[nfb-talk] A little concerned about this new drug aimed at totally blind population

[Mike Freeman]

Beth:

I absolutely agree with you! Although a few blind folks may have a sleep
disorder (I know of one such person), so do many sighted people and it is my
experience that when most blind persons with sleeping problems are put on a
regular schedule (i.e., no odd hours, working a nine-to-five day, etc.) and
get enough vigorous exercise, either on the job or as a program, their sleep
problems disappear. For example, I know a lady who used to have sleep
problems when she wasn't working. But when she started working a regular day
at a Head Start program, up and down all day with the kids, miracle of
miracles, her sleep problem disappeared!

So I'm very much a doubter. Trouble is that when I voice such skepticism
with much vigor, I get a lot of push-back from other blind people (both in
ACB and NFB),maintaining I don't know what I'm talking about.

Also, I know a couple of people who are participating in their so-called
studies and haven't received payment yet.

Can you say "snake-oil"?

Mike Freeman
 

-----Original Message-----
From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of
beth.wright at mindspring.com
Sent: Saturday, February 01, 2014 1:33 PM
To: nfb-talk at nfbnet.org
Subject: [nfb-talk] A little concerned about this new drug aimed at totally
blind population

Hi, folks. Just wanted to see if I could get the scoop on this new drug
that's supposed to correct the sleep/wake cycles in people who are totally
blind. I'm totally blind myself, but haven't had any problems with my sleep
patterns, so, even though I've seen lots of ads for it on blindness-related
web sites and know that they've been a major sponsor at our conventions, I
wasn't all that concerned about it one way or the other. As far as I can
tell, their ads have been pretty tastelike and their recruitment techniques,
fairly low key. Lately, though, they seem to be ramping up the message. From
what I can tell, they now seem to be claiming that this sleep/wake thing is
a serious problem, affcting around eighty thousand people in the US, the
majority ofthe totally-blind population. I think that's deceptive. I know
that they need to reach the largest number of people possible in order to
make a sufficient profit, but I don't think they should exaggerate the
seriousness of this s
 o-called disorder.

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