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<DIV style="FONT-SIZE: 12pt; FONT-FAMILY: 'Calibri'; COLOR: #000000">
<DIV>Marion;</DIV>
<DIV>So you are saying that if I am in the desert and someone hands me a drink
of water, if I do not agree with his views I should not take the water?</DIV>
<DIV>Is that what NFB believes?</DIV>
<DIV
style='FONT-SIZE: small; TEXT-DECORATION: none; FONT-FAMILY: "Calibri"; FONT-WEIGHT: normal; COLOR: #000000; FONT-STYLE: normal; DISPLAY: inline'>
<DIV style="FONT: 10pt tahoma">
<DIV><FONT size=3 face=Calibri>Sounds kinda arragont and
destructive.</FONT></DIV>
<DIV><FONT size=3 face=Calibri></FONT> </DIV>
<DIV><FONT size=3 face=Calibri>Just saying...</FONT></DIV>
<DIV><FONT size=3 face=Calibri></FONT> </DIV>
<DIV><FONT size=3 face=Calibri></FONT> </DIV>
<DIV><FONT size=3 face=Calibri></FONT> </DIV>
<DIV><FONT size=3 face=Calibri></FONT> </DIV>
<DIV style="BACKGROUND: #f5f5f5">
<DIV style="font-color: black"><B>From:</B> <A title=nfbf-tampa@nfbnet.org
href="mailto:nfbf-tampa@nfbnet.org">Marion Gwizdala via NFBF-Tampa</A> </DIV>
<DIV><B>Sent:</B> Wednesday, June 13, 2018 3:30 PM</DIV>
<DIV><B>To:</B> <A title=nfbf-tampa@nfbnet.org
href="mailto:nfbf-tampa@nfbnet.org">'NFB of Florida Tampa Chapter List'</A>
</DIV>
<DIV><B>Cc:</B> <A title=marion.gwizdala@verizon.net
href="mailto:marion.gwizdala@verizon.net">Marion Gwizdala</A> </DIV>
<DIV><B>Subject:</B> Re: [NFBF-Tampa] Fw: Foundation Fighting Blindness and
CheckedUp® Partner to Educate Retinal-Disease Patients About</DIV></DIV></DIV>
<DIV> </DIV></DIV>
<DIV
style='FONT-SIZE: small; TEXT-DECORATION: none; FONT-FAMILY: "Calibri"; FONT-WEIGHT: normal; COLOR: #000000; FONT-STYLE: normal; DISPLAY: inline'>
<DIV class=WordSection1>
<P class=MsoNormal><SPAN
style='FONT-SIZE: 11pt; FONT-FAMILY: "Calibri","sans-serif"; COLOR: #1f497d'>Dear
All,<o:p></o:p></SPAN></P>
<P class=MsoNormal><SPAN
style='FONT-SIZE: 11pt; FONT-FAMILY: "Calibri","sans-serif"; COLOR: #1f497d'><o:p></o:p></SPAN> </P>
<P class=MsoNormal><SPAN
style='FONT-SIZE: 11pt; FONT-FAMILY: "Calibri","sans-serif"; COLOR: #1f497d'>
The only issue I have with this is that it is offered by FFB. The Foundation
Fighting Blindness has historically taken a very dim, disempowering view of
blindness, including their #howiseeit campaign in which they challenged sighted
people to blindfold themselves and show how difficult it is to do common, every
day tasks, such as tieing their shoes or pouring a liquid. The NFB launched a
counter campaign in which we demonstrated how effectively we could do tasks
without eyesight. Perhaps I should take a video of me building out my recording
studio, laying tile, cutting the grass, or building my gazebo! I am skeptical of
any program offered by FFB and any resource they offer due to their negative
view of blindness in the quest to raise money by preying on the fears of the
public.<o:p></o:p></SPAN></P>
<P class=MsoNormal><SPAN
style='FONT-SIZE: 11pt; FONT-FAMILY: "Calibri","sans-serif"; COLOR: #1f497d'><o:p></o:p></SPAN> </P>
<P class=MsoNormal><SPAN
style='FONT-SIZE: 11pt; FONT-FAMILY: "Calibri","sans-serif"; COLOR: #1f497d'>
The next time someone gets angry with you because you object to their imposition
of their custodial help or their degrading comments, remember how degrading the
FFB’s campaign to portray us as incompetent lowers the expectations of the
public and the uninformed blind can be!<o:p></o:p></SPAN></P>
<P class=MsoNormal><SPAN
style='FONT-SIZE: 11pt; FONT-FAMILY: "Calibri","sans-serif"; COLOR: #1f497d'><o:p></o:p></SPAN> </P>
