[Nfbc-info] NFBC-Info Digest, Vol 148, Issue 16

Jordan Mirander jordanmirander at icloud.com
Sun Sep 24 15:38:00 UTC 2017


I know but where would people  stay if there's members like  myself? I am good. I have two maybe three  three people in my room already. Matthew gip,   and myself

Sent from my iPhone

> On Sep 24, 2017, at 5:00 AM, nfbc-info-request at nfbnet.org wrote:
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> Today's Topics:
> 
>   1. A Unique Disability (nancy Lynn)
>   2. Re: A Unique Disability (DrV)
>   3. Re: Should I have kept my mouth shut? (Joy Stigile)
> 
> 
> ----------------------------------------------------------------------
> 
> Message: 1
> Date: Sat, 23 Sep 2017 12:27:57 -0500
> From: "nancy Lynn" <seabreeze.stl at gmail.com>
> To: "nfbmo list" <nfbmo at nfbnet.org>, "NFBC List"
>    <nfbc-info at nfbnet.org>,    "Seniors" <NFBNJ-Seniors at nfbnet.org>
> Subject: [Nfbc-info] A Unique Disability
> Message-ID: <90AFD65A7F9B490390E3D29D30C523B5 at nancyPC>
> Content-Type: text/plain; format=flowed; charset="utf-8";
>    reply-type=original
> 
> I got this from another list and thought I'd share. It gives us much to 
> think about.
> Hello
> The author of this brilliant thesis just passed. I wanted to share this with 
> everyone. I could not have said it any better myself.
> A UNIQUE DISABILITY
> Deaf-blindness is not simply deafness plus blindness.  It is not two 
> disabilities put together.  It is one unique disability.  Let me try to 
> explain.  I am totally blind having lost my vision gradually starting in 
> childhood.  In young adulthood I started losing my hearing.  With hearing 
> aids, I am able to understand some speech in a quiet environment.
> 
> When I was only blind, I could socialize with many people at a gathering. 
> Now, at best, I can converse with the individual next to me.
> 
> When I was only blind, I could interact with people in a room where the 
> radio was playing, dishes were clattering and laughter abounded.  Now, with 
> background noise, I can understand nothing and be alone in a crowd.
> 
> When I was only blind, I could sense sadness, joy, anger and agitation by a 
> person?s tone of voice.  That is no longer possible and the loss sometimes 
> causes misunderstandings.
> 
> When I was only blind, I could hear the softest footsteps.  Today, I am 
> repeatedly startled by the voice of a person who has entered the room with 
> no forewarning.
> 
> When I was only blind, I could identify a person by his/her voice.  Now, I 
> cannot tell who is talking to me unless I first hear a name.
> 
> When I was only blind, I could move quickly with my white cane and, in 
> familiar surroundings, without it.  Now, I walk cautiously to avoid bumping 
> people since I cannot hear if others are around or where they might be.
> 
> When I was only blind, I could retrieve a dropped item in seconds by hearing 
> where it fell.  No longer able to localize sound, I must now search on my 
> hands and knees and even then may not locate the item because it rolled 
> behind a door or into another room.
> 
> When I was only blind, I could stand unsupported in the middle of a room, 
> bend over, turn sharply and jump out of bed quickly.  This is no longer the 
> case.  Like many others with hearing loss, I have balance problems, which 
> prohibit abrupt movements.
> 
> When I was only blind, I had no difficulty hearing the ring of the telephone 
> or doorbell.  Today, even with amplified ringers, my responses are 
> inconsistent and I must consider using a vibrating alert system.
> 
> When I was only blind, talking on the telephone was fun.  Now, even with 
> hearing aids combined with a volume control phone, some words are missed and 
> misunderstandings occur.  Sometimes I use a Braille-type telephone, which is 
> slower and does not convey the emotional nuances of the voice.
> 
> When I was only blind, I spent hours listening to ?talking books?.  Most 
> voices now sound muffled.
> 
> When I was only blind, my husband and I enjoyed movies; he provided an 
> occasional description.  Movies are confusing and no longer pleasurable.
> 
> When I was only blind, life had minimal stress.  Now, piecing together bits 
> of information, localizing difficulties, balance problems, 
> misunderstandings, attitudes of others and unpredictable drops in hearing 
> increase daily stress and fatigue.
> 
> The list of challenges is equally long for individuals who are deaf and have 
> lost or are losing vision.  Deaf people rely on their vision to compensate 
> for their hearing loss.  Blind people use their hearing to compensate for 
> their sight loss.  Deaf-blind people are only able to compensate for the 
> loss of both sight and hearing by learning deaf-blind specific adaptations 
> that focus on developing and integrating touch, taste, smell, kinesthesia 
> and any remaining vision or hearing.
> 
> ?When I acknowledged the need and learned new ways of doing old things, my 
> splintered pieces combined into a complete, though narrowed, whole.  I 
> rejoice once again in being able -? differently able.?
> 
> Ruth Silver
> 1931-2017, leaves her brilliant thesis
> 
> 
> 
> 
> ------------------------------
> 
> Message: 2
> Date: Sat, 23 Sep 2017 11:06:56 -0700
> From: DrV <icdx1111 at gmail.com>
> To: NFB of California List <nfbc-info at nfbnet.org>
> Subject: Re: [Nfbc-info] A Unique Disability
> Message-ID: <7B9A0417-94AC-4185-BA5F-ED02BCD12D51 at gmail.com>
> Content-Type: text/plain;    charset=utf-8
> 
> Wow! 
> Powerful
> Thought-provoking
> Inspiring 
> Thank you for sharing this 
> DrV
> -----
> 
>> On Sep 23, 2017, at 10:27, nancy Lynn via NFBC-Info <nfbc-info at nfbnet.org> wrote:
