> 
>>>>> To each his own!
>>>>> 
>>>>> 
>>>>> Gloria Whipple
>>>>> Corresponding Secretary
>>>>> Inland Empire chapter
>>>>> nfb of WA
>>>>> 
>>>>> 
>>>>> -----Original Message-----
>>>>> From: nfb-talk-bounces at nfbnet.org
>>>>> [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of John Heim
>>>>> Sent: Friday, April 22, 2011 12:54
>>>>> To: NFB Talk Mailing List
>>>>> Subject: Re: [nfb-talk] {Disarmed} FW: A personal reportfrom
>>>>> ChairmanGordon Gund
>>>>> 
>>>>> Yes, Gloria, call me crazy but I'd prefer not to be blind.  Thanks
>>>>> for caring though.
>>>>> 
>>>>> 
>>>>> 
>>>>> ----- Original Message ----- From: "Gloria Whipple"
>>>>> <ladygloria at webband.com>
>>>>> To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>>>> Sent: Friday, April 22, 2011 11:11 AM
>>>>> Subject: Re: [nfb-talk] {Disarmed} FW: A personal reportfrom
>>>>> ChairmanGordon Gund
>>>>> 
>>>>> 
>>>>>> Bull. Are you in that category? I feel for you if you are.
>>>>>> 
>>>>>> Sure it would be nice if sight could be given to those who want it,
>>>>>> but it isn't the end of the world!
>>>>>> 
>>>>>> 
>>>>>> Gloria Whipple
>>>>>> Corresponding Secretary
>>>>>> Inland Empire chapter
>>>>>> nfb of WA
>>>>>> 
>>>>>> 
>>>>>> -----Original Message-----
>>>>>> From: nfb-talk-bounces at nfbnet.org
>>>>>> [mailto:nfb-talk-bounces at nfbnet.org]
>>>>>> On
>>>>>> Behalf Of John Heim
>>>>>> Sent: Friday, April 22, 2011 07:02
>>>>>> To: NFB Talk Mailing List
>>>>>> Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from
>>>>>> ChairmanGordon Gund
>>>>>> 
>>>>>> A lot of people don't like being blind. In fact, I would say that
>>>>>> most people who are blind would prefer not to be blind.
>>>>>> 
>>>>>> ----- Original Message ----- From: "Gloria Whipple"
>>>>>> <ladygloria at webband.com>
>>>>>> To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
>>>>>> Sent: Thursday, April 21, 2011 4:19 PM
>>>>>> Subject: Re: [nfb-talk] {Disarmed} FW: A personal report from
>>>>>> ChairmanGordon
>>>>>> 
>>>>>> Gund
>>>>>> 
>>>>>> 
>>>>>>> What in the heck is wrong with being blind!
>>>>>>> 
>>>>>>> 
>>>>>>> Gloria Whipple
>>>>>>> Corresponding Secretary
>>>>>>> Inland Empire chapter
>>>>>>> nfb of WA
>>>>>>> 
>>>>>>> 
>>>>>>> -----Original Message-----
>>>>>>> From: nfb-talk-bounces at nfbnet.org
>>>>>>> [mailto:nfb-talk-bounces at nfbnet.org]
>>>>>>> On
>>>>>>> Behalf Of S Baker
>>>>>>> Sent: Thursday, April 21, 2011 14:14
>>>>>>> To: AMoLList
>>>>>>> Subject: [nfb-talk] {Disarmed} FW: A personal report from Chairman
>>>>>>> Gordon Gund
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> SRBaker
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> Date: Thu, 21 Apr 2011 16:00:24 -0500
>>>>>>> From: GGund at FightBlindness.org
>>>>>>> To: srbaker at charter.net
>>>>>>> Subject: A personal report from Chairman Gordon Gund
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> Like you, Steven, I follow the work of the Foundation Fighting
>>>>>>> Blindness closely. As a donor, I want to know that my donations
>>>>>>> make a difference.
>>>>>>> 
>>>>>>> And believe me, they do.  When I reflect on the last year and
>>>>>>> listen to this video, I am reminded that we have more clinical
>>>>>>> trials for sight-saving treatments underway than ever before.
>>>>>>> Clearly, hope and optimism are running high.  Incredible strides
>>>>>>> have been made in the last few years, and these remarkable advances
>>>>>>> would not have been made without your support of the Foundation.
