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<p class="MsoNormal"><span style="font-size:14.0pt;font-family:"Arial",sans-serif">The below research participant solicitation is being provided for informational purposes only. The National Federation of the Blind has no involvement in this research, but we
believe that it may contribute to our research mission.<o:p></o:p></span></p>
<p class="MsoNormal" style="mso-line-height-alt:11.75pt;background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222"><o:p> </o:p></span></p>
<p class="MsoNormal" style="mso-line-height-alt:11.75pt;background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">Members of NFB are invited to participate in a study investigating the relationship between disability advocates
and genetic counselors, genetic counseling students, and genetic counseling training programs. This study aims to identify gaps in knowledge among genetic counselors regarding life with a disability and gather suggestions for how to improve disability training
in genetic counseling training programs.<o:p></o:p></span></p>
<p class="MsoNormal" style="mso-line-height-alt:10.45pt;background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222"><o:p> </o:p></span></p>
<p class="MsoNormal" style="mso-line-height-alt:10.45pt;background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">Participation would take a total of ~45 minutes. This includes:<o:p></o:p></span></p>
<p class="MsoNormal" style="mso-margin-top-alt:auto;mso-margin-bottom-alt:auto;margin-left:47.25pt;text-indent:-.25in;mso-list:l0 level1 lfo1;background:white">
<![if !supportLists]><span style="font-size:10.0pt;font-family:Symbol;color:#222222"><span style="mso-list:Ignore">·<span style="font:7.0pt "Times New Roman"">
</span></span></span><![endif]><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">A ~15-minute survey and consent process. <o:p></o:p></span></p>
<p class="MsoNormal" style="mso-margin-top-alt:auto;mso-margin-bottom-alt:auto;margin-left:47.25pt;text-indent:-.25in;mso-list:l0 level1 lfo1;background:white">
<![if !supportLists]><span style="font-size:10.0pt;font-family:Symbol;color:#222222"><span style="mso-list:Ignore">·<span style="font:7.0pt "Times New Roman"">
</span></span></span><![endif]><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">A ~30-minute interview. <o:p></o:p></span></p>
<p class="MsoNormal" style="mso-line-height-alt:11.75pt;background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">These will take place on Zoom, however, alternative forms of communications will be made available for those
who require other options.<o:p></o:p></span></p>
<p class="MsoNormal" style="mso-line-height-alt:11.75pt;background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222"><o:p> </o:p></span></p>
<p class="MsoNormal" style="mso-line-height-alt:11.75pt;background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">There are no direct benefits for participating. <u>You are encouraged to forward this study along to advocates
who are passionate about improving disability education in healthcare programs.</u> <o:p></o:p></span></p>
<p class="MsoNormal" style="mso-line-height-alt:11.75pt;background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222"><o:p> </o:p></span></p>
<p class="MsoNormal" style="mso-line-height-alt:11.75pt;background:white"><b><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">Requirements for participation:</span></b><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222"><o:p></o:p></span></p>
<p class="MsoNormal" style="mso-margin-top-alt:auto;mso-margin-bottom-alt:auto;margin-left:47.25pt;text-indent:-.25in;mso-list:l1 level1 lfo2;background:white">
<![if !supportLists]><span style="font-size:10.0pt;font-family:Symbol;color:#222222"><span style="mso-list:Ignore">·<span style="font:7.0pt "Times New Roman"">
</span></span></span><![endif]><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">Self-identify as having a disability. <o:p></o:p></span></p>
<p class="MsoNormal" style="mso-margin-top-alt:auto;mso-margin-bottom-alt:auto;margin-left:47.25pt;text-indent:-.25in;mso-list:l1 level1 lfo2;background:white">