<P class=MsoNormal><SPAN
style='FONT-SIZE: 11pt; FONT-FAMILY: "Calibri","sans-serif"; COLOR: #1f497d'>Fraternally
yours,<o:p></o:p></SPAN></P>
<P class=MsoNormal><SPAN
style='FONT-SIZE: 11pt; FONT-FAMILY: "Calibri","sans-serif"; COLOR: #1f497d'>Marion<o:p></o:p></SPAN></P>
<P class=MsoNormal><SPAN
style='FONT-SIZE: 11pt; FONT-FAMILY: "Calibri","sans-serif"; COLOR: #1f497d'><o:p></o:p></SPAN> </P>
<P class=MsoNormal><SPAN
style='FONT-SIZE: 11pt; FONT-FAMILY: "Calibri","sans-serif"; COLOR: #1f497d'><o:p></o:p></SPAN> </P>
<DIV>
<DIV
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<P class=MsoNormal><B><SPAN
style='FONT-SIZE: 10pt; FONT-FAMILY: "Tahoma","sans-serif"'>From:</SPAN></B><SPAN
style='FONT-SIZE: 10pt; FONT-FAMILY: "Tahoma","sans-serif"'> NFBF-Tampa
[mailto:nfbf-tampa-bounces@nfbnet.org] <B>On Behalf Of </B>Jim Lovell via
NFBF-Tampa<BR><B>Sent:</B> Wednesday, June 13, 2018 11:40 AM<BR><B>To:</B> NFB
of Florida Tampa Chapter List<BR><B>Cc:</B> Jim Lovell<BR><B>Subject:</B>
[NFBF-Tampa] Fw: Foundation Fighting Blindness and CheckedUp® Partner to Educate
Retinal-Disease Patients About<o:p></o:p></SPAN></P></DIV></DIV>
<P class=MsoNormal><o:p></o:p> </P>
<DIV>
<DIV>
<DIV>
<P class=MsoNormal><SPAN
style='FONT-FAMILY: "Calibri","sans-serif"; COLOR: black'> <o:p></o:p></SPAN></P></DIV>
<DIV>
<DIV>
<DIV>
<P class=MsoNormal><SPAN
style='FONT-SIZE: 10pt; FONT-FAMILY: "Tahoma","sans-serif"; COLOR: black'> <o:p></o:p></SPAN></P></DIV>
<DIV>
<DIV>
<P class=MsoNormal style="BACKGROUND: whitesmoke"><B><SPAN
style='FONT-SIZE: 10pt; FONT-FAMILY: "Tahoma","sans-serif"; COLOR: black'>Subject:</SPAN></B><SPAN
style='FONT-SIZE: 10pt; FONT-FAMILY: "Tahoma","sans-serif"; COLOR: black'>
Foundation Fighting Blindness and CheckedUp® Partner to Educate Retinal-Disease
Patients About<o:p></o:p></SPAN></P></DIV></DIV></DIV>
<DIV>
<P class=MsoNormal><SPAN
style='FONT-FAMILY: "Calibri","sans-serif"; COLOR: black'> <o:p></o:p></SPAN></P></DIV></DIV>
<DIV>
<DIV>
<DIV>
<P class=MsoNormal style="MARGIN-BOTTOM: 12pt"><SPAN
style='FONT-FAMILY: "Calibri","sans-serif"; COLOR: black'><BR><A
href="https://www.prnewswire.com/news-releases/foundation-fighting-blindness-and-checkedup-partner-to-educate-retinal-disease-patients-about-research-resources-and-emerging-therapies-during-doctor-visits-300662565.html">https://www.prnewswire.com/news-releases/foundation-fighting-blindness-and-checkedup-partner-to-educate-retinal-disease-patients-about-research-resources-and-emerging-therapies-during-doctor-visits-300662565.html</A><o:p></o:p></SPAN></P></DIV>
<DIV id=article>
<DIV>
<H1
style="MARGIN-BOTTOM: 6pt; MARGIN-LEFT: 0in; MARGIN-RIGHT: 0in; mso-margin-top-alt: 0in; mso-line-height-alt: 14.5pt"><SPAN
style="FONT-SIZE: 28.5pt; FONT-FAMILY: -apple-system-font; COLOR: black">Foundation
Fighting Blindness and CheckedUp® Partner to Educate Retinal-Disease Patients
About Research, Resources, and Emerging Therapies During Doctor
Visits<o:p></o:p></SPAN></H1>
<H2
style="MAX-WIDTH: 100%; MARGIN-TOP: 0in; mso-line-height-alt: 15.25pt; -webkit-hyphens: manual"><SPAN
style="FONT-SIZE: 21pt; FONT-FAMILY: -apple-system-font; FONT-WEIGHT: normal; COLOR: black">CheckedUp
multimedia system will provide targeted disease and research information to
retinal-disease patients in waiting and exam rooms at 1,000 ophthalmology
practices in US.<o:p></o:p></SPAN></H2>
<DIV style="MARGIN-BOTTOM: 17.4pt; MAX-WIDTH: 100%; -webkit-hyphens: manual">
<P class=MsoNormal style="LINE-HEIGHT: 18pt"><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black"><A
