[nfb-talk] A little concerned about this new drug aimed at totally blind population

[Larry D. Keeler]

Right Dave! I do know something about melatonin which these medications are 
based on. Whether synthetic or real, its a hormone produced by the pineal 
gland. It doesn't make one sleep but helps aid in sleep. I took it for a 
month. I slept a little better but not much. And, when I slept I woke up 
slightly more refreshed but not much. Also, the pineal gland atrothies when 
we age.
----- Original Message ----- 
From: "David Andrews" <dandrews at visi.com>
To: "NFB Talk Mailing List" <nfb-talk at nfbnet.org>
Sent: Saturday, February 01, 2014 6:05 PM
Subject: Re: [nfb-talk] A little concerned about this new drug aimed at 
totally blind population


> hMike:
>
> I won't say you don't know what you are talking about -- but most of your, 
> and other people's info is anecdotal.  I have a 5 day a week job, and make 
> it in most days (smile,) but have sleep problems.  So, I am sure you are 
> right in some cases, but not all.
>
> Dave
>
> At 03:48 PM 2/1/2014, you wrote:
>>Beth:
>>
>>I absolutely agree with you! Although a few blind folks may have a sleep
>>disorder (I know of one such person), so do many sighted people and it is 
>>my
>>experience that when most blind persons with sleeping problems are put on 
>>a
>>regular schedule (i.e., no odd hours, working a nine-to-five day, etc.) 
>>and
>>get enough vigorous exercise, either on the job or as a program, their 
>>sleep
>>problems disappear. For example, I know a lady who used to have sleep
>>problems when she wasn't working. But when she started working a regular 
>>day
>>at a Head Start program, up and down all day with the kids, miracle of
>>miracles, her sleep problem disappeared!
>>
>>So I'm very much a doubter. Trouble is that when I voice such skepticism
>>with much vigor, I get a lot of push-back from other blind people (both in
>>ACB and NFB),maintaining I don't know what I'm talking about.
>>
>>Also, I know a couple of people who are participating in their so-called
>>studies and haven't received payment yet.
>>
>>Can you say "snake-oil"?
>>
>>Mike Freeman
>>
>>
>>-----Original Message-----
>>From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of
>>beth.wright at mindspring.com
>>Sent: Saturday, February 01, 2014 1:33 PM
>>To: nfb-talk at nfbnet.org
>>Subject: [nfb-talk] A little concerned about this new drug aimed at 
>>totally
>>blind population
>>
>>Hi, folks. Just wanted to see if I could get the scoop on this new drug
>>that's supposed to correct the sleep/wake cycles in people who are totally
>>blind. I'm totally blind myself, but haven't had any problems with my 
>>sleep
>>patterns, so, even though I've seen lots of ads for it on 
>>blindness-related
>>web sites and know that they've been a major sponsor at our conventions, I
>>wasn't all that concerned about it one way or the other. As far as I can
>>tell, their ads have been pretty tastelike and their recruitment 
>>techniques,
>>fairly low key. Lately, though, they seem to be ramping up the message. 
>>From
>>what I can tell, they now seem to be claiming that this sleep/wake thing 
>>is
>>a serious problem, affcting around eighty thousand people in the US, the
>>majority ofthe totally-blind population. I think that's deceptive. I know
>>that they need to reach the largest number of people possible in order to
>>make a sufficient profit, but I don't think they should exaggerate the
>>seriousness of this s
>>  o-called disorder.
>
>
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