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<p class="MsoNormal"><span style="font-size:14.0pt">The below research participant solicitation is being provided for informational purposes only. The National Federation of the Blind has no involvement in this research, but we believe that it may contribute
to our research mission.<o:p></o:p></span></p>
<p class="MsoNormal" style="margin-bottom:6.0pt"><span style="font-size:12.0pt;color:black"><o:p></o:p></span></p>
<p class="MsoNormal" style="margin-bottom:6.0pt"><span style="font-size:12.0pt;color:black">We invite you to participate in a study at Columbia University that explores issues of trust in a type of medical research called “precision medicine research.” This
</span><span style="font-size:12.0pt;color:black">looks at a person’s <span style="letter-spacing:.1pt">
genetics</span>,<span style="letter-spacing:.1pt"> </span>e<span style="letter-spacing:-.05pt">n</span><span style="letter-spacing:-.1pt">v</span><span style="letter-spacing:-.05pt">i</span><span style="letter-spacing:.05pt">r</span>o<span style="letter-spacing:-.05pt">n</span><span style="letter-spacing:.05pt">m</span>e<span style="letter-spacing:-.05pt">nt</span>,<span style="letter-spacing:.1pt">
</span>a<span style="letter-spacing:-.05pt">n</span>d<span style="letter-spacing:-.1pt">
</span><span style="letter-spacing:-.05pt">l</span><span style="letter-spacing:-.15pt">i</span><span style="letter-spacing:.15pt">f</span>est<span style="letter-spacing:-.1pt">y</span><span style="letter-spacing:-.05pt">l</span>e. It can help physicians improve
prevention and diagnosis of diseases and develop new treatments. </span><span style="font-size:12.0pt;color:black"><o:p></o:p></span></p>
<p class="MsoNormal" style="margin-bottom:6.0pt"><span style="font-size:12.0pt;color:black">You are invited because you are:<o:p></o:p></span></p>
<ul style="margin-top:0in" type="disc">
<li class="MsoListParagraphCxSpFirst" style="color:black;margin-bottom:6.0pt;margin-left:2.65pt;mso-add-space:auto;line-height:normal;mso-list:l0 level1 lfo1">
<span lang="EN" style="font-size:12.0pt;font-family:"Calibri",sans-serif">A deaf or hard of hearing adult<o:p></o:p></span></li><li class="MsoListParagraphCxSpMiddle" style="color:black;margin-bottom:6.0pt;margin-left:2.65pt;mso-add-space:auto;line-height:normal;mso-list:l0 level1 lfo1">
<span lang="EN" style="font-size:12.0pt;font-family:"Calibri",sans-serif">A blind or low vision adult<o:p></o:p></span></li><li class="MsoListParagraphCxSpLast" style="color:black;margin-bottom:6.0pt;margin-left:2.65pt;mso-add-space:auto;line-height:normal;mso-list:l0 level1 lfo1">
<span lang="EN" style="font-size:12.0pt;font-family:"Calibri",sans-serif">An adult with a mobility disability<o:p></o:p></span></li></ul>
<p class="MsoNormal" style="mso-margin-top-alt:0in;margin-right:0in;margin-bottom:6.0pt;margin-left:2.65pt">
<a name="_Hlk95996905"><span style="font-size:12.0pt;color:black">Your views are valuable to us</span></a><span style="font-size:12.0pt;color:black">.</span><span style="font-size:12.0pt;color:black">
</span><span style="font-size:12.0pt;color:black"><o:p></o:p></span></p>
<p class="MsoNormal" style="mso-margin-top-alt:0in;margin-right:0in;margin-bottom:6.0pt;margin-left:2.65pt">
<span style="font-size:12.0pt;color:black">If you agree, you will be asked to join a 2-hour online focus group to share your thoughts about precision medicine. You do NOT need to have prior knowledge about precision medicine research to participate in this
study. <o:p></o:p></span></p>
<p class="MsoNormal" style="margin-bottom:6.0pt"><a name="_Hlk95996864"><span style="font-size:12.0pt;color:black">The study will help us understand what deaf or hard of hearing adults, blind or low vision adults and adults with mobility disabilities think
about how precision medicine researchers and research institutions can be more responsive to the needs of persons with disabilities.
<o:p></o:p></span></a></p>
<span style="mso-bookmark:_Hlk95996864"></span>
<p class="MsoNormal" style="margin-bottom:6.0pt"><span style="font-size:12.0pt;color:black">The focus group will be conducted using the online app
<i>Zoom</i>. It will be available in English, Spanish, and American Sign Language. CART Captioning will be available, as needed. You choose the language that works best for you. Focus group dates and times will be scheduled soon.<o:p></o:p></span></p>
<p class="MsoNormal" style="margin-bottom:6.0pt"><span style="font-size:12.0pt;color:black">You are offered a $50 gift card for participating in our focus group.<o:p></o:p></span></p>
<p class="MsoNormal" style="margin-bottom:6.0pt"><span style="font-size:12.0pt;color:black">If you are interested, please contact Research Assistant, Madeleine Gibbons-Shapiro, at
</span><a href="mailto:msg2217@cumc.columbia.edu"><span style="font-size:12.0pt">msg2217@cumc.columbia.edu</span></a><span style="font-size:12.0pt;color:black">. You will be asked to complete a short online survey about your background and
</span><span style="font-size:12.0pt;color:black">convenient times for participation.
