[nfb-talk] Vanda, what is all the fuss about?

[Mike Freeman]

Mike Freeman
sent from my iPhone


> On Feb 3, 2014, at 15:31, "Chris Nusbaum" <dotkid.nusbaum at gmail.com> wrote:
> 
> Peter,
> 
> Would you be willing to write such a resolution?
> 
> Chris
> 
> -----Original Message-----
> From: nfb-talk [mailto:nfb-talk-bounces at nfbnet.org] On Behalf Of Peter Donahue
> Sent: Monday, February 03, 2014 4:31 PM
> To: NFB Talk Mailing List
> Subject: Re: [nfb-talk] Vanda, what is all the fuss about?
> 
> Good afternoon Chris and everyone,
> 
>    The nagging question you should ask your friends is whether or not they underwent sleep studies before it was determined that the issue was Non 24 Hour Syndrome or whatever they call it. Having lived with an undiagnosed sleep disorder for years, one that was partly responsible for an incident that occurred at a past national convention in  which I was involved if these folks have any sense of respect for individuals and a recognition that blind people also suffer from sleep-related disorders having nothing to do with their blindness your friends should have undergone a sleep study before it was determined that Non 24 is their issue.
> 
>    I'm warning everyone now that if there is ever another situation like the one I found myself in in 2001 and someone is severely injured or killed and the person who committed this act is not only expelled from the NFB and lands in prison it's later discovered that an undiagnosed sleep disorder is partly to blame for these events they'll have the good folks at Vanda and their crappy publicity concerning the notion that all blind people suffer from Non 24 Hour Disorder and the NFB for not demanding to know if those doing this research performed sleep studies on their subjects to catch common sleep disorders before determining that Non 24 is the issue we will have failed the blind community miserably! I believe there should be some resolutions acted upon at this year's national convention calling Vanda out on their adds and that we demand that any blind individual believed to suffer from Non 24 Hour Disorder undergo a sleep study to rule out other sleep-related problems.
> 
> Peter Donahue
> 
> ----- Original Message -----
> From: "Chris Nusbaum" <dotkid.nusbaum at gmail.com>
> To: "'NFB Talk Mailing List'" <nfb-talk at nfbnet.org>
> Sent: Monday, February 03, 2014 2:35 PM
> Subject: Re: [nfb-talk] Vanda, what is all the fuss about?
> 
> 
>> Karen,
>> 
>> It's understandable that you feel the ad is making theI believe this would be an inappropriate subject for a resolution unless it were written in consultation with qualified medical personnel. We do not know enough about the medical protocols used to warrant nfb making official policy. Before a resolution would even be considered, a thorough investigation would have to be undertaken. For this sort of resolution to be taken seriously, it must be based on more than opinion. I believe this would be an inappropriate subject for a resolution unless it were written in consultation with qualified medical personnel. We do not know enough about the medical protocols used to warrant nfb making official policy. Before a resolution would even be considered, a thorough investigation would have to be undertaken. For this sort of resolution to be taken seriously, it must be based on more than opinion.