[nfb-talk] A little concerned about this new drug aimed at totally blind population

[Ray Foret Jr]

Well Mike, I’m with you all the way on this one.  I do believe that the condition exists, but, I  question its prevelency.


Sent from my Mac, the only computer with full accessibility for the blind built-in!

Sincerely,
The Constantly Barefooted Ray, still a very happy Mac and Iphone 5 user!

On Feb 1, 2014, at 3:48 PM, Mike Freeman <k7uij at panix.com> wrote:

> Beth:
> 
> I absolutely agree with you! Although a few blind folks may have a sleep
> disorder (I know of one such person), so do many sighted people and it is my
> experience that when most blind persons with sleeping problems are put on a
> regular schedule (i.e., no odd hours, working a nine-to-five day, etc.) and
> get enough vigorous exercise, either on the job or as a program, their sleep
> problems disappear. For example, I know a lady who used to have sleep
> problems when she wasn't working. But when she started working a regular day
> at a Head Start program, up and down all day with the kids, miracle of
> miracles, her sleep problem disappeared!
> 
> So I'm very much a doubter. Trouble is that when I voice such skepticism
> with much vigor, I get a lot of push-back from other blind people (both in
> ACB and NFB),maintaining I don't know what I'm talking about.
> 
> Also, I know a couple of people who are participating in their so-called
> studies and haven't received payment yet.
> 
> Can you say "snake-oil"?
> 
> Mike Freeman
> 
> 
> -----Original Message-----
> From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of
> beth.wright at mindspring.com
> Sent: Saturday, February 01, 2014 1:33 PM
> To: nfb-talk at nfbnet.org
> Subject: [nfb-talk] A little concerned about this new drug aimed at totally
> blind population
> 
> Hi, folks. Just wanted to see if I could get the scoop on this new drug
> that's supposed to correct the sleep/wake cycles in people who are totally
> blind. I'm totally blind myself, but haven't had any problems with my sleep
> patterns, so, even though I've seen lots of ads for it on blindness-related
> web sites and know that they've been a major sponsor at our conventions, I
> wasn't all that concerned about it one way or the other. As far as I can
> tell, their ads have been pretty tastelike and their recruitment techniques,
> fairly low key. Lately, though, they seem to be ramping up the message. From
> what I can tell, they now seem to be claiming that this sleep/wake thing is
> a serious problem, affcting around eighty thousand people in the US, the
> majority ofthe totally-blind population. I think that's deceptive. I know
> that they need to reach the largest number of people possible in order to
> make a sufficient profit, but I don't think they should exaggerate the
> seriousness of this s
> o-called disorder.
> 
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