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</o:shapelayout></xml><![endif]--></head><body lang=EN-US link="#467886" vlink="#96607D" style='word-wrap:break-word'><div class=WordSection1><p class=MsoNormal><span style='font-size:11.0pt;font-family:"Calibri",sans-serif'>We have been asked to circulate this again – as they are still looking for participants.<o:p></o:p></span></p><p class=MsoNormal><span style='font-size:11.0pt;font-family:"Calibri",sans-serif'><o:p> </o:p></span></p><p class=MsoNormal><span style='font-size:11.0pt;font-family:"Calibri",sans-serif'>Dave<o:p></o:p></span></p><p class=MsoNormal><span style='font-size:11.0pt;font-family:"Calibri",sans-serif'><o:p> </o:p></span></p><p class=MsoNormal align=center style='margin-bottom:6.0pt;text-align:center'><b><u><span style='font-family:"Times New Roman",serif;color:black'>Invitation Email</span></u></b><b><u><span style='font-family:"Times New Roman",serif;color:black;mso-ligatures:none'><o:p></o:p></span></u></b></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'>DATE<o:p></o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'>SUBJECT: Invitation to participate in an online survey study at Columbia University – Dr. Maya Sabatello<o:p></o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><b><span style='font-family:"Times New Roman",serif;color:black;background:yellow;mso-highlight:yellow'><o:p> </o:p></span></b></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'>We invite you to participate in an online survey at Columbia University that explores views on inclusion of people with disabilities in a type of health research called “Precision Medicine Research.” Precision Medicine Research </span><span style='font-family:"Times New Roman",serif;color:black'>looks at a person’s <span style='letter-spacing:.1pt'>genetics</span>,<span style='letter-spacing:.1pt'> </span>e<span style='letter-spacing:-.05pt'>n</span><span style='letter-spacing:-.1pt'>v</span><span style='letter-spacing:-.05pt'>i</span><span style='letter-spacing:.05pt'>r</span>o<span style='letter-spacing:-.05pt'>n</span><span style='letter-spacing:.05pt'>m</span>e<span style='letter-spacing:-.05pt'>nt</span>,<span style='letter-spacing:.1pt'> </span>a<span style='letter-spacing:-.05pt'>n</span>d<span style='letter-spacing:-.1pt'> </span><span style='letter-spacing:-.05pt'>l</span><span style='letter-spacing:-.15pt'>i</span><span style='letter-spacing:.15pt'>f</span>est<span style='letter-spacing:-.1pt'>y</span><span style='letter-spacing:-.05pt'>l</span>e. Knowledge from this type of research can help physicians improve prevention and diagnosis of diseases and develop new treatments. </span><span style='font-family:"Times New Roman",serif;color:black'><o:p></o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'>Our study is funded by the <span style='background:white'>National Institutes of Health.</span></span><span lang=EN style='font-family:"Times New Roman",serif;color:black'><o:p></o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'>You are invited to participate in this study because you live in the United States and are:<o:p></o:p></span></p><ul style='margin-top:0in' type=disc><li class=MsoListParagraphCxSpFirst style='color:black;margin-bottom:6.0pt;margin-left:2.65pt;mso-add-space:auto;line-height:normal;mso-list:l0 level1 lfo1'><span lang=EN style='font-size:12.0pt;font-family:"Times New Roman",serif'>A deaf adult<o:p></o:p></span></li><li class=MsoListParagraphCxSpMiddle style='color:black;margin-bottom:6.0pt;margin-left:2.65pt;mso-add-space:auto;line-height:normal;mso-list:l0 level1 lfo1'><span lang=EN style='font-size:12.0pt;font-family:"Times New Roman",serif'>A hard of hearing adult<o:p></o:p></span></li><li class=MsoListParagraphCxSpMiddle style='color:black;margin-bottom:6.0pt;margin-left:2.65pt;mso-add-space:auto;line-height:normal;mso-list:l0 level1 lfo1'><span lang=EN style='font-size:12.0pt;font-family:"Times New Roman",serif'>A blind or low vision adult<o:p></o:p></span></li><li class=MsoListParagraphCxSpLast style='color:black;margin-bottom:6.0pt;margin-left:2.65pt;mso-add-space:auto;line-height:normal;mso-list:l0 level1 lfo1'><span lang=EN style='font-size:12.0pt;font-family:"Times New Roman",serif'>An adult with a mobility disability<o:p></o:p></span></li></ul><p class=MsoNormal style='mso-margin-top-alt:0in;margin-right:0in;margin-bottom:6.0pt;margin-left:2.65pt'><a name="_Hlk95996905"><span style='font-family:"Times New Roman",serif;color:black'>Your views are valuable to us</span></a><span style='font-family:"Times New Roman",serif;color:black'>.