<![if !supportLists]><span style="font-size:10.0pt;font-family:Symbol;color:#222222"><span style="mso-list:Ignore">·<span style="font:7.0pt "Times New Roman"">
</span></span></span><![endif]><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">Have a known genetic component to their disability.<o:p></o:p></span></p>
<p class="MsoNormal" style="mso-margin-top-alt:auto;mso-margin-bottom-alt:auto;margin-left:47.25pt;text-indent:-.25in;mso-list:l1 level1 lfo2;background:white">
<![if !supportLists]><span style="font-size:10.0pt;font-family:Symbol;color:#222222"><span style="mso-list:Ignore">·<span style="font:7.0pt "Times New Roman"">
</span></span></span><![endif]><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">Are actively involved in at least 1 advocacy group or organization<o:p></o:p></span></p>
<p class="MsoNormal" style="mso-margin-top-alt:auto;mso-margin-bottom-alt:auto;margin-left:47.25pt;text-indent:-.25in;mso-list:l1 level1 lfo2;background:white">
<![if !supportLists]><span style="font-size:10.0pt;font-family:Symbol;color:#222222"><span style="mso-list:Ignore">·<span style="font:7.0pt "Times New Roman"">
</span></span></span><![endif]><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">Either have had genetic counseling themselves, or have family or friends who have had genetic counseling.<o:p></o:p></span></p>
<p class="MsoNormal" style="mso-line-height-alt:10.45pt;background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222"><o:p> </o:p></span></p>
<p class="MsoNormal" style="mso-line-height-alt:10.45pt;background:white"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222">Please contact </span><a href="mailto:dena.winchester@icahn.mssm.edu" target="_blank"><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#1155CC">dena.winchester@icahn.mssm.edu</span></a><span style="font-size:14.0pt;font-family:"Arial",sans-serif;color:#222222"> with
any questions or to participate in this study.<o:p></o:p></span></p>
<p class="MsoNormal"><o:p> </o:p></p>
<p class="MsoNormal"><span style="font-size:14.0pt;font-family:"Arial",sans-serif"><o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size:12.0pt">Lou Ann Blake, J.D.<o:p></o:p></span></p>
<p class="MsoNormal">Director of Research Programs, Blindness Initiatives<o:p></o:p></p>
<p class="MsoNormal"><span style="font-size:12.0pt">200 East Wells Street, Baltimore, MD 21230<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size:12.0pt">(410) 659-9314, extension 2221 |
<a href="mailto:lblake@nfb.org">lblake@nfb.org</a><o:p></o:p></span></p>
<p class="MsoNormal"><o:p> </o:p></p>
<p class="MsoNormal"><o:p> </o:p></p>
<p class="MsoNormal"><a href="https://nfb.org/"><span style="text-decoration:none"><img border="0" width="210" height="76" style="width:2.1875in;height:.7916in" id="_x0000_i1028" src="https://nfb.org/images/nfb/images/email/2/nfblogo.png" alt="National Federation of the Blind"></span></a><o:p></o:p></p>
<p class="MsoNormal"><o:p> </o:p></p>
<p class="MsoNormal"> <a href="http://www.facebook.com/nationalfederationoftheblind">
<span style="text-decoration:none"><img border="0" width="24" height="24" style="width:.25in;height:.25in" id="_x0000_i1027" src="https://nfb.org/images/nfb/images/email/2/facebook.png" alt="Facebook"></span></a> <a href="https://twitter.com/NFB_Voice"><span style="text-decoration:none"><img border="0" width="24" height="24" style="width:.25in;height:.25in" id="_x0000_i1026" src="https://nfb.org/images/nfb/images/email/2/twitter.png" alt="Twitter"></span></a> <a href="https://www.youtube.com/NationsBlind"><span style="text-decoration:none"><img border="0" width="24" height="24" style="width:.25in;height:.25in" id="_x0000_i1025" src="https://nfb.org/images/nfb/images/email/2/youtube.png" alt="Youtube"></span></a><o:p></o:p></p>
<p class="MsoNormal"><o:p> </o:p></p>
<p class="MsoNormal"><span style="font-size:12.0pt">The National Federation of the Blind is a community of members and friends who believe in the hopes and dreams of the nation’s blind. Every day we work together to help blind people live the lives they want.
<o:p></o:p></span></p>
<p class="MsoNormal"><o:p> </o:p></p>
<p class="MsoNormal"><o:p> </o:p></p>
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