>> 
>> I got this from another list and thought I'd share. It gives us much to think about.
>> Hello
>> The author of this brilliant thesis just passed. I wanted to share this with everyone. I could not have said it any better myself.
>> A UNIQUE DISABILITY
>> Deaf-blindness is not simply deafness plus blindness.  It is not two disabilities put together.  It is one unique disability.  Let me try to explain.  I am totally blind having lost my vision gradually starting in childhood.  In young adulthood I started losing my hearing.  With hearing aids, I am able to understand some speech in a quiet environment.
>> 
>> When I was only blind, I could socialize with many people at a gathering. Now, at best, I can converse with the individual next to me.
>> 
>> When I was only blind, I could interact with people in a room where the radio was playing, dishes were clattering and laughter abounded.  Now, with background noise, I can understand nothing and be alone in a crowd.
>> 
>> When I was only blind, I could sense sadness, joy, anger and agitation by a person?s tone of voice.  That is no longer possible and the loss sometimes causes misunderstandings.
>> 
>> When I was only blind, I could hear the softest footsteps.  Today, I am repeatedly startled by the voice of a person who has entered the room with no forewarning.
>> 
>> When I was only blind, I could identify a person by his/her voice.  Now, I cannot tell who is talking to me unless I first hear a name.
>> 
>> When I was only blind, I could move quickly with my white cane and, in familiar surroundings, without it.  Now, I walk cautiously to avoid bumping people since I cannot hear if others are around or where they might be.
>> 
>> When I was only blind, I could retrieve a dropped item in seconds by hearing where it fell.  No longer able to localize sound, I must now search on my hands and knees and even then may not locate the item because it rolled behind a door or into another room.
>> 
>> When I was only blind, I could stand unsupported in the middle of a room, bend over, turn sharply and jump out of bed quickly.  This is no longer the case.  Like many others with hearing loss, I have balance problems, which prohibit abrupt movements.
>> 
>> When I was only blind, I had no difficulty hearing the ring of the telephone or doorbell.  Today, even with amplified ringers, my responses are inconsistent and I must consider using a vibrating alert system.
>> 
>> When I was only blind, talking on the telephone was fun.  Now, even with hearing aids combined with a volume control phone, some words are missed and misunderstandings occur.  Sometimes I use a Braille-type telephone, which is slower and does not convey the emotional nuances of the voice.
>> 
>> When I was only blind, I spent hours listening to ?talking books?.  Most voices now sound muffled.
>> 
>> When I was only blind, my husband and I enjoyed movies; he provided an occasional description.  Movies are confusing and no longer pleasurable.
>> 
>> When I was only blind, life had minimal stress.  Now, piecing together bits of information, localizing difficulties, balance problems, misunderstandings, attitudes of others and unpredictable drops in hearing increase daily stress and fatigue.
>> 
>> The list of challenges is equally long for individuals who are deaf and have lost or are losing vision.  Deaf people rely on their vision to compensate for their hearing loss.  Blind people use their hearing to compensate for their sight loss.  Deaf-blind people are only able to compensate for the loss of both sight and hearing by learning deaf-blind specific adaptations that focus on developing and integrating touch, taste, smell, kinesthesia and any remaining vision or hearing.
>> 
>> ?When I acknowledged the need and learned new ways of doing old things, my splintered pieces combined into a complete, though narrowed, whole.  I rejoice once again in being able -? differently able.?
>> 
>> Ruth Silver
>> 1931-2017, leaves her brilliant thesis
>> 
>> 
>> _______________________________________________
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> 
> 
> 
> ------------------------------
> 
> Message: 3
> Date: Sat, 23 Sep 2017 13:13:44 -0700
> From: "Joy Stigile" <joystigile at gmail.com>
> To: "'NFB of California List'" <nfbc-info at nfbnet.org>
> Cc: "'Jordan Mirander'" <jordanmirander at icloud.com>
> Subject: Re: [Nfbc-info] Should I have kept my mouth shut?
> Message-ID: <05fe01d334a8$75d94640$618bd2c0$@gmail.com>
> Content-Type: text/plain;    charset="us-ascii"
> 
> Hi Jorden,
> You should always speak about the National Federation of the Blind.  Several
> people are still looking for roommates to share their room at the hotel if
> the hotel is full.  Never worry about having too many members at convention,
> as the saying goes "the more the merrier"!
> 
> Warmly, Joy
> 
> 
> -----Original Message-----
> From: NFBC-Info [mailto:nfbc-info-bounces at nfbnet.org] On Behalf Of Jordan
> Mirander via NFBC-Info
> Sent: Saturday, September 23, 2017 1:11 AM
> To: nfbc-info at nfbnet.org
> Cc: Jordan Mirander <jordanmirander at icloud.com>
> Subject: [Nfbc-info] Should I have kept my mouth shut?
> 
> Should I have kept my mouth shut on the train ride home? Can people still
> make reservations for the convention rate  at the Embassy suites Silicon
> Valley in Milpita's? What's the update on that? I met a lady who knows
> someone who would like to attend and I told her about it. And she said she
> would tell her. Should I have kept my mouth shut? 
> 
> Sent from my iPhone
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> End of NFBC-Info Digest, Vol 148, Issue 16
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