[NFBF-Tampa] To the nfb tampa chapter list

Tue May 12 22:59:28 UTC 2020

Well, we might be very interested in booking a cruise once we get out of this current virus situation. 

Fortunately, we are not directly effected.

We have an RV. It's a Class B. It's small enough so that Garry can drive and park it in a regular parking spot in a parking lot. It's a Pleasure Way. We are still learning about different things and looking forward to using it. Vicky has her own little bed which fits nicely between the front seats. It  has a small microwave which works nicely as well as the stove and sink and small fridge. It has a wet room as well. I didn't mind using the shower but Garry prefers using the site showers.  

I really liked the pull trailors with the slide-outs, but I'm not driving and I can't put those kind of expectations on another. Also, it would mean buying a big truck which we wouldn't drive otherwise. If we lived out on the west coast most of my family drives those bigger pickups. But here, it's a few of them, but mostly golf carts.

Oh, I'm blushing, it toook me a couple of minutes to figure out "FB". Yes, I am on FB. I'm not really good with it yet. WE are only about twenty miles from Tampa so that would be convenient. 
-----Original Message-----
From: NFBF-Tampa <nfbf-tampa-bounces at nfbnet.org> On Behalf Of Ed Sanders via NFBF-Tampa
Sent: Monday, May 11, 2020 6:31 PM
To: Joy Relton via NFBF-Tampa <nfbf-tampa at nfbnet.org>
Cc: Ed Sanders <griffsanders at gmail.com>
Subject: Re: [NFBF-Tampa] To the nfb tampa chapter list

May we keep u guys in mind when thinking on booking another cruise out of Tampa? Are u on fb? What kind of RV do u guys have? Motor home or pull behind or fifthwheel? We use to have a fifthwheel.

On 5/11/2020 11:13 AM, Joy Relton via NFBF-Tampa wrote:
> I think that we would enjoy it. We have reservations for a river cruise in France in September. We are certain that we will have to cancel the reservations but we have until August to do so. We wouldn't cancel just take it next year. I have never done a cruise with a dog before. I figured this one might be a good one since we basically get off every day to walk and tour. Therefore, if Miss Vicky doesn't appreciate the "poop deck" we will have alternatives. WE are also looking forward to using the RV whish we has slept in two nights and which sits in our drive way.
>
>
>
> -----Original Message-----
> From: NFBF-Tampa <nfbf-tampa-bounces at nfbnet.org> On Behalf Of Ed 
> Sanders via NFBF-Tampa
> Sent: Monday, May 11, 2020 11:01 AM
> To: Joy Relton via NFBF-Tampa <nfbf-tampa at nfbnet.org>
> Cc: Ed Sanders <griffsanders at gmail.com>
> Subject: Re: [NFBF-Tampa] To the nfb tampa chapter list
>
> We just got off of one on March 12, which will make #4. Maybe time for 
> another cruise for u guys. smile
>
> On 5/10/2020 7:32 PM, Joy Relton via NFBF-Tampa wrote:
>> Hi Ed,
>>
>> Yes, we went on a cruse for our thirtieth wedding anniversary. That's the only one so far.
>>
>> How about you?
>>
>>
>> -----Original Message-----
>> From: NFBF-Tampa <nfbf-tampa-bounces at nfbnet.org> On Behalf Of Ed 
>> Sanders via NFBF-Tampa
>> Sent: Sunday, May 10, 2020 7:02 PM
>> To: Joy Relton via NFBF-Tampa <nfbf-tampa at nfbnet.org>
>> Cc: Ed Sanders <griffsanders at gmail.com>
>> Subject: Re: [NFBF-Tampa] To the nfb tampa chapter list
>>
>> Joy, have u and your husband ever been on a cruise?
>>
>> On 5/9/2020 11:27 AM, Joy Relton via NFBF-Tampa wrote:
>>> Hi Ed,
>>>
>>> I have forgotten the name of it but it is a skin cancer. They think that they got it all. They removed it through a procedure where they cut and they keep testing until they know that they have gotten it all. I had a similar procedure once next to my tear duct. It was about the size of a nickel and deeper than mine was. He got it stitches out on Thursday and he says it's itching, so that's good news.
