[nfbwatlk] Research participation request

Mike Freeman k7uij at panix.com
Fri Jun 3 01:16:27 UTC 2011 

Whom would you picket and too what end?

Mike Freeman
sent from my iPhone


On Jun 2, 2011, at 17:10, "Gloria Whipple" <ladygloria at webband.com> wrote:

> Sounds like a great plan.
> 
> 
> Gloria Whipple
> Corresponding Secretary
> Inland Empire chapter
> nfb of WA
> 
> Cell: 509-475-4993
> 
> 
> -----Original Message-----
> From: nfbwatlk-bounces at nfbnet.org [mailto:nfbwatlk-bounces at nfbnet.org] On
> Behalf Of Kay Burrows
> Sent: Thursday, June 02, 2011 16:56
> To: 'NFB of Washington Talk Mailing List'
> Subject: Re: [nfbwatlk] Research participation request
> 
> 
> WOW I GOTTA TAKE A LOOK AT THIS QUESTIONAIRE.  MAYBE I SHOULD GO OUT AND BUY
> SOME PICKETING SIGNS SO WE CAN HAVE AN OLD FASHIONED DEMONSTRATION.
> 
> KB
> 
> 
> -----ORIGINAL MESSAGE-----
> FROM: NFBWATLK-BOUNCES at NFBNET.ORG [MAILTO:NFBWATLK-BOUNCES at NFBNET.ORG] ON
> BEHALF OF FRYE, DANIEL
> SENT: THURSDAY, JUNE 02, 2011 9:40 AM
> TO: NFB OF WASHINGTON TALK MAILING LIST
> CC: SERVATY at PURDUE.EDU; ALLY.MATT0 at GMAIL.COM; MRICCOBONO at NFB.ORG
> SUBJECT: RE: [NFBWATLK] RESEARCH PARTICIPATION REQUEST
> 
> ALLYSON:
> 
> AS PROMISED, AND DESPITE MY INITIAL RESERVATIONS ABOUT THE EUPHEMISM FOR
> BLINDNESS THAT YOU EMPLOY IN YOUR STUDY, I HAVE COMPLETED THIS SURVEY. I
> MUST CONFIDE THAT I HAVE NEVER PARTICIPATED IN SUCH A PATRONIZING, BIASED,
> AND PRESUMPTUOUS QUESTIONNAIRE IN MY LIFE. I AM CONFIDENT, ALLYSON, THAT YOU
> HAVE EMBARKED UPON YOUR ACADEMIC CAREER WITH THE INTENTION OF POSITIVELY
> INFLUENCING THE WORLD IN WHICH YOU AND OTHERS LIVE, BUT I NEED YOU TO
> UNDERSTAND THAT THE JUDGMENTS INHERENT IN THE QUESTIONS YOU ASKED ABOUT
> BLINDNESS REFLECT AN ATTITUDE ABOUT THE ABSENCE OF VISION THAT, NO MATTER
> WHAT YOU DO, AND UNLESS THE QUESTIONS ARE SUBSTANTIALLY CHANGED, WILL CAUSE
> THE BLIND COMMUNITY CONSIDERABLE HARM.
> 
> THE QUESTIONS IN YOUR SURVEY ARE CLEARLY THE PRODUCT OF A SOCIAL
> CONDITIONING THAT HAS TAUGHT YOU AND OTHERS TO ANTICIPATE THAT BLIND PEOPLE
> FEEL AWFUL ABOUT NOT SEEING. TO BE SURE, SOME BLIND PEOPLE (PARTICULARLY THE
> NEWLY BLIND) GRIEVE WHEN THEY LOSE VISION, BUT IN GENERAL BLINDNESS IS NOT
> PERCEIVED BY MOST WHO ARE BLIND AS A TRAGEDY. MOST WELL-ADJUSTED BLIND
