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<DIV>Greetings to all!</DIV>
<DIV>Please review the reforwarded email message received from Pamela
Gaston, NJ CBVI.</DIV>
<DIV>I didforward a few days ago however, there was no wording in the
body.</DIV>
<DIV>Please share with others.</DIV>
<DIV>Joe </DIV>
<DIV> </DIV>
<DIV>---</DIV>
<DIV> </DIV>
<DIV>
<DIV
style='FONT-SIZE: small; TEXT-DECORATION: none; FONT-FAMILY: "Calibri";
FONT-WEIGHT: normal; COLOR: #000000; FONT-STYLE: normal; DISPLAY:
inline'><B>Subject:</B>
Hospital Visitation Policies Exclude Caregivers of People with Disabilities
& What We're Doing To Change It</DIV>
<DIV> </DIV></DIV>
<DIV
style='FONT-SIZE: small; TEXT-DECORATION: none; FONT-FAMILY: "Calibri";
FONT-WEIGHT: normal; COLOR: #000000; FONT-STYLE: normal; DISPLAY: inline'>
<DIV
style="FONT-SIZE: 12pt; FONT-FAMILY: calibri,arial,helvetica,sans-serif;
COLOR: rgb(0,0,0)">
<DIV
style="FONT-SIZE: 14px; FONT-FAMILY: arial, verdana, helvetica, sans-serif;
COLOR: rgb(45,44,46); MARGIN: 0px; BACKGROUND-COLOR: rgb(211,231,237)"><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(30,30,30); MARGIN: 0px">In a letter sent
over
the weekend to<SPAN> </SPAN></SPAN><SPAN
style="FONT-SIZE: 16px; FONT-WEIGHT: bold; COLOR: rgb(30,30,30); MARGIN:
0px">Judith
M. Persichilli, Commissioner of<SPAN> </SPAN></SPAN><A
style="FONT-SIZE: 16px; FONT-WEIGHT: bold; COLOR: rgb(30,30,30); MARGIN:
0px"
href="https://urldefense.com/v3/__http://r20.rs6.net/tn.jsp?f=001IBzfJBzrBjaxutkB-N0vGKfiEGdjC7SAL9gdN0f5JV1EXdQS5vSkopieaN5MPFr4-dXYep34HoCWIFn4PHpgQq_LiKhyjNT2jM5hmMOX-6YskX2sEF_xzCxjAxp6kQEH6tMHpKJjbbGIUWR3iNP9XQ==&c=RU-BNz_8pkgw3HA_QSG0P-ITbmFUbqf9AwXat_VgsXEiLlyhQkpzoA==&ch=Q3avqwaP4Wls1axbSWZ4FEZ_tEJ6pyMvi61tQ21Ur0AfLfpopRb_RQ==__;!!A_zLiUo7uN0!Uh2s8SBTjnDaQwVkGRz3r5T8n7ur8Uh3uBFFNzzQSYhMrjsmCMK7omaKjym1vYKT-yoH3G__Eg$"
rel="noopener noreferrer" target=_blank>New Jersey Department of
Health</A><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(30,30,30); MARGIN: 0px">, and
including<SPAN> </SPAN></SPAN><SPAN
style="FONT-SIZE: 16px; FONT-WEIGHT: bold; COLOR: rgb(30,30,30); MARGIN:
0px">Governor
Phil Murphy,</SPAN><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(30,30,30); MARGIN:
0px"><SPAN> </SPAN></SPAN><A
style="FONT-SIZE: 16px; FONT-WEIGHT: normal; COLOR: rgb(30,30,30);
FONT-STYLE: italic; MARGIN: 0px"
href="https://urldefense.com/v3/__http://r20.rs6.net/tn.jsp?f=001IBzfJBzrBjaxutkB-N0vGKfiEGdjC7SAL9gdN0f5JV1EXdQS5vSkovCzB0XdOtzXi-AnMHZWfy7bN8KKoEYQfcBphzr3QSriO8qqg46yz9UAVuhOMLupf88CEib8UW8MktmC2pi2Sx60KbnPEoNm6A==&c=RU-BNz_8pkgw3HA_QSG0P-ITbmFUbqf9AwXat_VgsXEiLlyhQkpzoA==&ch=Q3avqwaP4Wls1axbSWZ4FEZ_tEJ6pyMvi61tQ21Ur0AfLfpopRb_RQ==__;!!A_zLiUo7uN0!Uh2s8SBTjnDaQwVkGRz3r5T8n7ur8Uh3uBFFNzzQSYhMrjsmCMK7omaKjym1vYKT-yoYsZU5gw$"
rel="noopener noreferrer" target=_blank>Disability Rights New
Jersey</A><SPAN
style="FONT-SIZE: 16px; FONT-WEIGHT: normal; COLOR: rgb(30,30,30); MARGIN:
0px"><SPAN> </SPAN></SPAN><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(30,30,30); MARGIN: 0px">addressed the
concerns of individuals with disabilities, and their families,
where<SPAN> </SPAN><SPAN style="MARGIN: 0px">hospital</SPAN>ization is
necessary during the COVID-19 crisis.</SPAN></DIV>
<DIV
style="FONT-SIZE: 14px; FONT-FAMILY: arial, verdana, helvetica, sans-serif;
COLOR: rgb(45,44,46); MARGIN: 0px; BACKGROUND-COLOR: rgb(211,231,237)"><FONT
color=#000000 size=3 face=Calibri></FONT> </DIV>
<DIV
style="FONT-SIZE: 14px; FONT-FAMILY: arial, verdana, helvetica, sans-serif;
COLOR: rgb(45,44,46); MARGIN: 0px; BACKGROUND-COLOR: rgb(211,231,237)"><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(30,30,30); MARGIN: 0px">In many cases, it
is
critical for a support person such as a family member/loved one, guardian,
DSP,
PCA to accompany individuals with disabilities
during<SPAN> </SPAN><SPAN
style="MARGIN: 0px">hospital</SPAN>ization, due to communication or
behavioral
limitations. Under the<SPAN> </SPAN></SPAN><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(30,30,30); FONT-STYLE: italic; MARGIN:
0px">Americans
with Disabilities Act (ADA), Section 504 of the Rehabilitation
Act</SPAN><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(30,30,30); MARGIN: 0px">,
and<SPAN> </SPAN></SPAN><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(30,30,30); FONT-STYLE: italic; MARGIN:
0px">Section
1557 of the Affordable Care Act (ACA)</SPAN><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(30,30,30); MARGIN: 0px">, it is their
civil
right to have reasonable accommodations, including a support person, even
during
a pandemic.</SPAN><SPAN
style="FONT-SIZE: 16px; COLOR: black; MARGIN: 0px"> </SPAN></DIV>
<DIV
style="FONT-SIZE: 14px; FONT-FAMILY: arial, verdana, helvetica, sans-serif;
COLOR: rgb(45,44,46); MARGIN: 0px; BACKGROUND-COLOR: rgb(211,231,237)"><FONT
color=#000000 size=3 face=Calibri></FONT> </DIV>
<DIV
style="FONT-SIZE: 14px; FONT-FAMILY: arial, verdana, helvetica, sans-serif;
COLOR: rgb(45,44,46); MARGIN: 0px; BACKGROUND-COLOR: rgb(211,231,237)"><SPAN
style="FONT-SIZE: 16px; FONT-WEIGHT: bold; COLOR: rgb(29,53,103); MARGIN:
0px"><SPAN
style="MARGIN: 0px">Hospital</SPAN>s across the state of New Jersey,
however,
are each developing their own visitation policies, and in some
cases</SPAN><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(29,53,103); MARGIN:
0px">,<SPAN> </SPAN></SPAN><SPAN
style="FONT-SIZE: 16px; FONT-WEIGHT: bold; COLOR: rgb(29,53,103); MARGIN:
0px">excluding
guardians and caregivers of people with disabilities from participation in
their
care</SPAN><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(29,53,103); MARGIN:
0px"><SPAN> </SPAN></SPAN><SPAN
style="FONT-SIZE: 16px; FONT-WEIGHT: bold; COLOR: rgb(29,53,103); MARGIN:
0px">in
order to mitigate the spread of the virus</SPAN><SPAN
style="FONT-SIZE: 16px; FONT-WEIGHT: bold; COLOR: rgb(41,75,147); MARGIN:
0px">.</SPAN></DIV>
<DIV