>>>
>>>
>>>
>>> -----Original Message-----
>>> From: NFBF-Tampa <nfbf-tampa-bounces at nfbnet.org> On Behalf Of Ed 
>>> Sanders via NFBF-Tampa
>>> Sent: Friday, May 8, 2020 10:04 PM
>>> To: Joy Relton via NFBF-Tampa <nfbf-tampa at nfbnet.org>
>>> Cc: Ed Sanders <griffsanders at gmail.com>
>>> Subject: Re: [NFBF-Tampa] To the nfb tampa chapter list
>>>
>>> Hey, Joy good to hear from u. What kind of cancer did your husband have on his forehead, was it skin related? Is he receiving any treatment?
>>>
>>> On 5/8/2020 7:08 PM, Joy Relton via NFBF-Tampa wrote:
>>>> Hi All,
>>>>
>>>> Yes, it's me, Joy.
>>>>
>>>> I am doing well. My husband had some cancer removed from his forehead a few weeks ago and they think that they got it all. He had the stitches taken out yesterday. The area is itching, but that's good news because that means it is healing.
>>>>
>>>> I have been walking with my new dog guide Vicky between three and eighter-ad-a-half miles a day. The walking has been great. Her work is wonderful. However, I failed to notice the wear on the soles of my shoes and ended up at the doctor's today with Plantar fasciitis. The good news is that the homeopathic remedy of soaking my foot in epsom salt redeuced the swelling and the pain last night. I didn't have to have a steroid shot in my heel. Even though these shots usually heal they really hurt. So, I'm on antibiotics and will be reducing my mileage temperarily.
>>>>
>>>> The good news is, we have excellent health insurance. So our costs are low and we have doctors available via video as needed, or for office visits. Many in this country do not have such luxuries. WE are healthy and eating well and exercising well.
>>>>
>>>> I'm spending my time trying to renew connections with friends and family via Facebook and email. I'm sharpening my skills on the keyboard. I am doing some simple writing in the hopes of publishing some day. Oh yes, I have ordered a toaster-air fryer which should arrive any day. So, I'll be learning how to cook in my new device.
>>>>
>>>> Our daughter is teaching online to students with varying levels of access to internet. Also, many are working to help give the family necessary funding to make living expenses. She teaches English AS a Second Language to kids with low literacy skills and many have had interrupted or no formal education prior to coming to her high school.  We worry a little because she is asthmatic and her husband works in the hospital as a respiratory therapist. HE is very careful and she is being careful too. Unfortunately, some of the mold in the air has made walking outside a health risk in that she has had a couple of asthmatic attacks.
>>>>
>>>> Our son is considered "essential" in Low's and is putting in a lot of hours. He is keeping himself safe with proper social distancing, a face mask and hand washing. His wife has Fibromyalgia and other health conditions which make her venerable to viruses. On top of that Matt is renovating his house. He's showing us videos and talking to us and things look great!
>>>>
>>>> Garry's mom is doing well in a long-term skilled nursing home. Fortunately her dementia buffers her from absenses and much more. So, she doesn't know that we haven't been able to visit her.
>>>>
>>>> Other members of the family are remaining healthy. They are observing proper procedures.
>>>>
>>>> Our RV which we bought the weekend before the shut down in Florida remains in our drive way. WE are learning about maintenance and preparing it for the road. Our intent is to camp in Florida and eventually travel across country to visit our kids and my family.
>>>>
>>>> WE know that everything will open up more eventually. It may not be what we knew before. WE can work to make it better.
>>>>
>>>> I hope that all of you are keeping your health and your spirits up.
>>>>
>>>> If any of you have tips about diets for pre-diabetes I would appreciate it. I learned that I am pre-diabetic just about the time everything shut down. I lost my maternal grandmother in a diabetic coma at 37 before I was born, so I know that I need to take it seriously.
>>>>       I'm reading and learning how to use "My Fitness Pal" on my iPHone and hope to lose some weight while improving what I thought was a pretty healthy diet. AS long as I am learning and growing life continues.