href="https://www.prnewswire.com/news/foundation-fighting-blindness"><STRONG><SPAN
style="FONT-FAMILY: -apple-system-font; COLOR: #416ed2">Foundation Fighting
Blindness</SPAN></STRONG><SPAN style="COLOR: #416ed2">
</SPAN></A><o:p></o:p></SPAN></P></DIV>
<DIV>
<DIV style="MARGIN-BOTTOM: 13.8pt; MAX-WIDTH: 100%">
<P
style="MARGIN-BOTTOM: 6pt; MARGIN-LEFT: 0in; LINE-HEIGHT: 16.8pt; MARGIN-RIGHT: 0in; mso-margin-top-alt: 6.0pt"><SPAN
style="FONT-SIZE: 11pt; FONT-FAMILY: -apple-system-font; COLOR: black">News
provided by<o:p></o:p></SPAN></P>
<P
style="MARGIN-BOTTOM: 6pt; MAX-WIDTH: 100%; MARGIN-LEFT: 0in; LINE-HEIGHT: 16.8pt; MARGIN-RIGHT: 0in; mso-margin-top-alt: 6.0pt; -webkit-margin-start: 0px"><SPAN
style="FONT-SIZE: 11pt; FONT-FAMILY: -apple-system-font; COLOR: black">08:00
ET<o:p></o:p></SPAN></P></DIV></DIV>
<DIV>
<DIV>
<DIV>
<P style="LINE-HEIGHT: 18pt"><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black">COLUMBIA,
Md., June 11, 2018 /PRNewswire/ -- The Foundation Fighting Blindness (FFB) and
CheckedUp have formed a collaborative partnership to deliver patient-friendly
diagnostic and disease-management information to people with retinal diseases
such as age-related macular degeneration, retinitis pigmentosa, and Stargardt
disease during their visits to eye doctors. <o:p></o:p></SPAN></P>
<P style="MAX-WIDTH: 100%; LINE-HEIGHT: 18pt"><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black">FFB,
the world's largest private funder of research for inherited retinal diseases,
will provide visual and audio content on retinal conditions, helpful resources,
and emerging therapies for patients and caregivers through CheckedUp's
innovative patient engagement technologies in waiting areas and exam rooms at
doctors' offices. <o:p></o:p></SPAN></P>
<P style="MAX-WIDTH: 100%; LINE-HEIGHT: 18pt"><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black">"Our
goal is to ensure that patients and their caregivers understand the retinal
conditions, learn about the research underway to overcome their diseases, and
know about the valuable resources they can take advantage of now to improve care
and drive vision-saving and -restoring research," said Ben Yerxa, FFB's chief
executive officer.<o:p></o:p></SPAN></P>
<P style="MAX-WIDTH: 100%; LINE-HEIGHT: 18pt"><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black">Through
the CheckedUp engagement system, patients will learn about <A
href="http://www.myretinatracker.org/" target=_blank><SPAN
style="COLOR: #416ed2">www.MyRetinaTracker.org</SPAN></A>, FFB's free, secure
patient registry, which researchers and therapy developers from around the world
are using to better understand inherited retinal diseases, and design and launch
clinical trials for emerging therapies. Registrants in the system can learn
about clinical trials for which they may be eligible.<o:p></o:p></SPAN></P>
<P style="MAX-WIDTH: 100%; LINE-HEIGHT: 18pt"><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black">"The
Foundation Fighting Blindness is an invaluable resource for people and families
with retinal diseases. The Foundation's partnership with CheckedUp will enable
doctors to quickly and easily inform patients about those resources," said
Eugene de Juan, MD, Jean Kelly Stock Distinguished Professor of Ophthalmology,
at University of California, and CheckedUp board member. "Most important, it
will provide those affected with a clear path forward in managing their
condition and taking part in the drive for treatments and cures."