style="FONT-SIZE: 14px; FONT-FAMILY: arial, verdana, helvetica, sans-serif;
COLOR: rgb(45,44,46); MARGIN: 0px; BACKGROUND-COLOR: rgb(211,231,237)"><FONT
color=#000000 size=3 face=Calibri></FONT> </DIV>
<DIV
style="FONT-SIZE: 14px; FONT-FAMILY: arial, verdana, helvetica, sans-serif;
COLOR: rgb(45,44,46); MARGIN: 0px; BACKGROUND-COLOR: rgb(211,231,237)"><SPAN
style="FONT-SIZE: 16px; FONT-WEIGHT: bold; COLOR: rgb(30,30,30); MARGIN:
0px">Executive
Director, Gwen Orlowski,</SPAN><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(30,30,30); MARGIN:
0px"><SPAN> </SPAN>of<SPAN> </SPAN></SPAN><SPAN
style="FONT-SIZE: 16px; FONT-WEIGHT: normal; COLOR: rgb(30,30,30);
FONT-STYLE: italic; MARGIN: 0px">Disability
Rights New Jersey,</SPAN><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(30,30,30); MARGIN:
0px"><SPAN> </SPAN>proposed
that New Jersey immediately issue a directive stating
that<SPAN> </SPAN><SPAN
style="MARGIN: 0px">hospital</SPAN><SPAN> </SPAN>visitation policies
barring visitors include an exception for patients with disabilities who
need
assistance due to the specifics of their disability. To ease the burden on
the
designated support person, she recommended an allowance of two support
persons,
with only one present at a time, during<SPAN> </SPAN><SPAN
style="MARGIN: 0px">hospital</SPAN>ization.</SPAN></DIV>
<DIV
style="FONT-SIZE: 14px; FONT-FAMILY: arial, verdana, helvetica, sans-serif;
COLOR: rgb(45,44,46); MARGIN: 0px; BACKGROUND-COLOR: rgb(211,231,237)"><FONT
color=#000000 size=3 face=Calibri></FONT> </DIV>
<DIV
style="FONT-SIZE: 14px; FONT-FAMILY: arial, verdana, helvetica, sans-serif;
COLOR: rgb(45,44,46); MARGIN: 0px; BACKGROUND-COLOR: rgb(211,231,237)"><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(30,30,30); FONT-STYLE: italic; MARGIN:
0px">Disability
Rights New Jersey</SPAN><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(30,30,30); MARGIN:
0px"><SPAN> </SPAN>looks
forward to timely and specific guidance from the Commissioner that
reinforces
the rights of people with disabilities in a<SPAN> </SPAN><SPAN
style="MARGIN: 0px">hospital</SPAN></SPAN><SPAN
style="FONT-SIZE: 16px; COLOR: rgb(30,30,30); MARGIN:
0px"><SPAN> </SPAN>You
can read the full letter to the Department of Health, by clicking the image
above.</SPAN></DIV>
<DIV> </DIV></DIV>
<DIV
style="FONT-SIZE: 12pt; FONT-FAMILY: calibri,arial,helvetica,sans-serif;
COLOR: rgb(0,0,0)">April
11, 2020 </DIV>
<DIV
style="FONT-SIZE: 12pt; FONT-FAMILY: calibri,arial,helvetica,sans-serif;
COLOR: rgb(0,0,0)">Commissioner
Judith Persichilli</DIV>
<DIV
style="FONT-SIZE: 12pt; FONT-FAMILY: calibri,arial,helvetica,sans-serif;
COLOR: rgb(0,0,0)">New
Jersey Department of Health </DIV>
<DIV
style="FONT-SIZE: 12pt; FONT-FAMILY: calibri,arial,helvetica,sans-serif;
COLOR: rgb(0,0,0)">369
South Warren Street </DIV>
<DIV
style="FONT-SIZE: 12pt; FONT-FAMILY: calibri,arial,helvetica,sans-serif;
COLOR: rgb(0,0,0)">Trenton,
New Jersey 08608 </DIV>