</span><span style="font-size:12.0pt;color:black">If you need any accommodations, please let us know.<b>
<o:p></o:p></b></span></p>
<p class="MsoNormal" style="margin-bottom:6.0pt"><span style="font-size:12.0pt;color:black">If you have any questions, please contact the Principal Investigator, Dr. Maya Sabatello, at
</span><a href="mailto:ms4075@cumc.columbia.edu"><span style="font-size:12.0pt">ms4075@cumc.columbia.edu</span></a><span style="font-size:12.0pt;color:black">.
</span><span style="font-size:12.0pt;color:black"><o:p></o:p></span></p>
<p class="MsoNormal" style="margin-bottom:6.0pt"><span style="font-size:12.0pt;color:black">Thank you in advance for your help.<o:p></o:p></span></p>
<p class="MsoNormal" style="margin-bottom:6.0pt"><span style="font-size:12.0pt;font-family:"Times New Roman",serif;color:black"><o:p></o:p></span></p>
<p class="MsoNormal" style="margin-bottom:6.0pt"><span style="font-size:12.0pt;font-family:"Calibri Light",sans-serif;color:black">Sincerely,<o:p></o:p></span></p>
<p class="MsoNormal" style="margin-bottom:6.0pt"><span style="font-size:12.0pt;font-family:"Calibri Light",sans-serif;color:black"><o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size:12.0pt;font-family:"Calibri Light",sans-serif;color:black">Maya Sabatello, LLB, PhD<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size:12.0pt;font-family:"Calibri Light",sans-serif;color:black">Associate Professor of Medical Sciences
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size:12.0pt;font-family:"Calibri Light",sans-serif;color:black">Co-Director, Precision Medicine: Ethics, Politics, and Culture Project<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size:12.0pt;font-family:"Calibri Light",sans-serif;color:black">Department of Medicine and Department of Medical Humanities & Ethics<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size:12.0pt;font-family:"Calibri Light",sans-serif;color:black">Columbia University
<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size:14.0pt;font-family:"Arial",sans-serif"><o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size:14.0pt;font-family:"Arial",sans-serif"><o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size:12.0pt">Lou Ann Blake, J.D.</span><span style="font-size:12.0pt"><o:p></o:p></span></p>
<p class="MsoNormal">Director of Research Programs, Blindness Initiatives<o:p></o:p></p>
<p class="MsoNormal"><span style="font-size:12.0pt">200 East Wells Street, Baltimore, MD 21230<o:p></o:p></span></p>
<p class="MsoNormal"><span style="font-size:12.0pt">410-659-9314, extension 2221 |
<a href="mailto:lblake@nfb.org"><span style="color:windowtext">lblake@nfb.org</span></a>
<o:p></o:p></span></p>
<p class="MsoNormal"><o:p> </o:p></p>
<p class="MsoNormal"><span style="color:#1F497D"><o:p> </o:p></span></p>
<p class="MsoNormal"><a href="https://nfb.org/"><span style="color:#0563C1;text-decoration:none"><img border="0" width="210" height="76" style="width:2.1875in;height:.7916in" id="_x0000_i1028" src="https://nfb.org/images/nfb/images/email/2/nfblogo.png" alt="National Federation of the Blind"></span></a><span style="color:#1F497D"><o:p></o:p></span></p>
<p class="MsoNormal"><span style="color:#1F497D"><o:p> </o:p></span></p>
<p class="MsoNormal"><span style="color:#1F497D"> </span>
<a href="http://www.facebook.com/nationalfederationoftheblind"><span style="color:#0563C1;text-decoration:none"><img border="0" width="24" height="24" style="width:.25in;height:.25in" id="_x0000_i1027" src="https://nfb.org/images/nfb/images/email/2/facebook.png" alt="Facebook"></span></a><span style="color:#1F497D"> </span><a href="https://twitter.com/NFB_Voice"><span style="color:#0563C1;text-decoration:none"><img border="0" width="24" height="24" style="width:.25in;height:.25in" id="_x0000_i1026" src="https://nfb.org/images/nfb/images/email/2/twitter.png" alt="Twitter"></span></a><span style="color:#1F497D"> </span><a href="https://www.youtube.com/NationsBlind"><span style="color:#0563C1;text-decoration:none"><img border="0" width="24" height="24" style="width:.25in;height:.25in" id="_x0000_i1025" src="https://nfb.org/images/nfb/images/email/2/youtube.png" alt="Youtube"></span></a><span style="color:#1F497D"><o:p></o:p></span></p>
<p class="MsoNormal"><span style="color:#1F497D"><o:p> </o:p></span></p>
<p class="MsoNormal"><span style="font-size:12.0pt">The National Federation of the Blind is a community of members and friends who believe in the hopes and dreams of the nation’s blind. Every day we work together to help blind people live the lives they want.
<o:p></o:p></span></p>
<p class="MsoNormal"><o:p> </o:p></p>
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