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<blockquote type=cite class=cite cite=""> <br><br>
Digital Mental Health Tracking Services: Perspectives of Blind
Users<br><br>
<br><br>
Name of Institution<br><br>
University of Illinois Urbana-Champaign<br><br>
<br><br>
Purpose of the Study<br><br>
The purpose of this study is to explore the use of digital mental health
(DMH) tracking services, such as Headspace and Daylio, among the blind
community. We aim to gain insights into the usage patterns and
preferences of these services within the blind community so that we can
create informed design recommendations for more inclusive and useful
digital mental health tracking experiences, potentially benefiting other
underrepresented communities. Participation involves completing an online
survey (uncompensated) and an optional follow-up interview, which will be
compensated with a $20 Amazon e-gift card. This study seeks to contribute
valuable knowledge on the impact of DMH tracking services from the blind
community’s perspective, which has been historically lacking and needed
in the development of digital mental health tracking services that are
beneficial and usable to all.<br><br>
<br><br>
Proposed Alignment with NFB Research Mission <br><br>
Our research aligns with the National Federation of the Blind’s mission
by promoting innovative research concerning blindness and enhancing the
independence, self-respect, and self-determination of blind individuals
in managing their mental health. By exploring the use of digital mental
health tracking services and information retrieval practices among the
blind community, this study addresses quality of life issues within
digital mental health tracking services and investigates how these
existing platforms can be more inclusive for the blind. The findings will
contribute to better understanding and improving usage patterns within
digital mental health tracking services, and nonvisual accessibility in
mental health services, ultimately supporting the NFB’s goals of
fostering greater independence and inclusion for blind
individuals.<br><br>
<br><br>
Inclusion Criteria<br><br>
Participants are required to; 1) Be physically located in the United
States of America; 2) Be at least 18 years of age; and 3) Identify as
being legally blind.<br><br>
<br><br>
Role of the Participants and Anticipated Length of the Study <br><br>
Participants will compete in an online survey hosted on the Qualtrics
platform. This survey will take approximately 10 to 20 minutes to
complete. At the end of the survey, participants can indicate their
interest in being contacted for an optional, paid follow-up interview
that will last approximately 30 to 45 minutes and be scheduled one week
after they have completed the survey. Completion of the entire interview
will result in the participant receiving a $20 Amazon e-gift card as a
token of our appreciation.<br><br>
<br><br>
Proposed Participant Compensation<br><br>
Yes, Completion of the entire interview will result in the participant
receiving a $20 Amazon e-gift card.<br><br>
<br><br>
Institutional Review Board (IRB) or other Ethics Group Approval<br><br>
Yes, the study has been approved by an IRB at my university.<br><br>
Link or Instructions for Participants to Enter the Study <br><br>
How Are Digital Mental Health (DMH) Tracking Services Used by Blind
Users? We Want to Hear from You!<br><br>
We are a team of researchers, and we want to learn more about how
individuals who are blind are using digital mental health (DMH) tracking
services. If you identify as blind, we would like to hear about your
perspectives on these tools! Your participation will contribute valuable
knowledge in understanding the impact of DMH services on the blind
community and help improve these tools for better accessibility and
effectiveness.<br><br>
To be eligible to participate, you must:<br><br>
- Be 18 years of age or older.<br><br>
- Identify as legally blind <br><br>
- Be currently physically located in the U.S.<br><br>
Participation involves completing an online survey (which you can find at
https://illinois.qualtrics.com/jfe/form/SV_dhBNENtI6AKhJqe) asking about
your perspectives on and experiences with DMH tracking services and your
thoughts on accessibility and mental health support. The survey should
take between 10 and 20 minutes to complete. At the end of the survey, you
will be asked if you would like to complete an optional, paid follow-up
interview to further discuss your experiences with DMH tracking services.
This interview will last between 30 to 45 minutes, and completion of the
entire interview will result in the participant receiving a $20 Amazon
e-gift card as a token of our appreciation. <br><br>
If you have any questions, please feel free to reach out to
mkhan259@illinois.edu or jseo1005@illinois.edu.<br><br>
Thank you for your time and interest!<br><br>
<br><br>
IRB Number: IRB24-1062<br><br>
IRB Approval Date: 08/05/2024<br><br>
<br><br>
Researcher Contact Information<br><br>
Omar Khan<br><br>
(224) 423-8717<br><br>
mkhan259@illinois.edu<br><br>
<br><br>
Principal Investigator (PI) or Study Leader Contact Information<br><br>
JooYoung Seo<br><br>
(217) 333-2671<br><br>
jseo1005@illinois.edu<br><br>
<br><br>
Who Should Participants Contact? <br><br>
Omar Khan<br><br>
(224) 423-8717<br><br>
<a href="mailto:mkhan259@illinois.edu">mkhan259@illinois.edu</a>
<br><br>
<br><br>
Jenivieve White<br>
Program Specialist<br>
National Federation of the Blind<br>
200 East Wells Street, Baltimore, MD 21230<br>
410-659-9314, extension 2236 |
<a href="mailto:jwhite@nfb.org">jwhite@nfb.org</a><br><br>
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The National Federation of the Blind is a community of members and
friends who believe in the hopes and dreams of the nation’s blind. Every
day we work together to help blind people live the lives they
want.<br><br>
<br><br>
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