[Nfbmo] FW: Requesting Help in Posting Informational Flyer for Study at UCLA

[Gary Wunder]

The information which appears below was sent by a researcher from UCLA. If
any of you can help him in his study, information as to how to do it appears
below.


  _____  

From: Carlos Carballo [mailto:carballo at jsei.ucla.edu] 
Sent: Thursday, July 29, 2010 2:49 PM
To: info at nfbmo.org
Subject: Requesting Help in Posting Informational Flyer for Study at UCLA


Dear Gary Wunder, 

Hi. This is Carlos Carballo with the Jules Stein Eye Institute at UCLA.
Please excuse the extra email. I am following up with an earlier email sent
to the NFB of Missouri. We would be very appreciative if we can have the
support of your organization in publicizing our nationwide, web-based eye
research study.  I have become familiar with the services you provide to the
blind & visually impaired citizens of the state of Missouri. Currently, we
are recruiting participants for the "Study on the Genetics of Age-Related
Maculopathy (GARM II)". Would it be possible for us to utilize one of your
media outlets (i.e. "The Blind Missourian" Newsletter, E-Mail List-Servs,
Blog, Website) to dispense information to your members on our study? 
 
If so, what would you require (or prohibit)? I have attached a flyer that we
are currently using to make people aware of the study. I can send (via
direct mail) several more hard/paper copies for those who may be interested
in the form of text pads. Below you'll find a brief description of our
study:

The Jules Stein Eye Institute at University of California, Los Angeles is
seeking clinical research volunteers. Dr. Michael B. Gorin is conducting a
nationwide study of genetic and other risk factors that contribute to the
development of age-related macular degeneration (also known as Age-Related
Maculopathy). Individuals or members of their family may be eligible to
participate in this observational study (this is not a treatment trial)
which does not require that individuals travel to UCLA, but allows
individuals to participate through a confidential and secure website.
Individuals will be required to give 1 saliva sample or have their blood
drawn (20 ml). Photographs of the retina will be covered by the study.

The study is looking for: 


1.	Individuals from 49 to 65 years old who have/had a least one parent
with macular degeneration. Spouses or partners will be included. 

2.	The parent(s) who have Age-Related Macular degeneration or have a
first-degree relative with the disease (siblings). 



If an individual wishes to learn more about this study, they can go to the
following website and read about the study with complete anonymity (and even
send questions to the research coordinators).

https://jseiclinres.jsei.ucla.edu/garm/

UCLA IRB Number: 08-11-008-02
Expiration Date: June 22, 2011

Feel free to contact me or one of our research coordinators TOLL-FREE at
1(800)286-8581 for more information. Thank you for your time and the work
you do.
-- 
Carlos Carballo
Clinical Research Coordinator
Retinal Disorders and Ophthalmic Genetics Division
David Geffen School of Medicine at UCLA
Jules Stein Eye Institute
100 Stein Plaza, DS-2-545
Los Angeles, CA 90095-7000
Phone:  (310)794-1250
Fax:        (310)794-5701
https://jseiclinres.jsei.ucla.edu/garm/
carballo at jsei.ucla.edu

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