> PEOPLE WILL ACKNOWLEDGE THAT CERTAIN ASPECTS OF BLINDNESS ARE INCONVENIENT,
> BUT FEW OF US WOULD SUBSCRIBE TO THE DEPRESSING ASSUMPTIONS THAT ARE
> SUGGESTED BY THE QUESTIONS IN THIS SURVEY. I DON'T KNOW WHAT YOUR STUDY
> ENDEAVORS TO ACHIEVE, BUT EVEN THE MOST POSITIVE ANSWERS TO A SURVEY WITH
> SUCH LEADING QUESTIONS, PROMISES ONLY TO AFFIRM THE LOWEST EXPECTATIONS FOR
> ADJUSTMENT TO BLINDNESS AND WILL GIVE CREDENCE TO BELIEFS THAT MANY OF US
> HOPED WERE LONG GONE. ONE STEREOTYPE STRONGLY SUGGESTED BY THIS SURVEY IS
> THAT A SUBSTANTIAL CORRELATION BETWEEN BLINDNESS AND RELIANCE ON RELIGION AS
> A COPING MECHANISM MAY EXIST. I CANNOT TELL YOU HOW TROUBLESOME THIS
> ASSUMPTION IS ON SO MANY LEVELS.
> 
> I URGE YOUR ADVISOR TO EVALUATE FURTHER THE HARMFUL NATURE OF THESE SURVEY
> QUESTIONS FOR SCIENTIFIC EFFICACY, ACADEMIC INTEGRITY, AND COMPLIANCE WITH
> ETHICAL STANDARDS TO AVOID DOING SIGNIFICANT HARM TO THE STUDY PARTICIPANTS
> IN YOUR SURVEY. I WORRY THAT SOME PEOPLE WHO VOLUNTARILY PARTICIPATE IN THIS
> SURVEY WILL BUY INTO THE NEGATIVE ASSUMPTIONS THAT YOUR QUESTIONS SUGGEST
> ARE INHERENT IN BLINDNESS. AT A MINIMUM, THIS SURVEY NEEDS TO BE MODIFIED TO
> NARROW THE POTENTIAL TARGET OF BLIND PEOPLE YOU WANT TO HEAR FROM, SINCE
> MANY OF YOUR QUESTIONS SUGGEST THAT BLINDNESS IS A NEW EXPERIENCE. EQUALLY
> IMPORTANT IS THE NEED TO REVISE THE QUESTIONS TO TAKE INTO ACCOUNT THE
> DIVERSITY OF VISUAL ACUITY THAT EXISTS BY INCLUDING A NOT APPLICABLE OPTION
> FOR MANY OF THE QUESTIONS THAT PRESUME THE EXISTENCE OF SOME SIGHT.
> 
> AT PRESENT, THE ONLY REASON I CAN THINK OF WANTING TO TAKE DRUGS AND ALCOHOL
> AS A COPING MECHANISM IS TO FORGET THE QUESTIONS IN THIS STUDY AND NOT TO
> COPE WITH THE HELL THAT THIS SURVEY PRESUMES BLINDNESS MUST BE. IF IT WOULD
> BE USEFUL, I'D BE PLEASED TO REVIEW THE QUESTIONS WITH YOU IN DETAIL TO HELP
> YOU IDENTIFY THE SPECIFICS OF MY CONCERN. THIS OFFER IS ABOUT AS
> CONSTRUCTIVE AS I CAN OFFER TO BE WITH RESPECT TO THIS SURVEY AT THIS STAGE.
> IN THE ABSENCE OF A COMMENT FORM IN YOUR SURVEY, I THOUGHT THE FOREGOING
> SHOULD BE CONSIDERED.
> 
> 
> DANIEL B. FRYE, J.D.
> MANAGEMENT AND PROGRAM SPECIALIST 
> RANDOLPH-SHEPPARD PROGRAMS
> U.S. DEPARTMENT OF EDUCATION 
> OFFICE OF SPECIAL EDUCATION 
> AND REHABILITATIVE SERVICES 
> REHABILITATION SERVICES ADMINISTRATION 
> 550 12TH STREET, SW, ROOM 5023 
