[NFBofSC] FW: [Nfbnet-members-list] Blind and low-vision adults needed for research study on chronic pain management

Mon Nov 22 22:24:21 UTC 2021

Steve Cook

District 2 State Board Member of the National Federation of the Blind of SC

President of the Columbia chapter of the National Federation of the Blind of SC

President of the Computer Science & Technology Division of the National Federation of the Blind of SC

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From: NFBNet-Members-List <nfbnet-members-list-bounces at nfbnet.org> On Behalf Of Blake, Lou Ann via NFBNet-Members-List
Sent: Monday, November 22, 2021 11:37 AM
To: 'nfbnet-members-list at nfbnet.org' <nfbnet-members-list at nfbnet.org>
Subject: [Nfbnet-members-list] Blind and low-vision adults needed for research study on chronic pain management

The below research participant solicitation is being provided for informational purposes only. The National Federation of the Blind has no involvement in this research.

Dear NFB members,

We are happy to share with you this important international study about pain that concerns our community: the study Let’s Make Pain Visible (or MAPAVI). The MAPAVI study has been developed by a multidisciplinary group of researchers, healthcare professionals, and individuals with different blind-related conditions. It is led by Dr. Jordi Miró, Professor of Health Psychology at the University Rovira-i-Virgili (Tarragona, Spain) and Director of the Chair in Pediatric Pain. This study has been reviewed by the research advisory council of the National Federation of the Blind, and approved for participation in by NFB members. 

A little bit of background: Research has shown that blind or low-vision individuals are more sensitive to pain, and are more vigilant to painful stimuli. Research has also shown that hypersensitivity and hypervigilance are risk factors for chronic pain. Even so, there is very little specific research on the problems caused by chronic pain in people with visual problems, and much less on the most appropriate treatments, or on the development of treatments, for the needs of our community.

A little bit about the objectives: The MAPAVI project aims to find data that will enable the following questions to be solved: 1) What are the most common pain problems?, and 2) What treatment needs do blind or low-vision individuals have? The objective is to develop better treatments, including those supported by mobile applications, that can improve the quality of life of individuals with visual disabilities who also suffer from pain problems. 

A little bit of your time: If you are interested in participating in the study, please follow the link provided below. You will find a set of questions for you to answer. It will take you about 5 minutes. 

SURVEY LINK:   <http://app.dolorinfantil.urv.cat/survey/index.php/574375?lang=en> http://app.dolorinfantil.urv.cat/survey/index.php/574375?lang=en

If you have any questions, you may address them to the principal investigator of the study, Dr. Jordi Miró ( <mailto:jordi.miro at urv.cat> jordi.miro at urv.cat), or get in touch with any of the researchers involved in the project at the following address: mapavi at urv.cat <mailto:mapavi at urv.cat> . 

We thank you for your help and interest in this project. 

Cheers, 

Dr. Jordi Miró, Professor of Health Psychology at the University Rovira-i-Virgili (Tarragona, Spain)

 <mailto:jordi.miro at urv.cat> jordi.miro at urv.cat

Lou Ann Blake, J.D.

Director of Research Programs, Blindness Initiatives

200 East Wells Street, Baltimore, MD 21230

(410) 659-9314, extension 2221 | lblake at nfb.org <mailto:lblake at nfb.org>  

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