<html class="apple-mail-supports-explicit-dark-mode"><head><meta http-equiv="content-type" content="text/html; charset=utf-8"></head><body dir="auto"><div>Hey everyone, I hope all is well and you\u2019re all doing all right. It was really nice seeing you guys in the chapter meeting. Here is a link to my YouTube channel, if anyone is interested in checking it out. There are some big things coming pretty soon \U0001f389 and for anyone who has any video suggestions or questions for me regarding things I\u2019ve reviewed or things you want me to review feel free to leave a comment on one of my videos or message me privately. Thank you all for the love and support and for following me along my journey. Here\u2019s the link below.</div><div><br></div><div>https://youtube.com/@theblindstriker?si=_sOQ2KMXlvk19lDk</div><div dir="ltr">Scott Joffre Visual Aid Product Tester<div>Phone 6036300870</div><div>Email scottyjoffre@gmail.com</div></div><div dir="ltr"><br><blockquote type="cite">On Dec 13, 2025, at 12:04\u202fPM, Dolllady1 via NHLakesChapter <nhlakeschapter@nfbnet.org> wrote:<br><br></blockquote></div><blockquote type="cite"><div dir="ltr">\ufeff<meta http-equiv="content-type" content="text/html; charset=utf-8">Thank you Andrew. <div>Merry Christmas\U0001f332</div><div><br id="lineBreakAtBeginningOfSignature"><div dir="ltr">Sent from my iPad</div><div dir="ltr"><br><blockquote type="cite">On Dec 13, 2025, at 11:33\u202fAM, Andrew via NHLakesChapter <nhlakeschapter@nfbnet.org> wrote:<br><br></blockquote></div><blockquote type="cite"><div dir="ltr">\ufeff<meta http-equiv="Content-Type" content="text/html; charset=us-ascii"><meta name="Generator" content="Microsoft Word 15 (filtered medium)"><style>@font-face { font-family: "Cambria Math"; }
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div.WordSection1 { page: WordSection1; }</style><div class="WordSection1"><p class="MsoNormal"><span style="font-size:11.0pt">Here\u2019s the text from Randy\u2019s facebook post:<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt"><o:p> </o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">Good Saturday morning, everyone. This is a longer life update.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">After a week here at Mass General Hospital, they will be discharging me later today to head home with Tracy and an aggressive outpatient follow-up plan.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">Unfortunately, we have not yet resolved my situation, but we have learned a considerable amount and have established a clear outpatient strategy to continue<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">that work and carefully coordinate how and when to advance treatments in ways that can truly be meaningful and effective.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">Candidly, this is a mixed bag of news.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">Let me start with three significant positives.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">First, my sleep continues to be pretty solid, with every expectation that this will continue and bring long-term, increasing benefits across every aspect<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">of my life.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">Second, we have seemingly minimized or mitigated the migraine challenges to the point that I may return to the infrequent level I experienced before this<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">condition began. We will see how that holds up as I transition back home, but there is a reasonably high degree of confidence on this front.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">Finally, and perhaps most positively, there is a deep comfort in being able to return home. I am really looking forward to being there with Tracy, Swirl,<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">and Nama.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">All of those genuinely good and hopeful points aside, there are still some significant concerns.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">I can expect frequent episodes of syncope, meaning I may become lightheaded and potentially black out multiple times a day, even with minimal exertion.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">The good news is that this tends to present as a sliding scale, giving me warning to get to a safe place and reduce activity before things escalate. Even<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">so, this makes traveling anywhere difficult, including navigating within my own home.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">In addition, my vestibular system is not functioning well. This means I can become vertiginous and sufficiently off balance to fall erratically and dangerously,<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">often with little to no warning. This is a very significant risk, especially as a 6\u20194\u201d, blind guy. While this is not occurring at the extreme level of<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">the days when I was asked to remain in a wheelchair full time, it is happening often enough that I must be exceedingly cautious. This will have a meaningful<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">impact until we are able to address it more fully.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">As test results continue to come in and studies are completed, the plan will become clearer. In the meantime, the team has asked for a short window of<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">patience while we pursue an aggressive outpatient approach. This will involve frequent trips into Boston. Tracy and I will be evaluating how I travel and<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">navigate, and for now that will likely mean using a travel wheelchair outside the home, simply because we cannot yet ensure my safety with walking alone.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">This does not mean I should expect to be relegated to a wheelchair long term. It does mean that, for the short term and outside my home, this is the safest<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">choice. I am conflicted about it, but I am also resolved. Safety matters, and I want to make the right decisions, even when they are uncomfortable.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">Appointments are already lining up, including as early as the coming week, which is pretty remarkable.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">Am I nervous and concerned? Absolutely.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">Do I still have the same level of hope and optimism as when we first began this journey here at Mass General? Yes, I honestly do.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">This is a complex situation, and it is not surprising that it takes time. The team is being deliberate and precise, focused on finding the root cause rather<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">than simply applying a temporary fix that might mask the real issue and allow it to worsen.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">I suspect many of you may have questions. To be candid, I have plenty myself, and I am still doing a lot of processing. I ask for a bit of grace and patience<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">right now. You are welcome to ask, but I likely will not be putting effort into answering questions just yet, as I continue to sort through my own understanding<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">and mindset. Perhaps starting next week we can dig into that more.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">What I do know, without question, is how incredibly kind, supportive, and encouraging so many of you have been. Please trust me when I say I appreciate<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">it more than most of you will ever know.<o:p></o:p></span></p><p class="MsoNormal"><span style="font-size:11.0pt">I expect to head home mid to late afternoon today, and I will likely be radio silent until Monday.<o:p></o:p></span></p></div><span>_______________________________________________</span><br><span>NHLakesChapter mailing list</span><br><span>NHLakesChapter@nfbnet.org</span><br><span>http://nfbnet.org/mailman/listinfo/nhlakeschapter_nfbnet.org</span><br><span>To unsubscribe, change your list options or get your account info for NHLakesChapter:</span><br><span>http://nfbnet.org/mailman/options/nhlakeschapter_nfbnet.org/dolllady1%40ne.rr.com</span><br></div></blockquote></div><span>_______________________________________________</span><br><span>NHLakesChapter mailing list</span><br><span>NHLakesChapter@nfbnet.org</span><br><span>http://nfbnet.org/mailman/listinfo/nhlakeschapter_nfbnet.org</span><br><span>To unsubscribe, change your list options or get your account info for NHLakesChapter:</span><br><span>http://nfbnet.org/mailman/options/nhlakeschapter_nfbnet.org/scottyjoffre%40gmail.com</span><br></div></blockquote></body></html>