> WASHINGTON, DC  20202-2800 
> (202) 245-7308 OFFICE 
> (202) 245-7591 FAX
> (410) 241-7006 MOBILE
> DANIEL.FRYE at ED.GOV
> 
> 
> 
> -----ORIGINAL MESSAGE-----
> FROM: NFBWATLK-BOUNCES at NFBNET.ORG [MAILTO:NFBWATLK-BOUNCES at NFBNET.ORG] ON
> BEHALF OF ALLY MATT
> SENT: WEDNESDAY, JUNE 01, 2011 3:43 PM
> TO: NFBWATLK at NFBNET.ORG
> SUBJECT: [NFBWATLK] RESEARCH PARTICIPATION REQUEST
> 
> HELLO,
> 
> DEAR LISTSERV MEMBER,
> 
> 
> 
>            I AM A DOCTORAL STUDENT AT PURDUE UNIVERSITY, AND I AM WORKING
> ON MY DOCTORAL DISSERTATION PROJECT UNDER THE DIRECTION OF MY ADVISOR, DR.
> HEATHER L. SERVATY-SEIB (SERVATY at PURDUE.EDU). MY STUDY IS FOCUSED ON
> GATHERING INFORMATION FROM PEOPLE WHO HAVE EXPERIENCED A VISION-RELATED
> DISABILITY AND WHO ARE BETWEEN THE AGES OF 18 AND 64 YEARS OF AGE. I HOPE TO
> GATHER INFORMATION ABOUT THE WAYS PEOPLE WITH VISION-RELATED DISABILITIES
> COPE WITH THEIR DISABILITY AND HOW THESE METHODS OF COPING MAY RELATE TO
> PEOPLE'S ABILITY TO PERFORM BASIC DAILY ACTIVITIES, SENSE OF OVERALL
> SATISFACTION WITH THEIR LIFE, AND INTERACTION WITH THE BROADER COMMUNITY.   
> 
> 
> 
>            FOR THE PURPOSES OF THIS STUDY, I AM LOOKING FOR PEOPLE WHO HAVE
> EXPERIENCED A VISION-RELATED DISABILITY. THIS MEANS THAT YOU HAVE A
> VISION-RELATED DISABILITY THAT SUBSTANTIALLY LIMITS ONE OR MORE MAJOR LIFE
> ACTIVITIES INCLUDING CARING FOR YOURSELF, PERFORMING MANUAL TASKS, SEEING,
> LEARNING, READING, OR WORKING, THAT THERE IS A RECORD OF YOUR VISION-RELATED
> DISABILITY, OR OTHER PEOPLE PERCEIVE YOU AS HAVING A VISION-RELATED
> DISABILITY.
> 
> 
> 
>            IF YOU WOULD LIKE TO PARTICIPATE IN THIS IMPORTANT WORK, PLEASE
> CLICK ON THE LINK BELOW OR PASTE THE LINK INTO YOUR WEB BROWSER TO BE TAKEN
> TO THE SURVEY. THE SURVEY WILL ONLY TAKE 20-30 MINUTES OF YOUR TIME, AND YOU
> WILL HAVE THE OPPORTUNITY TO ENTER A DRAWING FOR A $25 AUDIBLE.COM GIFT CARD
> WITH 1 IN 100 ODDS. 
> 
> 
> 
> SURVEY LINK
> 
> <HTTPS://WWW.SURVEYMONKEY.COM/S/VISION-RELATED-DISABILITY-SURVEY>
> HTTPS://WWW.SURVEYMONKEY.COM/S/VISION-RELATED-DISABILITY-SURVEY
> 
> 
> 
> THANK YOU FOR CONSIDERING PARTICIPATING IN THIS STUDY.
> 
> ALLYSON MATT
> 
> DOCTORAL STUDENT, COUNSELING PSYCHOLOGY
> 
> PURDUE UNIVERSITY
> 
> ALLY.MATT0 at GMAIL.COM     
> 
> 
> 
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