<DIV
style="FONT-SIZE: 12pt; FONT-FAMILY: calibri,arial,helvetica,sans-serif;
COLOR: rgb(0,0,0)">Via
scanned email to Judith.Persichilli@doh.nj.gov </DIV>
<DIV
style="FONT-SIZE: 12pt; FONT-FAMILY: calibri,arial,helvetica,sans-serif;
COLOR: rgb(0,0,0)">Re:
Hospital Visitation Policies for Individuals with Disabilities</DIV>
<DIV
style="FONT-SIZE: 12pt; FONT-FAMILY: calibri,arial,helvetica,sans-serif;
COLOR: rgb(0,0,0)"> </DIV>
<DIV
style="FONT-SIZE: 12pt; FONT-FAMILY: calibri,arial,helvetica,sans-serif;
COLOR: rgb(0,0,0)">Dear
Commissioner Persichilli: I write on behalf of Disability Rights New Jersey
(DRNJ), the state designated protection and advocacy agency. DRNJ urges the
Department of Health to adopt a statewide policy on hospital visitors during
the
COVID-19 emergency that includes exceptions for people with disabilities who
may
require a support person to stay with them during emergency room visits and
hospitalizations. At the present time, New Jersey hospitals each are
developing
their own visitor policies, and in some cases, those policies exclude
guardians
and caregivers of people with disabilities from participation in their care.
Individuals with disabilities who need communication or behavioral supports
in
hospital situations retain their rights to reasonable accommodations under
federal law, including the Americans with Disabilities Act (ADA), Section
504 of
the Rehabilitation Act, and Section 1557 of the Affordable Care Act (ACA),
even
in a pandemic. To assist the Department, DRNJ reviewed several polices from
various states and hospitals. We propose that New Jersey immediately issue a
directive stating that hospital visitation policies barring visitors must
include an exception with language similar to the following: Patients with
disabilities who need assistance due to the specifics of their disability
may
have one designated support person with them. This could include specific
needs
due to altered mental status, intellectual or cognitive disability,
communication barriers or behavioral concerns. If a patient with a
disability
requires an accommodation that involves the presence of a family member,
personal care assistant or similar disability service provider,
knowledgeable
about the management of their care, to physically or emotionally assist them
during their hospitalization, this will be allowed with proper precautions
taken
to contain the spread of infection. (See Rush University Medical Center
policy
found at
https://www.rush.edu/patientsvisitors/covid-19-resources/rush-coronavirus-covid-19-patient-and-visitor-updates)
To ease the burden on the designated support person, we recommend that the
policy allow the individual with disabilities to designate two support
people
but allow only one support person to be present at a time, consistent with
the
New York State Policy which can be found at
https://opwdd.ny.gov/system/files/documents/2020/04/doh_covid19_hospitalvisitation_4.10.