</span><span style='font-family:"Times New Roman",serif;color:black'> </span><span style='font-family:"Times New Roman",serif;color:black'><o:p></o:p></span></p><p class=MsoNormal style='mso-margin-top-alt:0in;margin-right:0in;margin-bottom:6.0pt;margin-left:2.65pt'><span style='font-family:"Times New Roman",serif;color:black'>If you agree, we will ask you questions about your views on health research, especially Precision Medicine Research. You will also be asked to provide some background information about you (e.g., your race, ethnicity, etc.). You do NOT need to have prior knowledge about Precision Medicine Research to participate in this study. <o:p></o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><a name="_Hlk95996864"><span style='font-family:"Times New Roman",serif;color:black'>It will take up to about 45 minutes to complete the survey. <o:p></o:p></span></a></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='mso-bookmark:_Hlk95996864'><span style='font-family:"Times New Roman",serif;color:black'>The survey will be conducted online (see link below). You can complete the survey on a tablet, computer or smartphone. </span></span><span style='mso-bookmark:_Hlk95996864'><span style='font-family:"Times New Roman",serif'>You can ask another person to help you to complete the study. </span></span><span style='mso-bookmark:_Hlk95996864'><span style='font-family:"Times New Roman",serif;color:black'>We can also schedule a one-on-one Zoom meeting to support survey completion. If you need any disability accommodations, please let us know. <o:p></o:p></span></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='mso-bookmark:_Hlk95996864'><span style='font-family:"Times New Roman",serif;color:black'>Please note, the survey is currently in English. It will soon be available also in Spanish and ASL. If you prefer to complete the survey in Spanish or ASL, let us know by clicking on the link below. We will let you know when these languages are available.<o:p></o:p></span></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='mso-bookmark:_Hlk95996864'><span style='font-family:"Times New Roman",serif;color:black'>If we have questions about your survey responses, we will reach out to you to discuss.<o:p></o:p></span></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='mso-bookmark:_Hlk95996864'><span style='font-family:"Times New Roman",serif;color:black'>Only the research team will have access to your responses. In the future, we may share data from this study with other researchers. We will NOT share your identifying information with anyone outside of the research team.<o:p></o:p></span></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='mso-bookmark:_Hlk95996864'><span style='font-family:"Times New Roman",serif;color:black'>The study will help us understand how Precision Medicine Researchers and research institutions can create health research studies that include, and are respectful of, people with disabilities. </span></span><span style='mso-bookmark:_Hlk95996864'><span lang=EN style='font-family:"Times New Roman",serif;color:black'><o:p></o:p></span></span></p><span style='mso-bookmark:_Hlk95996864'></span><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'>You are offered a $30 gift card for completing our online study.<o:p></o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><a href="https://survey.alchemer.com/s3/8102215/Links-to-3-Versions-of-the-Trust-Study-National-Survey"><b><span style='font-family:"Times New Roman",serif'>Click here to participate in our study</span></b></a><b><span style='font-family:"Times New Roman",serif;color:black'><o:p></o:p></span></b></p><p class=MsoNormal style='margin-bottom:6.0pt'><span class=MsoHyperlink><o:p><span style='text-decoration:none'> </span></o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span class=MsoHyperlink><span style='font-family:"Times New Roman",serif'><o:p><span style='text-decoration:none'> </span></o:p></span></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'>If you have any questions, please contact the lead researcher, Dr. Maya Sabatello, at </span><a href="mailto:trust-study@cumc.columbia.edu"><span style='font-family:"Times New Roman",serif'>trust-study@cumc.columbia.edu</span></a><span style='font-family:"Times New Roman",serif;color:black'>. </span><b><span style='color:#70AD47'><o:p></o:p></span></b></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'><o:p> </o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'>Thank you in advance for your help.<o:p></o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'> <o:p></o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'>Sincerely,<o:p></o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'>Maya Sabatello, LLB, PhD<o:p></o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'>Associate Professor of Medical Sciences <o:p></o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'>Co-Director, Precision Medicine: Ethics, Politics, and Culture Project<o:p></o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'>Department of Medicine and Department of Medical Humanities & Ethics<o:p></o:p></span></p><p class=MsoNormal style='margin-bottom:6.0pt'><span style='font-family:"Times New Roman",serif;color:black'>Columbia University <o:p></o:p></span></p><p class=MsoNormal><span style='font-size:11.0pt;font-family:"Calibri",sans-serif'><o:p> </o:p></span></p></div></body></html>