[Nfbc-info] {Disarmed} Kansas City Star article in its entirety

[Angela Fowler]

Thanks, Chuck. Didn't realized that was a bad link. 

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From: nfbc-info-bounces at nfbnet.org [mailto:nfbc-info-bounces at nfbnet.org] On
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Sent: Wednesday, July 21, 2010 3:35 PM
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Subject: [Nfbc-info] {Disarmed} Kansas City Star article in its entirety

    As there was an extra space in the link to the article I have posted it
in its entirety.
Chuck
Wednesday, Jul 21, 2010
Posted on Wed, Jul. 21, 2010
Infant is returned to blind couple after state places her in protective
custody By LEE HILL KAVANAUGH The Kansas City Star Erika Johnson will never
be able to see her baby, Mikaela.

But for 57 days she couldn't keep her newborn close, smell her baby's
breath, feel her downy hair.

The state took away her 2-day-old infant into protective custody - because
Johnson and Mikaela's father are both blind.

No allegations of abuse, just a fear that the new parents would be unable to
care for the child.

On Tuesday, Johnson still couldn't stop crying, although Mikaela was back in
her arms.

"We never got the chance to be parents," she said. "We had to prove that we
could." 

Tuesday, she and Blake Sinnett knew their baby was finally coming home to
their Independence apartment, but an adjudication hearing was scheduled for
the afternoon on whether the state would stay involved in the rearing of the
baby. Then from a morning phone call to their attorney, they learned that
the state was dismissing their case. 

"Every minute that has passed that this family wasn't together is a tragedy.
A legal tragedy and a moral one, too," said Amy Coopman, their attorney.
"How do you get 57 days back?"

Arleasha Mays, a spokeswoman for the Missouri Department of Social Services,
said privacy laws prohibited her from speaking about specific cases. But she
added, "The only time we recommend a child be removed is if it's in imminent
danger."

Johnson said she knew the system eventually would realize its horrible
mistake, but she often was consumed with sadness. Sinnett tried his best to
keep Johnson hopeful.

For almost two months she and Sinnett could visit their baby only two or
three times a week, for just an hour at a time, with a foster parent
monitoring. 

"I'm a forgiving person," Johnson said, but she's resentful that people
assumed she was incapable.

"Disability does not equal inability," she said.

Representatives of the sightless community agreed that people were
well-meaning but blinded by ignorance.

Mikaela was born May 21 at Centerpoint Medical Center of Independence. The
doctors let Sinnett "see" her birth by feeling the crowning of her head.

For Johnson, hearing Mikaela's whimpers was a thrill. The little human
inside her all these months, the one who hiccupped and burped, who kicked
and moved, especially at night, was now a real person whom she loved more
than anything else she'd ever imagined.

In her overnight bag was Mikaela's special homecoming outfit, a green romper
from Johnson's mother, with matching bottoms and a baby bow. 

Questions arose within hours of Mikaela's birth, after Johnson's clumsy
first attempts at breast-feeding - something many new mothers experience. 

A lactation nurse noticed that Mikaela's nostrils were covered by Johnson's
breast. Johnson felt that something was wrong and switched her baby to her
other side, but not before Mikaela turned blue.

That's when the concerned nurse wrote on a chart: "The child is without
proper custody, support or care due to both of parents being blind and they
do not have specialized training to assist them."

Her words set into motion the state mechanisms intended to protect children
from physical or sexual abuse, unsanitary conditions, neglect or absence of
basic needs being met.

Centerpoint said it could not comment because of patient privacy laws, but
spokeswoman Gene Hallinan said, "We put the welfare of our patients as our
top priority."

A social worker from the state came by Johnson's hospital room and asked her
questions: How could she take her baby's temperature? Johnson answered: with
our talking thermometer. How will you take her to a doctor if she gets sick?
Johnson's reply: If it were an emergency, they'd call an ambulance. For a
regular doctor's appointment, they'd call a cab or ride a bus.

But it wasn't enough for the social worker, who told Johnson she would need
24-hour care by a sighted person at their apartment.

Johnson said they couldn't afford it, didn't need it.

"I needed help as a new parent, but not as a blind parent," Johnson said.

She recalled the social worker saying: " 'Look, because you guys are blind,
I don't feel like you can adequately take care of her.' And she left." 

The day of Johnson's discharge, another social worker delivered the news to
the couple that Mikaela was not going home with them. The parents returned
the next day to visit Mikaela before she left the hospital, but they were
barred from holding her.

"All we could do was touch her arm or leg," Johnson said.

The couple began making calls. Gary Wunder, president of the National
Federation of the Blind of Missouri, had trouble believing it at first.

"I needed to verify their whole story," he recalled. "We had to do due
diligence. . I found the couple to be intelligent and responsible.

"We knew this was an outrage that had taken place."

He notified Kansas City chapter president Shelia Wright, who visited the
24-year-olds. Hearing about the empty crib, the baby clothes, Wright
recalled, "I felt as helpless as I've ever felt in my life.

"I hurt so bad for them. This is unforgivable."

They rallied other associations for the blind nationwide. More than 100
people at a national convention in Dallas volunteered to travel to Kansas
City to protest and testify, both as blind parents and as the sighted
children of blind parents. (Mikaela has normal sight.)

They also hired Coopman, who watched the young couple with their baby girl
on Tuesday.

"I'm sorry," she said, wiping tears. "But this should not have happened."

Johnson kept a journal that Coopman is keeping closed for now. She indicates
that legal action will be taken.

"Whether a couple is visually impaired or deaf or in a wheelchair, the state
should not keep them from their children," she said.

Now breast-feeding is a lost option. And the beautiful newborn clothes
hanging in the closet went unworn, because their baby was growing bigger in
the arms of someone else.

The couple said they had tried to prove themselves to the sighted community
since their early years. Sinnett rode his bicycle on the street with the
help of a safety gadget. Johnson graduated from high school with honors. But
all the challenges they've endured over the years shrink compared to the
responsibility of caring for 10 pounds of squirming baby girl.

Johnson cuddled Mikaela. Gave her a bottle. Patted her back until she
burped. Mikaela gave a tiny smile.

In their 24 years, the couple said, they've both endured prejudice from
others. They don't want any other blind parent to suffer the same obstacle
they did.

Fifty-seven days are too precious to lose.

The Star's Laura Bauer contributed to this report. To reach Lee Hill
Kavanaugh, call               816-234-4420         816-234-4420 or send
e-mail to lkavanaugh at kcstar.com.
C 2010 Kansas City Star and wire service sources. All Rights
Reserved.http://www.kansascity.com/2010/07/20/2097290/infant-is-returned-to-
blind-couple.html
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