20.pdf. Disability Rights New Jersey is appreciative of the tireless work of
the
Department of Health, as well as all state agencies in this emergency –
thank
you. Please do not hesitate to contact me at gorlowski@drnj.org or (609)
292-9742 if you have questions regarding this matter or would like
additional
information. Thank you for your attention to this matter. </DIV>
<DIV
style="FONT-SIZE: 12pt; FONT-FAMILY: calibri,arial,helvetica,sans-serif;
COLOR: rgb(0,0,0)">Sincerely,
</DIV>
<DIV
style="FONT-SIZE: 12pt; FONT-FAMILY: calibri,arial,helvetica,sans-serif;
COLOR: rgb(0,0,0)">/s/
Gwen Orlowski Gwen Orlowski Executive Director<BR></DIV>
<DIV>
<DIV
style="FONT-SIZE: 12pt; FONT-FAMILY: calibri,arial,helvetica,sans-serif;
COLOR: rgb(0,0,0)"> </DIV>
<DIV id=Signature>
<DIV
style="FONT-SIZE: 12pt; FONT-FAMILY: calibri,arial,helvetica,sans-serif;
COLOR: rgb(0,0,0)"> </DIV></DIV></DIV>
<DIV id=appendonsend></DIV>
<HR tabIndex=-1 style="WIDTH: 98%; DISPLAY: inline-block">
<DIV id=divRplyFwdMsg dir=ltr><FONT style="FONT-SIZE: 11pt" color=#000000
face="Calibri, sans-serif"><B>From:</B> joe ruffalo
<nfbnj1@verizon.net><BR><B>Sent:</B> Tuesday, April 14, 2020 2:52
PM<BR><B>To:</B> Pamela Gaston <Pamela.Gaston@dhs.nj.gov>; joe ruffalo
<nfbnj1@verizon.net><BR><B>Cc:</B> Zoraida Krell
<krellbz@gmail.com>; ken lawrence
<kenlawrence124@aol.com><BR><B>Subject:</B> Please ResendFw: Hospital
Visitation Policies Exclude Caregivers of People with Disabilities &
What
We're Doing To Change It</FONT>
<DIV> </DIV></DIV>
<DIV dir=ltr>
<DIV dir=ltr>
<DIV style="FONT-SIZE: 12pt; FONT-FAMILY: 'Calibri'; COLOR: #000000">
<DIV> Greetings Pamela!</DIV>
<DIV>If you still have, please resend.</DIV>
<DIV>For some reason, when I forwarded the body was missing, only had the
head
and feet! GRIN!</DIV>
<DIV> </DIV>
<DIV>Joe </DIV>
<DIV> </DIV>
<DIV>---- </DIV>
<DIV>
<DIV
style='FONT-SIZE: small; TEXT-DECORATION: none; FONT-FAMILY: "Calibri";
FONT-WEIGHT: normal; COLOR: #000000; FONT-STYLE: normal; DISPLAY:
inline'><B>:</B>
<A title=nfbnj1@verizon.net href="mailto:nfbnj1@verizon.net">joe ruffalo</A>
</DIV>
<DIV style="FONT: 10pt tahoma">
<DIV style="BACKGROUND: #f5f5f5">
<DIV><B>Sent:</B> Monday, April 13, 2020 9:09 PM</DIV>
<DIV><B>To:</B> <A title=nfbnj@nfbnet.org href="mailto:nfbnj@nfbnet.org">joe
ruffalo via NFBNJ</A> </DIV>
<DIV><B>Subject:</B> Hospital Visitation Policies Exclude Caregivers of
People
with Disabilities & What We're Doing To Change It</DIV></DIV></DIV>
<DIV> </DIV></DIV>
<DIV
style='FONT-SIZE: small; TEXT-DECORATION: none; FONT-FAMILY: "Calibri";
FONT-WEIGHT: normal; COLOR: #000000; FONT-STYLE: normal; DISPLAY: inline'>
<DIV dir=ltr>
<DIV style="FONT-SIZE: 12pt; FONT-FAMILY: 'Calibri'; COLOR: #000000">
<DIV>Greetings to all!</DIV>
<DIV>Received from Pamela Gaston, NJ CBVI.</DIV>
<DIV>Please read an share.</DIV>
<DIV> </DIV>
<DIV>Warmly,</DIV>
<DIV>Joe </DIV>
<DIV> </DIV>
<DIV>---</DIV>
<DIV> </DIV>
<DIV style="FONT-SIZE: 12pt; FONT-FAMILY: 'Calibri'; COLOR: #000000">
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