[NFBF-Tampa] To the nfb tampa chapter list

Thu May 7 15:16:43 UTC 2020

Hi, I'm sorry, Is your first name Gary? since I don't see a comma in the "from" category I'm not sure. This is Joy. I suggested the bath tub adaptation. I know that you can get a device to suction to the wall of the shower which could give you support while getting in the shower. The device is like an elongated handle or bar. We used one in our shower for my mother-in-law, we suctioned it to the the tile and it gave her stability and support as she needed it. There are other types of simple adaptations which can be made to showers without involving expensive modifications to the shower. Your doctors should know about them. Also the store that we went to to look at options was a medical supply store. You have to be careful when you look at things because some look good but are a waste of money. I hope that they are able to give you some relief for your pain.

Take care.

Joy 
-----Original Message-----
From: NFBF-Tampa <nfbf-tampa-bounces at nfbnet.org> On Behalf Of Ineko Gary via NFBF-Tampa
Sent: Wednesday, May 6, 2020 6:59 PM
To: Joy Relton via NFBF-Tampa <nfbf-tampa at nfbnet.org>
Cc: Ineko Gary <rubiigary at gmail.com>
Subject: Re: [NFBF-Tampa] To the nfb tampa chapter list

Oh yes my first doctor that was at BRANDON HEALTHPLEX he listened when I told him I was hurting near my spine area and he checked install that the areas around my spine was inflamed and he told me I suffer from muscle spasms because he checked the rest of my body and saw that the muscles in the rest of my body was all inflamed also and was tighten. So they see it in my charts that I do suffer with muscle spasms throughout my whole body. And I’m in pain from that when my muscle spasms. And then his next doctors name is Dr. mystery. He took Dr. Mark the meal place because he had to leave Fly to take care of his mom about three years ago. So Dr. mistreat came and took his place. And the first time when I told Dr. mystery I was hurting in my lower back on the right hand side he checked that area going down towards my right hip and into my leg. And that’s when he told me I have bursitis. And then when it started hurting again and it flared up worse he said it was my bursitis. And then that’s when he said this is twice you’ve been in pain and uncomfortable so I want to see why you are in so much pain with your muscle spasms and your bursitis on the right side. And that’s when we found out today that everything surrounding the bone area mom is fused into my bones in the right side and that’s why I’m in extra pain. But the lady I met today she said she wanted to hold off surgery to see if this therapy would help. And when she tried to straighten my leg I cried and scream and my two sign language interpreters Mine was there so he could sign to me and they need a hearing interpreter. So the lady will talk in the hearing interpreter which side to the death interpreter in a different reporter with tactile sign to me it’s handover hand. And then I would just sign and both interpreters was able to see it so I would sign in a different interpreter which side to the hearing interpreter and a hair interpreter will tell the doctor what we would say. This is how USF out there onWorld Drive this is how they schedule the interpreters I World Drive this is how they schedule the interpreters when I ask for interpreter they always get to one hearing in one day. But my regular doctors but I would only get one sign language interpreter and it would only be a hearing interpreter but at USF I will get to interpreters So she saw when I would lay on my stomach that my right knee will be bent towards my body we’re not all the way to my body but bent and she tried to straighten it and it was hard for her to straighten my right leg. And I told her this happens every every time I lay down no matter if it’s there in a daytime or if I’m going to bed at night my right leg never with straighten. And I tore even when I had to do a bone marrow transplant that they couldn’t do it on my right side because the right leg had to be straight so they did the bone marrow on my left side. But she said I will continue Of my life. Well everything will be fused to my phone because I was born like this. But they can try to see if they can help with the pain. And yes I will see if I can find something to put in my shower to help me because I live in an apartment. Home getting my left leg over the tub is not trouble sometimes I just need to take my hands and lift up my right leg to get it out the tub. But once I’m in the shower in a hot water hits my backside I stay in there for Oh wow and that the hot water hit me and it feels good to the middle of my back on down and the right side of my leg it feels good sometimes arm it helps where I can lift my leg to get up out the tub. Standing in the shower doesn’t hurt that bad because I have the hot water it’s very very hot so the hot water helps it. But I would tell my sister to see if she can find something that I can put in the bathroom or in the shower to help me to get in and out the shower for my right side. And I will mention it to my doctor When I go back. Who ever mentioned this idea I want to say thank you for mentioning this idea to me you have a beautiful and kind heart thank you so very much and I will keep y’all posted. But I’m not gonna let my legs stop me from traveling. And Frisco he knows I am in pain on the right side and he tries to do his body a certain way to help with the pain so he pays extra attention to my Body. Oh my other guy dogs they would ship their body a certain way. But Frisco I notice he does it more than my other three guide dogs. Work pal PAL he was 120 pounds so he was the biggest so sometimes I would have trouble standing up because of the right side and pal would put his head against my body and use his body or his hair to help me with like he would let me In on him because his back was so strong he was so strong. And tidy he was about 85 to 90 pounds he was a big boy also and he would let me use his body also but I didn’t like doing it. And I got to the point where I told Heidi no tidy mom is going to use the arm of the couch but if I was somewhere where the chair didn’t have an arm then he would let me use his body. I can’t do that with Frisco becaus Frisco is 65 pounds and his back is not that strong and I don’t want to hurt him. So What I do is I scoot to the edge of the chair that doesn’t have an arm to it and my interpreters would help me on one side and the doctor will call me on the other and help me get up or they would pull a table that’s on wheels over and hold the table why Eileen on it together. It’s because of the pain on the right side because I notice I can get up no problem with the left side but then I have trouble getting the right side situated in a let me use a table on wheels or to help me on the right side. Fighting with my doctors Yes they are finally listen to it. I kept telling him this pain is not in my head something is wrong the paint is not in my head there is something wrong. Because my mom raised me told me if you’re hurting in pain and I don’t never go away she said that is a sign something is wrong. And I always remember that for me being in pain like this all the time I knew something was not right and I keep telling them and telling them and telling them so they finally listen. And that’s when I saw that my nerves and everything that surrounds the bombs on the right side all of that is fuseTogether. And I was born like this. And I asked the doctor again I was born like this and she said yes. Because growing up the pain would hit me once every four months and I would always sit leaning towards the left I said leaning forward and she said that’s because I was born with everything fused to the bone and it’s not supposed to be like that. So one she scared to do the surgery and two she wants to see if therapy would help the painThank you again for give me an idea of finding something for the shower to help my right side to get in and out. I told the doctor that I’m trying to lose weight. And she said that it’s been like this all my life that means losing weight is good but it won’t help with the pain so I told her even when I was then I was like this weird pain with it so bad so she said she doesn’t have nothing to do with my weight but it is good that I tried to lose weight like I’ve been trying

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> On May 6, 2020, at 6:25 PM, Joy Relton via NFBF-Tampa <nfbf-tampa at nfbnet.org> wrote:
> 

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