>>>>
>>>> Take care.
>>>>
>>>> Hugs to you all as you go through these tough times. Vicky and I are thinking of you and keeping a positive attitude.
>>>>
>>>> Joy
>>>>
>>>> -----Original Message-----
>>>> From: NFBF-Tampa <nfbf-tampa-bounces at nfbnet.org> On Behalf Of Ineko 
>>>> Gary via NFBF-Tampa
>>>> Sent: Thursday, May 7, 2020 7:53 PM
>>>> To: NFB of Florida Tampa Chapter List <nfbf-tampa at nfbnet.org>
>>>> Cc: Ineko Gary <rubiigary at gmail.com>
>>>> Subject: Re: [NFBF-Tampa] To the nfb tampa chapter list
>>>>
>>>> Thank you for letting me know
>>>>
>>>> Sent from my iPhone
>>>>
>>>>> On May 7, 2020, at 7:07 PM, Ed Sanders via NFBF-Tampa <nfbf-tampa at nfbnet.org> wrote:
>>>>>
>>>>> It is not Charlie, rather she is Joy.
>>>>>
>>>>>> On 5/7/2020 1:05 PM, Ineko Gary via NFBF-Tampa wrote:
>>>>>> Hi Charlie,
>>>>>>
>>>>>> Gary is my last name. And I want to say thank you again for 
>>>>>> giving me the information. You are a big help I will save this 
>>>>>> email and show my doctor and my sister. Today I was laying in the 
>>>>>> bed and I had put ice up under me to help and the ice did help. I 
>>>>>> will check it out with me and my sisters have a free time thank 
>>>>>> you again
>>>>>>
>>>>>> Always
>>>>>> Ineko  Gary
>>>>>>
>>>>>> Sent from my iPhone
>>>>>>
>>>>>>>> On May 7, 2020, at 11:31 AM, Ed Sanders via NFBF-Tampa <nfbf-tampa at nfbnet.org> wrote:
>>>>>>> Joy, Ed here. how are u these days?
>>>>>>>
>>>>>>>> On 5/7/2020 11:16 AM, Joy Relton via NFBF-Tampa wrote:
>>>>>>>> Hi, I'm sorry, Is your first name Gary? since I don't see a comma in the "from" category I'm not sure. This is Joy. I suggested the bath tub adaptation. I know that you can get a device to suction to the wall of the shower which could give you support while getting in the shower. The device is like an elongated handle or bar. We used one in our shower for my mother-in-law, we suctioned it to the the tile and it gave her stability and support as she needed it. There are other types of simple adaptations which can be made to showers without involving expensive modifications to the shower. Your doctors should know about them. Also the store that we went to to look at options was a medical supply store. You have to be careful when you look at things because some look good but are a waste of money. I hope that they are able to give you some relief for your pain.
>>>>>>>>
>>>>>>>> Take care.
>>>>>>>>
>>>>>>>> Joy
>>>>>>>> -----Original Message-----
>>>>>>>> From: NFBF-Tampa <nfbf-tampa-bounces at nfbnet.org> On Behalf Of 
>>>>>>>> Ineko Gary via NFBF-Tampa
>>>>>>>> Sent: Wednesday, May 6, 2020 6:59 PM
>>>>>>>> To: Joy Relton via NFBF-Tampa <nfbf-tampa at nfbnet.org>
>>>>>>>> Cc: Ineko Gary <rubiigary at gmail.com>
>>>>>>>> Subject: Re: [NFBF-Tampa] To the nfb tampa chapter list
>>>>>>>>
>>>>>>>> Oh yes my first doctor that was at BRANDON HEALTHPLEX he 
>>>>>>>> listened when I told him I was hurting near my spine area and 
>>>>>>>> he checked install that the areas around my spine was inflamed 
>>>>>>>> and he told me I suffer from muscle spasms because he checked 
>>>>>>>> the rest of my body and saw that the muscles in the rest of my 
>>>>>>>> body was all inflamed also and was tighten. So they see it in 
>>>>>>>> my charts that I do suffer with muscle spasms throughout my 
>>>>>>>> whole body. And I’m in pain from that when my muscle spasms. And then his next doctors name is Dr.
