[NFB_of_Georgia] Fwd: [Nfbnet-members-list] Blind Adults Needed for Research Study on Use of Apple Watch and Apple Health/Apple Fitness

Wed Nov 1 21:22:39 UTC 2023

Information you may be interested in.

---------- Forwarded message ---------
From: Blake, Lou Ann via NFBNet-Members-List <nfbnet-members-list at nfbnet.org
>
Date: Wed, Nov 1, 2023 at 1:12 PM
Subject: [Nfbnet-members-list] Blind Adults Needed for Research Study on
Use of Apple Watch and Apple Health/Apple Fitness
To: nfbnet-members-list at nfbnet.org <nfbnet-members-list at nfbnet.org>

The below research participant solicitation is being provided for
informational purposes only. The National Federation of the Blind has no
involvement in this research, but we believe that it may contribute to our
research mission.

*Voice Assistant Use on Apple Watch: Enhancing Experiences for Blind Users*

   - Principal Investigator Name and Title: Soyoung Choi, PhD, RN,
   Assistant Professor
   - Department and Institution: Department of Kinesiology and Community
   Health, University of Illinois at Urbana-Champaign
   - Contact Information: soyoung at illinois.edu

We are conducting a survey (11 Questions) to understand how blind people
utilize the Apple Watch and Apple Health/Apple Fitness, in managing
physical activity, exercise, sleep, and related functions. Your feedback
will guide us in creating a more accessible smartphone app that leverages
natural voice commands to enhance the physical activity and exercise
experience for blind persons. Your participation is vital to the
development and success of this initiative.

We are inviting participants for our survey based on the following criteria:

   1. Age: Must be 18 years or older
   2. Diagnosis: Must have a confirmed diagnosis of either:

·         Severe visual impairment: This includes individuals who may have
some light perception but cannot clearly see shapes, movements, or
recognize people and objects even with corrective lenses.

·         Total blindness without light perception: This includes
individuals who cannot perceive any form of light or visual stimuli.

   1. Experience: Must be a current user of the Apple Watch and actively
   utilize apps like Apple Health/Apple Fitness to monitor physical activity,
   exercise, sleep, and similar activities.

Please note: Individuals with mild or moderate visual impairment are not
eligible for this survey. If you can navigate daily tasks without
significant visual aids or assistance owing to residual vision, you are not
eligible for this survey.

If you are willing to participate in this survey, please provide your
consent by agreeing to the online consent form, the text of which is
provided below.

*Online survey link

https://illinoisaces.co1.qualtrics.com/jfe/form/SV_brrAtBrxeSQLzzU

*[Consent Form]*

In the survey, there will be eight multiple-choice questions and three
open-ended questions for text entry. For this online survey study, we
intend to enroll a maximum of *100 participants*. The risks associated with
this study are minimal. Nonetheless, to safeguard the information
accumulated, the research team will implement stringent protective
measures. Identifiable data will be stored exclusively on a server, both
encrypted and password-protected, administered by the University of
Illinois at Urbana-Champaign. The assembled information will serve the
principal purpose of informing the development and dissemination of a novel
healthcare system for individuals with visual impairments.

This endeavor seeks not only to contribute valuable insights into the
experiences and needs of those with low vision and blindness concerning
physical activity but also to innovate solutions that can substantially
improve their health and well-being. By participating, you will be playing
a crucial role in the advancement of inclusive health technology solutions
and contributing to the betterment of lives for low-vision and blind
individuals.

*What procedures are involved?*

As an eligible participant, you will have the opportunity to complete a
30-minute online survey. The participants who complete the online survey
will be entered into a raffle for $30 (50 winners out of 100 participants).
Your decision whether or not to participate will not affect your current or
future dealings with the University of Illinois at Urbana-Champaign. If you
decide to participate, you are free to withdraw at any time without
affecting that relationship.

*Will my study-related information be kept confidential?*

Faculty, staff, students, and others with permission or authority to see
your study information will maintain its confidentiality to the extent
permitted and required by laws and university policies. The names or
personal identifiers of participants will not be published or presented.
Identifiable data collected from you will be stored in the research team’s
data repository for the future research. However, if you want to withdraw
your identifiable data, you can request the data removal at any time by
contacting the PI. Then, the PI will abolish your data immediately.

*Will I be reimbursed for any expenses or paid for my participation in this
research?*

The participants who complete the online survey will be entered into a
raffle for $30 (50 winners out of 100 participants).

*Can I withdraw or be removed from the study?*

If you decide to participate, you are free to withdraw your consent and
discontinue participation at any time. Your participation in this research
is voluntary. Your decision whether or not to participate, or to withdraw
after beginning participation, will not affect your current or future
dealings with the University of Illinois at Urbana-Champaign.

*How might the information collected in this study be shared in the future?*

We will keep the information we collect about you during this research
study for study recordkeeping and for potential use in future research
projects.  If the study data contain information that directly identifies
participants: Your information (e.g., email address) that can directly
identify you will be stored securely and separately from the rest of the
research information we collect from you. Identifiable data from this study
may be shared with the research community, with journals in which study
results are published, and with databases and data repositories used for
research. We will remove or code any personal information that could
directly identify you before the study data are shared. Despite these
measures, we cannot guarantee the anonymity of your personal data. The PI
would like to retain your contact information to contact you for future
research participation.  This information will not be shared with other
researchers but will only be retained for potential interest in research
with this PI.  We will ask for your consent to do so at the end of this
form. You can be in this current research study without agreeing to future
research use of your identifiable information. The results of this study
could be shared in articles and presentations but will not include any
information that identifies you unless you give permission for use of
information that identifies you in articles and presentations.

*Who should I contact if I have questions?*

If you have questions about this project, you may contact Soyoung Choi at
217-402-4128 or soyoung at illinois.edu. If you have any questions about your
rights as a participant in this study or any concerns or complaints, please
contact the University of Illinois at Urbana-Champaign Office for the
Protection of Research Subjects at 217-333-2670 or via email at
irb at illinois.edu.

*What are my rights as a research subject?*

If you have any questions about your rights as a research subject,
including concerns, complaints, or to offer input, you may call the Office
for the Protection of Research Subjects (OPRS) at 217-333-2670 or e-mail
OPRS at irb at illinois.edu.

Lou Ann Blake, J.D.

Director of Research Programs, Blindness Initiatives

200 East Wells Street, Baltimore, MD 21230
<https://www.google.com/maps/search/200+East+Wells+Street,+Baltimore,+MD+21230?entry=gmail&source=g>

410-659-9314, extension 2221 | lblake at nfb.org

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