>>>>>>> They include:
>>>>>>> 
>>>>>>> Vision Restored.  We are continuing to build on remarkable gains in
>>>>>>> gene therapy.  As you may recall, in a Foundation-funded trial,
>>>>>>> 9-year-old Corey Haas and 19 others received a gene therapy
>>>>>>> treatment and can now see.
>>>>>>> And
>>>>>>> as the trial has expanded, participants have shown sustained
>>>>>>> improvement in vision.  Building on this success, similar gene
>>>>>>> therapy treatments are moving into clinical trials for
>>>>>>> choroideremia, Stargardt disease and Usher syndrome.
>>>>>>> 
>>>>>>> Innovative Technology.  The high-tech industry has a treatment I'm
>>>>>>> incredibly excited about-- the world's first commercially available
>>>>>>> artificial or "bionic" eye. Early funding from the Foundation was
>>>>>>> key to getting this engineered retina off the ground.  Building on
>>>>>>> the studies we funded, the light-sensing, implantable "chip" has
>>>>>>> been tested in a clinical trial in Europe with great results. In
>>>>>>> the study, people who were profoundly blind experienced improved
>>>>>>> vision that could help them to be more independent.  In fact, many
>>>>>>> can now see shapes and recognize large letters.
>>>>>>> 
>>>>>>> Groundbreaking Therapies.  A research team funded by the Foundation
>>>>>>> Fighting Blindness developed an innovative technique for correcting
>>>>>>> the disease-causing gene by using stem cells derived from a
>>>>>>> person's skin.
>>>>>>> While
>>>>>>> more work is needed to ensure safety, this advancement suggests
>>>>>>> that doctors may someday be able to treat a patient's retinal
>>>>>>> disease using their own skin cells.
>>>>>>> These few accomplishments barely begin to tell the story of all the
>>>>>>> progress that's being made.  And this is why words can never
>>>>>>> express my personal gratitude for your passionate and committed
>>>>>>> support.
>>>>>>> 
>>>>>>> I hope you will take a few minutes to watch the video and see the
>>>>>>> results of your support and the hope it has generated. But most
>>>>>>> importantly, I hope you will see that research is progressing at a
>>>>>>> terrific rate.  It's been a long time coming, but we crossed a
>>>>>>> critical threshold when our researchers actually restored sight. It
>>>>>>> launched us into a new era when more and more people will have
>>>>>>> their sight saved or restored every year.  A lot of work remains.
>>>>>>> But we'll get there by continuing to work together.
>>>>>>> 
>>>>>>> The Foundation Fighting Blindness values the support you give us by
>>>>>>> donating, talking to your friends, and advocating for increased
>>>>>>> research funding.  As we continue our relentless pursuit to
>>>>>>> eradicate blindness, we hope you will continue your steadfast
>>>>>>> support of our mission. Thanks for envisioning a bright future for
>>>>>>> the millions affected by retinal degenerative diseases.
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> Sincerely,
>>>>>>> 
>>>>>>> Gordon Gund
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> 
>>>>>>> Check us out on:
>>>>>>> 
>>>>>>> Tell a Friend  |  Subscribe  |  Change email address  |
>>>>>>> Unsubscribe Foundation Fighting Blindness www.FightBlindness.org
>>>>>>> 7168 Columbia Gateway Drive, Suite 100 Columbia, MD 21046
>>>>>>> 1-800-683-5555
>>>>>>> 
>>>>>>> nonprofit software
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>>>>>>> nfb-talk:
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>>>>> 40webba
>>>>>>> nd.com
>>>>>>> 
>>>>>>> 
>>>>>>> _______________________________________________
>>>>>>> nfb-talk mailing list
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>>>>> heim.ne
>>>>>> t
>>>>>> 
>>>>>> 
>>>>>> _______________________________________________
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>>>>>> nd.com
>>>>>> 
>>>>>> 
>>>>>> _______________________________________________
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>>>>> heim.ne
>>>>> t
>>>>> 
>>>>> 
>>>>> _______________________________________________
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>>>>> 
>>>>> 
>>>>> _______________________________________________
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>>>> 
>>>> 
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>>> 
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>> 
>> 
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