>>>>>>>> mystery. He took Dr. Mark the meal place because he had to 
>>>>>>>> leave Fly to take care of his mom about three years ago. So Dr.
>>>>>>>> mistreat came and took his place. And the first time when I told Dr.
>>>>>>>> mystery I was hurting in my lower back on the right hand side 
>>>>>>>> he checked that area going down towards my right hip and into my leg.
>>>>>>>> And that’s when he told me I have bursitis. And then when it 
>>>>>>>> started hurting again and it flared up worse he said it was my 
>>>>>>>> bursitis. And then that’s when he said this is twice you’ve 
>>>>>>>> been in pain and uncomfortable so I want to see why you are in 
>>>>>>>> so much pain with your muscle spasms and your bursitis on the right side.
>>>>>>>> And that’s when we found out today that everything surrounding 
>>>>>>>> the bone area mom is fused into my bones in the right side and 
>>>>>>>> that’s why I’m in extra pain. But the lady I met today she said 
>>>>>>>> she wanted to hold off surgery to see if this therapy would help.
>>>>>>>> And when she tried to straighten my leg I cried and scream and 
>>>>>>>> my two sign language interpreters Mine was there so he could 
>>>>>>>> sign to me and they need a hearing interpreter. So the lady 
>>>>>>>> will talk in the hearing interpreter which side to the death 
>>>>>>>> interpreter in a different reporter with tactile sign to me it’s handover hand.
>>>>>>>> And then I would just sign and both interpreters was able to 
>>>>>>>> see it so I would sign in a different interpreter which side to 
>>>>>>>> the hearing interpreter and a hair interpreter will tell the 
>>>>>>>> doctor what we would say. This is how USF out there onWorld 
>>>>>>>> Drive this is how they schedule the interpreters I World Drive 
>>>>>>>> this is how they schedule the interpreters when I ask for 
>>>>>>>> interpreter they always get to one hearing in one day. But my 
>>>>>>>> regular doctors but I would only get one sign language 
>>>>>>>> interpreter and it would only be a hearing interpreter but at 
>>>>>>>> USF I will get to interpreters So she saw when I would lay on 
>>>>>>>> my stomach that my right knee will be bent towards my body 
>>>>>>>> we’re not all the way to my body but bent and she tried to 
>>>>>>>> straighten it and it was hard for her to straighten my right 
>>>>>>>> leg. And I told her this happens every every time I lay down no 
>>>>>>>> matter if it’s there in a daytime or if I’m going to bed at night my right leg never with straighten.
>>>>>>>> And I tore even when I had to do a bone marrow transplant that 
>>>>>>>> they couldn’t do it on my right side because the right leg had 
>>>>>>>> to be straight so they did the bone marrow on my left side. But 
>>>>>>>> she said I will continue Of my life. Well everything will be 
>>>>>>>> fused to my phone because I was born like this. But they can 
>>>>>>>> try to see if they can help with the pain. And yes I will see 
>>>>>>>> if I can find something to put in my shower to help me because 
>>>>>>>> I live in an apartment. Home getting my left leg over the tub 
>>>>>>>> is not trouble sometimes I just need to take my hands and lift 
>>>>>>>> up my right leg to get it out the tub. But once I’m in the 
>>>>>>>> shower in a hot water hits my backside I stay in there for Oh 
>>>>>>>> wow and that the hot water hit me and it feels good to the 
>>>>>>>> middle of my back on down and the right side of my leg it feels 
>>>>>>>> good sometimes arm it helps where I can lift my leg to get up 
>>>>>>>> out the tub. Standing in the shower doesn’t hurt that bad because I have the hot water it’s very very hot so the hot water helps it.
>>>>>>>> But I would tell my sister to see if she can find something 
>>>>>>>> that I can put in the bathroom or in the shower to help me to 
>>>>>>>> get in and out the shower for my right side. And I will mention 
>>>>>>>> it to my doctor When I go back. Who ever mentioned this idea I 
>>>>>>>> want to say thank you for mentioning this idea to me you have a 
>>>>>>>> beautiful and kind heart thank you so very much and I will keep y’all posted.