<o:p></o:p></SPAN></P>
<P style="MAX-WIDTH: 100%; LINE-HEIGHT: 18pt"><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black">Also,
people registered in <A href="http://www.myretinatracker.org/"
target=_blank><SPAN style="COLOR: #416ed2">www.MyRetinaTracker.org</SPAN></A>
are eligible for FFB's free genetic testing study to attempt to identify the
gene mutation causing their disease. Finding the patient's gene provides a
definitive diagnosis and better understanding which studies and emerging
therapies may be best for them. Genetic researchers, many of whom were funded by
FFB, have identified more than 260 genes, each of which, when mutated, can cause
a retinal disease. FFB currently funds approximately 80 prominent retinal
research institutions and companies around the world for development of gene,
stem-cell, and pharmaceutical therapies.<o:p></o:p></SPAN></P>
<P style="MAX-WIDTH: 100%; LINE-HEIGHT: 18pt"><B><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black">The
Foundation Fighting Blindness</SPAN></B><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black"> was
established in 1971. It has since raised more than $725 million for research
aimed at preventing, treating and curing blindness caused by retinal
degenerative diseases. More than 10 million Americans, and millions more
worldwide, have vision loss due to retinal degeneration. Through its support of
focused and innovative science, the Foundation drives the research that has and
will continue to provide treatments and cures for people affected by retinitis
pigmentosa, macular degeneration, Usher syndrome and other inherited retinal
diseases. FFB-CRI was established in 2004 to advance translational research and
clinical development of emerging therapies for inherited retinal
diseases.<o:p></o:p></SPAN></P>
<P style="MAX-WIDTH: 100%; LINE-HEIGHT: 18pt"><B><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black">CheckedUp</SPAN></B><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black"> is a
point of care company that actively engages patients before, during and after
visiting the medical practice. Our vision and trajectory is to be the premier
specialty point of care company providing condition specific, active patient
engagement through a variety of different touch points to help patients as they
make critical decisions about their treatment. We help practices and doctors
engage with their patient to help improve health outcomes and elevate the
patient experience.<o:p></o:p></SPAN></P>
<P style="MAX-WIDTH: 100%; LINE-HEIGHT: 18pt"><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black">Contact:
Ben Shaberman <BR><A href="mailto:bshaberman@fightblindness.org"
target=_blank><SPAN
style="COLOR: #416ed2">bshaberman@fightblindness.org</SPAN></A> <BR><A
href="http://www.fightblindness.org/" target=_blank><SPAN
style="COLOR: #416ed2">www.FightBlindness.org</SPAN></A> <BR>Office: <A
href="tel:(410)%20423-0634"><SPAN style="COLOR: #416ed2">(410)
423-0634</SPAN></A> <BR>Mobile: <A href="tel:(410)%20499-9158"><SPAN
style="COLOR: #416ed2">(410) 499-9158</SPAN></A><o:p></o:p></SPAN></P>
<P style="MAX-WIDTH: 100%; LINE-HEIGHT: 18pt"><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black">SOURCE
Foundation Fighting Blindness<o:p></o:p></SPAN></P>
<H4
style="MARGIN-BOTTOM: 12pt; MAX-WIDTH: 100%; MARGIN-LEFT: 0in; LINE-HEIGHT: 18pt; MARGIN-RIGHT: 0in; mso-margin-top-alt: 12.0pt"><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black">Related
Links<o:p></o:p></SPAN></H4>
<P style="MAX-WIDTH: 100%; LINE-HEIGHT: 18pt"><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black"><A
title="Link to http://www.MyRetinaTracker.org"
href="http://www.MyRetinaTracker.org" target=_blank><SPAN
style="COLOR: #416ed2">http://www.MyRetinaTracker.org</SPAN></A>
<o:p></o:p></SPAN></P></DIV></DIV></DIV>
<P style="MAX-WIDTH: 100%; LINE-HEIGHT: 18pt"><SPAN
style="FONT-SIZE: 14.5pt; FONT-FAMILY: -apple-system-font; COLOR: black">More
news releases in similar topics<o:p></o:p></SPAN></P></DIV></DIV></DIV>
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