[nfbwatlk] FW: [Nfbnet-master-list] Fwd: Vanda Sleep Study

Mike Freeman k7uij at panix.com
Sun Oct 2 14:52:51 CDT 2011


No question about it! And yet some blind persons have a heck of a time
getting the good doctors to give them real sleep lab test for sleep apnea
rather than going ape over the possibility that said blind persons might
have circadian rhythm problems. Fortunately, I was not one of those. The lab
made no fuss at all about my blindness. By contrast, I gather Nadine
Jacobson had problems that her husband Steve suspected were due to sleep
apnea. He had to really make a noise to get the doctors to give Nadine a
sleep apnea test as opposed to worrying about melatonin levels. Wonder of
wonders, Nadine *did* have sleep apnea.

Mike Freeman


-----Original Message-----
From: nfbwatlk-bounces at nfbnet.org [mailto:nfbwatlk-bounces at nfbnet.org] On
Behalf Of mjc59 at q.com
Sent: Sunday, October 02, 2011 11:08 AM
To: NFB of Washington Talk Mailing List
Subject: Re: [nfbwatlk] FW: [Nfbnet-master-list] Fwd: Vanda Sleep Study


I wonder if many people with sleep problems (sighted or blind) would benefit
from a sleep study to check for sleep apnea. Many people have it and don't
know it.

Marci
----- Original Message -----
From: "Mike Freeman" <k7uij at panix.com>
To: "NFB of Washington Talk Mailing List" <nfbwatlk at nfbnet.org>
Sent: Sunday, October 2, 2011 6:51:07 AM
Subject: Re: [nfbwatlk] FW: [Nfbnet-master-list] Fwd: Vanda Sleep Study

Guess they've never heard of "Health At Any Size"!

Mike


-----Original Message-----
From: nfbwatlk-bounces at nfbnet.org [mailto:nfbwatlk-bounces at nfbnet.org] On
Behalf Of Lauren Merryfield
Sent: Saturday, October 01, 2011 11:03 PM
To: NFB of Washington Talk Mailing List
Subject: Re: [nfbwatlk] FW: [Nfbnet-master-list] Fwd: Vanda Sleep Study

Hi,
Ditto!  I not only have sleep apnea, but whatever they call that disorder of

sleep related to the sleep cycle being unregulated because of no light.  I
am a terrible night-owl and luckily I work from noon-8pm which helps some.

They contacted me about the sleep study and I would have done it but I am
too plus-sized for their study, which upsets me!
Thanks
Lauren
advice from my cats: "meow when you feel like it."
"There are two means of refuge from the miseries of life: music and cats." ~
Albert Schweitzer My new book, "there's more than one way to love a cat," is
available at amazon.com Visit us at catliness.com
----- Original Message -----
From: "debby phillips" <semisweetdebby at gmail.com>
To: "NFB of Washington Talk Mailing List" <nfbwatlk at nfbnet.org>
Sent: Saturday, October 01, 2011 4:53 PM
Subject: Re: [nfbwatlk] FW: [Nfbnet-master-list] Fwd: Vanda Sleep Study


> Gosh Mike, I wish it was that simple.  I've had trouble sleeping since 
> I was a small child.  I've had trouble when I was doing aerobics every 
> day, and trouble when I wasn't.  I've tried sleeping pills, and not 
> had sleeping pills.  I've tried not taking naps during the day, and 
> fallen asleep at my desk at work.  What if life just isn't as simple 
> as you think?  What if blindness does affect this part of life for some
people?
> I've been so miserable due to lack of sleep that I wanted to die.  So 
> if this research proves that melatonin levels are affected by lack of 
> light perception and they can come up with some medicine that could 
> help people have normal sleep patterns, then I say yea!  Maybe finally 
> some of us will

> actually be able to sleep through the night.  But if it turns out that 
> the

> researchers are right, then it will be a myth buster.  See, blindness 
> can't be "just a nuisance" if it affects something so basic as sleep.  
> I know people who have had to retire from jobs because they couldn't 
> stay awake at work.  That's a little more than a nuisance to me.  But 
> it's okay, in time we'll know the truth.  And maybe, just maybe the truth
will
> set some of us free from feeling dragged out all the time.    Peace, 
> Debby
>
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