[nfbwatlk] FW: [Nfbnet-master-list] Fwd: Vanda Sleep Study

Prows, Bennett (HHS/OCR) Bennett.Prows at HHS.GOV
Mon Oct 3 10:29:15 CDT 2011


Debbie and Listers,

Lack of sleep has plagued me over the years as well.  I am confident however, that it isn't only blind people that suffer from that lack.  Michael Jackson is a famous example.  I've been through about three sleep studies, and was diagnosed with moderate sleep apnea too.  Using a CPAP machine helps me sleep more deeply, but I still wake up several times a night.  For several years, during a particularly stressful time on the job, I slept for a couple of hours, woke up and couldn't go back to sleep.  It was hard during the day.  Now at least, I do fall back to sleep.  I do see light, (though it seems dimmer the older I get) (grin), so I'm not certain what is causing the problem now.  

Oh, well, it's an interesting topic anyway, and I'll wait for more list responses here and other places.  But, I can't afford to lose any sleep over it.  (smile.)


-----Original Message-----
From: nfbwatlk-bounces at nfbnet.org [mailto:nfbwatlk-bounces at nfbnet.org] On Behalf Of debby phillips
Sent: Saturday, October 01, 2011 4:53 PM
To: NFB of Washington Talk Mailing List
Subject: Re: [nfbwatlk] FW: [Nfbnet-master-list] Fwd: Vanda Sleep Study

Gosh Mike, I wish it was that simple.  I've had trouble sleeping 
since I was a small child.  I've had trouble when I was doing 
aerobics every day, and trouble when I wasn't.  I've tried 
sleeping pills, and not had sleeping pills.  I've tried not 
taking naps during the day, and fallen asleep at my desk at work.  
What if life just isn't as simple as you think?  What if 
blindness does affect this part of life for some people?  I've 
been so miserable due to lack of sleep that I wanted to die.  So 
if this research proves that melatonin levels are affected by 
lack of light perception and they can come up with some medicine 
that could help people have normal sleep patterns, then I say 
yea!  Maybe finally some of us will actually be able to sleep 
through the night.  But if it turns out that the researchers are 
right, then it will be a myth buster.  See, blindness can't be 
"just a nuisance" if it affects something so basic as sleep.  I 
know people who have had to retire from jobs because they 
couldn't stay awake at work.  That's a little more than a 
nuisance to me.  But it's okay, in time we'll know the truth.  
And maybe, just maybe the truth will set some of us free from 
feeling dragged out all the time.    Peace,    Debby

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