[Nfbnet-members-list] Invitation to participate in research study on precision medicine
Blake, Lou Ann
LBlake at nfb.org
Tue Mar 6 01:37:58 UTC 2018
Dear Fellow Federationists,
The below research participant solicitation is
being provided for informational purposes only.
The National Federation of the Blind has no
involvement in this research, but we believe that
it may contribute to our research mission.
Invitation letter
Spanish: to read this invitation letter in
Spanish, go to
<https://drive.google.com/file/d/1zUOEzo4Q5CCAuw9oZwHJR7tRczJslB2z/view?usp=sharing>this
link
We are a team of researchers from Columbia
University Medical Center in New York. We are
conducting an online survey. The topic of the
survey is precision medicine research. Precision
medicine research looks at a persons genetics
(what they inherit from their families), their
environment, and lifestyle. This type of research
can help in preventing and diagnosing diseases and developing new treatments.
It is important that we learn what people with
disabilities think about precision medicine
research. We are NOT asking you to volunteer for
precision medicine research. We are asking you to
take our online Survey because you may have one of the following:
· Blindness or low vision
· Deafness or hard of hearing
· Physical disability
· Autism
· Intellectual or developmental disability
· Learning disability
· Mental health or psychosocial disability
The Survey asks what you think about precision
medicine research, and for some information about
you. Your answers are valuable to us and will
help researchers design the proposed precision
medicine study. You will receive a $25 gift card if you complete the Survey.
The Survey is in English, Spanish and American
Sign Language (ASL). It can be completed with
accessibility programs like screen readers.
If you decide to take the Survey, please go to
[<https://www.surveymonkey.com/r/TY5MJGL>Survey
Monkeys link] and choose English, Spanish or ASL.
You can also ask another person to help you.
It may take up to 25 minutes to finish the
Survey. You can also stop at any time.
Your answers will not be linked to your name, and
the researchers will not know your identity. If
you have questions about the survey, please contact:
Maya Sabatello, LLB, PhD, at ms4075 at columbia.edu; 646-774- 8616
Paul Appelbaum, MD, at psa21 at cumc.columbia.edu; 646-774-8630.
Thank you very much for considering our request.
Sincerely,
Maya Sabatello, LLB, PhD and Paul S. Appelbaum, MD, Columbia University
Lou Ann Blake, J.D.
Deputy Executive Director, Jernigan Institute
200 East Wells Street, Baltimore, MD 21230
(410) 659-9314, extension 2221| <mailto:lblake at nfb.org>lblake at nfb.org
<https://nfb.org/>
National Federation of the Blind
<http://www.facebook.com/nationalfederationoftheblind>
Facebook
<https://twitter.com/NFB_Voice>
Twitter
<https://www.youtube.com/NationsBlind>
Youtube
The National Federation of the Blind is a
community of members and friends who believe in
the hopes and dreams of the nations blind. Every
day we work together to help blind people live the lives they want.
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