>>>>>>>> But I’m not gonna let my legs stop me from traveling. And 
>>>>>>>> Frisco he knows I am in pain on the right side and he tries to 
>>>>>>>> do his body a certain way to help with the pain so he pays 
>>>>>>>> extra attention to my Body. Oh my other guy dogs they would 
>>>>>>>> ship their body a certain way. But Frisco I notice he does it 
>>>>>>>> more than my other three guide dogs. Work pal PAL he was 120 
>>>>>>>> pounds so he was the biggest so sometimes I would have trouble 
>>>>>>>> standing up because of the right side and pal would put his 
>>>>>>>> head against my body and use his body or his hair to help me 
>>>>>>>> with like he would let me In on him because his back was so 
>>>>>>>> strong he was so strong. And tidy he was about 85 to 90 pounds 
>>>>>>>> he was a big boy also and he would let me use his body also but 
>>>>>>>> I didn’t like doing it. And I got to the point where I told 
>>>>>>>> Heidi no tidy mom is going to use the arm of the couch but if I 
>>>>>>>> was somewhere where the chair didn’t have an arm then he would 
>>>>>>>> let me use his body. I can’t do that with Frisco becaus Frisco 
>>>>>>>> is 65 pounds and his back is not that strong and I don’t want 
>>>>>>>> to hurt him. So What I do is I scoot to the edge of the chair 
>>>>>>>> that doesn’t have an arm to it and my interpreters would help 
>>>>>>>> me on one side and the doctor will call me on the other and 
>>>>>>>> help me get up or they would pull a table that’s on wheels over 
>>>>>>>> and hold the table why Eileen on it together. It’s because of 
>>>>>>>> the pain on the right side because I notice I can get up no 
>>>>>>>> problem with the left side but then I have trouble getting the 
>>>>>>>> right side situated in a let me use a table on wheels or to help me on the right side.
>>>>>>>> Fighting with my doctors Yes they are finally listen to it. I 
>>>>>>>> kept telling him this pain is not in my head something is wrong the paint is not in my head there is something wrong.
>>>>>>>> Because my mom raised me told me if you’re hurting in pain and 
>>>>>>>> I don’t never go away she said that is a sign something is wrong.
>>>>>>>> And I always remember that for me being in pain like this all 
>>>>>>>> the time I knew something was not right and I keep telling them 
>>>>>>>> and telling them and telling them so they finally listen. And 
>>>>>>>> that’s when I saw that my nerves and everything that surrounds 
>>>>>>>> the bombs on the right side all of that is fuseTogether. And I 
>>>>>>>> was born like this. And I asked the doctor again I was born 
>>>>>>>> like this and she said yes. Because growing up the pain would 
>>>>>>>> hit me once every four months and I would always sit leaning 
>>>>>>>> towards the left I said leaning forward and she said that’s 
>>>>>>>> because I was born with everything fused to the bone and it’s 
>>>>>>>> not supposed to be like that. So one she scared to do the 
>>>>>>>> surgery and two she wants to see if therapy would help the 
>>>>>>>> painThank you again for give me an idea of finding something 
>>>>>>>> for the shower to help my right side to get in and out. I told the doctor that I’m trying to lose weight.
>>>>>>>> And she said that it’s been like this all my life that means 
>>>>>>>> losing weight is good but it won’t help with the pain so I told 
>>>>>>>> her even when I was then I was like this weird pain with it so 
>>>>>>>> bad so she said she doesn’t have nothing to do with my weight 
>>>>>>>> but it is good that I tried to lose weight like I’ve been 
>>>>>>>> trying
>>>>>>>>
>>>>>>>> Sent from my iPhone
>>>>>>>>
>>>>>>>>>> On May 6, 2020, at 6:25 PM, Joy Relton via NFBF-Tampa <nfbf-tampa at nfbnet.org> wrote:
>>>>>>>> _______________________________________________
>>>>>>>> NFBF-Tampa mailing list
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>>>>>>>> o
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>>>>>>>> %40icloud.com
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